Calendar of Events
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1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
0 events,
1 event,
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
2 events,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Community Convos
Community Convos
SAVE THE DATE! On Thursday, December 2, 2021, join our coalition of organizations for an online community "meet up"! Drop in to meet new friends and talk or video chat with others in the myositis community. No agenda, just bringing the community together for connections during this season of togetherness, and thanks!
1 event,
AllStripes & MSU: You can accelerate drug development in Dermatomyositis!
AllStripes & MSU: You can accelerate drug development in Dermatomyositis!
Are you interested in advancing research for dermatomyositis? Join us on Friday, December 3rd at 3 PM EST for a webinar with AllStripes as we discuss their new dermatomyositis research program!"
1 event,
Cannabis and Autoimmune Conditions
Cannabis and Autoimmune Conditions
Nurse and Cannabis Health Coach, Christine Lee, BSN, PHN, RN will share her personal experience with cannabis, an overview of the Endocannabinoid System, basic information about cannabis as medicine, and benefits vs risks.
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
1 event,
#MyositisLIFE: Women’s Video Support Group
#MyositisLIFE: Women’s Video Support Group
Women living with any type of myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
0 events,
0 events,
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
0 events,
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
1 event,
#MyositisLIFE: Parenting with Myositis
#MyositisLIFE: Parenting with Myositis
Join us every 2nd Tuesday of the month for a session to discuss and share experiences about Parenting with Myositis. We understand your kids may be living a much different life than their peers, and that you are living a different life than other parents. This session is all about parenting with myositis.
1 event,
#MyositisLIFE: DM, PM and ASyS Patient Video Support
#MyositisLIFE: DM, PM and ASyS Patient Video Support
If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join us on the third (3rd) Wednesday at 7PM ET for video support.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
1 event,
The Grieving Project: Creatively Grieving Our Chronic Illnesses Workshop
The Grieving Project: Creatively Grieving Our Chronic Illnesses Workshop
Lis is back with a second workshop for MSU! Register to join award-winning artist Lisa Sniderman (Aoede), who has struggled with dermatomyositis for more than 13 years, as she leads the second free workshop on Zoom using music from Sniderman’s The Grieving Project audiobook and other expressive arts to help us move through grief. For those of us living with myositis and for our caregivers.
1 event,
#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
0 events,
0 events,
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
1 event,
Myositis Support Holiday Get Together and Family Feud
Myositis Support Holiday Get Together and Family Feud
Holidays with myositis can be difficult. You don't have to spend them alone. Join MSU for a non-religious Christmas Day Family Feud and support session on Zoom. We will also have breakout rooms open for those who would rather talk. Join us starting at 7 PM ET.
2 events,
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
0 events,
0 events,
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
1 event,
#MyositisLIFE: IBM Patient Video Support
#MyositisLIFE: IBM Patient Video Support
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
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