All we have to decide is what to do with the time that is given to us

“All we have to decide is what to do with the time that is given to us.”

by Guest Author, Victoria S.

I wasn’t expecting to be dealing with an autoimmune disease, let alone at 27 years old, but these are the cards I was dealt and I’m trying to let this disease be a chapter in my book and not the book itself.

My journey with polymyositis began two years ago when I first noticed that I needed help getting out of bed and help getting up from chairs. I figured that my muscle weakness and fatigue were due to lack of a workout regimen so I ignored my gradually worsening symptoms for 5 months until I had fallen at home and couldn’t get up. Lucky, I was diagnosed correctly by my family practitioner and started treatment and physical therapy right away.

When I was first diagnosed, I sought out others who were suffering from the same disease as me and found a few personal blogs but most of these people had stopped posting or had simply disappeared. I, then, began to turn my own personal blog into a diary on my journey with this disease. I imagine that I can’t be the only one out there searching for others and I want to be that person they’ll find and take solace in.

I’m trying to let this disease be a chapter in my book and not the book itself.

I live by a quote that was written in a J.R.R. Tolkien novel:

“I wish the ring had never come to me. I wish none of this had happened.”

“So do all who live to see such times. But that is not for them to decide. All we have to decide is what to do with the time that is given to us.”

I see this quote as saying that although this disease may be something I can not change, I can change how I choose to look at it and live with it. Today, I’m choosing to live life to the fullest and to continue living this way for as long as I can. I hope my fellow myositis suffers will choose to live life in this way as well.

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