MSU 1st Birthday

Saturday, July 30th - Sunday, August 7th

MSU celebrates its 1st birthday as a nonprofit!

A week-long celebration of YOU

Happy Birthday Myositis Support and Understanding Association Members! Did you know that our 501(c)(3) non-profit is turning one year old today (July 30)?

To celebrate, we want to celebrate YOU, the members that make MSU the success that it is! For the next week use our special coupon code “msumember” to take 15% off your purchase in the MSU store at UnderstandingMyositis.org/shopping.

Also, for the next 365 days, we will keep celebrating YOU…any member who has their birthday in our records AND replies to their Happy Birthday message in our Facebook group on their special day will receive a unique, one-time use, coupon code via private message to receive 10% off on YOUR special day. It is our way of saying, “thanks for being with us and helping MSU continue our mission to improve the lives of Myositis patients!”

MSU's 1st birthday

Our gift to you!

Without YOU we would not exist! So, our gift to you is 15% off anything in our online store! That’s right. Shop today through August 7th, and receive 15% off of your entire order.

This is our way of thanking you for your support over this past year and going forward.

Some of what we have achieved during our first year

With your support and our all volunteer-managed board of directors and member volunteers, we have accomplished quite a bit in our first year as a nonprofit organization. Below are just some of the things we have done and know we have a clear vision for the future.

  • Created the first-ever closed Inclusion Body Myositis support group on Facebook
  • Launched the first Myositis Video Chat Support Program
  • Launched the MSU Myositis Patient Financial Assistance Program
  • Created our Medical Advisory Committee
  • First Myositis Laughter Yoga group that meets monthly through our Video Chat Support program.
  • Huge expansion of our website to include more education, social tools, and easy ways to share materials with family members, friends, and the public.
  • Worked together with Dr. Agarwal in creating a clinical trial survey to assess feasibility in using smartphones and smart tablets in clinic trial recruitment and patient reported outcomes.
  • As an organization that focuses on the day-to-day lives of Myositis patients, we started a #MyositsLIFE campaign, with huge success, that will continue to be a part of our platform.

Profile photo of Myositis Support

Author:

Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Jerry Williams

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.

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Hi, this may be interesting to you: MSU 1st Birthday! The link is included below: https://understandingmyositis.org/events/event/msu-1st-birthday/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.