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sIBM Patient Video Support session, April 2020, 5 PM ET
April 24 @ 5:00 pm - 6:30 pm EDTFree
Support sessions are never recorded. These are private, real-time video support sessions and not the educational sessions we provide from time-to-time.
Join fellow inclusion body myositis patients for a private, real-time group video support session and share your challenges, hopes, fears, circumstances, ask questions and talk to others going through the same or similar situations, including the emotional aspects of myositis life.
This session is tailored to those diagnosed with or suspected of having sporadic inclusion body myositis (sIBM), sometimes referred to as inclusion body myositis (IBM). sIBM patients are welcome to include their spouse or care partner in these sessions.
We host a separate video support session because sIBM is very different from the other forms of myositis. sIBM is a slowly progressive and degenerative muscle disease with no effective treatment options available.
This session is held the last Friday of each month at 5 PM Eastern Time.
We also host a separately dedicated video support session for those living with the other forms of myositis including polymyositis (PM), dermatomyositis (DM), antisynthetase syndrome (AS), immune-mediated necrotizing myopathy (IMNM), adults with and parents of children with juvenile dermatomyositis (JDM), nonspecific myositis, and overlapping myositis with other conditions such as with mixed connective tissue disease.
Details to join
Apr. 24, 2020, 5:00 PM Eastern Time
(4 PM Central, 3 PM Mountain, 2 PM Pacific)
Join Zoom session with video
Meeting ID: 466 864 833
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Meeting ID: 466 864 833
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Video support with text chat
The technology we use for video sessions, Zoom, also includes a text chat option available to you once you join the session.
If you are not comfortable talking and you want to ask a question or share an experience, you can type it in the chat area where all participants can read and reply. We also use the chat area to share important links and resources, guidelines for the session, and other helpful information.
You can find the button to open the chat area (see picture below) in the Zoom toolbar located at the bottom of the application.