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Myositis Patient Video Support Session

April 14 @ 2:00 pm - 4:00 pm EDT

Myositis Patient Video Support Session

Myositis Patient Video Support Session

Saturday, April 14th at 2PM EDT

Myositis Patients, mark your calendar and join us for this free non-medical, patient-led, open discussion video support session with Sarah, Jerry, and the gang. Join to share experiences, ask questions, compare notes, and make new friends. See details below on how to join the video session.

When: Saturday, April 14th at 2PM Eastern (1PM Central, 12PM Mountain, 11AM Pacific)

Where: Online – Join us from wherever you are at the time. No need to dress to impress.

Joining us from outside the U.S.? Convert to your timezone using this tool: https://savvytime.com/converter

CLICK TO JOIN THIS VIDEO SUPPORT SESSIONon April 14th, 2PM EDT

Meeting ID if requested: 323-125-447

About joining this free online session

You do NOT have to register. Simply click the button above on Saturday, April 14th a little before the start time of 2PM Eastern (1PM Central, 12PM Mountain, 11AM Pacific) to join the Myositis Patient Video Support Session.

About the Myositis Patient Video Support Session

This session is tailored to those diagnosed with, or suspected of having, Polymyositis, Dermatomyositis, Necrotizing Autoimmune Myopathy, Juvenile Myositis, and other unspecified or nonspecific idiopathic inflammatory myopathies (myositis).

In addition, we have a separate dedicated video support session for Inclusion Body Myositis patients.

GET HELP USING ZOOM

Why do we host these sessions separately?

The needs of IBM patients vs. the other inflammatory myopathy patients tend to be different.

For IBM, there are currently no treatment options available and IBM is a more progressive disease. IBM patients will usually require a wheelchair or powerchair at some point as remission is currently not something many IBM patients will experience.

For those with idiopathic inflammatory myopathies other than IBM, discussion tends to focus around treatment, treatment side-effects, remission and flares, upcoming clinical trials for PM/DM, and other related experiences that are different for these types of myositis.

Both our IBM and our Myositis Patient video support sessions are non-medical, patient-led, open discussion sessions where you can share experiences, ask questions, compare notes, and make new friends.

For some, this will be the first time ever seeing another myositis patient in person!

Event starts in . . .

2018/04/14 14:00:00

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Details

Date:
April 14
Time:
2:00 pm - 4:00 pm
Event Category:
Event Tags:
, , , ,

Venue

Online Video Session
Online using Zoom.us
Website:
http://Zoom.us/download

Organizer

MSU
Email:
info@UnderstandingMyositis.org
Website:
https://UnderstandingMyositis.org
Tags:

© Myositis Support and Understanding Association, Inc. 2010-2018. All Rights Reserved. MSU is a patient-centered 501(c)(3) nonprofit organization.

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