sIBM Patient Video Support Session, September 2019
September 27 @ 5:00 pm - 6:30 pm EDTFree
This session is tailored to those diagnosed with or suspected of having sporadic inclusion body myositis (sIBM), sometimes referred to as inclusion body myositis (IBM). sIBM patients are welcome to involve their spouse or care partner in these sessions.
We host a separate video support session because sIBM is very different from the other forms of myositis. sIBM is a slowly progressive and degenerative muscle disease with no effective treatment options available.
We also host a separately dedicated video support session for those living with the other forms of myositis including Polymyositis (PM), Dermatomyositis (DM), Antisyntehtase Syndrome (ASS), Immune-Mediated Necrotizing Myopathy (IMNM), Juvenile Dermatomyositis (JDM), and nonspecific myositis.
Myositis refers to the group of rare muscle and systemic autoimmune diseases, the idiopathic inflammatory myopathies (IIM).
Topic: sIBM Patient Video Support Session
Time: September 27, 2019, 5:00 PM Eastern Time (U.S. and Canada)
(4 PM Central, 3 PM Mountain, 2 PM Pacific)
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Meeting ID: 586 513 274
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