Breathe Easy: Myositis Lung Support Monthly Virtual Support Group
2030-02-12 19:00 - 21:00, 2030-03-12 19:00 - 21:00, 2030-04-09 19:00 - 21:00 (America/New_York) | MSU Zoom Video Session, Video session using Zoom
Second Tuesday of the Month
7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT
REGISTER TO ATTEND

Group Details

Virtual Support Group Policy

FAQ

Breathe Easy: Myositis Lung Support (Monthly Virtual Support Group)
“Breathe Easy,” our ongoing support group dedicated to individuals with Myositis experiencing lung issues. Join us every month for a virtual gathering providing connection and support.
Meeting Details:

When: Second Tuesday of the Month, 7 PM ET
Where: Zoom (register above)

What You’ll Experience: This group offers a compassionate space to connect with others who understand the unique challenges of Myositis and lung complications. Share experiences, gain insights, and find strategies to manage your lung health while fostering a community of support and understanding.
Discussion Topics Include:

Lung health
Coping strategies
Emotional support

Whether you’re facing daily challenges or seeking guidance, you’re not alone. Everyone with Myositis and lung issues is encouraged to join. Your voice matters, and together, we can support one another in this safe and nurturing environment.
Join us to breathe easier and foster a sense of belonging—one meeting at a time.

Virtual Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Couch Critics - A Movie Club for the Myositis Community on Clubhouse
2030-02-13 15:00 - 16:00, 2030-03-13 15:00 - 16:00, 2030-04-10 15:00 - 16:00 | Clubhouse
The second and fourth Wednesday of each Month!
On Clubhouse
3 PM ET/2 PM CT/1 PM MT/12 PM PT

“Couch Critics” – A Movie Club for the Myositis Community on Clubhouse
Join us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you’re a patient or a care partner, this movie club is for you! “Couch Critics” is the perfect place to connect, unwind, and enjoy meaningful discussions with fellow movie enthusiasts. Don’t miss out on the fun – grab your popcorn and let’s experience the magic of movies together! Clubhouse is a free audio-only app. Being audio-only, it’s a little different, but we have many members who have joined and love it! We hope you will give it a try. Some describe it as sitting in a living room chatting with family.
New to Clubhouse?
Here are some quick steps on how to join Clubhouse, a free, audio-only app.
There are several ways you can get on Clubhouse. Below is just one.

Click here to join the Myositis Support club. This will open a window where you can click to get the app.
Or, visit the app store for your device and search for and install “Clubhouse.”
Open the app and create your profile. Photos are encouraged, and having something in your bio is helpful.
Once you join the Couch Critics, you will receive notifications in the app when our rooms open. And, you can also see our schedule of rooms, be notified of pop-up rooms, and more.
When you join us in a Clubhouse session, you can listen or share. We welcome the entire Myositis Community!

Click to visit the Clubhouse New User Guide
Using Clubhouse on your computer/laptop
There is third-party software, Clubdeck, that you can download and install on your computer to use Clubhouse. Clubdeck is available for Windows and Mac OS. You can only be logged in on one device, however. So if you use Clubdeck, you won’t be able to have Clubhouse on your device running at the same time. Check out Clubdeck here.

Join Couch Critics on Clubhouse

International Myositis Support
2030-02-16 14:00 - 16:00, 2030-03-16 14:00 - 16:00, 2030-04-20 14:00 - 16:00 | MSU Zoom Video Session, Video session using Zoom
Starting at 2 PM Eastern time
(1 PM CT, 12 PM MT, 11 AM PT)
Myositis Patients, click the button below to register to attend.
REGISTER TO ATTEND

Support Group Details

Virtual Support Group Policies

FAQ

International Myositis Virtual Support Group for all Myositis patients and their care partners, held on Zoom. This is a fantastic opportunity to connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment.
When: Every third Saturday of the month
Time: 2:00 PM ET (Eastern Time, USA) 1:00 PM CT (Central Time, USA) 12:00 PM MT (Mountain Time, USA) 11:00 AM PT (Pacific Time, USA) 7:00 PM BST (British Summer Time, UK) 8:00 PM CEST (Central European Summer Time)
Whether you are newly diagnosed or have been managing Myositis for years, this group is here to provide community, resources, and understanding. We look forward to seeing you there!
This session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM), Dermatomyositis (DM), Clinically Amyopathic Dermatomyositis (CADM), Antisynthetase Syndrome (ASyS), Immune-Mediated Necrotizing Myopathy (IMNM), Inclusion Body Myositis (IBM), adults with and parents of children with Juvenile Dermatomyositis (JDM), Nonspecific Myositis, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease.
Registration is required. After registration, you will receive an email with details to join. See the link to register at the top of this page.
Join with your camera on or off. Join to be a part of the discussion or listen in.
Check out all of our video support sessions, and other support options.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments or jokes, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime.

