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X-WR-CALNAME:Myositis Support and Understanding
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X-WR-CALDESC:Events for Myositis Support and Understanding
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DTSTART;TZID=America/New_York:20250115T190000
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DTSTAMP:20260415T181028
CREATED:20240904T204041Z
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UID:10001876-1736967600-1736973000@understandingmyositis.org
SUMMARY:Myositis Cancer Support
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nMyositis Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-asterisk” css=””]Register once to attend the Myositis Cancer Support After you register\, you will receive an email with the details to join. \nRegister again for an updated email from Zoom with the new sessions added and an option to add them to your calendar.[/vc_message]\n\n    \n                        \n                    \n                        Session Details                    \n                \n                                \n                    \n                        Session Policies                    \n                \n                                \n                    \n                        FAQ                    \n                \n                    \n    \n        \n\n    [vc_column_text css=””]We are excited to announce a special support group dedicated to Myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences\, find comfort in community\, and share resources that empower their journey. \nThis support group will not only focus on the challenges faced by those navigating life with both Myositis and cancer\, but also foster connections that uplift and inspire. \nYour journey matters\, and we believe that together we can cultivate resilience\, strength\, and hope. Whether you’re seeking advice\, encouragement\, or simply a listening ear\, this group is here for you. \nPlease mark your calendars and join us in building a supportive community where every voice is valued. \nTogether\, we can embrace the path ahead with courage and compassion.[/vc_column_text]\n\n\n    [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide:\n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n    [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n			\n\n[vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/myositis-cancer-support/2025-01-15/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Support Sessions
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Myositis-Cancer-Support-Group-Graphic-9.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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DTSTART;TZID=America/New_York:20250122T140000
DTEND;TZID=America/New_York:20250122T153000
DTSTAMP:20260415T181028
CREATED:20241231T190302Z
LAST-MODIFIED:20250113T164316Z
UID:10002033-1737554400-1737559800@understandingmyositis.org
SUMMARY:Your Health\, Your Voice: Building a Lifesaving Medical Binder
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nJoin Us for an Empowering Webinar: “Your Health\, Your Voice: Building a Lifesaving Medical Binder” with the Three Myositis Musketeers!\nWe are excited to invite you to an essential webinar hosted by Myositis Support and Understanding (MSU). Meet the team: Jessica Taylor\, Director of Operations and a dedicated myositis patient; Benita Moyer\, Vice President\, committed advocate\, and myositis patient; and Jason Hopauf\, Community Support Coordinator and fellow myositis patient. This dynamic team\, fondly known as the “Three Myositis Musketeers\,” will guide you through the vital process of preparing for medical appointments and emergencies. \nDate: Wednesday\, January 22nd \nTime: 2 PM ET / 1 PM CT / 12 PM MT / 11 AM PT \nDuring this session\, we’ll introduce you to MSU’s innovative downloadable PDF medical binder. This customizable binder is designed to empower myositis patients to take charge of their health information. By filling out and printing this binder\, patients can ensure that they\, and their advocates\, have immediate access to critical medical details when they are most needed. \nKey Takeaways: \n\nLearn how to prepare effectively for medical appointments and emergencies.\nDiscover the benefits of having a comprehensive medical binder.\nUnderstand how to use the MSU’s downloadable PDF to create a personalized and portable health resource.\nGain tips on how to communicate effectively with your medical team and advocate.\n\nDon’t miss this opportunity to enhance your medical preparedness and advocacy skills. Together\, let’s make sure your health is always in good hands. \nTo register for the webinar\, please click the link below \nWe look forward to seeing you there! \n  \n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column] To Register[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/your-health-your-voice-building-a-lifesaving-medical-binder/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/12/Your-Health-Your-Voice-Building-a-Lifesaving-Medical-Binder-with-the-Three-Myositis-Musketeers-4.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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