BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Myositis Support and Understanding - ECPv6.15.17//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://understandingmyositis.org X-WR-CALDESC:Events for Myositis Support and Understanding REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20260527T150000 DTEND;TZID=America/New_York:20260527T160000 DTSTAMP:20260529T185706 CREATED:20260506T174413Z LAST-MODIFIED:20260506T211021Z UID:10011109-1779894000-1779897600@understandingmyositis.org SUMMARY:The Hidden Weight of Care: Survey Insights and Creating Your Personal Care Map DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nWednesday\, May 27\n3 PM ET/ 2 PM CT/1 PM MT/ 12 PM PT  \n  \nCaregiving carries emotional\, mental\, and physical demands—often over a long and unpredictable journey. This session shares insights from the MSU Carers Survey\, highlighting the unique challenges faced by those caring for loved ones with Inclusion Body Myositis (IBM). \nLed by Marlene and Rod Jansen\, this session brings both data and lived experience together. Marlene\, wife and caregiver to Rod\, played a key role in the development and delivery of the survey and will walk through its key findings and what they reveal about the realities of caregiving. \nBuilding on these insights\, Rod will introduce the concept of a “Care Map”—a simple\, visual tool to help you identify the people\, resources\, strengths\, and gaps within your caregiving network. Participants will learn how to create their own Care Map to better understand and support both the caregiver and the person receiving care.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column]REGISTER HERE[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”43818″ css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]A retired telecom professional based in southern Ontario\, Marlene now dedicates her time and energy to caregiving\, advocacy\, and animal welfare. Her special connection to the Understanding Myositis organization comes from her role as care partner for her  husband who lives with inclusion body myositis (IBM)\, and riding the rollercoaster from diagnosis to adaptation. She also cares for her 92-year-old mother. \nHer journey as a caregiver began in 2008 when her  brother suffered a massive stroke. Since then\, she has become deeply familiar with the challenges faced by people with disabilities and their families. This firsthand experience has made her a passionate advocate for accessibility\, inclusion\, and the often-overlooked needs of caregivers. \nAt home\, she shares life with her husband\, daughter\, a devoted dog\, and a spirited cat. As a lifelong animal lover and champion for the underdog—whether two-legged or four—she strives to create compassion and understanding wherever she can.  She adores animals and has worked as a volunteer with various rescue and rehabilitation organizations.  She also provides assistance to the drug addicted and homeless women in her  community.   \nIn her  downtime she loves to crochet and confesses to spending too much time on Facebook.   [/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44621″ css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””] \nRod Jansen is a retired telecommunications professional. He worked in Canada\, USA and the Middle East. An avid tennis player\, he started falling for no reason on the tennis court and then at home. \nIn July 2021\, after several years of falling and experiencing progressive weakness in his legs and arms\, he was diagnosed with Inclusion Body Myositis (IBM). \nRod currently serves as Vice President of Myositis Canada. \n[/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/the-hidden-weight-of-care-survey-insights-and-creating-your-personal-care-map/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Education Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/05/Myositis-Awareness-Month-Webinars.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260519T140000 DTEND;TZID=America/New_York:20260519T150000 DTSTAMP:20260529T185706 CREATED:20260506T162520Z LAST-MODIFIED:20260506T171153Z UID:10011108-1779199200-1779202800@understandingmyositis.org SUMMARY:Travel IS Still Possible: Accessible travel isn't a dream - it's a plan and you're ready to start DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nTuesday\, May 19\n2 PM ET/ 1 PM CT/ 12 PM MT/11 AM PT\nLet’s talk accessible travel with Lesli Wang and MSU!  We all know Lesli as the inventor and manufacturer of the Free2Go Rollator\, an award-winning toilet safety and mobility aid.  This device has helped shape the future of accessible and stress free\, safer  travel for myositis patients. Fueled by her passion for travel and dedication to accessibility\, Free2Go Travel\, was a natural extension  of her business. \nCome join us and share your insights with accessible travel.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column]Register Here[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44609″ css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Lesli Wang is the President & CEO of Free2Go Mobility Products and Founder ofFree2Go Travel. Her journey began as a daughter and caregiver\, supporting hermother who lived with Inclusion Body Myositis. \nAs she witnessed her mom’s gradual loss of strength and independence—and thelack of safe\, dignified solutions—Lesli was driven to create something better. Shewent on to invent the patented Free2Go Rollator\, a 3-in-1 mobility solutiondesigned to provide safe toileting and restore confidence both at home and on the go. \nToday\, Lesli’s mission extends beyond innovation. Through Free2Go Travel\, she helps individuals living with mobility challenges\, including myositis\, continue to experience life fully—with greater independence\, dignity\, and the freedom to travel.