Myositis Patient Insights Virtual Roundtable with UK and EU Industry

Our Lives Matter digital badgeIt is important that the real-world lived experiences of myositis patients be incorporated into the creation of clinical trials. MSU has partnered with argenx to ensure that the voice and lived experiences of myositis patients are, in fact, included in the clinical trial design process.

We are seeking to recruit six (6) people in the UK and the EU living with dermatomyositis, immune-mediated necrotizing myopathy, and antisynthetase syndrome to participate in a 90-minute Zoom conference discussion, scheduled to take place in early July 2021.

Unfortunately, due to EU regulations patients cannot receive a stipend. There are also some exclusion criteria established by the clinical research team that will result in anyone with uncontrolled ILD or active cancer to not be able to participate in this session. But we encourage anyone who may not qualify for this specific opportunity, to continue following MSU for future potential opportunities to participate in similar programs.

We are looking for patients who speak English, and meet the criteria above who are living in the United Kingdom, or in the EU, France, Germany, Spain, Italy, the Netherlands, Austria.

Please submit your interest by Wednesday, June 30th. Upon receiving your submission, a member of our team will be in touch to schedule the call around the week of July 6th.

Our Lives Matter digital badge

From Our Lives Matter DEI Initiative

Of the 525 companies/organizations that were put to the authenticity test, MSU was the only advocacy-based organization to pass, as the MSU executive team chose to take meaningful steps towards authentically implementing real-world DEI solutions.

As MSU’s domain(s) undergo the OLM DEI certification process, MSU’s commitment to equitable and inclusive practices have resulted in the successful certification of the Myositis Patient Insights Virtual Roundtable with Industry registration form. In addition, the community has the opportunity to submit a DEI Public Report regarding any concerns, issues, inappropriate and/or offensive content that may be published on this registration form at any time for review and consideration by an expert team of community-based DEI professionals.

© 2022 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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