Myositis Cancer Support Group
2029-10-17 19:00 - 20:30 (America/New_York) | MSU Zoom Video Session, Video session using Zoom
Starting at 7 PM Eastern Time
(6 PM CT, 5 PM MT, 4 PM PT)
Myositis Patients, click the button below to register to attend.
REGISTER TO ATTEND

Support Group Details

Virtual Support Group Policies

FAQ

We are excited to announce a special support group dedicated to Myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey.
This support group will not only focus on the challenges faced by those navigating life with both Myositis and cancer, but also foster connections that uplift and inspire.
Your journey matters, and we believe that together we can cultivate resilience, strength, and hope. Whether you’re seeking advice, encouragement, or simply a listening ear, this group is here for you.
Please mark your calendars and join us in building a supportive community where every voice is valued.
Together, we can embrace the path ahead with courage and compassion.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime within the first hour.

International Myositis Support
2029-10-20 14:00 - 16:00
Starting at 2 PM Eastern time
(1 PM CT, 12 PM MT, 11 AM PT)
Myositis Patients, click the button below to register to attend.
REGISTER TO ATTEND

Support Group Details

Virtual Support Group Policies

FAQ

International Myositis Virtual Support Group for all Myositis patients and their care partners, held on Zoom. This is a fantastic opportunity to connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment.
When: Every third Saturday of the month
Time: 2:00 PM ET (Eastern Time, USA) 1:00 PM CT (Central Time, USA) 12:00 PM MT (Mountain Time, USA) 11:00 AM PT (Pacific Time, USA) 7:00 PM BST (British Summer Time, UK) 8:00 PM CEST (Central European Summer Time)
Whether you are newly diagnosed or have been managing Myositis for years, this group is here to provide community, resources, and understanding. We look forward to seeing you there!
This session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM), Dermatomyositis (DM), Clinically Amyopathic Dermatomyositis (CADM), Antisynthetase Syndrome (ASyS), Immune-Mediated Necrotizing Myopathy (IMNM), Inclusion Body Myositis (IBM), adults with and parents of children with Juvenile Dermatomyositis (JDM), Nonspecific Myositis, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease.
Registration is required. After registration, you will receive an email with details to join. See the link to register at the top of this page.
Join with your camera on or off. Join to be a part of the discussion or listen in.
Check out all of our video support sessions, and other support options.

Support Session Guidelines
We don’t like to impose rules, however, to keep everyone safe please read over the policies below.
Session Privacy, Trust, and Behavior
To keep everyone feeling safe, here is a list of our general, but important, policies.

Anything shared in the video support group session stays there! Just as in our closed online support groups, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.
When sharing, we ask you to be mindful of time so everyone has a chance to share.
If you have something to add to the discussion, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.
Anything shared should be audience-appropriate. We will not tolerate hate speech, bullying, inappropriate comments or jokes, or the promotion of any outside services, products, websites, or other online links that are not related to our discussions.

We will NOT have or provide:

A debate about science;
A political discussion;
A conversation about conspiracy theories;
Medical advice (beyond what is listed as criteria to call your doctor).

What we hope this video support session will be:

A safe space to voice your experiences and ask questions among similarly situated people who understand;
A place to get ideas for staying sane while practicing social distancing, isolation, or quarantine;
A chance to get ideas for staying safe if you must continue participating in the outside world;
An opportunity to see that you are not alone.

The views and opinions of session Hosts, Co-hosts, and Volunteers are not that of Myositis Support and Understanding (MSU).

How do I join video support sessions?
Zoom is available for almost all devices including computers, laptops, smartphones, and tablets.
To install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings.
To install Zoom on a device: Visit your App store and search for Zoom and install.
Then, visit our Events Calendar and register for the monthly support sessions that interest you.
If you need additional help, we have Zoom help documents with more detail.
Why do I have to register?
Because of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration, you will receive an email with the details to join on Zoom, which also includes a link to add it to your calendar.

Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long, so join us anytime.
