What MSU means to me. What does MSU mean to you?

Art fundraiser by Emily Filmore

As some already know, Emily Filmore, one of MSU’s founding Board Directors and current advisor is a poet, author, and artist, as well as a retired lawyer. She often uses her art and writing to distract herself as well as express and ease her pain from myositis and other conditions.

Emily recently went through new rounds of testing, she had lost most of her independence in the past few months. She had been to the ER for heart attack-like and stroke-like symptoms (thankfully, they were not) but had been unable to drive or even comfortably sit up for more than 30-60 minutes at a time, for weeks, due to dizziness and heart palpitations. She has finally gotten a diagnosis of autonomic dysfunction (with features of orthostatic hypotension and unexplained tachycardia) and an additional one of suspected mast cell activation syndrome. Recently, in the pit of depression, she picked up a paint brush to paint a halloween decoration. She noticed her dizziness immediately disappeared. In subsequent research she has verified her instincts were correct, this is scientifically sound, activating the creative part of the brain “flow” helps with these symptoms. Well, MSU is going to benefit from that talent and ameliorative effort right now! We are selling raffle tickets, via a random computer generated drawing, to own this original Expressive POP Painting by Emily that expresses, “What MSU means to me. What does MSU mean to you?”

Purchase your tickets below!

What MSU means to me. What does MSU mean to you

Fundraiser Information

Raffle tickets are $5 per ticket. There is no limit on how many tickets you can buy and 100% of all money raised will go to MSU. Emily will not take a penny. The random drawing will take place on Saturday, Nov. 28, 2020, and winners will be announced on Facebook and they will also be notified via email.

The raffle winner gets the original canvas painting and a copy of Emily’s book, The Marvelous Transformation: Living Well with Autoimmune Disease!

As extra incentive: If the fundraiser is extremely successful we have the potential to draw extra winners!

If we raise over $2000, we will draw a second place winner and Emily will donate a print and a copy of her book to the second place winner. If the fundraiser goes over $5000, we will draw a third place winner and Emily will donate a print and a copy of her book to the third place winner. If we raise $10,000 we will draw a fourth place winner and Emily will donate a print and a copy of her book to the fourth place winner.

What MSU means to me. What does MSU mean to you? (2020)

by Emily Filmore

Acrylic on Canvas, Expressive Pop

As a co-founding director of Myositis Support and Understanding, the artist wanted to capture and memorialize the essence of MSU’s work and importance in the myositis community. She spent the first seventeen years of her illness never having another myositis patient to communicate with. Upon forming friendships with Jerry Williams (Founder and President) and Sandy Block (co-founding director), her world changed. She is thrilled they were able to make sure no other Myositis patient ever has to be alone.

The raffle is now closed. Thank you for your support. Be sure to visit our Facebook page to see who won. Visit https://facebook.com/understandingmyositis. There are many other ways you can give to help keep the myositis community strong. Join us in Giving on Dec. 1st, Giving Tuesday. See details at https://understandingmyositis.org/give

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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