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DTSTART;TZID=America/New_York:20250609T140000
DTEND;TZID=America/New_York:20250609T153000
DTSTAMP:20260414T182506
CREATED:20250410T221627Z
LAST-MODIFIED:20250510T202024Z
UID:10002057-1749477600-1749483000@understandingmyositis.org
SUMMARY:Talented & Unstoppable: Navigating the Job Market with Confidence
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nMonday\, June 9th \n11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET \nAre you ready to navigate the job market with confidence? Join us for “Talented & Unstoppable: Navigating the Job Market with Confidence\,” a dynamic and informative webinar designed to empower job seekers and equip them with essential tools for success.  \nThis engaging session will cover:  \n\nWelcome & Intro: Get introduced to our expert speakers and set the stage for an insightful discussion. \n\n\nNavigating the Job Market: Learn how to effectively maneuver through today’s job landscape and discover strategies to identify opportunities aligned with your skills and passions. \n\n\nResume & Application Tips That Shine: Gain practical advice on how to craft standout resumes and applications that capture the attention of employers. \n\n\nMental Health & Wellbeing During the Job Search: Explore the importance of maintaining mental health and wellbeing while seeking employment and discover strategies for self-care during the process. \n\n\nKnow Your Rights: Accommodations & Leave Policies: Understand your rights as a job seeker\, including information on accommodations and leave policies that can support you in the workplace. \n\n\nQ&A & Send-Off: Participate in an interactive Q&A session where you can ask your burning questions and receive valuable insights from our experts. \n\nDon’t miss this opportunity to enhance your job search strategies and boost your confidence in navigating the competitive job market. Register now to secure your spot!  [/vc_column_text] Register To Attend[vc_row_inner][vc_column_inner width=”1/2″][vc_single_image image=”42780″ img_size=”medium” add_caption=”yes” css=”” title=”Guest Speaker Alyssa Jones”][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””]Alyssa Jones (She/Her) is the Founder of The People Pixie LLC\, an HR Consulting business specializing in empathetic listening and innovative solutions. She is fascinated by the study of perspectives\, behavior change\, and letting go of ego to lead with curiosity and bravery. Alyssa invites each client to own their why\, bridge understanding\, and raise the workplace culture standard through collective intelligence and creativity. Her values driven mission is to support individuals on their journey to identify meaning with who they are\, rather than what they do professionally. In her pursuit of making an impact to increase joy and belonging within businesses\, she sprinkles a bit of pixie dust wherever she serves! [/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/talented-unstoppable-navigating-the-job-market-with-confidence/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/04/Career-Coach-Webinar-Graphic-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250529T190000
DTEND;TZID=America/New_York:20250529T200000
DTSTAMP:20260414T182506
CREATED:20250424T214356Z
LAST-MODIFIED:20250424T214356Z
UID:10002425-1748545200-1748548800@understandingmyositis.org
SUMMARY:Myo Night: Making the Best of My Own Night
DESCRIPTION:[vc_row][vc_column]\n\n	\n \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nMyositis Patients & Care Partners\, click the button below to register to attend.   [vc_column_text css=””]Join us for Myo Night: Making the Best of My Own Night on May 29th at 7 PM ET\, a special Zoom event to celebrate Myositis Awareness Month and our theme\, “My Myo Story Matters: Be the Hero of Your Own Story.” \nWhat to Expect: \nThis vibrant event invites individuals with Myositis and their loved ones to showcase their passions and talents\, such as poetry\, music\, and arts\, from the comfort of home. \nWhy Participate in Myo Night? \nThis event is all about embracing your power and celebrating the hero within you. It encourages you to make the best of your night\, reinforcing the idea that despite challenges\, you can create meaningful moments. Whether you’re participating solo or inviting friends and family\, it’s an opportunity to share your unique story and celebrate your journey. \nJoin us for a vibrant evening of:\n– Creative showcases\n– Personal storytelling\n– Celebrating resilience and talent \nLet’s close out the month by highlighting the incredible ways you navigate life. Remember\, your story matters\, and we can’t wait to celebrate your journey. Be the hero of your own story and inspire others with your courage and creativity![/vc_column_text] To Register[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/myo-night-making-the-best-of-my-own-night/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/04/MYO-Night-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250520T160000
DTEND;TZID=America/New_York:20250520T173000
DTSTAMP:20260414T182506
CREATED:20250510T210050Z
LAST-MODIFIED:20250510T210050Z
UID:10002426-1747756800-1747762200@understandingmyositis.org
SUMMARY:What Brings You Joy?
