Share your myositis patient or care partner story
November we celebrate our myositis caregivers. Each myositis patient is affected differently by their disease and so are those who love and care for them. Share your unique caregiving story with us to share publicly.
We want to read your story about living with or caring for someone with myositis. Sharing your story will help to empower others and advance awareness of myositis. It will also help others understand how this rare disease affects everyone so differently.
Simply use the form below to submit your story and photo(s) to us. Once approved, we will add it to our website and share with our social networks.
By submitting your story and photo to us, you are giving us permission to share these publicly.
Since your story will be published publicly, we ask that you choose how you would like your name to appear. Under “display name,” please enter your name exactly as you want it to appear. You can use your full name, initials, a variation of the two or type ‘none’ and we will use anonymous as the author name.
The form below allows you to create and submit your story in pieces so you don’t have to do it all at once. However, if you would rather share your story as a typed document, you can use our Uploads page.
Join our email updates and newsletter
Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register