BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Myositis Support and Understanding - ECPv6.15.17//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:Myositis Support and Understanding X-ORIGINAL-URL:https://understandingmyositis.org X-WR-CALDESC:Events for Myositis Support and Understanding REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20290311T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20291104T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20300310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20301103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20310309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20311102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20320314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20321107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20300130T170000 DTEND;TZID=America/New_York:20300130T190000 DTSTAMP:20260415T022816 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009286-1896022800-1896030000@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-01-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300222T170000 DTEND;TZID=America/New_York:20300222T190000 DTSTAMP:20260415T022816 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010836-1898010000-1898017200@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-02-22/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300329T170000 DTEND;TZID=America/New_York:20300329T190000 DTSTAMP:20260415T022816 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010837-1901034000-1901041200@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-03-29/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300330T170000 DTEND;TZID=America/New_York:20300330T190000 DTSTAMP:20260415T022816 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009287-1901120400-1901127600@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-03-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300426T170000 DTEND;TZID=America/New_York:20300426T190000 DTSTAMP:20260415T022816 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010838-1903453200-1903460400@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-04-26/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300430T170000 DTEND;TZID=America/New_York:20300430T190000 DTSTAMP:20260415T022816 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009288-1903798800-1903806000@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-04-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300530T170000 DTEND;TZID=America/New_York:20300530T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009289-1906390800-1906398000@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-05-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300531T170000 DTEND;TZID=America/New_York:20300531T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010839-1906477200-1906484400@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-05-31/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300628T170000 DTEND;TZID=America/New_York:20300628T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010840-1908896400-1908903600@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-06-28/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300630T170000 DTEND;TZID=America/New_York:20300630T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009290-1909069200-1909076400@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-06-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300726T170000 DTEND;TZID=America/New_York:20300726T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010841-1911315600-1911322800@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-07-26/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300730T170000 DTEND;TZID=America/New_York:20300730T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009291-1911661200-1911668400@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-07-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300830T170000 DTEND;TZID=America/New_York:20300830T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10005135-1914339600-1914346800@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-08-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300830T170000 DTEND;TZID=America/New_York:20300830T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010842-1914339600-1914346800@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-08-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300927T170000 DTEND;TZID=America/New_York:20300927T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010843-1916758800-1916766000@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-09-27/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20300930T170000 DTEND;TZID=America/New_York:20300930T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009292-1917018000-1917025200@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-09-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20301025T170000 DTEND;TZID=America/New_York:20301025T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010844-1919178000-1919185200@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-10-25/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20301030T170000 DTEND;TZID=America/New_York:20301030T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009293-1919610000-1919617200@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-10-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20301129T170000 DTEND;TZID=America/New_York:20301129T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010845-1922202000-1922209200@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-11-29/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20301130T170000 DTEND;TZID=America/New_York:20301130T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009294-1922288400-1922295600@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-11-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20301227T170000 DTEND;TZID=America/New_York:20301227T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010846-1924621200-1924628400@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2030-12-27/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20301230T170000 DTEND;TZID=America/New_York:20301230T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009295-1924880400-1924887600@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2030-12-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20310130T170000 DTEND;TZID=America/New_York:20310130T190000 DTSTAMP:20260415T022817 CREATED:20250910T183052Z LAST-MODIFIED:20260130T184807Z UID:10009296-1927558800-1927566000@understandingmyositis.org SUMMARY:Inclusion Body Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT)\nIBM Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nJoin fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options.  \n[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/43492/2031-01-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20310131T170000 DTEND;TZID=America/New_York:20310131T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010847-1927645200-1927652400@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2031-01-31/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20310228T170000 DTEND;TZID=America/New_York:20310228T190000 DTSTAMP:20260415T022817 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010848-1930064400-1930071600@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2031-02-28/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT END:VCALENDAR