Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Immune Globulin Therapy: All your questions answered
MSU Zoom Video Session Video session using ZoomJoin MSU for a webinar with CSI Pharmacy, Immune Globulin Therapy: All your questions answered. This is your opportunity to ask the experts, including patient experts, the questions you have about the therapy such as side effects, brand differences, IV vs SubQ, site of care, insurance, out-of-pocket costs, copay assistance programs and more.
#MyositisLIFE: Weekly Sunday Clubhouse Support
ClubhouseMSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis
ZOOM Webinar 9125 N Old State Rd, Lincoln, DEThe power of our voice can impact the direction of research and clinical trials. Join us for a virtual Fireside Chat on the lessons learned from our FDA Listening Session for Adult Dermatomyositis.
Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Simple steps to focus on your emotional wellbeing with Lori Wong
MSU Zoom Video Session Video session using ZoomJoin us for a free interactive workshop with Lori Wong, a person living with inclusion body myositis and retired Stanford-certified Compassion Cultivation Training (CCT) teacher to explore evidence-based steps to support your mental well-being, which are just as important as the steps you take to care for your physical body.
#MyositisLIFE: IBM Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
#MyositisLIFE: Weekly Sunday Clubhouse Support
ClubhouseMSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
The Power of Our Voice: MSU Pain Study
MSU Zoom Video Session Video session using ZoomJoin for a retrospective look at how a community call to action led to a seminal study on pain in Myositis and what it means for the community, with Drs Salman Bhai and Abhiram Bhashyam, co-authors of Pain profile and opioid medication use in myositis.
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
#MyositisLIFE: Weekly Sunday Clubhouse Support
ClubhouseMSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
#MyositisLIFE: Women with Myositis Zoom Support
MSU Zoom Video Session Video session using ZoomWomen living with any type of myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
#MyositisLIFE: Men with Myositis Clubhouse Support Room
ClubhouseA safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
#MyositisLIFE: Parenting with Myositis
MSU Zoom Video Session Video session using ZoomJoin us quarterly for a session to discuss and share experiences about Parenting with Myositis. We understand your kids may be living a much different life than their peers, and that you are living a different life than other parents. This session is all about parenting with myositis.
#MyositisLIFE: Weekly Sunday Clubhouse Support
ClubhouseMSU is now on Clubhouse. Join our Club, Myositis Support, for patients and caregivers, for support, education, special guests. And our weekly Sunday night support room!
#MyositisLIFE: Young Adults with Myositis Zoom Group
MSU Zoom Video Session Video session using ZoomJoin us for virtual support just for Young Adults living with Myositis on the second Monday of each month at 7 PM ET / 4 PM PT. Must be at least 18 to join, and the session is for people with myositis between the ages of 18 and 40.
#MyositisLIFE: DM, PM and ASyS Patient Video Support
MSU Zoom Video Session Video session using ZoomIf you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
