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Myositis Patient Video Support March 21, 2020 – 3 PM ET
March 21 @ 3:00 pm - 4:30 pm EDTFree
We know there is a lot of fear and anxiety surrounding the Coronavirus or COVID-19. For the immediate future, our video support sessions will be a place to come together and voice those fears in a safe, and supportive environment with others who understand what it’s like to live with our normal restrictions plus the added pressure of this pandemic. Let’s share strategies and just commiserate about the quarantined #MyositisLIFE!
Do you have pets that help you with stress and anxiety? They are invited. Bring your fur babies to this video session!
To keep all of our members safe and comfortable, and to protect the integrity of the conversation, we have decided to set some hard and fast ground rules. For the first time, because of how heated some of the conversations in our support groups have been, we want to warn you that we will have a no tolerance policy for these rules. We will give one warning and then will ask you to leave the meeting if you will not comply. We are not equipped to answer the questions about science or conspiracies, and therefore must ask that they are left at the door.
What this video support session will NOT be:
- A debate about the science of COVID-19
- A political discussion
- A conversation about conspiracy theories
- Medical advice (beyond what is listed as criteria to call your doctor)
What we hope this video support session will be:
- A chance to voice your fears among similarly situated people who understand
- A place to get ideas for staying sane while practicing social distancing
- A chance to get ideas for staying safe if you must continue participating in the outside world
- An opportunity to see, once again, you are not alone.
This is a scary, but manageable time. We believe that by following the CDC and WHO guidelines and local and state requests we as a society will weather this storm. Please join us.
This patient support session is tailored to those living with any of the inflammatory myopathies (myositis) including polymyositis (PM), inclusion body myositis (IBM), dermatomyositis (DM), clinically amyopathic dermatomyositis (CADM), antisynthetase syndrome (AS), immune-mediated necrotizing myopathy (IMNM), adults with and parents of children with juvenile dermatomyositis (JDM), and overlapping myositis with other conditions such as with mixed connective tissue disease.
This session is held the third Saturday of each month at 3 PM Eastern Time.
Support sessions are never recorded. These are private, real-time video support sessions and not the educational sessions we provide from time-to-time.
Join fellow myositis patients for a private, real-time group video support session and share your challenges, hopes, fears, circumstances, ask questions and talk to others going through the same or similar situations, including the emotional aspects of myositis life.
Details to join
Mar. 21, 2020, 3:00 PM Eastern Time
(2 PM Central, 1 PM Mountain, 12 PM Pacific)
Join Zoom session with video
Meeting ID: 387 730 762
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Meeting ID: 387 730 762
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Video support with text chat
The technology we use for video sessions, Zoom, also includes a text chat option available to you once you join the session.
If you are not comfortable talking and you want to ask a question or share an experience, you can type it in the chat area where all participants can read and reply. We also use the chat area to share important links and resources, guidelines for the session, and other helpful information.
You can find the button to open the chat area (see picture below) in the Zoom toolbar located at the bottom of the application.