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_column_text css=””]Download Free2Go Travel Brochure here: https://understandingmyositis.org/wp-content/uploads/2017/01/F2G-Travel-Brochure-Print-V6-03.04.26.pdf[/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/travel-is-still-possible-accessible-travel-isnt-a-dream-its-a-plan-and-youre-ready-to-start/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Education Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/05/Travel-With-Lesli-Wang-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260516T140000 DTEND;TZID=America/New_York:20260516T160000 DTSTAMP:20260529T185706 CREATED:20260131T170927Z LAST-MODIFIED:20260131T170928Z UID:10003566-1778940000-1778947200@understandingmyositis.org SUMMARY:International Myositis Support DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 2 PM Eastern time\n(1 PM CT\, 12 PM MT\, 11 AM PT)\nMyositis Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]International Myositis Virtual Support Group for all Myositis patients and their care partners\, held on Zoom. This is a fantastic opportunity to connect with others from around the world\, share experiences\, and offer mutual support in a safe and welcoming environment. \nWhen: Every third Saturday of the month \nTime: 2:00 PM ET (Eastern Time\, USA) 1:00 PM CT (Central Time\, USA) 12:00 PM MT (Mountain Time\, USA) 11:00 AM PT (Pacific Time\, USA) 7:00 PM BST (British Summer Time\, UK) 8:00 PM CEST (Central European Summer Time) \nWhether you are newly diagnosed or have been managing Myositis for years\, this group is here to provide community\, resources\, and understanding. We look forward to seeing you there! \nThis session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/international-myositis-support-2/2026-05-16/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/International-Myositis-Support-Group-Graphic-7.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260513T190000 DTEND;TZID=America/New_York:20260513T200000 DTSTAMP:20260529T185706 CREATED:20260506T033234Z LAST-MODIFIED:20260506T154311Z UID:10011107-1778698800-1778702400@understandingmyositis.org SUMMARY:Dermatomyositis: Research\, Real Life & the Lived Experience of Patients of Color DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nWednesday\, May 13\n7 PM ET/ 6 PM CT/ 5 PM MT/ 4 PM PT \n  \nJoin us for a casual\, interactive fireside chat exploring new research from UAB and MSU highlighting the diagnostic and psychosocial experiences of people living with dermatomyositis\, including important disparities reported by patients of color.  This session will highlight key findings from a recent survey-based study\, with discussion led by medical students involved in the research alongside a physician providing clinical insight – Dr. Lauren Graham\, Dr. Mallory Von Lotten\, and Kyanna Williams.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column]Register Here[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44580″ img_size=”large” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Dr. Lauren Graham received her MD and PhD at University of Alabama at Birmingham (UAB). She completed her dermatology training at Northwestern University in Chicago.  She now serves as Vice-Chair for Clinical Affairs in Dermatology at UAB where she also directs the Skin Autoimmune Blistering Disease Clinic and Co-Directs the Rheumatology-Dermatology Combined Clinic.  Her clinical interests are in autoimmune skin disease.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44582″ img_size=”medium” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Mallory Von Lotten is a fourth-year medical student at the University of Alabama at Birmingham (UAB) Heersink School of Medicine\, where she also earned her Master of Science in Biomedical and Health Sciences. She will begin her preliminary internal medicine year at Baptist Health Birmingham\, with plans to pursue a career in dermatology. Mallory is deeply committed to advancing health equity\, with a particular focus on skin of color and improving representation in dermatologic education and clinical research. Her work spans multiple peer-reviewed publications and national presentations\, including projects on acne treatment disparities\, clinical trial participation\, and dermatologic conditions in underrepresented populations. She is passionate about community engagement and has led initiatives aimed at increasing awareness and trust in clinical research among minority communities.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44581″ img_size=”medium” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Kyanna W. Johnson\, MPH\, is a medical student with a background in public health and a passion for health equity. Her work focuses on improving care for underserved populations through research\, education\, and advocacy. As someone living with myositis\, Kyanna brings a unique perspective that bridges clinical knowledge and lived experience\, helping to highlight the challenges patients face and the importance of patient-centered\, inclusive care.