DESCRIPTION:[vc_row][vc_column]\n\n	\n \nTuesday\, May 20th \n4 PM ET / 3 PM CT / 2 PM MT / 1 PM PT \n   [vc_custom_heading text=”What Brings You Joy?” font_container=”tag:h2|text_align:center|color:%232A416E” css=””][vc_column_text css=””]Join us for a heartfelt support session in celebration of Myositis Awareness Month. Hosted by acclaimed author Lisa Sniderman of The Grieving Project and Jessica Taylor\, Director of Volunteer & Support Operations for MSU\, this event marks the third year of this inspiring support group experience. \nThis year’s theme reminds us that your story matters\, and that you are the hero of your own journey. During this special session\, we’ll explore how joy can illuminate even the toughest moments and empower you to take control of your narrative. Through insightful conversations and interactive activities\, you’ll discover ways to find happiness and hope\, no matter where you are on your path. \nWhether you’re seeking to reignite your sense of purpose\, connect with others\, or simply celebrate the small moments of joy\, this supportive environment is here for you. \n✨ Remember\, your story matters. Be the hero of your own story — and let’s celebrate the joy that fuels your journey! ✨ \n#MyMyoStoryMatters #BeTheHero #JoyInEveryDay #MyositisAwareness #SupportAndHealing #CommunityEvent[/vc_column_text] To Register[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/what-brings-you-joy-2/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/05/What-Brings-You-Joy-1200-x-630-px-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250519T130000
DTEND;TZID=America/New_York:20250519T143000
DTSTAMP:20260414T182506
CREATED:20250410T222950Z
LAST-MODIFIED:20250410T222950Z
UID:10002058-1747659600-1747665000@understandingmyositis.org
SUMMARY:Care Partner Burnout: Supporting Your Loved One While Taking Care of Yourself
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nMonday\, May 19th \n10 AM PT / 11 AM MT / 12 PM CT / 1 PM ET \nA fatigue-related health condition doesn’t only impact the life of the person who is ill; it often brings significant changes for their loved ones and caregivers as well. Navigating this adjustment can be challenging\, and it can be difficult to know how to best support your loved one while ensuring you also care for yourself.  \nJoin us for our insightful webinar\, “Care Partner Burnout\,” where we will increase your understanding of what life feels like for your loved one living with fatigue-related challenges. In this session\, you will learn how to effectively support them on their recovery journey while also prioritizing your own well-being.  \nWhat You Will Learn:  \n\nInsight into the experiences and emotions faced by those dealing with fatigue-related health conditions. \n\n\nEffective strategies for supporting your loved one without compromising your mental and physical health. \n\n\nPractical tips for managing caregiver burnout and establishing boundaries. \n\n\nThe importance of self-care and its role in sustaining your ability to support others.\n\nDon’t miss this opportunity to gain valuable insights and tools to support both your loved one and yourself. Register now to secure your spot! [/vc_column_text] Register To Attend[vc_row_inner][vc_column_inner width=”1/2″][vc_single_image image=”41855″ img_size=”large” add_caption=”yes” css=”” title=”Guest Speaker Pamela Rose”][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””]“Based in the UK\, Pamela Rose is a Fatigue Coach supporting people around the world to better manage their fatigue-related challenges. She provides very real and practical guidance to her clients linked to behaviors’ that will start to make a noticeable difference straightaway.  A key part of Pamela’s approach is ‘pacing’ or ‘energy management’ – helping clients achieve the life they have to live and want to live – whilst managing their health journeys.” [/vc_column_text] Pamela Rose Website[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/care-partner-burnout-supporting-your-loved-one-while-taking-care-of-yourself/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/04/Care-Partner-Burnout-1200-x-630-px-3.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250510T140000
DTEND;TZID=America/New_York:20250510T153000
DTSTAMP:20260414T182506
CREATED:20250409T175347Z
LAST-MODIFIED:20250409T175347Z
UID:10002056-1746885600-1746891000@understandingmyositis.org
SUMMARY:The Unseen Grief: Recognizing & Healing from Secondary Loss Workshop
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nSaturday\, May 10th \n11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET \nJoin us for an interactive workshop\, “The Unseen Grief: Recognizing and Healing from Secondary Loss\,” specifically designed for both individuals affected by myositis and their care partners. This collaborative session will delve into the often-overlooked aspects of grief experienced by those living with this condition\, focusing on the loss of identity\, capabilities\, and the life one once knew. \nDr. Romano will facilitate discussions to help participants\, both patients and care partners\, recognize the subtle yet significant losses that accompany myositis. He will provide valuable strategies and tools to navigate the associated emotional challenges\, fostering an environment of open dialogue and group exploration. \nAn engaging writing reflection activity will be included\, encouraging attendees to share their personal experiences and insights. Participants will have the opportunity to explore their feelings\, uncover paths to healing\, and connect with others who share similar journeys in a supportive atmosphere. \nEngage with Dr. Romano in this dynamic workshop as we collectively explore the intricate emotional landscape of secondary loss and discover pathways to healing. This is an invaluable opportunity for self-reflection\, connection\, and growth for both individuals affected by myositis and their care partners. Don’t miss out on this chance to participate![/vc_column_text] Register To Attend[vc_row_inner][vc_column_inner width=”1/2″][vc_single_image image=”42752″ img_size=”large” add_caption=”yes” css=”” title=”Dr. Pablo Romano”][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””]Pablo is a third-year psychiatry resident at Columbia University and will be chief resident for the 2025-2026 academic year. Prior to attending Columbia\, he received a bachelor’s degree in Cognitive Science from Occidental College\, completed a Fulbright fellowship in Argentina\, and obtained a medical degree from Stanford University’s School of Medicine. As a medical student\, he researched the impact of storytelling interventions on medical student wellness and was co-chair of the Stanford Latino Medical Student Association. As a resident\, Pablo has pursued additional psychotherapy training\, led medical storytelling sessions at CUMC\, co-led a narrative medicine group with a focus on bereavement\, and co-chaired the Wellness Committee. Aside from his clinical work\, Pablo has published a number of creative pieces related to grief\, immigration\, and medicine; his work can be found at the Nocturnists\, the Intima\, and elsewhere. He plans to pursue training in palliative care and clinical ethics.   [/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/the-unseen-grief-recognizing-healing-from-secondary-loss-workshop/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/04/Grief-1200-x-630-px-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250428T180000
