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A Day of Remembrance
May 20 @ 2:00 pm - 4:00 pm EDT
Join us for “A Day of Remembrance” as we honor and remember those we have lost to myositis.
This live streaming YouTube event is in participation with sponsors committed to myositis research, myositis patient care, and to the work we do on behalf of the myositis community.
In previous years, MSU has asked the community to observe a moment of silence; this year in addition to a private moment of silence, we are doing more to ensure we never forget those who fought so hard.
While honoring their memory and expressing the sadness of these losses – losses that mean a great deal to our community – we can help others realize the urgent need for continued education at all levels, new and effective therapies, rare disease patients to participate in clinical trials, and better understanding and increased awareness; key in helping to fund nonprofit work and myositis research.
When: Sunday, May 20, 2018, 2PM EDT (1PM Central, 12PM Mountain, 11AM Pacific)
Where: Live Streaming YouTube Video Event on the MSU YouTube page: A little before the start time, visit Youtube.com/understandingmyositisorganization/live
How to Attend: Visit our YouTube Live page a little before the start time of 2 PM EDT on May 20, 2018.
Joining us from outside the U.S?
Use this time converter tool: https://savvytime.com/converter
Share with us the name and photo of a loved one, family member, or friend who lost their life fighting Myositis so we can remember them publicly during this event. Please submit by May 13, 2018, using our online form. (While the timeframe to submit your loved one has passed, please submit anyway and we will try to include them in this video event.)
Corbus Pharmaceuticals Holdings, Inc. is a Phase 3 clinical-stage pharmaceutical company focused on the development and commercialization of novel therapeutics to treat rare, chronic, and serious inflammatory and fibrotic diseases. The Company’s lead product candidate, lenabasum, is a novel synthetic oral endocannabinoid-mimetic drug designed to resolve chronic inflammation and fibrotic processes. Lenabasum is currently being evaluated in systemic sclerosis, cystic fibrosis, dermatomyositis, and systemic lupus erythematosus.
Harnessing the approach of the earliest researchers in immunotherapy and the Company’s vast experience in developing proprietary immunology platforms, one of Idera’s lead development programs is focused on the design of compounds to block the over-activation of toll-like receptors (TLRs) to treat rare inflammatory diseases such as dermatomyositis. Idera continues to invest in research and development, and is committed to working with investigators and partners who share the common goal of addressing the unmet needs of patients suffering from rare, life-threatening diseases. To learn more about Idera, visit www.iderapharma.com.
Diplomat Specialty Infusion Group
Diplomat Specialty Infusion Group is a national pharmacy and home infusion services provider specializing in the delivery of immune globulin therapy at home. We are the largest independent specialty pharmacy in the country, serving all 50 states. Learn more at www.diplomat.is/specialtyinfusion, or call us at 866.442.4679
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Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register