Share your myositis patient or care partner story

We want to read your experiences about living with or caring for someone with myositis. Sharing your story will help to empower others and advance awareness of myositis. It will also help others understand how this rare disease affects everyone so differently.

Myositis Life website, patient and caregiver experiences

Introducing #MyositisLIFE

During May of 2019, we launched a brand new program and website, a first for the myositis community, called #MyositisLIFE!

Read and share your own experiences with myositis. Become a contributing author and submit your story, photos, short videos, and memes dirctly through your author account.

Get reading and sharing by visiting us at MyositisLife.org.

Visit MyositisLIFE.org

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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