DTEND;TZID=America/New_York:20250428T190000
DTSTAMP:20260414T182506
CREATED:20250318T185722Z
LAST-MODIFIED:20250331T225539Z
UID:10002043-1745863200-1745866800@understandingmyositis.org
SUMMARY:Webinar: Automotive Mobility Solutions - Features & Benefits
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nMonday\, April 28th on Zoom\n3 PM PT / 4 PM MT / 5 PM CT / 6 PM ET\nJoin us for an insightful webinar focused on exploring the diverse world of automotive mobility solutions. This session aims to educate attendees about the various types of mobility aids available\, including driving aids\, hand controls\, scooter lifts\, assist seating\, and wheelchair-accessible vehicles. \nWhat You Will Learn: \nComprehensive Overview: Understand the range of automotive mobility solutions available to enhance independence and ease of transportation. \nNeeds Analysis: Learn about our robust needs analysis process\, designed to help individuals determine the most suitable solutions for their unique mobility requirements. \nFinancing Options: Explore the financing options available to make these mobility solutions accessible to a broader audience. \nSpeaker: Monique McGivney Monique McGivney\, a seasoned expert in the mobility industry\, has over 20 years of experience and a deep passion for assisting the mobility community. Based in Arizona\, Monique dedicates her time to working closely with customers\, helping them find optimal mobility solutions suited to their needs and budgets. She is also committed to educating both customers and allied health professionals about the wide array of mobility options available. Her extensive knowledge and dedication make her a valuable resource for anyone interested in learning more about automotive mobility solutions. \nWhether you’re a potential user\, caregiver\, or health professional\, this webinar offers valuable insights to enhance your understanding of mobility solutions and their benefits. \nDon’t miss this opportunity to expand your knowledge and make informed decisions about automotive mobility solutions. Register now to secure your spot and join us for this enlightening session![/vc_column_text] Register[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/webinar-automotive-mobility-solutions-features-benefits/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/03/Webinar-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250415T190000
DTEND;TZID=America/New_York:20250415T203000
DTSTAMP:20260414T182506
CREATED:20250327T214912Z
LAST-MODIFIED:20250415T185452Z
UID:10002054-1744743600-1744749000@understandingmyositis.org
SUMMARY:Standards of Care for Home Infusion
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]Date: April 15th\nTime: 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\nPlatform: Zoom\nHosted by: IV Solutions Rx \nJoin us for an informative webinar on Standards of Care for Home Infusion\, designed to equip patients and caregivers with vital knowledge about home infusion therapy. This session will cover a comprehensive range of topics\, including: \n\nHow to Select a Pharmacy: Learn the factors to consider when choosing a pharmacy for home infusion.\nExpectations from Home Infusion Companies and Nurses: Understand what to anticipate from your infusion providers and nursing staff.\nInfusion Suite vs. Home: Explore the differences between receiving treatment in an infusion suite versus at home.\nProduct Selection and Copay Cards: Gain insights on how to navigate product options and potential financial assistance.\nInsurance Formularies: Learn about how insurance plans affect access to medications and treatments.\nAccreditations & Professional Certifications: Understand the importance of choosing accredited providers for your home infusion needs.\nSupplies: Discover what supplies you’ll need for effective home infusion care.\nWhat to Expect During Your Infusion and Outcomes: Get familiar with the infusion process and the expected results.\nBeing an Informed Consumer: Empower yourself with knowledge to advocate for the best care.\n\n[/vc_column_text][vc_row_inner][vc_column_inner] Register To Attend[/vc_column_inner][vc_column_inner][/vc_column_inner][vc_column_inner][vc_custom_heading text=”Guest Speakers” font_container=”tag:h2|text_align:center” css=””][/vc_column_inner][vc_column_inner width=”1/2″][vc_single_image image=”42690″ img_size=”medium” css=””][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””] \nVicky Starr\, RN\, IgCN\n\nDirector of Clinical Services & COO\n\n\nVicky has been a nurse for over 35 years with a focus in chronic disease states requiring infusion for the last 20 years.  She is a certified IG nurse and is Director of Clinical Services and the COO of IV Solutions Rx. \n\n[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner][vc_column_inner width=”1/2″][vc_single_image image=”42687″ img_size=”medium” css=””][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””] \nMichelle Vogel\, MPA\nVice President of Patient Advocacy\nIn 2022\, Michelle joined IV Solutions RX as Vice President of Patient Advocacy to continue her outreach with patients ensuring that no patient goes without their lifesaving therapy in an affordable site of care. \nMichelle has years of experience testifying before Congress\, federal agencies\, and state legislatures. She is also a prominent speaker on topics such as Medicare reimbursement\, patient copay assistance programs\, the economics of the plasma industry\, health insurance reform\, navigating health insurance\, and patient advocacy. Michelle’s hobby is assisting patients to successfully navigate their health insurance policies to ensure that they get covered for their prescribed medications and other services.[/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/standards-of-care-for-home-infusion/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/03/Heading-1200-x-630-px-2.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250325T180000
DTEND;TZID=America/New_York:20250325T193000
DTSTAMP:20260414T182506
CREATED:20250225T235644Z
LAST-MODIFIED:20250226T000041Z
UID:10002042-1742925600-1742931000@understandingmyositis.org
SUMMARY:Shifting Your Mindset
DESCRIPTION:[vc_row][vc_column][vc_cta h2=”Shifting Your Mindset March 25th\, 2025″ txt_align=”center” add_button=”bottom” add_icon=”top” i_icon_fontawesome=”far fa-calendar-alt” css=””] \n\n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_cta][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nThis empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the last seven months\, we have embarked on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_row_inner][vc_column_inner width=”1/2″] Register to Join on Zoom[/vc_column_inner][vc_column_inner width=”1/2″] Watch Past Episodes[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/shifting-your-mindset-2/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250225T180000
DTEND;TZID=America/New_York:20250225T190000
DTSTAMP:20260414T182506
CREATED:20240904T161008Z
LAST-MODIFIED:20241231T180233Z
UID:10001887-1740506400-1740510000@understandingmyositis.org
