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Myositis Exercises in place session

May 12 @ 5:00 pm - 6:15 pm EDT

Myositis Exercises in Place: Learn safe strategies to exercise at home during a pandemic with the PT/OT team

May is Myositis Awareness Month

Theme: High Fives from the Heart

MSU is celebrating its 5th anniversary as the heart of the myositis community.

Keeping you informed during the COVID-19 pandemic

Register to join us for

Myositis Exercises in Place: Learn safe strategies to exercise at home during a pandemic with the PT/OT team at Johns Hopkins Myositis Center

Submit your at-home exercise questions when you register or email
your question to info@understandingmyositis.org with the subject line of Webinar.

Tuesday, May 12, 2020, at 5:00 PM Eastern Time

Webinar Details

Submit at-home exercise questions at registration or by email to info@understandingmyositis.org with subject line of Webinar.

Join MSU along with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan, for a video session with live Q&A. No matter which type of myositis you have, you will learn safe strategies to exercise in place while we shelter in place. Caregivers are also encouraged to attend!

Topics will include exercise safety, mitigating falls, using breathing techniques to reduce anxiety and stress, breathing exercises for those with interstitial lung disease (ILD), and much more. The team will also answer pre-submitted questions and in-session Q&A.

Submit your at-home exercise questions when you register or email your question to info@understandingmyositis.org with the subject line of Webinar.

About joining this webinar

REGISTRATION IS REQUIRED. Click the Register button above to get started. After registration, you will receive an email containing all information needed to join the webinar at the scheduled time and date.

Be sure to check your spam and junk folders if you do not see the email.

Joining us from the Johns Hopkins Myositis Center

Megan McGowan, Occupational Therapy

Megan McGowan received her M.S. in occupational therapy from Keuka College of Keuka Park, NY in 2012. Megan has been practicing at Johns Hopkins Bayview Medical Center for 5 years. Her clinical focus has been within acute care and within the Johns Hopkins Myositis Clinic. Megan has a clinical specialty in myositis and has been working in the clinic for 4 years. She has presented nationally at The Myositis Association conference and has held an active role in research studies being performed within the Johns Hopkins Myositis Clinic.

Lauren Burgess, Occupational Therapy

Lauren Burgess received her master’s degree in occupational therapy in 2015 at the University of Southern California. At Johns Hopkins Bayview Medical Center she practices in the acute care setting, working with a variety of patient populations. She is also one of two primary occupational therapists for the Johns Hopkins Myositis clinic, where she works collaboratively with other providers to offer a patient-centered, multi-disciplinary approach to care.

Fin Mears, Physical Therapy

Fin Mears received his bachelor’s degree in physical therapy from the University of Maryland, Baltimore in 1990. He has been working at Johns Hopkins Bayview Medical Center since 1990. Initially hired as an acute care therapist, for the past 15 years he has been Clinical Coordinator for Rehabilitative Services and Center Coordinator for Clinical Education. Since 2014 his clinical practice has focused on inflammatory myopathies and dysautonomia. Fin Mears and Ruben Pagkatipunan are the two primary physical therapists for the Johns Hopkins Myositis Center.

Ruben Pagkatipunan Jr., Physical Therapy

Ruben Pagkatipunan Jr. received his bachelor’s degree in physical therapy at the University of Santo Tomas in Manila, Philippines in 1993. In 2016, he obtained his doctorate degree in Physical Therapy at the College of St. Scholastica in Duluth, MN.  Ruben is also a board-certified orthopedic clinical specialist from the American Board of Physical Therapy Specialties since 2014. His clinical practice and primary research areas of interests include evaluation and management of patients with inflammatory myopathies and dysautonomia. He is the primary physical therapist at the Johns Hopkins Bayview Neuromuscular Rehabilitation team, the Normal Hydrocephalus clinic, and the Dysautonomia clinic. In 2017, he published an article with the Johns Hopkins Myositis Center on the role of the myositis Functional Index-2 in identifying muscle impairment in myositis patients with near-normal or normal muscle strength. Currently, he participates in clinical research on inclusion-body myositis (IBM) that investigates the effect of the diabetes drug pioglitazone in the health and function of mitochondria in skeletal muscles of IBM patients.

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MSU's Myositis Awareness Month

High Fives from the Heart: #MyositisLIFE in a Pandemic World

Myositis Support and Understanding is turning 5 in 2020! While the original theme was being discussed and formulated, the world seemingly turned upside down with the appearance and rapid worldwide spread of the novel Coronavirus and the resulting disease, COVID-19. MSU volunteers quickly shifted focus to ensure we are fully support the Myositis community during this pandemic through education, online and video support, and patient financial assistance.  

We move forward into a slightly scaled back May Awareness Month, mindful of the enormous impact the pandemic has and will continue to have on Myositis patients and caregivers.

Some of our Myositis Awareness Month events will now be held in September. Historically, Myositis Awareness Day is September 21st of each year, however, we have celebrated the month of May for the past 2-3 years. This year, we will use both May and September with our theme, “High Fives from the Heart” as MSU turns 5-years-old and we continue our focus of empowering the myositis community.Learn more »

Check out other upcoming support and education sessions

Event starts in . . .

2020/05/12 17:00:00



May 12
5:00 pm - 6:15 pm EDT
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Myositis Support and Understanding (MSU)

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The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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