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X-WR-CALDESC:Events for Myositis Support and Understanding
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DTSTART;TZID=America/New_York:20250520T160000
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UID:10002426-1747756800-1747762200@understandingmyositis.org
SUMMARY:What Brings You Joy?
DESCRIPTION:[vc_row][vc_column]\n\n	\n \nTuesday\, May 20th \n4 PM ET / 3 PM CT / 2 PM MT / 1 PM PT \n   [vc_custom_heading text=”What Brings You Joy?” font_container=”tag:h2|text_align:center|color:%232A416E” css=””][vc_column_text css=””]Join us for a heartfelt support session in celebration of Myositis Awareness Month. Hosted by acclaimed author Lisa Sniderman of The Grieving Project and Jessica Taylor\, Director of Volunteer & Support Operations for MSU\, this event marks the third year of this inspiring support group experience. \nThis year’s theme reminds us that your story matters\, and that you are the hero of your own journey. During this special session\, we’ll explore how joy can illuminate even the toughest moments and empower you to take control of your narrative. Through insightful conversations and interactive activities\, you’ll discover ways to find happiness and hope\, no matter where you are on your path. \nWhether you’re seeking to reignite your sense of purpose\, connect with others\, or simply celebrate the small moments of joy\, this supportive environment is here for you. \n✨ Remember\, your story matters. Be the hero of your own story — and let’s celebrate the joy that fuels your journey! ✨ \n#MyMyoStoryMatters #BeTheHero #JoyInEveryDay #MyositisAwareness #SupportAndHealing #CommunityEvent[/vc_column_text] To Register[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/what-brings-you-joy-2/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/05/What-Brings-You-Joy-1200-x-630-px-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250529T190000
DTEND;TZID=America/New_York:20250529T200000
DTSTAMP:20250424T214356Z
CREATED:20250424T214356Z
LAST-MODIFIED:20250424T214356Z
UID:10002425-1748545200-1748548800@understandingmyositis.org
SUMMARY:Myo Night: Making the Best of My Own Night
DESCRIPTION:[vc_row][vc_column]\n\n	\n \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nMyositis Patients & Care Partners\, click the button below to register to attend.   [vc_column_text css=””]Join us for Myo Night: Making the Best of My Own Night on May 29th at 7 PM ET\, a special Zoom event to celebrate Myositis Awareness Month and our theme\, “My Myo Story Matters: Be the Hero of Your Own Story.” \nWhat to Expect: \nThis vibrant event invites individuals with Myositis and their loved ones to showcase their passions and talents\, such as poetry\, music\, and arts\, from the comfort of home. \nWhy Participate in Myo Night? \nThis event is all about embracing your power and celebrating the hero within you. It encourages you to make the best of your night\, reinforcing the idea that despite challenges\, you can create meaningful moments. Whether you’re participating solo or inviting friends and family\, it’s an opportunity to share your unique story and celebrate your journey. \nJoin us for a vibrant evening of:\n– Creative showcases\n– Personal storytelling\n– Celebrating resilience and talent \nLet’s close out the month by highlighting the incredible ways you navigate life. Remember\, your story matters\, and we can’t wait to celebrate your journey. Be the hero of your own story and inspire others with your courage and creativity![/vc_column_text] To Register[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/myo-night-making-the-best-of-my-own-night/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/04/MYO-Night-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250609T140000
DTEND;TZID=America/New_York:20250609T153000
DTSTAMP:20250510T202024Z
CREATED:20250410T221627Z
LAST-MODIFIED:20250510T202024Z
UID:10002057-1749477600-1749483000@understandingmyositis.org
SUMMARY:Talented & Unstoppable: Navigating the Job Market with Confidence
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nMonday\, June 9th \n11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET \nAre you ready to navigate the job market with confidence? Join us for “Talented & Unstoppable: Navigating the Job Market with Confidence\,” a dynamic and informative webinar designed to empower job seekers and equip them with essential tools for success.  \nThis engaging session will cover:  \n\nWelcome & Intro: Get introduced to our expert speakers and set the stage for an insightful discussion. \n\n\nNavigating the Job Market: Learn how to effectively maneuver through today’s job landscape and discover strategies to identify opportunities aligned with your skills and passions. \n\n\nResume & Application Tips That Shine: Gain practical advice on how to craft standout resumes and applications that capture the attention of employers. \n\n\nMental Health & Wellbeing During the Job Search: Explore the importance of maintaining mental health and wellbeing while seeking employment and discover strategies for self-care during the process. \n\n\nKnow Your Rights: Accommodations & Leave Policies: Understand your rights as a job seeker\, including information on accommodations and leave policies that can support you in the workplace. \n\n\nQ&A & Send-Off: Participate in an interactive Q&A session where you can ask your burning questions and receive valuable insights from our experts. \n\nDon’t miss this opportunity to enhance your job search strategies and boost your confidence in navigating the competitive job market. Register now to secure your spot!  [/vc_column_text] Register To Attend[vc_row_inner][vc_column_inner width=”1/2″][vc_single_image image=”42780″ img_size=”medium” add_caption=”yes” css=”” title=”Guest Speaker Alyssa Jones”][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””]Alyssa Jones (She/Her) is the Founder of The People Pixie LLC\, an HR Consulting business specializing in empathetic listening and innovative solutions. She is fascinated by the study of perspectives\, behavior change\, and letting go of ego to lead with curiosity and bravery. Alyssa invites each client to own their why\, bridge understanding\, and raise the workplace culture standard through collective intelligence and creativity. Her values driven mission is to support individuals on their journey to identify meaning with who they are\, rather than what they do professionally. In her pursuit of making an impact to increase joy and belonging within businesses\, she sprinkles a bit of pixie dust wherever she serves! [/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/talented-unstoppable-navigating-the-job-market-with-confidence/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/04/Career-Coach-Webinar-Graphic-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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DTSTART;TZID=America/New_York:20260829T110000
DTEND;TZID=America/New_York:20260829T163000
DTSTAMP:20260711T155613Z
CREATED:20260711T153812Z
LAST-MODIFIED:20260711T155613Z
UID:10011123-1788001200-1788021000@understandingmyositis.org
SUMMARY:MSU  MyoConnect Education & Advocacy Summit
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nSaturday\, August 29\, 2026\n11 AM ET-4:30 PM ET\nJoin MSU in this free community gathering to talk about the issues that mean most to myositis patients and caregivers. Led by patients\, the Summit will provide you with the information and tools needed to help you navigate your journey with myositis with confidence and hope. \nLiving with Myositis: Real Conversations\, Real Experiences \nAdvocacy in Action:  Using Your Voice to Create Change \nResearch & Hope: What Patients Should Know About Emerging Therapies \nWellness Beyond the Diagnosis \nAdvocating for the Care You Deserve \n[/vc_column_text]Register Here[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/msu-myoconnect-education-advocacy-summit/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/07/Summit-Registration-.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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