SUMMARY:Shifting Your Mindset
DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/shifting-your-mindset/2025-02-25/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250224T140000
DTEND;TZID=America/New_York:20250224T150000
DTSTAMP:20260414T182506
CREATED:20250208T010452Z
LAST-MODIFIED:20250208T010452Z
UID:10002035-1740405600-1740409200@understandingmyositis.org
SUMMARY:Managing Your Expectations with Exercise and Movement by Kourage Health
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]Join Kourage Health and MSU for an enlightening webinar on Monday\, February 24th: “Managing Expectations with Movement & Exercise.” \nDiscover how to approach exercise with the right mindset. We’ll emphasize that progress isn’t an overnight fix but a journey requiring consistency and repetition. \nLearn the importance of maintenance and setting realistic expectations\, whether you’re a beginner\, intermediate\, or advanced in your exercise routine. Don’t miss this opportunity to gain valuable insights and enhance your fitness journey. \nDate: February 24th\, on Zoom \nTime: 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET \nMark your calendar and join us\, by registering below\, for an inspiring session that will get you moving! See you there![/vc_column_text] Register To Attend[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/managing-your-expectations-with-exercise-and-movement/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/02/Kourage-webinar-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250217T140000
DTEND;TZID=America/New_York:20250217T150000
DTSTAMP:20260414T182506
CREATED:20250208T004535Z
LAST-MODIFIED:20250208T004535Z
UID:10002034-1739800800-1739804400@understandingmyositis.org
SUMMARY:Meet MSU's New Executive Director - Elisa Glass
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]Join us on February 17th for a special introduction to our first-ever Executive Director\, Elisa Glass! \nGet to know Elisa and hear about her vision for the future of Myositis Support and Understanding (MSU). This is a fantastic opportunity for our community to connect and share ideas. \nDate: February 17\, 2025 \nTime: 11 AM PT / 12 PM MT / 1 PM CT/ 2 PM ET \nDon’t miss this chance to welcome Elisa into our MSU family and engage in meaningful discussions about advancing our mission. Whether you’re local or joining us from across the globe\, your presence and voice matter! \nMark your calendar and join us\, by registering below\, for an inspiring session! Let’s make this a memorable event together. \n#MeetElisa #MSU #MyositisCommunity #MyositisSupport #WelcomeElisa[/vc_column_text] Register To Attend[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/meet-msus-new-executive-director/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/02/Meet-our-new-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250128T180000
DTEND;TZID=America/New_York:20250128T190000
DTSTAMP:20260414T182506
CREATED:20240904T161008Z
LAST-MODIFIED:20241231T180233Z
UID:10001886-1738087200-1738090800@understandingmyositis.org
SUMMARY:Shifting Your Mindset
DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/shifting-your-mindset/2025-01-28/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250122T140000
DTEND;TZID=America/New_York:20250122T153000
DTSTAMP:20260414T182506
CREATED:20241231T190302Z
LAST-MODIFIED:20250113T164316Z
UID:10002033-1737554400-1737559800@understandingmyositis.org
SUMMARY:Your Health\, Your Voice: Building a Lifesaving Medical Binder
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nJoin Us for an Empowering Webinar: “Your Health\, Your Voice: Building a Lifesaving Medical Binder” with the Three Myositis Musketeers!\nWe are excited to invite you to an essential webinar hosted by Myositis Support and Understanding (MSU). Meet the team: Jessica Taylor\, Director of Operations and a dedicated myositis patient; Benita Moyer\, Vice President\, committed advocate\, and myositis patient; and Jason Hopauf\, Community Support Coordinator and fellow myositis patient. This dynamic team\, fondly known as the “Three Myositis Musketeers\,” will guide you through the vital process of preparing for medical appointments and emergencies. \nDate: Wednesday\, January 22nd \nTime: 2 PM ET / 1 PM CT / 12 PM MT / 11 AM PT \nDuring this session\, we’ll introduce you to MSU’s innovative downloadable PDF medical binder. This customizable binder is designed to empower myositis patients to take charge of their health information. By filling out and printing this binder\, patients can ensure that they\, and their advocates\, have immediate access to critical medical details when they are most needed. \nKey Takeaways: \n\nLearn how to prepare effectively for medical appointments and emergencies.\nDiscover the benefits of having a comprehensive medical binder.\nUnderstand how to use the MSU’s downloadable PDF to create a personalized and portable health resource.\nGain tips on how to communicate effectively with your medical team and advocate.\n\nDon’t miss this opportunity to enhance your medical preparedness and advocacy skills. Together\, let’s make sure your health is always in good hands. \nTo register for the webinar\, please click the link below \nWe look forward to seeing you there! \n  \n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column] To Register[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/your-health-your-voice-building-a-lifesaving-medical-binder/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/12/Your-Health-Your-Voice-Building-a-Lifesaving-Medical-Binder-with-the-Three-Myositis-Musketeers-4.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241217T180000
DTEND;TZID=America/New_York:20241217T190000
DTSTAMP:20260414T182506
CREATED:20240904T161008Z
LAST-MODIFIED:20241231T180233Z
UID:10001888-1734458400-1734462000@understandingmyositis.org
SUMMARY:Shifting Your Mindset
DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-12-17/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241126T180000
DTEND;TZID=America/New_York:20241126T190000
DTSTAMP:20260414T182506
CREATED:20240904T161008Z
LAST-MODIFIED:20241231T180233Z
UID:10001884-1732644000-1732647600@understandingmyositis.org
SUMMARY:Shifting Your Mindset
DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-11-26/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241119T140000
DTEND;TZID=America/New_York:20241119T150000
DTSTAMP:20260414T182506
CREATED:20241109T012928Z
LAST-MODIFIED:20241109T012928Z
UID:10002029-1732024800-1732028400@understandingmyositis.org
SUMMARY:Your Voice Matters: Practical Strategies for Self-Advocacy in Healthcare
