Calendar of Events
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1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
2 events,
#MyositisLIFE: Men with Myositis Clubhouse Support Room
#MyositisLIFE: Men with Myositis Clubhouse Support Room
A safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
#MyositisLIFE: Women with Myositis Zoom Support
#MyositisLIFE: Women with Myositis Zoom Support
Women living with any type of myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
0 events,
1 event,
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
0 events,
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
1 event,
#MyositisLIFE: Young Adults with Myositis Zoom Group
#MyositisLIFE: Young Adults with Myositis Zoom Group
Join us for virtual support just for Young Adults living with Myositis on the second Monday of each month at 7 PM ET / 4 PM PT. Must be at least 18 to join, and the session is for people with myositis between the ages of 18 and 40.
0 events,
1 event,
What Brings You Joy?
What Brings You Joy?
Whether you love to cook, sing, dance, paint, work in your garden, or love on your children/grandchildren/furry friends, MSU wants to know what brings you JOY each day! Register to join Lisa Sniderman, creator of The Grieving Project, and Jessica Taylor on Zoom for this fun-filled event, sharing what you are most passionate about.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
0 events,
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
1 event,
Clinical Study in Dermatomyositis
Clinical Study in Dermatomyositis
Join MSU with Sanjay Rakhade MD, PhD, Executive Medical Director at Alexion Astra Zeneca Rare Disease Unit to learn about the Flex Study, a study to evaluate the safety and efficacy of an investigational medication on reducing symptoms of adults with Dermatomyositis.
1 event,
#MyositisLIFE: DM, PM and ASyS Patient Video Support
#MyositisLIFE: DM, PM and ASyS Patient Video Support
Dr. Lauren Graham, co-director of the Rheum/Derm clinic at UAB will join us on 5/18/2022 to talk about our skin and sun protection and will take your questions. If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
2 events,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Immune Globulin Therapy: All your questions answered
Immune Globulin Therapy: All your questions answered
Join MSU for a webinar with CSI Pharmacy, Immune Globulin Therapy: All your questions answered. This is your opportunity to ask the experts, including patient experts, the questions you have about the therapy such as side effects, brand differences, IV vs SubQ, site of care, insurance, out-of-pocket costs, copay assistance programs and more.
0 events,
0 events,
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
0 events,
1 event,
The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis
The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis
The power of our voice can impact the direction of research and clinical trials. Join us for a virtual Fireside Chat on the lessons learned from our FDA Listening Session for Adult Dermatomyositis.
2 events,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Simple steps to focus on your emotional wellbeing with Lori Wong
Simple steps to focus on your emotional wellbeing with Lori Wong
Join us for a free interactive workshop with Lori Wong, a person living with inclusion body myositis and retired Stanford-certified Compassion Cultivation Training (CCT) teacher to explore evidence-based steps to support your mental well-being, which are just as important as the steps you take to care for your physical body.
1 event,
#MyositisLIFE: IBM Patient Video Support
#MyositisLIFE: IBM Patient Video Support
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
1 event,
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
MSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
0 events,
1 event,
The Power of Our Voice: MSU Pain Study
The Power of Our Voice: MSU Pain Study
Join for a retrospective look at how a community call to action led to a seminal study on pain in Myositis and what it means for the community, with Drs Salman Bhai and Abhiram Bhashyam, co-authors of Pain profile and opioid medication use in myositis.
1 event,
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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0 events,
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