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X-WR-CALNAME:Myositis Support and Understanding
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X-WR-CALDESC:Events for Myositis Support and Understanding
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DTSTART;TZID=America/New_York:20240417T160000
DTEND;TZID=America/New_York:20240417T170000
DTSTAMP:20240412T170117Z
CREATED:20240412T164245Z
LAST-MODIFIED:20240412T170117Z
UID:10001719-1713369600-1713373200@understandingmyositis.org
SUMMARY:Community Orientation Webinar
DESCRIPTION:[vc_row padding_top=”20″ padding_bottom=”20″][vc_column] [vc_column_text] \nMyositis Community Orientation Webinar\nJoin us for a Community Orientation Webinar to learn how you can participate virtually in the first-ever Adult Dermatomyositis Patient-Focused Drug Development (EL-PFDD) meeting with the FDA. \nSee the full agenda below\, including how you can get involved in this important endeavor. \n[/vc_column_text][vc_column_text] \nWednesday\, April 17\, 2024\n4 PM ET / 3 CT / 2 MT / 1 PT \n[/vc_column_text][vc_row_inner][vc_column_inner] Register to attend[vc_empty_space height=”12px”][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row equal_height=”yes” el_id=”details”][vc_column width=”1/2″][vc_column_text] \nThe agenda for this webinar:\n\nWhat is patient-focused drug development?\nWhat is the purpose of the Adult DM EL-PFDD?\nWhat does it mean to the community?\nHow can you get involved?\n\nSurvey\nWritten testimonials\nVideo testimonials\n\n\n\n[/vc_column_text][vc_empty_space height=”12px”][/vc_column][vc_column width=”1/2″][vc_column_text] \nAbout joining this webinar\nREGISTRATION IS REQUIRED. Click the Register button above to get started. After registration\, you will receive an email containing all information needed to join the webinar at the scheduled time and date. \nBe sure to check your spam and junk folders if you do not see the email.[/vc_column_text][/vc_column][/vc_row][vc_row padding_bottom=”10″][vc_column][vc_custom_heading text=”Event starts in . . .” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]2024/04/17 16:00:00[/vc_column][/vc_row][vc_row padding_top=”30″ padding_bottom=”0″][vc_column]\n\n	\nGet Zoom We use Zoom for all webinars and our video support sessions. \nZoom is available for free and you can download and install the software on your computer or laptop\, or use the free app for your smartphone and tablet. \nTo download the app for your smartphone or tablet\, open your app store\, search for Zoom\, and install.   \n\n	\nMSU on YouTube Follow us on YouTube for Live Streaming Events and over 100 videos of past webinars\, and to meet our volunteers.   \n\n	\nMSU Facebook page Be sure to visit and “Like” our public Facebook page for special events\, articles\, videos\, and patient and caregiver opportunities.   [/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/community-orientation-webinar/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/04/Adult-Dermatomyositis-Externally-Led-Patient-Focused-Drug-Development-Meeting-EL-PFDD-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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DTSTART;TZID=America/New_York:20230718T190000
DTEND;TZID=America/New_York:20230718T200000
DTSTAMP:20230710T143934Z
CREATED:20230710T143934Z
LAST-MODIFIED:20230710T143934Z
UID:10001398-1689706800-1689710400@understandingmyositis.org
SUMMARY:The MINT Clinical Trial for Myositis Patients with Interstitial Lung Disease
DESCRIPTION:[vc_row padding_top=”20″ padding_bottom=”30″][vc_column][vc_column_text] \nJoin Dr. Rohit Aggarwal and MSU for a webinar about The MINT Clinical Trial for Myositis Patients with Interstitial Lung Disease!\nTuesday\, July 18th at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT \nIf you have been diagnosed with pulmonary fibrosis\, also known as Interstitial Lung Disease (ILD)\, and you also have myositis (such as polymyositis\, dermatomyositis\, or anti-synthetase syndrome) or positive myositis autoantibodies\, you may be eligible to take part in a research study called MINT. \nThe goal of this study is to gain a better understanding of how anti-fibrotic drugs can help treat myositis associated with ILD. The study will focus on the drug Nintedanib (brand name Ofev®)\, an oral anti-fibrotic medication approved by the Food and Drug Administration (FDA) for the treatment of various types of ILD. \nThe exciting part is that this clinical trial is unique because you won’t need to visit a study center. You can participate in the study from the comfort of your own home. No need to worry about traveling long distances or spending time away from your surroundings. \nIs this study right for you? Join the webinar to find out and have all of your questions answered.[/vc_column_text] Click to Register on Zoom[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/mint-clinical-trial-myositis-interstitial-lung-disease/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2023/07/MINT-Webinar-5.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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