DESCRIPTION:[vc_row][vc_column][vc_custom_heading text=”Living Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents…” css=””][/vc_column][/vc_row][vc_row][vc_column][vc_column_text css=””] \nSpecial Webinar: Your Voice Matters – Practical Strategies for Self-Advocacy in Healthcare!\nWe are thrilled to announce an impactful webinar featuring Meaghan Arnold\, a valued member of the Myositis Support and Understanding Medical Advisory Board. This session is designed to empower myositis patients with essential self-advocacy skills! \n Date: Tuesday\, November 19th \nTime: 2 PM ET / 1 PM CT / 12 PM MT / 11 AM PT \nIn this informative session\, Meaghan will share practical strategies to help you navigate the healthcare system effectively and advocate for your needs. Your voice truly matters\, and this webinar aims to equip you with the tools and confidence to make it heard in medical settings. \nWhether you’re facing challenges in communicating with healthcare providers or seeking ways to enhance your treatment experience\, this webinar is for you! Don’t miss this opportunity to gain valuable insights! Mark your calendars and join us to become a more empowered advocate for your health. \nWe look forward to seeing you there!  \n#YourVoiceMatters #SelfAdvocacy #MyositisSupport #EmpowermentWebinar #MSU #SupportStartsHere[/vc_column_text] To Register Visit[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_custom_heading text=”Meet Meaghan Arnold” css=””][vc_single_image image=”41919″ img_size=”large” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]-️ Hosted by Speech Swallowing and Neurological Rehabilitation (SSNR)\, a private practice in Tyler\, Texas\, this webinar will be led by Meaghan Arnold\, a dedicated medical speech-language pathologist and owner of SSNR. With a Bachelor of Science degree from The University of Arizona and a Master of Arts degree from The University of Texas at Austin\, Meaghan brings over eight years of experience in skilled nursing facilities\, home health\, and outpatient settings. \n-‍⚕️ Meaghan specializes in treating voice\, swallowing\, speech\, language\, cognition\, and memory deficits. She’s passionate about person-centered care and community education\, hosting two support groups and speaking at local events to advocate for her patients. Visit SSNR website at https://ssnrtx.com/[/vc_column_text][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/your-voice-matters-practical-strategies-for-self-advocacy-in-healthcare/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/11/Practical-Strategies-for-Self-Ad-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241022T180000
DTEND;TZID=America/New_York:20241022T190000
DTSTAMP:20260414T182506
CREATED:20240904T161008Z
LAST-MODIFIED:20241231T180233Z
UID:10001883-1729620000-1729623600@understandingmyositis.org
SUMMARY:Shifting Your Mindset
DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-10-22/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241017T180000
DTEND;TZID=America/New_York:20241017T200000
DTSTAMP:20260414T182506
CREATED:20240925T200146Z
LAST-MODIFIED:20240925T200146Z
UID:10001892-1729188000-1729195200@understandingmyositis.org
SUMMARY:Myositis Empower Walk Game Night
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nStarting at 6 PM Eastern time\n(5 PM CT\, 4 PM MT\, 3 PM PT) \nClick the button below to register to attend. \n[/vc_column_text][vc_column_text css=””] \n Ready for a Myositis Empower Walk Game Night!** \nJoin us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event be hosted by our very own Jessica Taylor\, Director of Operations for MSU\, alongside Taryn Smith from Priovant. \nGet ready for a night filled with trivia\, laughter\, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th\, starting at 4 PM\, streaming online. \nDon’t miss this opportunity to have some fun and connect with fellow myositis warriors before the walk! \nMark your calendars\, and get ready for an unforgettable evening! We can’t wait to see you there!  \n[/vc_column_text] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/myositis-empower-walk-game-night/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Untitled-1200-x-630-px-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241007T190000
DTEND;TZID=America/New_York:20241007T200000
DTSTAMP:20260414T182507
CREATED:20240925T184143Z
LAST-MODIFIED:20240925T184143Z
UID:10001890-1728327600-1728331200@understandingmyositis.org
SUMMARY:Ladies Bingo Night
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nClick the button below to register to attend. \n[/vc_column_text][vc_column_text css=””] \n Join Us for a Special Event: Ladies Bingo Night! \nWe are thrilled to invite all women with myositis to a unique one-time event: Ladies Bingo Night\, sponsored by Priovant! Get ready for a fun-filled evening where you can enjoy Bingo\, connect with fellow myositis warriors\, and share in the camaraderie of our incredible community! \nThis event offers a chance to take a break from the challenges of daily life and simply have fun. Connect with other women who understand what you’re going through while participating in an enjoyable game of Bingo! \nEvent Details:\n When: Monday\, October 7th\n Time: \n\n7 PM Eastern Time\n6 PM Central Time\n5 PM Mountain Time\n4 PM Pacific Time\n\nRegistration is required! After signing up\, you will receive an email with all the information needed to join the fun. Find the registration link at the bottom of this page. \nYou won’t want to miss this special night of laughter\, connection\, and—of course—Bingo! ✨ \nWe can’t wait to see you there![/vc_column_text] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/ladies-bingo-night/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Untitled-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240930T140000
DTEND;TZID=America/New_York:20240930T150000
DTSTAMP:20260414T182507
CREATED:20240904T200058Z
LAST-MODIFIED:20240905T153827Z
UID:10001870-1727704800-1727708400@understandingmyositis.org
SUMMARY:Realizing the CAR T Potential in Myositis & Beyond
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]Cabaletta Bio is a clinical-stage biotechnology company focused on developing T cell therapies with potential to provide durable\, perhaps curative\, treatment for patients with autoimmune diseases. CABA-201\, a CD19-CAR T cell therapy\, is being evaluated in the RESET™ Phase 1/2 trials across several autoimmune diseases\, including adult and juvenile myositis. \nTania Gonzalez Rivera\, M.D.\, discusses the application of CAR-T cell therapy in treating myositis and delves into the mechanism of CAR-T therapy\, its successes\, challenges\, and future prospects in revolutionizing autoimmune disease treatment. \nDr. Gonzalez is a renowned physician and executive leader in the biotechnology industry. She currently serves as the Vice President of Medical Affairs at Cabaletta Bio\, a company dedicated to developing novel therapies for autoimmune diseases. Dr. Gonzalez completed her Doctor of Medicine and Residency at the University of Puerto Rico School of Medicine and her Rheumatology Fellowship at the University of Michigan Medical School. \nHer research and clinical expertise include autoimmune diseases\, particularly in the areas of rheumatology and dermatology. She has published numerous papers in peer-reviewed journals on topics such as psoriasis\, and lupus\, and presented research findings at major scientific conferences\, including the American Academy of Dermatology and the American College of Rheumatology.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][/vc_column][/vc_row][vc_row][vc_column] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/realizing-the-car-t-potential-in-myositis-and-beyond/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Cabaletta-Bio.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240924T180000
DTEND;TZID=America/New_York:20240924T190000
DTSTAMP:20260414T182507
CREATED:20240904T161008Z
LAST-MODIFIED:20241231T180233Z