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_column_text][/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/dermatomyositis-research-real-life-the-lived-experience-of-patients-of-color/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Education Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/05/Skin-of-Color-.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260512T190000 DTEND;TZID=America/New_York:20260512T210000 DTSTAMP:20260529T185706 CREATED:20260131T032418Z LAST-MODIFIED:20260201T015047Z UID:10006672-1778612400-1778619600@understandingmyositis.org SUMMARY:Breathe Easy: Myositis Lung Support Monthly Virtual Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_color=”orange” icon_fontello=”” css=””] \nSecond Tuesday of the Month\n7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Group Details \n \n \n \n Virtual Support Group Policy \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nBreathe Easy: Myositis Lung Support (Monthly Virtual Support Group)\n“Breathe Easy\,” our ongoing support group dedicated to individuals with Myositis experiencing lung issues. Join us every month for a virtual gathering providing connection and support. \nMeeting Details: \n\nWhen:  Second Tuesday of the Month\, 7 PM ET\nWhere: Zoom (register above)\n\nWhat You’ll Experience: This group offers a compassionate space to connect with others who understand the unique challenges of Myositis and lung complications. Share experiences\, gain insights\, and find strategies to manage your lung health while fostering a community of support and understanding. \nDiscussion Topics Include: \n\nLung health\nCoping strategies\nEmotional support\n\nWhether you’re facing daily challenges or seeking guidance\, you’re not alone. Everyone with Myositis and lung issues is encouraged to join. Your voice matters\, and together\, we can support one another in this safe and nurturing environment. \nJoin us to breathe easier and foster a sense of belonging—one meeting at a time.[/vc_column_text]\n\n\n [vc_column_text css=””] \nVirtual Support Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/breathe-easy-myositis-lung-support-monthly-virtual-support-group-2/2026-05-12/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/01/Breathe-Easy.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260511T190000 DTEND;TZID=America/New_York:20260511T200000 DTSTAMP:20260529T185706 CREATED:20250909T224353Z LAST-MODIFIED:20260518T202201Z UID:10003378-1778526000-1778529600@understandingmyositis.org SUMMARY:Young Adults with Myositis - MSU YA Collective Power Hour DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nThe Second Monday of Every Month\n7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nMSU Young Adult Collective Power Hour \nJoin fellow young adults living with Myositis for a private\, real-time group video support session. This is a safe\, supportive space to connect with others who understand what it’s like to navigate young adulthood with a chronic illness. Share your experiences\, challenges\, and thoughts—from managing symptoms and medical appointments to balancing work\, school\, and relationships—with a focus on connection and empowerment.  \nSupport sessions are never recorded. These are private\, real-time video support sessions with others like you.  \nThis session is open to all young adults (ages 18–40) living with any form of Myositis.  \nSessions are held on the 2nd Monday of Each Month\n1-Hour Session Only — designed to respect the busy lives of young adults who are working\, raising families\, studying\, or doing it all.  \nRegistration is required. After registering\, you’ll receive an email with the link and details to join. Please see the registration link below.  \nYou are not required to turn on your camera or speak—participate in the way that feels best to you. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/young-adults-with-myositis-msu-ya-collective-power-hour-2/2026-05-11/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/MSU-YA-Adult-FB-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260507T160000 DTEND;TZID=America/New_York:20260507T170000 DTSTAMP:20260529T185706 CREATED:20260501T005833Z LAST-MODIFIED:20260504T021152Z UID:10011105-1778169600-1778173200@understandingmyositis.org SUMMARY:Pain as an under recognized symptom of Myositis DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nThursday\, May 7\n4 PM ET/ 3 PM CT/ 2 PM MT/ 1 PM PT\n  \nPain is a critical but often overlooked symptom in myositis. This webinar will empower patients\, caregivers\, and healthcare professionals with the knowledge to recognize\, assess\, and address pain in IIM\, fostering better patient-centered care. Don’t miss this opportunity to engage with Dr. Saygin and advance your understanding of pain in myositis! \n[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column]Register to Attend[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”43852″ img_size=”large” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Dr. Didem Saygin is a clinician researcher and rheumatologist with a focus on inflammatory muscle diseases and autoimmune interstitial lung diseases. She is the director of the Rush Myositis Program at the Division of Rheumatology at Rush University Medical Center and co-director of the Rush Autoimmune Lung Diseases Clinic. Dr. Saygin’s research focuses on outcome measures and pain in myositis and is currently supported by the Rheumatology Research Foundation and other organizations. She also serves as the Vice Chair of the International Myositis Society.