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sIBM Patient Video Support Session, September 2019

September 27 @ 5:00 pm - 6:30 pm EDT

Free
sIBM Patient Video Support Session

Friday, September 27, 2019

5:00 PM Eastern

IBM’ers, Join with Video

Click the button below a few minutes prior
to the session to join with video.

Full Session Details

This session is tailored to those diagnosed with or suspected of having sporadic inclusion body myositis (sIBM), sometimes referred to as inclusion body myositis (IBM). sIBM patients are welcome to involve their spouse or care partner in these sessions.

We host a separate video support session because sIBM is very different from the other forms of myositis. sIBM is a slowly progressive and degenerative muscle disease with no effective treatment options available.

We also host a separately dedicated video support session for those living with the other forms of myositis including Polymyositis (PM), Dermatomyositis (DM), Antisyntehtase Syndrome (ASS), Immune-Mediated Necrotizing Myopathy (IMNM), Juvenile Dermatomyositis (JDM), and nonspecific myositis.

Myositis refers to the group of rare muscle and systemic autoimmune diseases, the idiopathic inflammatory myopathies (IIM).

Topic: sIBM Patient Video Support Session
Time: September 27, 2019, 5:00 PM Eastern Time (U.S. and Canada)
(4 PM Central, 3 PM Mountain, 2 PM Pacific)

Join Zoom Session with Video

https://zoom.us/j/586513274

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+1 646 558 8656 US (New York)
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Meeting ID: 586 513 274

Find your local number: https://zoom.us/u/ady5CTmDP6

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About our Support Programs

We are a patient-led, patient-centered nonprofit organization founded by myositis patients for myositis patients and caregivers. Our board of directors is composed of myositis patients and caregivers. Therefore, we are hyper-aware of how important support is and we offer various support options.See Support Options »

Get help using Zoom

We use Zoom for all video support, activity, and education sessions and highly suggest you download and install this free software on your computer, laptop, tablet, or smartphone. See help documents on using Zoom.See Zoom Help »

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All events posted here are also available on our public Facebook page. Be sure to like our Facebook page and update your settings to receive notifications.Visit us on Facebook »

Register for free membership

Members of Myositis Support and Understanding (MSU) will also receive email notifications about upcoming events. This includes a reminder email a couple of hours before the start time of support sessions. Membership is free, so register today!Register for free Membership »

View upcoming support, activity, and education sessions

Event starts in . . .

2019/09/27 17:00:00

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Details

Date:
September 27
Time:
5:00 pm - 6:30 pm
Cost:
Free
Event Category:
Event Tags:
, ,
Website:
https://zoom.us/j/586513274

Venue

Online Video Session
Online using Zoom.us
Website:
http://Zoom.us/download

Organizer

MSU
Email:
info@UnderstandingMyositis.org
Website:
https://UnderstandingMyositis.org
Tags:

© 2019 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy and Terms.

MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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