UID:10001882-1727200800-1727204400@understandingmyositis.org
SUMMARY:Shifting Your Mindset
DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-09-24/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240918T140000
DTEND;TZID=America/New_York:20240918T150000
DTSTAMP:20260414T182507
CREATED:20240904T192513Z
LAST-MODIFIED:20240905T153729Z
UID:10001868-1726668000-1726671600@understandingmyositis.org
SUMMARY:Innovative Approaches in Biopharmaceutical Research: Ensuring Patient-Centric Healthcare Solutions
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]In this webinar\, we’ll highlight the impactful collaboration between Galapagos and MSU\, focusing on our shared dedication to patient-centric healthcare. Our partnership has been vital in several initiatives\, including the collection of patient voices for our ongoing Phase 2 clinical trial. At Galapagos\, our research in inflammation and oncology is driven by a commitment to ensure that patient perspectives are central to our initiatives\, shaping solutions that truly meet patient needs and expectations. \nA significant aspect of our approach is the development of patient facing materials including informed consent documents. Zoltan Koleszar\, GLPG Patient Advocacy Leader\, will share his expertise on how patient recommendations are integrated into these critical documents. He will discuss how we ensure that the informed consent process is transparent\, comprehensible\, and respectful of patient needs\, and outline how these documents are approved for use in clinical trials. \nAdditionally\, we will feature a pre-recorded segment by Ann Fieuw\, GLPG Senior Medical Director. Ann will provide valuable insights into recent trends in dermatomyositis and information on our ongoing clinical trial. \nJoin us for this comprehensive session to understand how Galapagos is integrating patient feedback into every stage of research\, ensuring that our healthcare solutions are as effective and relevant as possible.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][/vc_column][/vc_row][vc_row][vc_column] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/innovative-approaches-in-biopharmaceutical-research-ensuring-patient-centric-healthcare-solutions/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Galapagos-Webinar-Graphic.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240819T140000
DTEND;TZID=America/New_York:20240819T150000
DTSTAMP:20260414T182507
CREATED:20240808T032033Z
LAST-MODIFIED:20240808T221527Z
UID:10001867-1724076000-1724079600@understandingmyositis.org
SUMMARY:Battling Brain Fog
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] Living Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents… \nBattling Brain Fog\nThis informative session will focus on effective ways to manage cognitive fatigue and provide you with essential strategies and tools to regain control over daily responsibilities. \nDiscover functional supports that can help enhance your overall quality of life and empower you to navigate challenges with confidence! \nDon’t miss this opportunity to learn and connect with others facing similar struggles. Your journey to clarity and productivity starts here! [/vc_column_text][/vc_column][/vc_row][vc_row][vc_column] To register visit[vc_custom_heading text=”Meaghan Arnold” font_container=”tag:h5|text_align:left” css=””][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”41919″ img_size=”medium” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]-️ Hosted by Speech Swallowing and Neurological Rehabilitation (SSNR)\, a private practice in Tyler\, Texas\, this webinar will be led by Meaghan Arnold\, a dedicated medical speech-language pathologist and owner of SSNR. With a Bachelor of Science degree from The University of Arizona and a Master of Arts degree from The University of Texas at Austin\, Meaghan brings over eight years of experience in skilled nursing facilities\, home health\, and outpatient settings. \n-‍⚕️ Meaghan specializes in treating voice\, swallowing\, speech\, language\, cognition\, and memory deficits. She’s passionate about person-centered care and community education\, hosting two support groups and speaking at local events to advocate for her patients. Visit SSNR website at https://ssnrtx.com/[/vc_column_text][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/battling-brain-fog/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/jpeg:https://understandingmyositis.org/wp-content/uploads/2024/08/Battling-Brain-Fog-1-1.jpg
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240805T140000
DTEND;TZID=America/New_York:20240805T153000
DTSTAMP:20260414T182507
CREATED:20240722T122028Z
LAST-MODIFIED:20240723T215604Z
UID:10001343-1722866400-1722871800@understandingmyositis.org
SUMMARY:Fatigue Management Part 2-Practical Ways To Remove Challenges When Managing Fatigue
DESCRIPTION:[vc_row padding_top=”20″ padding_bottom=”30″][vc_column][vc_column_text css=””] \nWebinar: Fatigue Management Part 2-Practical Ways To Remove Challenges When Managing Fatigue\nMonday\, August 5th\, on Zoom at 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET / 7 PM BST / 8 PM CEST  \nA Living Fully with Myositis: MSU’s #MyositisLife Initiative Series \nJoin us for Part 2 of our Fatigue Management Series! \nDive into practical solutions to tackle fatigue challenges with our expert speaker\, Pamela Rose. Learn effective energy management techniques and discover actionable strategies to conquer fatigue. \nIn this engaging session\, Pamela will cover: \n✨ Navigating tricky conversations \n✨ Responding thoughtfully rather than reacting \n✨ Maintaining a vibrant social life \n✨ Mindset adjustments that help you be resourceful every day \nDon’t miss this chance to master the skills needed to face daily challenges and live a more energized lifestyle. Your journey to optimized energy and balance starts here![/vc_column_text] Click to Register on Zoom[/vc_column][/vc_row][vc_row][vc_column][vc_column_text css=””] \nAbout Pamela Rose\n \n“Based in the UK\, Pamela Rose is a Fatigue Coach supporting people around the world to better manage their fatigue-related challenges. She provides very real and practical guidance to her clients linked to behaviors that will start to make a noticeable difference straightaway. A key part of Pamela’s approach is ‘pacing’ or ‘energy management’ – helping clients achieve the life they have to live and want to live – whilst managing their health journeys.” \nPamela Rose Contact information info@pamelarose.co.uk or visit her website at https://www.pamelarose.co.uk/[/vc_column_text][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/practical-ways-to-remove-challenges-when-managing-fatigue/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/07/Fatigue-Management-Graphic-4.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240722T140000
DTEND;TZID=America/New_York:20240722T150000
DTSTAMP:20260414T182507
CREATED:20240520T171902Z
LAST-MODIFIED:20240716T231358Z
UID:10001721-1721656800-1721660400@understandingmyositis.org
SUMMARY:Fatigue Management - Mastering Fatigue Pacing for a Balanced Life
