Calendar of Events
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1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
1 event,
The Power of Our Voice: MSU Pain Study
The Power of Our Voice: MSU Pain Study
Join for a retrospective look at how a community call to action led to a seminal study on pain in Myositis and what it means for the community, with Drs Salman Bhai and Abhiram Bhashyam, co-authors of Pain profile and opioid medication use in myositis.
1 event,
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
0 events,
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
2 events,
#MyositisLIFE: Men with Myositis Clubhouse Support Room
#MyositisLIFE: Men with Myositis Clubhouse Support Room
A safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
#MyositisLIFE: Women with Myositis Zoom Support
#MyositisLIFE: Women with Myositis Zoom Support
Women living with any type of myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
0 events,
0 events,
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
1 event,
#MyositisLIFE: Parenting with Myositis
#MyositisLIFE: Parenting with Myositis
Join us quarterly for a session to discuss and share experiences about Parenting with Myositis. We understand your kids may be living a much different life than their peers, and that you are living a different life than other parents. This session is all about parenting with myositis.
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
1 event,
#MyositisLIFE: Young Adults with Myositis Zoom Group
#MyositisLIFE: Young Adults with Myositis Zoom Group
Join us for virtual support just for Young Adults living with Myositis on the second Monday of each month at 7 PM ET / 4 PM PT. Must be at least 18 to join, and the session is for people with myositis between the ages of 18 and 40.
0 events,
1 event,
#MyositisLIFE: DM, PM and ASyS Patient Video Support
#MyositisLIFE: DM, PM and ASyS Patient Video Support
If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
1 event,
#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
1 event,
LGBTQIA+ Myositis Support on Clubhouse
LGBTQIA+ Myositis Support on Clubhouse
A safe space on Clubhouse for those who identify as LGBTQIA+ and are living with any type of myositis. MSU's president, Jerry Williams, is a gay man who has wanted this group for some time. Join him and Jessica Taylor in this loving space.
0 events,
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
1 event,
#MyositisLIFE: IBM Patient Video Support
#MyositisLIFE: IBM Patient Video Support
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
1 event,
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
0 events,
0 events,
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
0 events,
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