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X-WR-CALNAME:Myositis Support and Understanding
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X-WR-CALDESC:Events for Myositis Support and Understanding
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DTSTART;TZID=America/New_York:20260814T130000
DTEND;TZID=America/New_York:20260814T140000
DTSTAMP:20260803T112057Z
CREATED:20260803T103944Z
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UID:10011124-1786712400-1786716000@understandingmyositis.org
SUMMARY:Palliative Care in Inclusion Body Myositis
DESCRIPTION:[vc_row][vc_column][vc_column_text] \nAugust 14\, 2026\n1 PM ET/12:00 PM CT/ 11 AM MT/10 AM PT\n  \nJoin Dr. Myma Albayda\, Associate Professor of Medicine in the Division of Rheumatology at Johns Hopkins\,  and Marlene Jansen\, caregiver to her husband Rod\, a patient with IBM as they discuss how palliative care can provide support and coping mechanisms for patients and their families. \n[/vc_column_text]Register Here[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44893″ img_size=”full”][/vc_column][vc_column width=”1/2″][vc_column_text]Dr. Myma Albayda is an Associate Professor of Medicine in the Division of Rheumatology. She is the Director of the Rheumatology Fellowship Program\, as well as Director of the Musculoskeletal Ultrasound and Injection Clinic. [/vc_column_text][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/palliative-care-in-inclusion-body-myositis/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Education Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/07/Palliative-Care.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261020T140000
DTEND;TZID=America/New_York:20261020T150000
DTSTAMP:20261016T171118Z
CREATED:20261002T195545Z
LAST-MODIFIED:20261016T171118Z
UID:10011364-1792504800-1792508400@understandingmyositis.org
SUMMARY:Fatty Acid Supplementation Trial for Dermatomyositis (FAST for DM).
DESCRIPTION:[vc_row][vc_column][vc_column_text] \nTuesday\, October 20\, 2026\n2 PM ET/1 PM CT/12 PM MT/11 AM PT\nJoin Lisa Rider\, MD\, Pediatric Rheumatologist\, NIH/NIEH and Julia Agafonova\, MS\, CCRC\, to learn more about the Fatty Acid Supplementation Trial for Dermatomyositis (FAST for DM). \n  \n\n  \n[/vc_column_text]Register Here[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”45367″ img_size=”large”][/vc_column][vc_column width=”1/2″][vc_column_text]Lisa Rider\, MD\, a pediatric rheumatologist\, is Head of the Environmental Autoimmunity Group at the National Institute of Environmental Health Sciences\, National Institutes of Health\, in Bethesda\, Maryland. Dr. Rider’s research spanning more than 25 years has focused on juvenile and adult myositis\, in which she has led studies that have defined the major clinical and autoantibody subgroups\, identified genetic and environmental risk factors\, led the international development of outcome measures and clinical trial response criteria for myositis\, and led clinical trials of new biologic therapies.  She co-chairs the International Myositis Assessment and Clinical Studies Group (IMACS)\, a consortium of myositis researchers and clinicians aiming to improve patient outcomes.  Dr. Rider is the Principal Investigator of the FAST for DM clinical trial\, which will be discussed in today’s session.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”45360″ img_size=”large”][/vc_column][vc_column width=”1/2″][vc_column_text]Julia Agafonova is a federal contractor from DLH supporting NIH clinical trials and working alongside Dr. Rider for 6 years. Julia is experienced in managing rare disease clinical trials\, specifically in autoimmune and cardiac genetic diseases.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column]VIEW FAST FLYER HERE[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/fatty-acid-supplementation-trial-for-dermatomyositis-fast-for-dm/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Education Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2017/01/REVISED.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261024T120000
DTEND;TZID=America/New_York:20261024T130000
DTSTAMP:20260930T205145Z
CREATED:20260923T222224Z
LAST-MODIFIED:20260930T205145Z
UID:10011141-1792843200-1792846800@understandingmyositis.org
SUMMARY:Educational Event about LISRAYA(brepocitinib) sponsored by Priovant Therapeutics
DESCRIPTION:[vc_row][vc_column][vc_column_text] \nOctober 24\, 2026\n12 PM ET/11:00 AM CT/ 10 AM MT/9 AM PT\n  \nHear from a patient about their experience taking LISRAYA and from a doctor who specializes in DM treatment. For more information\, please visit Lisraya.com \n[/vc_column_text]Register Here[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”45338″ img_size=”large”][/vc_column][vc_column width=”1/2″][vc_column_text]Candice\, LISRAYA patient \nCandice was a healthy\, active social worker and mom when a DM diagnosis in 2017 turned her life upside down. She cycled through treatments for nearly a decade without finding relief from her full-body rashes and muscle weakness. After starting LISRAYA\, the rashes across her body\, including on her neck and around her eyes\, began to clear\, restoring her appearance and her confidence. Her strength also returned\, allowing her to get back to the gym and reclaim her active\, independent lifestyle.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”45342″ img_size=”medium”][/vc_column][vc_column width=”1/2″][vc_column_text]Dr. Melissa Costner\, MD\, FAAD\nDallas Dermatology Partners \nDr. Melissa Costner is a board-certified dermatologist and Fellow of the American Academy of Dermatology with over two decades of experience treating skin manifestations of autoimmune and rheumatic diseases\, including lupus\, scleroderma\, and dermatomyositis. A Texas native\, she trained at UT Southwestern Medical Center\, where she later joined the faculty and built a reputation as a specialist in this area\, contributing to research\, book chapters\, and clinical guidelines before moving into private practice in 2007. She has been recognized as a D Magazine “Best Doctor” for 21 consecutive years and is a recipient of the Legacy Award. Dr. Costner is known for her collaborative\, patient-centered approach and her deep clinical expertise in complex autoimmune skin conditions. \n[/vc_column_text][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/educational-event-about-lisraya-brepocitinib-sponsored-by-priovant-therapeutics/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Education Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/09/2026.10.24-Webinar-graphic-scaled.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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