DESCRIPTION:[vc_row padding_top=”20″ padding_bottom=”20″][vc_column] [vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents – Fatigue Management – Mastering Fatigue Pacing for a Balanced Life\nSee the details below and register to join us on Zoom \n[/vc_column_text][vc_column_text css=””] \nMonday\, July 22nd\n2 PM ET / 1 PM CT / 12 PM MT / 11 AM PT \n7:00 PM BST /8:00 PM CEST \n[/vc_column_text][vc_row_inner][vc_column_inner] Register to attend[vc_empty_space height=”12px”][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row equal_height=”yes” el_id=”details”][vc_column][vc_column_text css=””] \n\n\nJoin us for an exclusive session tailored for myositis patients! \nDive into the crucial topic of fatigue management with our expert speaker\, Pamela Rose. Discover the keys to effective energy management and conquer fatigue with practical strategies. \nLearn the art of pacing for a balanced and fulfilling life\, gaining invaluable insights to boost your well-being. Don’t miss this opportunity to master the skills needed to navigate daily challenges and embrace an energized lifestyle. Your journey to optimized energy and balance starts here! \n“Based in the UK\, Pamela Rose is a Fatigue Coach supporting people around the world to better manage their fatigue-related challenges. She provides very real and practical guidance to her clients linked to behaviours that will start to make a noticeable difference straightaway.  A key part of Pamela’s approach is ‘pacing’ or ‘energy management’ – helping clients achieve the life they have to live and want to live – whilst managing their health journeys.” \n\n[/vc_column_text][vc_column_text] \nAbout joining this webinar\nREGISTRATION IS REQUIRED. Click the Register button above to get started. After registration\, you will receive an email containing all information needed to join the webinar at the scheduled time and date. \nBe sure to check your spam and junk folders if you do not see the email.[/vc_column_text][/vc_column][/vc_row][vc_row padding_bottom=”10″][vc_column][vc_custom_heading text=”Event starts in . . .” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]2024/05/21 19:00:00[/vc_column][/vc_row][vc_row padding_top=”30″ padding_bottom=”0″][vc_column]\n\n	\nGet Zoom We use Zoom for all webinars and our video support sessions. \nZoom is available for free and you can download and install the software on your computer or laptop\, or use the free app for your smartphone and tablet. \nTo download the app for your smartphone or tablet\, open your app store\, search for Zoom\, and install.   \n\n	\nMSU on YouTube Follow us on YouTube for Live Streaming Events and over 100 videos of past webinars\, and to meet our volunteers.   \n\n	\nMSU Facebook page Be sure to visit and “Like” our public Facebook page for special events\, articles\, videos\, and patient and caregiver opportunities.   [/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/myositis-and-fatigue-management/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/05/Fatigue-Management-Graphic-2.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240612T130000
DTEND;TZID=America/New_York:20240612T140000
DTSTAMP:20260414T182507
CREATED:20240311T161008Z
LAST-MODIFIED:20240703T231750Z
UID:10001384-1718197200-1718200800@understandingmyositis.org
SUMMARY:Mindfulness Discussions with MSU
DESCRIPTION:[vc_row][vc_column] [vc_column_text] \n2nd Wednesday of the month\n1 PM ET / 12 PM CT / 11 AM MT / 10 AM PT\n[/vc_column_text][vc_empty_space][vc_column_text] \nJoin us for Mindfulness Discussions with MSU! Now on Zoom!\nAs we all know here at MSU\, living with myositis isn’t easy. We understand\, empathize\, and relate to our journeys together and support each other the best we can. \nAs a part of this supportive community\, we want to introduce the practice of mindfulness. Mindfulness can truly help you find balance and peace\, and strengthen your connection to the self. \nAngelic Ingram\, Holistic Health Practioner and founder of a Mindful Journey to Freedom (expat coach) will lead discussions about mindfulness and related topics and work with the group on activities like meditation\, breathwork\, and others. \nThis session is for myositis patients and care partners. You can join to listen or to share.  \nThis is not a support group. We keep the focus of this room on the topic of mindfulness. \nJoin and learn what mindfulness is and how it might help you through your journey! \nWorking with mindfulness is often a positive experience\, however\, some practices may bring up difficult emotions. As always\, we encourage you to consider working together with a counselor/therapist\, which has many scientifically-backed benefits. [/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/mindfulness-discussions-2/2024-06-12/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2023/05/Mindfulness-Website-Graphic-1200-x-630.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240509T190000
DTEND;TZID=America/New_York:20240509T200000
DTSTAMP:20260414T182507
CREATED:20240507T193836Z
LAST-MODIFIED:20240507T193836Z
UID:10001720-1715281200-1715284800@understandingmyositis.org
SUMMARY:Meet Myositis Authors
DESCRIPTION:[vc_row padding_top=”20″ padding_bottom=”20″][vc_column] [vc_column_text css=””] \nMeet Myositis Authors\nSee the details below and register to join us on Zoom \n[/vc_column_text][vc_column_text css=””] \nThursday\, May 9th\n7 PM ET / 6 CT / 5 MT / 4 PT \n[/vc_column_text][vc_row_inner][vc_column_inner] Register to attend[vc_empty_space height=”12px”][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row equal_height=”yes” el_id=”details”][vc_column][vc_column_text css=””] \n\nMSU is proud to present Myositis Author’s Night. This is a series of webinars where MSU will highlight different myositis authors who are writing about their myositis journey. \nPlease join us on May 9th for our first session featuring the following authors. \nEmily Filmore Being Sick Sucks: The Autoimmune Abyss (2023) and The Marvelous Transformation: Living Well with Autoimmune Disease (Central Recovery Press\, 2015) as well as four parenting-related books. \nHolly Jones co-author of ‘Awaken Your Inner Warrior” Holly also serves on the Board of Directors for The Myositis Association and is the leader of the Myositis Women of Color Affinity Group (TMA) as well as founding and running the non-profit organization HERstory In Color. \nWilliam Tillier author of “Inclusion Body Myositis; A Guide for Patients” In his book Bill combines the medical and practical aspects of living with IBM in an accessible way. It is a helpful guide for patients\, their families\, doctors\, and caregivers. \n\n\nThere will be a Q&A at the end of the author’s presentation. You may submit questions upon registration or during the webinar. We look forward to seeing you there! \n\n[/vc_column_text][vc_column_text] \nAbout joining this webinar\nREGISTRATION IS REQUIRED. Click the Register button above to get started. After registration\, you will receive an email containing all information needed to join the webinar at the scheduled time and date. \nBe sure to check your spam and junk folders if you do not see the email.[/vc_column_text][/vc_column][/vc_row][vc_row padding_bottom=”10″][vc_column][vc_custom_heading text=”Event starts in . . .” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]2024/05/09 19:00:00[/vc_column][/vc_row][vc_row padding_top=”30″ padding_bottom=”0″][vc_column]\n\n	\nGet Zoom We use Zoom for all webinars and our video support sessions. \nZoom is available for free and you can download and install the software on your computer or laptop\, or use the free app for your smartphone and tablet. \nTo download the app for your smartphone or tablet\, open your app store\, search for Zoom\, and install.   \n\n	\nMSU on YouTube Follow us on YouTube for Live Streaming Events and over 100 videos of past webinars\, and to meet our volunteers.   \n\n	\nMSU Facebook page Be sure to visit and “Like” our public Facebook page for special events\, articles\, videos\, and patient and caregiver opportunities.   [/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/meet-myositis-authors/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/05/authors-night.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240508T130000
