Myositis Support and Understanding

Young Adults with Myositis - MSU YA Collective Power Hour
2030-01-14 19:00 - 20:00 (America/New_York) | MSU Zoom Video Session, Video session using Zoom
The Second Tuesday of Every Month
7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT
REGISTER TO ATTEND

Support Group Details

Virtual Support Group Policies

FAQ

MSU Young Adult Collective Power Hour
Join fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood with a chronic illness. Share your experiences, challenges, and thoughts—from managing symptoms and medical appointments to balancing work, school, and relationships—with a focus on connection and empowerment.
Support sessions are never recorded. These are private, real-time video support sessions with others like you.
This session is open to all young adults (ages 18–40) living with any form of Myositis.
Sessions are held on the 2nd Monday of Each Month
1-Hour Session Only — designed to respect the busy lives of young adults who are working, raising families, studying, or doing it all.
Registration is required. After registering, you’ll receive an email with the link and details to join. Please see the registration link below.
You are not required to turn on your camera or speak—participate in the way that feels best to you.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments or jokes, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime within the first hour.
