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X-WR-CALNAME:Myositis Support and Understanding
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X-WR-CALDESC:Events for Myositis Support and Understanding
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DTSTART;TZID=America/New_York:20250505T190000
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UID:10002055-1746471600-1746478800@understandingmyositis.org
SUMMARY:Sexual Intimacy with Myositis\, "Exclusive for Women with Myositis Group"
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nMonday\, May 5th on Zoom \n4 PM PT / 5 PM MT / 6 PM CT / 7 PM ET \nJoin us for an insightful webinar tailored specifically for the Women with Myositis group. Led by Noelle Benach\, a licensed psychotherapist and certified sex therapist\, this session will address the unique challenges and strategies for maintaining intimacy while living with myositis.  \nDuring the webinar\, Noelle will explore how myositis impacts sexual health\, delving into both physical and emotional challenges such as fatigue\, pain\, and changes in libido. Participants will learn practical tips for adapting intimacy practices\, including effective communication with partners and strategies for energy management. Additionally\, the session will highlight the importance of self-care and mental health in fostering intimate relationships.  \nThis interactive webinar will also feature a Q&A segment where attendees are encouraged to submit questions in advance. Noelle will provide thoughtful responses\, creating a supportive environment for sharing and learning. \nDon’t miss this incredible opportunity to learn and connect—register now! \n#SexualIntimacy #Myositis #Webinar #MentalHealth #WomenWithMyositis \n[/vc_column_text] Register To Attend[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”42738″ img_size=”large” add_caption=”yes” css=”” title=”Noelle Benach\, LCPC\, CST”][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Noelle Benach\, LCPC\, CST (She/Her) is a Baltimore based Psychotherapist and AASECT Certified Sex Therapist. Noelle works with adult individuals\, couples and those in non-monogamous relationships to address concerns such as sexuality and desire\, body liberation\, LGBTQIA+ issues\, chronic illness concerns\, neurodivergence\, anxiety\, fertility issues\, and parenting stress.  \nNoelle is currently working towards her PhD in Clinical Sexology and is currently writing a book about how sexuality and pleasure can be a means of liberation for fat bodies.   \nWhen she isn’t working or studying\, you can find Noelle spending time with her spouse and pets\, baking up a fresh loaf of sourdough\, or planning her next DIY project. Noelle identifies herself as queer\, fat\, neurodivergent\, and chronically ill and believes those intersections of her identity positively influences her work with clients who have similar lived experiences. [/vc_column_text][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/sexual-intimacy-with-myositis-exclusive-for-women-with-myositis-group/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Support Sessions
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/04/Womens-group-for-myo-may-1200-x-630-px-2.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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DTSTART;TZID=America/New_York:20250510T140000
DTEND;TZID=America/New_York:20250510T153000
DTSTAMP:20260415T145114
CREATED:20250409T175347Z
LAST-MODIFIED:20250409T175347Z
UID:10002056-1746885600-1746891000@understandingmyositis.org
SUMMARY:The Unseen Grief: Recognizing & Healing from Secondary Loss Workshop
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nSaturday\, May 10th \n11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET \nJoin us for an interactive workshop\, “The Unseen Grief: Recognizing and Healing from Secondary Loss\,” specifically designed for both individuals affected by myositis and their care partners. This collaborative session will delve into the often-overlooked aspects of grief experienced by those living with this condition\, focusing on the loss of identity\, capabilities\, and the life one once knew. \nDr. Romano will facilitate discussions to help participants\, both patients and care partners\, recognize the subtle yet significant losses that accompany myositis. He will provide valuable strategies and tools to navigate the associated emotional challenges\, fostering an environment of open dialogue and group exploration. \nAn engaging writing reflection activity will be included\, encouraging attendees to share their personal experiences and insights. Participants will have the opportunity to explore their feelings\, uncover paths to healing\, and connect with others who share similar journeys in a supportive atmosphere. \nEngage with Dr. Romano in this dynamic workshop as we collectively explore the intricate emotional landscape of secondary loss and discover pathways to healing. This is an invaluable opportunity for self-reflection\, connection\, and growth for both individuals affected by myositis and their care partners. Don’t miss out on this chance to participate![/vc_column_text] Register To Attend[vc_row_inner][vc_column_inner width=”1/2″][vc_single_image image=”42752″ img_size=”large” add_caption=”yes” css=”” title=”Dr. Pablo Romano”][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=””]Pablo is a third-year psychiatry resident at Columbia University and will be chief resident for the 2025-2026 academic year. Prior to attending Columbia\, he received a bachelor’s degree in Cognitive Science from Occidental College\, completed a Fulbright fellowship in Argentina\, and obtained a medical degree from Stanford University’s School of Medicine. As a medical student\, he researched the impact of storytelling interventions on medical student wellness and was co-chair of the Stanford Latino Medical Student Association. As a resident\, Pablo has pursued additional psychotherapy training\, led medical storytelling sessions at CUMC\, co-led a narrative medicine group with a focus on bereavement\, and co-chaired the Wellness Committee. Aside from his clinical work\, Pablo has published a number of creative pieces related to grief\, immigration\, and medicine; his work can be found at the Nocturnists\, the Intima\, and elsewhere. He plans to pursue training in palliative care and clinical ethics.   [/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/the-unseen-grief-recognizing-healing-from-secondary-loss-workshop/
LOCATION:MSU Zoom Video Session\, Video session using Zoom
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/04/Grief-1200-x-630-px-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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