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IMNM Patient Video Support session, Jan. 25, 2020
January 25 @ 3:00 pm - 4:30 pm ESTFree
Support sessions are never recorded. These are private, real-time video support sessions and not the educational sessions we provide from time-to-time.
Join fellow immune-mediated necrotizing myopathy patients for a private, real-time group video support session and share your challenges, hopes, fears, circumstances, ask questions and talk to others going through the same or similar situations, including the emotional aspects of myositis life.
This session is tailored to those diagnosed with immune-mediated necrotizing myopathy (IMNM), sometimes referred to as necrotizing autoimmune myopathy (NAM).
This session is held the last Saturday of each month at 3 PM Eastern Time, with the exception of the next session, which is being held on Sunday, March 1, 2020, starting at 1 PM Eastern Time. This is due to Rare Disease Day events we had previously planned.
We also host a separately dedicated video support session for those living with the other forms of myositis including polymyositis (PM), dermatomyositis (DM), antisynthetase syndrome (AS), immune-mediated necrotizing myopathy (IMNM), adults with and parents of children with juvenile dermatomyositis (JDM), nonspecific myositis, and overlapping myositis with other conditions such as with mixed connective tissue disease, as well as a session for those with inclusion body myositis (IBM).
Details to join
Jan. 25, 2020, 3:00 PM Eastern Time
(2 PM Central, 1 PM Mountain, 12 PM Pacific)
Join Zoom session with video
Meeting ID: 338 103 238
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Meeting ID: 338 103 238
Find your local number: https://zoom.us/u/ady5CTmDP6
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Video support with text chat
The technology we use for video sessions, Zoom, also includes a text chat option available to you once you join the session.
If you are not comfortable talking and you want to ask a question or share an experience, you can type it in the chat area where all participants can read and reply. We also use the chat area to share important links and resources, guidelines for the session, and other helpful information.
You can find the button to open the chat area (see picture below) in the Zoom toolbar located at the bottom of the application.