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_column_text]Myositis Support and Understanding Groundbreaking paper on Pain in Myositis:\nhttps://academic.oup.com/rheumatology/article/62/1/264/6586791?login=false&guestAccessKey= \n[/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/pain-as-an-under-recognized-symptom-of-myositis/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Education Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/04/Pain-with-Didem-Saygin-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260506T190000 DTEND;TZID=America/New_York:20260506T210000 DTSTAMP:20260529T185706 CREATED:20250909T202720Z LAST-MODIFIED:20260131T031424Z UID:10003321-1778094000-1778101200@understandingmyositis.org SUMMARY:Wednesday Evening Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \n1st Wednesday of Each Month\nStarting at 7 PM ET\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nClick the button below to register to attend. \n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life\, with a focus on gratitude and living our best life with Myositis. \nThis session is tailored to anyone living with any of the types of myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/wednesday-evening-myositis-support-group/2026-05-06/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/MSU-Wednesday-Evening-Support-Event-IG-1200-x-630-px-6.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260504T190000 DTEND;TZID=America/New_York:20260504T210000 DTSTAMP:20260529T185706 CREATED:20250909T192658Z LAST-MODIFIED:20260131T214356Z UID:10005702-1777921200-1777928400@understandingmyositis.org SUMMARY:Women with Myositis Virtual Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nFirst Monday of Every Month\nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow women with Myositis for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is open to all women with any type of Myositis. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so that everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message icon_fontello=”star” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/women-with-myositis-virtual-support-group/2026-05-04/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Womens-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260425T190000 DTEND;TZID=America/New_York:20260425T210000 DTSTAMP:20260529T185706 CREATED:20250910T185520Z LAST-MODIFIED:20260131T021845Z UID:10003732-1777143600-1777150800@understandingmyositis.org SUMMARY:Immune-Mediated Necrotizing Myopathy Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nIMNM / NAM Patients\, click the button below to register once to attend this and all future sessions.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Immune-Mediated Necrotizing Myopathy patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives. \nThis session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM)\, sometimes referred to as Necrotizing Autoimmune Myopathy (NAM). \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/immune-mediated-necrotizing-myopathy-support-group/2026-04-25/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Necrotizing-Myopathy-Support-Event-Graphic-1200-x-630-px-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260424T170000 DTEND;TZID=America/New_York:20260424T190000 DTSTAMP:20260529T185706 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010790-1777050000-1777057200@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2026-04-24/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260418T140000 DTEND;TZID=America/New_York:20260418T160000 DTSTAMP:20260529T185706 CREATED:20260131T170927Z LAST-MODIFIED:20260131T170928Z UID:10003565-1776520800-1776528000@understandingmyositis.org SUMMARY:International Myositis Support DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 2 PM Eastern time\n(1 PM CT\, 12 PM MT\, 11 AM PT)\nMyositis Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]International Myositis Virtual Support Group for all Myositis patients and their care partners\, held on Zoom. This is a fantastic opportunity to connect with others from around the world\, share experiences\, and offer mutual support in a safe and welcoming environment. \nWhen: Every third Saturday of the month \nTime: 2:00 PM ET (Eastern Time\, USA) 1:00 PM CT (Central Time\, USA) 12:00 PM MT (Mountain Time\, USA) 11:00 AM PT (Pacific Time\, USA) 7:00 PM BST (British Summer Time\, UK) 8:00 PM CEST (Central European Summer Time) \nWhether you are newly diagnosed or have been managing Myositis for years\, this group is here to provide community\, resources\, and understanding. We look forward to seeing you there! \nThis session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/international-myositis-support-2/2026-04-18/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/International-Myositis-Support-Group-Graphic-7.