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sIBM Patient Video Support session, April 2020, 5 PM ET

April 24 @ 5:00 pm - 6:30 pm EDT

Free
Inclusion body myositis Patient Video Support session, last Friday of the month at 5PM ET

Friday, April 24, 2020

Starting at 5 PM Eastern time

(4 PM CT, 3 PM MT, 2 PM PT)

Patients, click the button below a few minutes prior to the start time to join with Zoom video.

 

Join with Video

You must install the free Zoom.us software to particpate in video support sessions. Details below.

About sIBM Patient Video Support sessions

Support sessions are never recorded. These are private, real-time video support sessions and not the educational sessions we provide from time-to-time.

Join fellow inclusion body myositis patients for a private, real-time group video support session and share your challenges, hopes, fears, circumstances, ask questions and talk to others going through the same or similar situations, including the emotional aspects of myositis life.

This session is tailored to those diagnosed with or suspected of having sporadic inclusion body myositis (sIBM), sometimes referred to as inclusion body myositis (IBM). sIBM patients are welcome to include their spouse or care partner in these sessions.

We host a separate video support session because sIBM is very different from the other forms of myositis. sIBM is a slowly progressive and degenerative muscle disease with no effective treatment options available.

This session is held the last Friday of each month at 5 PM Eastern Time. 

We also host a separately dedicated video support session for those living with the other forms of myositis including polymyositis (PM), dermatomyositis (DM), antisynthetase syndrome (AS), immune-mediated necrotizing myopathy (IMNM), adults with and parents of children with juvenile dermatomyositis (JDM), nonspecific myositis, and overlapping myositis with other conditions such as with mixed connective tissue disease.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime within the first hour.

Details to join

Apr. 24, 2020, 5:00 PM Eastern Time 
(4 PM Central, 3 PM Mountain, 2 PM Pacific)

Join Zoom session with video

https://zoom.us/j/466864833

Meeting ID: 466 864 833

One tap mobile
+16465588656,,466864833# US (New York)
+16699006833,,466864833# US (San Jose)

Dial by your location
+1 646 558 8656 US (New York)
+1 669 900 6833 US (San Jose)

Meeting ID: 466 864 833

Find your local number: https://zoom.us/u/ady5CTmDP6

Joining from outside the U.S.? Use this time zone converter

Video support with text chat

The technology we use for video sessions, Zoom, also includes a text chat option available to you once you join the session.

If you are not comfortable talking and you want to ask a question or share an experience, you can type it in the chat area where all participants can read and reply. We also use the chat area to share important links and resources, guidelines for the session, and other helpful information.

You can find the button to open the chat area (see picture below) in the Zoom toolbar located at the bottom of the application.

Zoom chat button

Click the Chat button in Zoom to open the chat area

Getting connected with Zoom

Zoom, the name of the software we use for all video sessions at MSU, is required to participate. The software is free.

If this is your first video session using Zoom, install the free app for your smart devices or download and install the free software for your computer at Zoom.us/download.

If you need additional help, we have Zoom help documents with more detail.See Zoom Help »

About our Support Programs

We are a patient-led, all-volunteer 501(c)(3) nonprofit organization, founded by myositis patients for myositis patients and caregivers. Our volunteer Board of Directors consists solely of myositis patients and caregivers. Our patient and caregiver volunteers, including our board members, manage all day-to-day operations. You see, we are myositis patients and caregivers or care partners just like you.

Our support programs are always our top priority. Discovering new and innovative ways to expand our support program using technology is an ongoing process. Providing convenient support options is one way we can reach more of those affected by myositis.

We will continue to ensure you have reliable, caring, empowering and educational support, and various options from which to choose.See Support Options »

MSU Facebook page

Be sure to LIKE Myositis Support and Understanding’s Public Facebook page to keep up with the latest myositis news, research, events, patient opportunities, and more. We also list events on our Facebook page.Visit us on Facebook »

Upcoming Events

Event starts in . . .

2020/04/24 17:00:00

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Details

Date:
April 24
Time:
5:00 pm - 6:30 pm EDT
Cost:
Free
Event Category:
Event Tags:
,
Website:
https://zoom.us/j/466864833

Venue

MSU Zoom Video Session
Video session using Zoom
Website:
http://Zoom.us/download

Organizer

Myositis Support and Understanding (MSU)
Email:
info@UnderstandingMyositis.org
Website:
https://UnderstandingMyositis.org
Tags:

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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