Couch Critics - A Movie Club for the Myositis Community
2030-02-22 11:00 - 12:00, 2030-03-22 11:00 - 12:00, 2030-04-22 11:00 - 12:00 | MSU Zoom Video Session, Video session using Zoom
The 2nd & 4th Wednesday of each Month!
3PM ET / 2 PM CT / 1 PM MT / 12 PM PT
REGISTER TO ATTEND
“Couch Critics” – A Movie Club for the Myositis Community!
Join us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you’re a patient or a care partner, this movie club is for you!
“Couch Critics” is the perfect place to connect, unwind, and enjoy meaningful discussions with fellow movie enthusiasts. Don’t miss out on the fun – grab your popcorn and let’s experience the magic of movies together!
#CouchCritics #MovieClub #MyositisCommunity #FilmFun #MSU

Inclusion Body Myositis (IBM) Support Group
2030-02-22 17:00 - 19:00, 2030-03-29 17:00 - 19:00, 2030-04-26 17:00 - 19:00 | MSU Zoom Video Session, Video session using Zoom
Last Friday of the Month on Zoom
5 PM ET/4 PM CT/3 PM MT/2 PM PT
Come join our IBM support group that meets the last Friday of each month. IBM is a slowly progressive and degenerative muscle disease with no available treatment options. Hosted by patients with IBM, this is a safe place to talk about how we can live our best lives and support each other. You are not alone.
Running late? That’s okay. Join us anyway. Care partners welcome! Sessions usually run 90 minutes. Register Here

Immune-Mediated Necrotizing Myopathy Support Group
2030-02-23 19:00 - 21:00, 2030-03-30 19:00 - 21:00 | MSU Zoom Video Session, Video session using Zoom
Starting at 7 PM Eastern time
(6 PM CT, 5 PM MT, 4 PM PT)
IMNM / NAM Patients, click the button below to register once to attend this and all future sessions.
REGISTER TO ATTEND

Virtual Support Group Details

Virtual Support Group Policies

FAQ

Join fellow Immune-Mediated Necrotizing Myopathy patients for a private, real-time group video support session and share your challenges, hopes, fears, circumstances, ask questions and talk to others going through the same or similar situations, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives.
This session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM), sometimes referred to as Necrotizing Autoimmune Myopathy (NAM).
Registration is required. After registration, you will receive an email with details to join. See the link to register at the top of this page.
You do not have to turn your camera on and you will never be required to speak.
Check out all of our video support sessions, and other support options.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime.

Finding Our Balance: Navigating Myositis and Dysautonomia
2030-02-28 15:00 - 16:00, 2030-03-28 15:00 - 16:00 | MSU Zoom Video Session, Video session using Zoom
Bi-Monthly on the last Saturday of the Month
12 PM PST/11 PM MST/2 PM CST/3 PM EST/9 PM CET
Are you living with Myositis and also dealing with Dysautonomia or suspect you might be? You’re not alone! It’s common for autoimmune conditions like Myositis to co-occur with Dysautonomia. Join our support group, offering a safe and nurturing space for individuals managing both conditions. This is an opportunity to share experiences, find comfort in the community, and exchange tips and resources for managing symptoms effectively.
What is Dysautonomia?
Dysautonomia refers to conditions affecting the autonomic nervous system, which controls involuntary functions such as heart rate, blood pressure, and digestion. Some common subtypes include:
Postural Orthostatic Tachycardia Syndrome (POTS)
Inappropriate Sinus Tachycardia (IST)
Neurocardiogenic Syncope (NCS)
Autonomic Neuropathy
For more information, Dysautonomia International is an excellent resource to explore: Dysautonomia International.
Join us to connect, learn, and support one another in managing these challenging conditions. Register Here

Weight Management Support for Myositis Patients
2030-03-04 19:00 - 20:00, 2030-04-01 19:00 - 20:00 | Clubhouse
3rd Wednesday of the Month
7 PM/ET/ 6 PM CT/5 PM MT/4 PM PT
Weight loss and weight gain are critical to our physical and emotional wellbeing on our myositis journey and there is power in sharing our stories in a safe, no judgement support group. Our hope is to cover an array of topics, so come and join in the conversation and help us shape future sessions.

New to Clubhouse?
Here are some quick steps on how to join Clubhouse, a free, audio-only app.
There are several ways you can get on Clubhouse. Below is just one.

Click here to join the Myositis Support club. This will open a window where you can click to get the app.
Or, visit the app store for your device and search for and install “Clubhouse.”
Open the app and create your profile. Photos are encouraged, and having something in your bio is helpful.
Once you join the Myositis Support club, you will receive notifications in the app when our rooms open. And, you can also see our schedule of rooms, be notified of pop-up rooms, and more.
When you join us in a Clubhouse session, you can listen or share. We welcome the entire Myositis Community!

Click to visit the Clubhouse New User Guide
Using Clubhouse on your computer/laptop
There is third-party software, Clubdeck, that you can download and install on your computer to use Clubhouse. Clubdeck is available for Windows and Mac OS. You can only be logged in on one device, however. So if you use Clubdeck, you won’t be able to have Clubhouse on your device running at the same time. Check out Clubdeck here.