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260414T190000 DTEND;TZID=America/New_York:20260414T210000 DTSTAMP:20260529T185706 CREATED:20260131T032418Z LAST-MODIFIED:20260201T015047Z UID:10006671-1776193200-1776200400@understandingmyositis.org SUMMARY:Breathe Easy: Myositis Lung Support Monthly Virtual Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_color=”orange” icon_fontello=”” css=””] \nSecond Tuesday of the Month\n7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Group Details \n \n \n \n Virtual Support Group Policy \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nBreathe Easy: Myositis Lung Support (Monthly Virtual Support Group)\n“Breathe Easy\,” our ongoing support group dedicated to individuals with Myositis experiencing lung issues. Join us every month for a virtual gathering providing connection and support. \nMeeting Details: \n\nWhen:  Second Tuesday of the Month\, 7 PM ET\nWhere: Zoom (register above)\n\nWhat You’ll Experience: This group offers a compassionate space to connect with others who understand the unique challenges of Myositis and lung complications. Share experiences\, gain insights\, and find strategies to manage your lung health while fostering a community of support and understanding. \nDiscussion Topics Include: \n\nLung health\nCoping strategies\nEmotional support\n\nWhether you’re facing daily challenges or seeking guidance\, you’re not alone. Everyone with Myositis and lung issues is encouraged to join. Your voice matters\, and together\, we can support one another in this safe and nurturing environment. \nJoin us to breathe easier and foster a sense of belonging—one meeting at a time.[/vc_column_text]\n\n\n [vc_column_text css=””] \nVirtual Support Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/breathe-easy-myositis-lung-support-monthly-virtual-support-group-2/2026-04-14/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/01/Breathe-Easy.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260413T190000 DTEND;TZID=America/New_York:20260413T200000 DTSTAMP:20260529T185706 CREATED:20250909T224353Z LAST-MODIFIED:20260518T202201Z UID:10003377-1776106800-1776110400@understandingmyositis.org SUMMARY:Young Adults with Myositis - MSU YA Collective Power Hour DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nThe Second Monday of Every Month\n7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nMSU Young Adult Collective Power Hour \nJoin fellow young adults living with Myositis for a private\, real-time group video support session. This is a safe\, supportive space to connect with others who understand what it’s like to navigate young adulthood with a chronic illness. Share your experiences\, challenges\, and thoughts—from managing symptoms and medical appointments to balancing work\, school\, and relationships—with a focus on connection and empowerment.  \nSupport sessions are never recorded. These are private\, real-time video support sessions with others like you.  \nThis session is open to all young adults (ages 18–40) living with any form of Myositis.  \nSessions are held on the 2nd Monday of Each Month\n1-Hour Session Only — designed to respect the busy lives of young adults who are working\, raising families\, studying\, or doing it all.  \nRegistration is required. After registering\, you’ll receive an email with the link and details to join. Please see the registration link below.  \nYou are not required to turn on your camera or speak—participate in the way that feels best to you. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/young-adults-with-myositis-msu-ya-collective-power-hour-2/2026-04-13/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/MSU-YA-Adult-FB-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260406T190000 DTEND;TZID=America/New_York:20260406T210000 DTSTAMP:20260529T185706 CREATED:20250909T192658Z LAST-MODIFIED:20260131T214356Z UID:10005701-1775502000-1775509200@understandingmyositis.org SUMMARY:Women with Myositis Virtual Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nFirst Monday of Every Month\nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow women with Myositis for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is open to all women with any type of Myositis. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so that everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message icon_fontello=”star” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/women-with-myositis-virtual-support-group/2026-04-06/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Womens-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260401T190000 DTEND;TZID=America/New_York:20260401T210000 DTSTAMP:20260529T185706 CREATED:20250909T202720Z LAST-MODIFIED:20260131T031424Z UID:10003320-1775070000-1775077200@understandingmyositis.org SUMMARY:Wednesday Evening Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \n1st Wednesday of Each Month\nStarting at 7 PM ET\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nClick the button below to register to attend. \n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life\, with a focus on gratitude and living our best life with Myositis. \nThis session is tailored to anyone living with any of the types of myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/wednesday-evening-myositis-support-group/2026-04-01/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/MSU-Wednesday-Evening-Support-Event-IG-1200-x-630-px-6.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260328T190000 DTEND;TZID=America/New_York:20260328T210000 DTSTAMP:20260529T185706 CREATED:20250910T185520Z LAST-MODIFIED:20260131T021845Z UID:10003731-1774724400-1774731600@understandingmyositis.org SUMMARY:Immune-Mediated Necrotizing Myopathy Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nIMNM / NAM Patients\, click the button below to register once to attend this and all future sessions.