Share your myositis patient or care partner story

We want to read your experiences about living with or caring for someone with myositis. Sharing your story will help to empower others and advance awareness of myositis. It will also help others understand how this rare disease affects everyone so differently.

Myositis Life website, patient and caregiver experiences

Introducing #MyositisLIFE

During May of 2019, we launched a brand new program and website, a first for the myositis community, called #MyositisLIFE!

Read and share your own experiences with myositis. Become a contributing author and submit your story, photos, short videos, and memes dirctly through your author account.

Get reading and sharing by visiting us at


© 2021 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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