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Myositis Patient Video Support Session
May 24, 2018 @ 7:00 pm - 9:00 pm EDT
Myositis Patients, mark your calendar and join us for this free non-medical, patient-led, open discussion video support session with Sarah, Marie, and the gang. Join to share experiences, ask questions, compare notes, and make new friends. See details below on how to join the video session.
When: Thursday, May 24th at 7 PM Eastern (6 PM Central, 5 PM Mountain, 4 PM Pacific)
Where: Online – Join us from wherever you are at the time. No need to dress to impress.
Joining us from outside the U.S.? Convert to your timezone using this tool: https://savvytime.com/converter
Meeting ID if requested: 781-432-231
You do NOT have to register.
Simply click the button above to join the session a few minutes prior to the start time. We use Zoom as our video provider. Downloading the software in advance and creating your free Zoom account will help you join the session on time.
This session is tailored to those diagnosed with, or suspected of having, Polymyositis, Dermatomyositis, Necrotizing Autoimmune Myopathy, Juvenile Myositis, and other unspecified or nonspecific idiopathic inflammatory myopathies (myositis).
In addition, we have a separate dedicated video support session for Inclusion Body Myositis patients.
The needs of IBM patients vs. the other inflammatory myopathy patients tend to be different.
For IBM, there are currently no treatment options available. IBM patients will usually require a wheelchair or powerchair at some point as remission is currently not something many IBM patients will experience.
For those with idiopathic inflammatory myopathies other than IBM, discussion tends to focus around treatment, treatment side-effects, remission and flares, upcoming clinical trials for PM/DM, and other related experiences that are different for these types of myositis.
Both our IBM and our Myositis Patient video support sessions are non-medical, patient-led, open discussion sessions where you can share experiences, ask questions, compare notes, and make new friends.
Both sessions are held monthly. See the events page for scheduled sessions.
For some, this will be the first time ever seeing another myositis patient in person!