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Immune-Mediated Necrotizing Myopathy patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives. \nThis session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM)\, sometimes referred to as Necrotizing Autoimmune Myopathy (NAM). \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/immune-mediated-necrotizing-myopathy-support-group/2026-03-28/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Necrotizing-Myopathy-Support-Event-Graphic-1200-x-630-px-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260328T150000 DTEND;TZID=America/New_York:20260328T160000 DTSTAMP:20260529T185706 CREATED:20260307T230631Z LAST-MODIFIED:20260307T231604Z UID:10010730-1774710000-1774713600@understandingmyositis.org SUMMARY:Finding Our Balance: Navigating Myositis and Dysautonomia DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nBi-Monthly on the last Saturday of the Month\n12 PM PST/11 PM MST/2 PM CST/3 PM EST/9 PM CET\n[/vc_column_text][vc_column_text css=””]Are you living with Myositis and also dealing with Dysautonomia or suspect you might be? You’re not alone! It’s common for autoimmune conditions like Myositis to co-occur with Dysautonomia. Join our support group\, offering a safe and nurturing space for individuals managing both conditions. This is an opportunity to share experiences\, find comfort in the community\, and exchange tips and resources for managing symptoms effectively.  \nWhat is Dysautonomia?  \nDysautonomia refers to conditions affecting the autonomic nervous system\, which controls involuntary functions such as heart rate\, blood pressure\, and digestion. Some common subtypes include:   \nPostural Orthostatic Tachycardia Syndrome (POTS)  \nInappropriate Sinus Tachycardia (IST)  \nNeurocardiogenic Syncope (NCS)  \nAutonomic Neuropathy  \nFor more information\, Dysautonomia International is an excellent resource to explore: Dysautonomia International.  \nJoin us to connect\, learn\, and support one another in managing these challenging conditions. [/vc_column_text][/vc_column][/vc_row][vc_row][vc_column]Register Here [/vc_column][/vc_row] URL:https://understandingmyositis.org/event/finding-our-balance-navigating-myositis-and-dysautonomia/2026-03-28/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Dysautonomia-Group-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260327T170000 DTEND;TZID=America/New_York:20260327T190000 DTSTAMP:20260529T185706 CREATED:20260308T131539Z LAST-MODIFIED:20260308T133119Z UID:10010789-1774630800-1774638000@understandingmyositis.org SUMMARY:Inclusion Body Myositis (IBM) Support Group DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nLast Friday of the Month on Zoom\n5 PM ET/4 PM CT/3 PM MT/2 PM PT\n[/vc_column_text][vc_column_text css=””]Come join our IBM support group that meets the last Friday of each month.  IBM is a slowly progressive and degenerative muscle disease with no available treatment options.  Hosted by patients with IBM\, this is a safe place to talk about how we can live our best lives and support each other.  You are not alone. \nRunning late?  That’s okay.  Join us anyway. Care partners welcome!  Sessions usually run 90 minutes.[/vc_column_text]Register Here[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/inclusion-body-myositis-ibm-support-group/2026-03-27/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260321T150000 DTEND;TZID=America/New_York:20260321T160000 DTSTAMP:20260529T185706 CREATED:20260307T213857Z LAST-MODIFIED:20260308T010807Z UID:10003564-1774105200-1774108800@understandingmyositis.org SUMMARY:International Myositis Support DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 2 PM Eastern time\n(1 PM CT\, 12 PM MT\, 11 AM PT)\nMyositis Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]International Myositis Virtual Support Group for all Myositis patients and their care partners\, held on Zoom. This is a fantastic opportunity to connect with others from around the world\, share experiences\, and offer mutual support in a safe and welcoming environment. \nWhen: Every third Saturday of the month \nTime: 2:00 PM ET (Eastern Time\, USA) 1:00 PM CT (Central Time\, USA) 12:00 PM MT (Mountain Time\, USA) 11:00 AM PT (Pacific Time\, USA) 7:00 PM BST (British Summer Time\, UK) 8:00 PM CEST (Central European Summer Time) \nWhether you are newly diagnosed or have been managing Myositis for years\, this group is here to provide community\, resources\, and understanding. We look forward to seeing you there! \nThis session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/international-myositis-support-3/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/International-Myositis-Support-Group-Graphic-7.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260310T190000 DTEND;TZID=America/New_York:20260310T210000 DTSTAMP:20260529T185706 CREATED:20260131T032418Z LAST-MODIFIED:20260201T015047Z UID:10003290-1773169200-1773176400@understandingmyositis.org SUMMARY:Breathe Easy: Myositis Lung Support Monthly Virtual Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_color=”orange” icon_fontello=”” css=””] \nSecond Tuesday of the Month\n7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Group Details \n \n \n \n Virtual Support Group Policy \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nBreathe Easy: Myositis Lung Support (Monthly Virtual Support Group)\n“Breathe Easy\,” our ongoing support group dedicated to individuals with Myositis experiencing lung issues. Join us every month for a virtual gathering providing connection and support. \nMeeting Details: \n\nWhen:  Second Tuesday of the Month\, 7 PM ET\nWhere: Zoom (register above)\n\nWhat You’ll Experience: This group offers a compassionate space to connect with others who understand the unique challenges of Myositis and lung complications. Share experiences\, gain insights\, and find strategies to manage your lung health while fostering a community of support and understanding. \nDiscussion Topics Include: \n\nLung health\nCoping strategies\nEmotional support\n\nWhether you’re facing daily challenges or seeking guidance\, you’re not alone. Everyone with Myositis and lung issues is encouraged to join. Your voice matters\, and together\, we can support one another in this safe and nurturing environment. \nJoin us to breathe easier and foster a sense of belonging—one meeting at a time.