Men with Myositis Clubhouse Support Room
2030-03-04 19:00 - 21:00, 2030-04-01 19:00 - 21:00 | Clubhouse
#MyositisLIFE: Men with Myositis Clubhouse Support Room
On Clubhouse

First Monday of the Month
7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

Men with Myositis on Clubhouse
A safe space for men living with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections. No matter which type of myositis, join us for real-time discussions. You can join and listen, or join and share.
All of our Clubhouse support rooms are members only to provide the safest space possible.
Download Clubhouse from your mobile app store
Clubhouse is available for smartphones and some tablets, including the iPad.
Visit your app store and search for Clubhouse:

install the app
create your free account with your mobile number
add something to your bio (this is how other people can find you)
Join the Myositis Support Club

Using Clubhouse on your computer/laptop
There is third-party software, Clubdeck, that you can download and install on your computer to use Clubhouse. Clubdeck is available for Windows and Mac OS. Check out Clubdeck here. Join Myositis Support on Clubhouse See All Support Options See Upcoming Events

Women with Myositis Virtual Support Group
2030-03-04 19:00 - 21:00, 2030-04-01 19:00 - 21:00 | MSU Zoom Video Session, Video session using Zoom
First Monday of Every Month
Starting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT
REGISTER TO ATTEND

Session Details

Session Policies

FAQ

Join fellow women with Myositis for a private, real-time group video support session and share your challenges, hopes, fears, circumstances, and talk to others going through the same or similar situations, including the emotional aspects of myositis life with a focus on gratitude.
Support sessions are never recorded. These are private, real-time video support sessions and not the educational sessions we provide.
This session is open to all women with any type of Myositis.
Registration is required. After registration, you will receive an email with details to join. See the link to register at the top of this page.
You do not have to turn your camera on and you will never be required to speak.
Check out all of our video support sessions, and other support options.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.
When sharing, we ask you to be mindful of time so that everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments or jokes, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime.

Wednesday Evening Myositis Support Group
2030-03-06 19:00 - 21:00, 2030-04-03 19:00 - 21:00 | MSU Zoom Video Session, Video session using Zoom
1st Wednesday of Each Month
Starting at 7 PM ET
(6 PM CT, 5 PM MT, 4 PM PT)
Click the button below to register to attend.
REGISTER TO ATTEND

Support Group Details

Virtual Support Group Policies

FAQ

Join fellow Myositis patients for a private, real-time group video support session and share your challenges, hopes, fears, circumstances, ask questions and talk to others going through the same or similar situations, including the emotional aspects of Myositis life, with a focus on gratitude and living our best life with Myositis.
This session is tailored to anyone living with any of the types of myositis including Polymyositis (PM), Dermatomyositis (DM), Clinically Amyopathic Dermatomyositis (CADM), Antisynthetase Syndrome (ASyS), Immune-Mediated Necrotizing Myopathy (IMNM), Inclusion Body Myositis (IBM), adults with and parents of children with Juvenile Dermatomyositis (JDM), Nonspecific Myositis, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease.
Registration is required. After registration, you will receive an email with details to join. See the link to register at the top of this page.
Join with your camera on or off. Join to be a part of the discussion or listen in.
Check out all of our video support sessions, and other support options.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments or jokes, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime within the first hour.

Young Adults with Myositis - MSU YA Collective Power Hour
2030-03-11 19:00 - 20:00, 2030-04-08 19:00 - 20:00 | MSU Zoom Video Session, Video session using Zoom
The Second Tuesday of Every Month
7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT
REGISTER TO ATTEND

Support Group Details

Virtual Support Group Policies

FAQ

MSU Young Adult Collective Power Hour
Join fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood with a chronic illness. Share your experiences, challenges, and thoughts—from managing symptoms and medical appointments to balancing work, school, and relationships—with a focus on connection and empowerment.
Support sessions are never recorded. These are private, real-time video support sessions with others like you.
This session is open to all young adults (ages 18–40) living with any form of Myositis.
Sessions are held on the 2nd Monday of Each Month
1-Hour Session Only — designed to respect the busy lives of young adults who are working, raising families, studying, or doing it all.
Registration is required. After registering, you’ll receive an email with the link and details to join. Please see the registration link below.
You are not required to turn on your camera or speak—participate in the way that feels best to you.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments or jokes, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime within the first hour.

Inclusion Body Myositis Support Group
2030-03-30 17:00 - 19:00 | MSU Zoom Video Session, Video session using Zoom
Starting at 5 PM Eastern time
(4 PM CT, 3 PM MT, 2 PM PT)
IBM Patients, click the button below to register to attend.
REGISTER TO ATTEND

Virtual Support Group Details

Virtual Support Group Policies

FAQ

Join fellow Inclusion Body Myositis patients for a private, real-time group video support session and share your challenges, hopes, fears, circumstances, ask questions and talk to others going through the same or similar situations, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM.
Support sessions are never recorded. These are private, real-time video support sessions and not the educational sessions we provide.
This session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions.
We host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options, outside of an exercise program.
Registration is required. After registration, you will receive an email with details to join. See the link to register at the top of this page.
You do not have to turn your camera on and you will never be required to speak.
Check out all of our video support sessions, and other support options.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime.
