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X-WR-CALNAME:Myositis Support and Understanding
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X-WR-CALDESC:Events for Myositis Support and Understanding
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DTSTART;TZID=America/Chicago:20250503T100000
DTEND;TZID=America/Chicago:20250503T160000
DTSTAMP:20250430T154809Z
CREATED:20250318T205834Z
LAST-MODIFIED:20250430T154809Z
UID:10002045-1746266400-1746288000@understandingmyositis.org
SUMMARY:2nd Annual Myositis Moon Walk
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]Join Myositis Support & Understanding for the Myositis Moon Walk\, an extraordinary livestream event that invites participants to embark on a unique journey through the U.S. Space and Rocket Center! Experience the awe of walking alongside iconic rockets and historic space artifacts\, all while raising awareness and support for the Myositis community. \nThe route will provide an inspiring backdrop as we celebrate resilience and unity\, culminating in a memorable finish beneath the majestic Saturn V rocket. This powerful event not only highlights the remarkable innovations in space exploration but also amplifies our commitment to raising awareness for those affected by Myositis. \nDon’t miss this opportunity to be part of a meaningful experience surrounded by history and innovation. Together\, we can shine a light on the Myositis community and its journey. Join us for the Myositis Moon Walk and help make a difference!  \nEvent Highlights: \n\nWalk alongside iconic rockets and space artifacts\nExperience an inspiring backdrop culminating under the Saturn V rocket\nRaise awareness for the Myositis community\n\nTune in to our livestream and be part of this incredible journey! \n#MSUmoonwalk #MoonWalkEvent #MyositisAwareness #myositis #MyositisMoonWalk #MSU #MyositisCommunity #MyositisEvent #MSUfundraising #MyositisAwareness #MyositisSupport #MyositisPatients #MyositisCarePartners[/vc_column_text] Watch The Livestream![vc_single_image image=”42657″ img_size=”large” alignment=”center” css=””][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/2nd-annual-myositis-moon-walk/
LOCATION:MSU Live YouTube\, MSU YouTube Page
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/03/Simple-World-Space-Week-Flyer-1200-x-630-px-2.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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DTSTART;TZID=America/Chicago:20250502T100000
DTEND;TZID=America/Chicago:20250502T160000
DTSTAMP:20250318T205940Z
CREATED:20250318T203953Z
LAST-MODIFIED:20250318T205940Z
UID:10002044-1746180000-1746201600@understandingmyositis.org
SUMMARY:The Patient Voice Workshop
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nJoin Us for The Patient Voice Workshop!\nWe invite you to The Patient Voice Workshop on Friday\, May 2\, 2025\, at the beautiful Huntsville Botanical Gardens in Huntsville\, Alabama from 10 AM to 4 PM. (This is an in person event) \nThis enriching event promises insightful sessions and meaningful connections. \nHighlights Include: \nPanel Discussion: Engage in powerful storytelling focused on quality of care in the myositis community. Hear personal narratives that unveil patient challenges and explore key initiatives like improving community response to those in crisis. Your voice matters—come ready to share and connect! \n#MyositisLife Session: Discover how MSU’s programs\, support groups\, and webinars empower patients and care partners. Learn about the resources tackling challenges like fatigue and dysphagia\, and join the conversation on transforming patient needs into impactful actions. \nCountdown to the Moon Walk: Prepare for an inspiring journey as we kick off the Countdown to the Myositis Moon Walk Lift Off tomorrow\, May 3rd\, starting at 10 AM at the U.S. Space and Rocket Center in Huntsville! Unite with the Myositis community to advocate for awareness and support. \nDon’t miss the chance to be part of something truly special. Let’s make a memorable impact together! \n#PatientVoiceWorkshop #MyositisCommunity #HopeAndProgress #JoinUs \n[/vc_column_text] Register to Attend[vc_single_image image=”42657″ img_size=”large” alignment=”center” css=””][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/the-patient-voice-workshop/
LOCATION:Other Platform
CATEGORIES:In Person
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/03/Blue-and-White-Modern-Business-Conference-Instagram-Post-1200-x-630-px-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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DTSTART;TZID=America/New_York:20250122T140000
DTEND;TZID=America/New_York:20250122T153000
DTSTAMP:20250113T164316Z
CREATED:20241231T190302Z
LAST-MODIFIED:20250113T164316Z
UID:10002033-1737554400-1737559800@understandingmyositis.org
SUMMARY:Your Health\, Your Voice: Building a Lifesaving Medical Binder
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nJoin Us for an Empowering Webinar: “Your Health\, Your Voice: Building a Lifesaving Medical Binder” with the Three Myositis Musketeers!\nWe are excited to invite you to an essential webinar hosted by Myositis Support and Understanding (MSU). Meet the team: Jessica Taylor\, Director of Operations and a dedicated myositis patient; Benita Moyer\, Vice President\, committed advocate\, and myositis patient; and Jason Hopauf\, Community Support Coordinator and fellow myositis patient. This dynamic team\, fondly known as the “Three Myositis Musketeers\,” will guide you through the vital process of preparing for medical appointments and emergencies. \nDate: Wednesday\, January 22nd \nTime: 2 PM ET / 1 PM CT / 12 PM MT / 11 AM PT \nDuring this session\, we’ll introduce you to MSU’s innovative downloadable PDF medical binder. This customizable binder is designed to empower myositis patients to take charge of their health information. By filling out and printing this binder\, patients can ensure that they\, and their advocates\, have immediate access to critical medical details when they are most needed. \nKey Takeaways: \n\nLearn how to prepare effectively for medical appointments and emergencies.\nDiscover the benefits of having a comprehensive medical binder.\nUnderstand how to use the MSU’s downloadable PDF to create a personalized and portable health resource.\nGain tips on how to communicate effectively with your medical team and advocate.\n\nDon’t miss this opportunity to enhance your medical preparedness and advocacy skills. Together\, let’s make sure your health is always in good hands. \nTo register for the webinar\, please click the link below \nWe look forward to seeing you there! \n  \n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column] To Register[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/your-health-your-voice-building-a-lifesaving-medical-binder/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
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ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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