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Paul Kidwell Presents Five Stories at the Heart of Caregiving

May 19 @ 5:00 pm - 6:00 pm EDT

Paul Kidwell Presents Five Stories at the Heart of Caregiving

May is Myositis Awareness Month

Theme: High Fives from the Heart

MSU is celebrating its 5th anniversary as the heart of the myositis community.

Keeping you informed during the COVID-19 pandemic

Register to join us for

Paul Kidwell Presents Five Stories at the Heart of Caregiving

Tuesday, May 19, 2020, at 5:00 PM Eastern Time

Webinar Details

Join MSU and Paul Kidwell, for “Paul Kidwell for Five Stories at the Heart of Caregiving.”

Paul will share five important elements at the Heart of Caregiving from his own personal story as a Parkinson’s caregiver. For over a decade Paul and his wife have lived a life of love, loss, and cooking as they have lived within the context of this unforgiving disease. He will share his personal caregiving experiences and the five influences that helped shape his story.

About joining this webinar

REGISTRATION IS REQUIRED. Click the Register button above to get started. After registration, you will receive an email containing all information needed to join the webinar at the scheduled time and date.

Be sure to check your spam and junk folders if you do not see the email.

About Paul Kidwell

Paul Kidwell, headshotPaul Kidwell is a Boston-based, independent public relations/patient advocacy consultant providing media relations and patient engagement support for biopharmaceutical companies. Paul has more than 20 years of corporate and agency communications experience within the life science sector. During this time Paul has provided integrated public relations support for product launches, FDA approvals, national and international media campaigns, patient advocacy programs, supported major industry conferences, medical meetings and trade shows, and developed media strategies for the placement of stories in global top tier business and trade media.

Paul has been involved in strategic programs with a focus on media and analyst outreach, event support, internal communications and collateral development for clients in many key therapeutic areas, include: oncology, central nervous system, autoimmune disease, personalized medicine and many rare disease categories. He has created and implemented successful media relations and advocacy communications campaigns directed at business and scientific trade press, enabling his clients to achieve a higher level of visibility among potential investors and business partner audiences.

Paul’s patient advocacy experience is extensive and for over a decade he has developed and supported patient engagement programs for biotech companies that includes patient ambassador programs, patient/caregiver/oncology nurse leadership councils, as well as patient storytelling. In 2013, Paul co-created the Patient Advocacy Summit in conjunction with MassBio; which is an event that focuses on the intersection of patient advocacy and the biotech industry, and features keynote presentations, panel discussions, case studies, and live patient storytelling. Paul also hosts the podcast Openly Rare with Paul Kidwell which focuses on all aspects of the rare disease sector.

Paul holds a master’s degree in Public Relations from Boston University.

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MSU's Myositis Awareness Month

High Fives from the Heart: #MyositisLIFE in a Pandemic World

Myositis Support and Understanding is turning 5 in 2020! While the original theme was being discussed and formulated, the world seemingly turned upside down with the appearance and rapid worldwide spread of the novel Coronavirus and the resulting disease, COVID-19. MSU volunteers quickly shifted focus to ensure we are fully support the Myositis community during this pandemic through education, online and video support, and patient financial assistance.  

We move forward into a slightly scaled back May Awareness Month, mindful of the enormous impact the pandemic has and will continue to have on Myositis patients and caregivers.

Some of our Myositis Awareness Month events will now be held in September. Historically, Myositis Awareness Day is September 21st of each year, however, we have celebrated the month of May for the past 2-3 years. This year, we will use both May and September with our theme, “High Fives from the Heart” as MSU turns 5-years-old and we continue our focus of empowering the myositis community.Learn more »

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Event starts in . . .

2020/05/19 17:00:00



May 19
5:00 pm - 6:00 pm EDT
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MSU Zoom Video Session
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Myositis Support and Understanding (MSU)


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© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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