Media Inquiries

Myositis Support and Understanding (MSU) is a 501(c)(3) nonprofit organization which is focused on providing education, advocacy, and support to people touched by forms of Myositis. The diseases, also known as Idiopathic Inflammatory Myopathies or Acquired Myopathies, have varying symptoms which fall under all or some of the following categories:

  • Rare diseases
  • Autoimmune diseases
  • Neuromuscular Diseases
  • Skin Diseases
  • Pulmonary Diseases
  • Invisible Diseases
  • Chronic Diseases
  • Disabling Conditions

MSU's Goals

MSU wants to bring about better understanding of all aspects related to living with Myositis to patients, caregivers, family members, friends, co-workers, and medical professionals and uses the following platforms to reach the intended audience:

  • A comprehensive, easy to understand website containing relevant information, education, support, and sources (www.UnderstandingMyositis.org),
  • Our programs and services such as advocacy and outreach and our Financial Assistance program.
  • A public Facebook page (https://www.facebook.com/understandingmyositis/),
  • Multiple closed Facebook support groups aimed at specific issues of living with Myositis,
  • Other support methods such as our website’s Myositis Network and online Video Chat Support
  • Other social media sites: Twitter, Pinterest, Instagram, Google Plus, Tumblr, Flickr, and YouTube.

For media related inquiries, please contact jerry@understandingmyositis.org. For all other inquiries, please visit our contact page.

© Myositis Support and Understanding Association, Inc. 2010-2018. All Rights Reserved. MSU is a patient-centered 501(c)(3) nonprofit organization.

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Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register

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