[/vc_column_text]\n\n\n [vc_column_text css=””] \nVirtual Support Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/breathe-easy-myositis-lung-support-monthly-virtual-support-group-2/2026-03-10/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/01/Breathe-Easy.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260309T190000 DTEND;TZID=America/New_York:20260309T200000 DTSTAMP:20260529T185706 CREATED:20250909T224353Z LAST-MODIFIED:20260518T202201Z UID:10003376-1773082800-1773086400@understandingmyositis.org SUMMARY:Young Adults with Myositis - MSU YA Collective Power Hour DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nThe Second Monday of Every Month\n7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nMSU Young Adult Collective Power Hour \nJoin fellow young adults living with Myositis for a private\, real-time group video support session. This is a safe\, supportive space to connect with others who understand what it’s like to navigate young adulthood with a chronic illness. Share your experiences\, challenges\, and thoughts—from managing symptoms and medical appointments to balancing work\, school\, and relationships—with a focus on connection and empowerment.  \nSupport sessions are never recorded. These are private\, real-time video support sessions with others like you.  \nThis session is open to all young adults (ages 18–40) living with any form of Myositis.  \nSessions are held on the 2nd Monday of Each Month\n1-Hour Session Only — designed to respect the busy lives of young adults who are working\, raising families\, studying\, or doing it all.  \nRegistration is required. After registering\, you’ll receive an email with the link and details to join. Please see the registration link below.  \nYou are not required to turn on your camera or speak—participate in the way that feels best to you. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/young-adults-with-myositis-msu-ya-collective-power-hour-2/2026-03-09/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/MSU-YA-Adult-FB-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260304T190000 DTEND;TZID=America/New_York:20260304T210000 DTSTAMP:20260529T185706 CREATED:20250909T202720Z LAST-MODIFIED:20260131T031424Z UID:10003319-1772650800-1772658000@understandingmyositis.org SUMMARY:Wednesday Evening Myositis Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \n1st Wednesday of Each Month\nStarting at 7 PM ET\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nClick the button below to register to attend. \n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life\, with a focus on gratitude and living our best life with Myositis. \nThis session is tailored to anyone living with any of the types of myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/wednesday-evening-myositis-support-group/2026-03-04/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/MSU-Wednesday-Evening-Support-Event-IG-1200-x-630-px-6.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260302T190000 DTEND;TZID=America/New_York:20260302T210000 DTSTAMP:20260529T185706 CREATED:20250909T192658Z LAST-MODIFIED:20260131T214356Z UID:10005700-1772478000-1772485200@understandingmyositis.org SUMMARY:Women with Myositis Virtual Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nFirst Monday of Every Month\nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow women with Myositis for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is open to all women with any type of Myositis. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so that everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message icon_fontello=”star” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/women-with-myositis-virtual-support-group/2026-03-02/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Womens-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260228T190000 DTEND;TZID=America/New_York:20260228T210000 DTSTAMP:20260529T185706 CREATED:20250910T185520Z LAST-MODIFIED:20260131T021845Z UID:10003730-1772305200-1772312400@understandingmyositis.org SUMMARY:Immune-Mediated Necrotizing Myopathy Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nIMNM / NAM Patients\, click the button below to register once to attend this and all future sessions.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Virtual Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Immune-Mediated Necrotizing Myopathy patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives. \nThis session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM)\, sometimes referred to as Necrotizing Autoimmune Myopathy (NAM). \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/immune-mediated-necrotizing-myopathy-support-group/2026-02-28/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/Necrotizing-Myopathy-Support-Event-Graphic-1200-x-630-px-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260225T110000 DTEND;TZID=America/New_York:20260225T120000 DTSTAMP:20260529T185706 CREATED:20260206T001004Z LAST-MODIFIED:20260303T180225Z UID:10009298-1772017200-1772020800@understandingmyositis.org SUMMARY:Mitochondria First in Inclusion Body Myositis: A Chicken or Egg dilemma - The interplay between mitochondrial dysfunction and inflammation in IBM DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nWednesday\, February 25\, 2026\n11:00 AM ET (4 PM GMT)\n10 AM CT/ 9 AM MT/ 8 AM PT \nThis webinar brings recent scientific discoveries directly to the IBM community. Dr.  