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X-WR-CALDESC:Events for Myositis Support and Understanding
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DTSTART;TZID=America/New_York:20240918T140000
DTEND;TZID=America/New_York:20240918T150000
DTSTAMP:20240905T153729Z
CREATED:20240904T192513Z
LAST-MODIFIED:20240905T153729Z
UID:10001868-1726668000-1726671600@understandingmyositis.org
SUMMARY:Innovative Approaches in Biopharmaceutical Research: Ensuring Patient-Centric Healthcare Solutions
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]In this webinar\, we’ll highlight the impactful collaboration between Galapagos and MSU\, focusing on our shared dedication to patient-centric healthcare. Our partnership has been vital in several initiatives\, including the collection of patient voices for our ongoing Phase 2 clinical trial. At Galapagos\, our research in inflammation and oncology is driven by a commitment to ensure that patient perspectives are central to our initiatives\, shaping solutions that truly meet patient needs and expectations. \nA significant aspect of our approach is the development of patient facing materials including informed consent documents. Zoltan Koleszar\, GLPG Patient Advocacy Leader\, will share his expertise on how patient recommendations are integrated into these critical documents. He will discuss how we ensure that the informed consent process is transparent\, comprehensible\, and respectful of patient needs\, and outline how these documents are approved for use in clinical trials. \nAdditionally\, we will feature a pre-recorded segment by Ann Fieuw\, GLPG Senior Medical Director. Ann will provide valuable insights into recent trends in dermatomyositis and information on our ongoing clinical trial. \nJoin us for this comprehensive session to understand how Galapagos is integrating patient feedback into every stage of research\, ensuring that our healthcare solutions are as effective and relevant as possible.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][/vc_column][/vc_row][vc_row][vc_column] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/innovative-approaches-in-biopharmaceutical-research-ensuring-patient-centric-healthcare-solutions/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Galapagos-Webinar-Graphic.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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DTSTART;TZID=America/New_York:20240924T180000
DTEND;TZID=America/New_York:20240924T190000
DTSTAMP:20241231T180233Z
CREATED:20240904T161008Z
LAST-MODIFIED:20241231T180233Z
UID:10001882-1727200800-1727204400@understandingmyositis.org
SUMMARY:Shifting Your Mindset
DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-09-24/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240930T140000
DTEND;TZID=America/New_York:20240930T150000
DTSTAMP:20240905T153827Z
CREATED:20240904T200058Z
LAST-MODIFIED:20240905T153827Z
UID:10001870-1727704800-1727708400@understandingmyositis.org
SUMMARY:Realizing the CAR T Potential in Myositis & Beyond
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]Cabaletta Bio is a clinical-stage biotechnology company focused on developing T cell therapies with potential to provide durable\, perhaps curative\, treatment for patients with autoimmune diseases. CABA-201\, a CD19-CAR T cell therapy\, is being evaluated in the RESET™ Phase 1/2 trials across several autoimmune diseases\, including adult and juvenile myositis. \nTania Gonzalez Rivera\, M.D.\, discusses the application of CAR-T cell therapy in treating myositis and delves into the mechanism of CAR-T therapy\, its successes\, challenges\, and future prospects in revolutionizing autoimmune disease treatment. \nDr. Gonzalez is a renowned physician and executive leader in the biotechnology industry. She currently serves as the Vice President of Medical Affairs at Cabaletta Bio\, a company dedicated to developing novel therapies for autoimmune diseases. Dr. Gonzalez completed her Doctor of Medicine and Residency at the University of Puerto Rico School of Medicine and her Rheumatology Fellowship at the University of Michigan Medical School. \nHer research and clinical expertise include autoimmune diseases\, particularly in the areas of rheumatology and dermatology. She has published numerous papers in peer-reviewed journals on topics such as psoriasis\, and lupus\, and presented research findings at major scientific conferences\, including the American Academy of Dermatology and the American College of Rheumatology.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][/vc_column][/vc_row][vc_row][vc_column] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/realizing-the-car-t-potential-in-myositis-and-beyond/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Cabaletta-Bio.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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