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The Power of Connecting with Young Adults

October 6 @ 6:00 pm - 7:00 pm EDT

Free
The Power of Connecting with Young Adults

Register to join us for

The Power of Connecting with Young Adults
with Seth Rotberg and Morgan Gleason

Tuesday, October 6, 2020, at 6:00 PM Eastern Time

Webinar Details

The Power of Connecting Young Adults:  Our Odyssey is connecting with young adults impacted by chronic and rare conditions and giving voice to their health, social, and emotional needs.

Co-Founder and Board President Seth Rotberg, who is a carrier for a  rare, genetic disease known as Huntington’s Disease (HD), which took his mother’s life, will talk about how Our Odyssey is working to empower young adults to take control of their lives by building social and emotional connects and providing the resources to enable them to thrive.

Morgan Gleason will share her story of growing up with juvenile dermatomyositis and about getting involved in the myositis community.

About joining this webinar

REGISTRATION IS REQUIRED. Click the Register button above to get started. After registration, you will receive an email containing all information needed to join the webinar at the scheduled time and date.

Be sure to check your spam and junk folders if you do not see the email.

About Seth Rotberg

Seth Rotberg is a patient advocate and motivational speakerSeth Rotberg is a patient advocate and motivational speaker who is passionate about bringing his personal experience to better support the health community. He has over 11 years of fundraising, advocacy, and volunteer experience within the health space. His passion is driven by his mother’s 17-year battle with the rare, genetic disease known as Huntington’s Disease (HD). In 2019 he co-founded the nonprofit, Our Odyssey, to connect young adults in the rare and chronic communities with social and emotional support. Seth has a Master’s in Nonprofit Management from DePaul University and currently resides in Boston, MA.

About Morgan Gleason

Morgan Gleason is a patient advocate who is passionate about improving the patient experienceMorgan Gleason is a patient advocate who is passionate about improving the patient experience, helping patients have access to their medical records, enabling patients to make care decisions based on cost and quality data. After being diagnosed with a rare autoimmune disease called juvenile dermatomyositis at age 11, Gleason began making YouTube videos that went viral. She now advocates for patients across the country and shares her journey by speaking at conferences and writing a blog. She recently graduated from Auburn University and is looking for opportunities to improve the patient experience.

About Our Odyssey

Our Odyssey logo

Our Odyssey is working to empower young adults to take control of their lives by building social and emotional connects and providing the resources to enable them to thrive. Visit Our Odyssey at https://ourodyssey.org/.

Get help using Zoom

We use Zoom for all webinars and video support, activity, and education sessions.  Zoom is available for free and you can download and install the software on your computer or laptop, or use the free app for your smartphone and tablet. See the help page we have created to assist you in using Zoom.See Zoom Help »

MSU Facebook page

Be sure to visit and “Like” our public Facebook page for special events, articles, videos, and patient and caregiver opportunities.Visit us on Facebook »

The Time for Waiting is Over

Take Action

There is something each of us can do. With rare diseases like myositis, patient involvement is essential if we are to move the community forward in patient-centered research, fundraising, awareness, support, and education. Check out opportunities for you to Take Action today together with us and our partners and sponsors.Start here »

Upcoming support and education sessions

Event starts in . . .

2020/10/06 18:00:00

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Details

Date:
October 6
Time:
6:00 pm - 7:00 pm EDT
Cost:
Free
Event Category:
Event Tags:
,
Website:
https://us02web.zoom.us/webinar/register/WN_rSTpN4gYRrye6f53H1wXFQ

Venue

MSU Zoom Video Session
Video session using Zoom
Website:
http://Zoom.us/download

Organizer

Myositis Support and Understanding (MSU)
Email:
info@UnderstandingMyositis.org
Website:
https://UnderstandingMyositis.org

Other

Event Audience
Open to the public
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© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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