BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Myositis Support and Understanding - ECPv6.15.17//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://understandingmyositis.org X-WR-CALDESC:Events for Myositis Support and Understanding REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20250415T190000 DTEND;TZID=America/New_York:20250415T203000 DTSTAMP:20260415T130100 CREATED:20250327T214912Z LAST-MODIFIED:20250415T185452Z UID:10002054-1744743600-1744749000@understandingmyositis.org SUMMARY:Standards of Care for Home Infusion DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]Date: April 15th\nTime: 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\nPlatform: Zoom\nHosted by: IV Solutions Rx \nJoin us for an informative webinar on Standards of Care for Home Infusion\, designed to equip patients and caregivers with vital knowledge about home infusion therapy. This session will cover a comprehensive range of topics\, including: \n\nHow to Select a Pharmacy: Learn the factors to consider when choosing a pharmacy for home infusion.\nExpectations from Home Infusion Companies and Nurses: Understand what to anticipate from your infusion providers and nursing staff.\nInfusion Suite vs. Home: Explore the differences between receiving treatment in an infusion suite versus at home.\nProduct Selection and Copay Cards: Gain insights on how to navigate product options and potential financial assistance.\nInsurance Formularies: Learn about how insurance plans affect access to medications and treatments.\nAccreditations & Professional Certifications: Understand the importance of choosing accredited providers for your home infusion needs.\nSupplies: Discover what supplies you’ll need for effective home infusion care.\nWhat to Expect During Your Infusion and Outcomes: Get familiar with the infusion process and the expected results.\nBeing an Informed Consumer: Empower yourself with knowledge to advocate for the best care.\n\n[/vc_column_text][vc_row_inner][vc_column_inner] Register To Attend[/vc_column_inner][vc_column_inner][/vc_column_inner][vc_column_inner][vc_custom_heading text=”Guest Speakers” font_container=”tag:h2|text_align:center” css=””][/vc_column_inner][vc_column_inner width=”1/2″][vc_single_image image=”42690″ img_size=”medium” css=””][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””] \nVicky Starr\, RN\, IgCN\n\nDirector of Clinical Services & COO\n\n\nVicky has been a nurse for over 35 years with a focus in chronic disease states requiring infusion for the last 20 years.  She is a certified IG nurse and is Director of Clinical Services and the COO of IV Solutions Rx. \n\n[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner][vc_column_inner width=”1/2″][vc_single_image image=”42687″ img_size=”medium” css=””][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””] \nMichelle Vogel\, MPA\nVice President of Patient Advocacy\nIn 2022\, Michelle joined IV Solutions RX as Vice President of Patient Advocacy to continue her outreach with patients ensuring that no patient goes without their lifesaving therapy in an affordable site of care. \nMichelle has years of experience testifying before Congress\, federal agencies\, and state legislatures. She is also a prominent speaker on topics such as Medicare reimbursement\, patient copay assistance programs\, the economics of the plasma industry\, health insurance reform\, navigating health insurance\, and patient advocacy. Michelle’s hobby is assisting patients to successfully navigate their health insurance policies to ensure that they get covered for their prescribed medications and other services.[/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/standards-of-care-for-home-infusion/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/03/Heading-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250416T190000 DTEND;TZID=America/New_York:20250416T203000 DTSTAMP:20260415T130100 CREATED:20240904T204041Z LAST-MODIFIED:20250909T190925Z UID:10002050-1744830000-1744835400@understandingmyositis.org SUMMARY:Myositis Cancer Support DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nMyositis Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-asterisk” css=””]Register once to attend the Myositis Cancer Support After you register\, you will receive an email with the details to join. \nRegister again for an updated email from Zoom with the new sessions added and an option to add them to your calendar.[/vc_message]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]We are excited to announce a special support group dedicated to Myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences\, find comfort in community\, and share resources that empower their journey. \nThis support group will not only focus on the challenges faced by those navigating life with both Myositis and cancer\, but also foster connections that uplift and inspire. \nYour journey matters\, and we believe that together we can cultivate resilience\, strength\, and hope. Whether you’re seeking advice\, encouragement\, or simply a listening ear\, this group is here for you. \nPlease mark your calendars and join us in building a supportive community where every voice is valued. \nTogether\, we can embrace the path ahead with courage and compassion.[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide:\n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositis-cancer-support/2025-04-16/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Myositis-Cancer-Support-Group-Graphic-9.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250428T180000 DTEND;TZID=America/New_York:20250428T190000 DTSTAMP:20260415T130100 CREATED:20250318T185722Z LAST-MODIFIED:20250331T225539Z UID:10002043-1745863200-1745866800@understandingmyositis.org SUMMARY:Webinar: Automotive Mobility Solutions - Features & Benefits DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nMonday\, April 28th on Zoom\n3 PM PT / 4 PM MT / 5 PM CT / 6 PM ET\nJoin us for an insightful webinar focused on exploring the diverse world of automotive mobility solutions. This session aims to educate attendees about the various types of mobility aids available\, including driving aids\, hand controls\, scooter lifts\, assist seating\, and wheelchair-accessible vehicles. \nWhat You Will Learn: \nComprehensive Overview: Understand the range of automotive mobility solutions available to enhance independence and ease of transportation. \nNeeds Analysis: Learn about our robust needs analysis process\, designed to help individuals determine the most suitable solutions for their unique mobility requirements. \nFinancing Options: Explore the financing options available to make these mobility solutions accessible to a broader audience. \nSpeaker: Monique McGivney Monique McGivney\, a seasoned expert in the mobility industry\, has over 20 years of experience and a deep passion for assisting the mobility community. Based in Arizona\, Monique dedicates her time to working closely with customers\, helping them find optimal mobility solutions suited to their needs and budgets. She is also committed to educating both customers and allied health professionals about the wide array of mobility options available. Her extensive knowledge and dedication make her a valuable resource for anyone interested in learning more about automotive mobility solutions. \nWhether you’re a potential user\, caregiver\, or health professional\, this webinar offers valuable insights to enhance your understanding of mobility solutions and their benefits. \nDon’t miss this opportunity to expand your knowledge and make informed decisions about automotive mobility solutions. Register now to secure your spot and join us for this enlightening session![/vc_column_text] Register[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/webinar-automotive-mobility-solutions-features-benefits/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/03/Webinar-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT END:VCALENDAR