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A Day of Remembrance

May 26 @ 2:00 pm - 3:00 pm EDT

2nd Annual A Day of Remembrance

2nd Annual ``A Day of Remembrance``

Honoring and Remembering those we have lost

Join us for our second annual “A Day of Remembrance” as we honor and remember those we have lost to myositis.

This live streaming YouTube event is in participation with sponsors committed to myositis research, myositis patient care, and to the work we do on behalf of the myositis community.

In previous years, MSU has asked the community to observe a moment of silence; this year in addition to a private moment of silence, we are doing more to ensure we never forget those who fought so hard.

While honoring their memory and expressing the sadness of these losses – losses that mean a great deal to our community – we can help others realize the urgent need for continued education at all levels, new and effective therapies, rare disease patients to participate in clinical trials, and better understanding and increased awareness; key in helping to fund nonprofit work and myositis research.

When: Sunday, May 26, 2019, 2PM EDT (1PM Central, 12PM Mountain, 11AM Pacific)

Where: Live Streaming YouTube Video Event on the MSU YouTube page: A little before the start time, visit Youtube.com/understandingmyositisorganization/live

How to Attend: Visit our YouTube Live page a little before the start time of 2 PM EDT on May 26, 2019.

Joining us from outside the U.S?
Use this time converter tool: https://savvytime.com/converter


Include your loved one, In Memory

Share with us the name and photo of a loved one, family member, or friend who lost their life fighting Myositis so we can remember them publicly during this event. Please submit by May 15, 2019, using our online form.


In participation with the following sponsors

We thank the sponsors of this event who are committed to myositis research, myositis patient care, and to the work we do on behalf of the myositis community.
Corbus Pharma

Corbus Pharmaceuticals

Corbus Pharmaceuticals Holdings, Inc. is a Phase 3 clinical-stage pharmaceutical company focused on the development and commercialization of novel therapeutics to treat rare, chronic, and serious inflammatory and fibrotic diseases. The Company’s lead product candidate, lenabasum, is a novel synthetic oral endocannabinoid-mimetic drug designed to resolve chronic inflammation and fibrotic processes. Lenabasum is currently being evaluated in systemic sclerosis, cystic fibrosis, dermatomyositis, and systemic lupus erythematosus.

For more information, please visit www.CorbusPharma.com and connect with the Company on TwitterLinkedInGoogle+ and Facebook.



Orphazyme is a late-stage biopharmaceutical company focused on developing novel treatment options for patients with rare, orphan diseases. Our work is focused on the cell-protective properties of the heat-shock response, a natural defense mechanism in all our cells. Orphazyme’s lead compound, arimoclomol, is being developed as a potential treatment for several protein-misfolding diseases, including sporadic inclusion body myositis (sIBM). A phase 2/3 clinical trial investigating the use of arimoclomol for sIBM is ongoing with results expected in the first half of 2021. Visit Orphazyme at www.orphazyme.com

CSI Pharmacy

CSI Pharmacy

CSI Pharmacy Clinical Specialty Infusions, (CSI Pharmacy) provides home infusion and specialty pharmacy services.

We wish to provide an unequivocally high level of care. Learn more at www.csipharmacy.com

Diplomat Specialty Infusion

Diplomat Specialty Infusion Group

Diplomat Specialty Infusion Group is a national pharmacy and home infusion services provider specializing in the delivery of immune globulin therapy at home. We are the largest independent specialty pharmacy in the country, serving all 50 states. Learn more at www.diplomat.is/specialtyinfusion, or call us at 866.442.4679

Event starts in . . .

2019/05/26 14:00:00


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