DTEND;TZID=America/New_York:20240508T140000
DTSTAMP:20260414T182507
CREATED:20240311T161008Z
LAST-MODIFIED:20240703T231750Z
UID:10001383-1715173200-1715176800@understandingmyositis.org
SUMMARY:Mindfulness Discussions with MSU
DESCRIPTION:[vc_row][vc_column] [vc_column_text] \n2nd Wednesday of the month\n1 PM ET / 12 PM CT / 11 AM MT / 10 AM PT\n[/vc_column_text][vc_empty_space][vc_column_text] \nJoin us for Mindfulness Discussions with MSU! Now on Zoom!\nAs we all know here at MSU\, living with myositis isn’t easy. We understand\, empathize\, and relate to our journeys together and support each other the best we can. \nAs a part of this supportive community\, we want to introduce the practice of mindfulness. Mindfulness can truly help you find balance and peace\, and strengthen your connection to the self. \nAngelic Ingram\, Holistic Health Practioner and founder of a Mindful Journey to Freedom (expat coach) will lead discussions about mindfulness and related topics and work with the group on activities like meditation\, breathwork\, and others. \nThis session is for myositis patients and care partners. You can join to listen or to share.  \nThis is not a support group. We keep the focus of this room on the topic of mindfulness. \nJoin and learn what mindfulness is and how it might help you through your journey! \nWorking with mindfulness is often a positive experience\, however\, some practices may bring up difficult emotions. As always\, we encourage you to consider working together with a counselor/therapist\, which has many scientifically-backed benefits. [/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/mindfulness-discussions-2/2024-05-08/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2023/05/Mindfulness-Website-Graphic-1200-x-630.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240417T160000
DTEND;TZID=America/New_York:20240417T170000
DTSTAMP:20260414T182507
CREATED:20240412T164245Z
LAST-MODIFIED:20240412T170117Z
UID:10001719-1713369600-1713373200@understandingmyositis.org
SUMMARY:Community Orientation Webinar
DESCRIPTION:[vc_row padding_top=”20″ padding_bottom=”20″][vc_column] [vc_column_text] \nMyositis Community Orientation Webinar\nJoin us for a Community Orientation Webinar to learn how you can participate virtually in the first-ever Adult Dermatomyositis Patient-Focused Drug Development (EL-PFDD) meeting with the FDA. \nSee the full agenda below\, including how you can get involved in this important endeavor. \n[/vc_column_text][vc_column_text] \nWednesday\, April 17\, 2024\n4 PM ET / 3 CT / 2 MT / 1 PT \n[/vc_column_text][vc_row_inner][vc_column_inner] Register to attend[vc_empty_space height=”12px”][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row equal_height=”yes” el_id=”details”][vc_column width=”1/2″][vc_column_text] \nThe agenda for this webinar:\n\nWhat is patient-focused drug development?\nWhat is the purpose of the Adult DM EL-PFDD?\nWhat does it mean to the community?\nHow can you get involved?\n\nSurvey\nWritten testimonials\nVideo testimonials\n\n\n\n[/vc_column_text][vc_empty_space height=”12px”][/vc_column][vc_column width=”1/2″][vc_column_text] \nAbout joining this webinar\nREGISTRATION IS REQUIRED. Click the Register button above to get started. After registration\, you will receive an email containing all information needed to join the webinar at the scheduled time and date. \nBe sure to check your spam and junk folders if you do not see the email.[/vc_column_text][/vc_column][/vc_row][vc_row padding_bottom=”10″][vc_column][vc_custom_heading text=”Event starts in . . .” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]2024/04/17 16:00:00[/vc_column][/vc_row][vc_row padding_top=”30″ padding_bottom=”0″][vc_column]\n\n	\nGet Zoom We use Zoom for all webinars and our video support sessions. \nZoom is available for free and you can download and install the software on your computer or laptop\, or use the free app for your smartphone and tablet. \nTo download the app for your smartphone or tablet\, open your app store\, search for Zoom\, and install.   \n\n	\nMSU on YouTube Follow us on YouTube for Live Streaming Events and over 100 videos of past webinars\, and to meet our volunteers.   \n\n	\nMSU Facebook page Be sure to visit and “Like” our public Facebook page for special events\, articles\, videos\, and patient and caregiver opportunities.   [/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/community-orientation-webinar/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/04/Adult-Dermatomyositis-Externally-Led-Patient-Focused-Drug-Development-Meeting-EL-PFDD-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240410T130000
DTEND;TZID=America/New_York:20240410T140000
DTSTAMP:20260414T182507
CREATED:20240311T161008Z
LAST-MODIFIED:20240703T231750Z
UID:10001382-1712754000-1712757600@understandingmyositis.org
SUMMARY:Mindfulness Discussions with MSU
DESCRIPTION:[vc_row][vc_column] [vc_column_text] \n2nd Wednesday of the month\n1 PM ET / 12 PM CT / 11 AM MT / 10 AM PT\n[/vc_column_text][vc_empty_space][vc_column_text] \nJoin us for Mindfulness Discussions with MSU! Now on Zoom!\nAs we all know here at MSU\, living with myositis isn’t easy. We understand\, empathize\, and relate to our journeys together and support each other the best we can. \nAs a part of this supportive community\, we want to introduce the practice of mindfulness. Mindfulness can truly help you find balance and peace\, and strengthen your connection to the self. \nAngelic Ingram\, Holistic Health Practioner and founder of a Mindful Journey to Freedom (expat coach) will lead discussions about mindfulness and related topics and work with the group on activities like meditation\, breathwork\, and others. \nThis session is for myositis patients and care partners. You can join to listen or to share.  \nThis is not a support group. We keep the focus of this room on the topic of mindfulness. \nJoin and learn what mindfulness is and how it might help you through your journey! \nWorking with mindfulness is often a positive experience\, however\, some practices may bring up difficult emotions. As always\, we encourage you to consider working together with a counselor/therapist\, which has many scientifically-backed benefits. [/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/mindfulness-discussions-2/2024-04-10/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2023/05/Mindfulness-Website-Graphic-1200-x-630.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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