Rita Horvath and Dr Felix Kleefeld  will explain how mitochondrial dysfunction may initiate the disease process in IBM\, how the immune system becomes involved\, and why these findings are important for patients today. \n  \n  \n\n[/vc_column_text]REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44161″ img_size=”large” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Prof. Rita Horvath is a Professor of Neurogenetics and Honorary Consultant in Neurology at Cambridge University. She trained as a neurologist in Budapest\, Hungary and completed her PhD on mitochondrial disease.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44162″ img_size=”large” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Dr. Felix Kleefeld MD is a board-certified neurologist specialized in neuromuscular disorders\, with a broad interest in the molecular mechanisms linking mitochondrial dysfunction\, inflammation\, and muscle degeneration[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_column_text css=””]Research Reference to Brain paper (paywall)  here: https://academic.oup.com/brain/article-abstract/148/9/3199/8107791#no-access-message[/vc_column_text][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Patient Reference on mitochondria & IBM https://www.ibmmyositis.com/mito.htm[/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/mitochondria-first-in-inclusion-body-myositis-a-chicken-or-egg-dilemma-the-interplay-between-mitochondrial-dysfunction-and-inflammation-in-ibm/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Education Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/02/Mitochondria_IBM.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260224T140000 DTEND;TZID=America/New_York:20260224T150000 DTSTAMP:20260529T185706 CREATED:20260205T102144Z LAST-MODIFIED:20260205T105719Z UID:10009297-1771941600-1771945200@understandingmyositis.org SUMMARY:CAR T In Myositis : An Update on the RESET-Myositis Clinical Trial DESCRIPTION:[vc_row][vc_column][vc_column_text]Please join MSU and Jake Chung\, PharmD and a Senior Director on the Medical Affairs team at Cabaletta Bio. During this session\, Jake  will provide a brief overview of the clinical trial process\, review key components of the immune system\, and describe how CAR T cell therapy works. He will also review the study design and recent phase 1/2 results of the RESET-Myositis clinical trial\, which is evaluating the safety and efficacy of rese-cel (CABA-201) in the treatment of myositis.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column]REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44153″ img_size=”medium” css=””][/vc_column][vc_column width=”1/2″][vc_column_text]Jake Chung is a Senior Director on the Medical Affairs team at Cabaletta Bio\, which is the company conducting the RESET-Myositis clinical trial. In his role\, Jake works with Patient Advocacy Groups to provide education about Cabaletta Bio’s pipeline treatments and to bring patient insights to the Company. He also leads scientific communication activities for Healthcare Providers and works with Professional Societies across the autoimmune field. Jake is a pharmacist by training. He has spent the past 10 years working in the biotech and pharmaceutical industries focusing on rheumatology and neurology disease areas.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_column_text css=””] \nMSU ‘Right Now Research’ and the Myositis Clinical Trials Consortium (MCTC) have developed a clear\, patient-friendly FAQ brochure on CAR T cell therapy for myositis:What CAR T cell therapy is and how it worksHow T cells are collected\, modified and infusedThe typical timeline (apheresis\, cell manufacturing\, chemotherapy pre-conditioning\, infusion and monitoring)Potential complications (CRS\, ICANS\, LICATS) and how they are managedPractical aspects of clinical trials: travel\, lodging\, caregiver role and financial supportTips directly from patients who have gone through CAR T \nDownload and share with your family. \n[/vc_column_text][/vc_column][vc_column width=”1/2″]Click to Download CAR T FAQ [/vc_column][/vc_row] URL:https://understandingmyositis.org/event/car-t-in-myositis-an-update-on-the-reset-myositis-clinical-trial/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Education Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/02/Cabaletta-Webinar-.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260221T140000 DTEND;TZID=America/New_York:20260221T160000 DTSTAMP:20260529T185706 CREATED:20260131T170927Z LAST-MODIFIED:20260131T170928Z UID:10003563-1771682400-1771689600@understandingmyositis.org SUMMARY:International Myositis Support DESCRIPTION:[vc_row][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=”” css=””] \nStarting at 2 PM Eastern time\n(1 PM CT\, 12 PM MT\, 11 AM PT)\nMyositis Patients\, click the button below to register to attend.\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Support Group Details \n \n \n \n Virtual Support Group Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]International Myositis Virtual Support Group for all Myositis patients and their care partners\, held on Zoom. This is a fantastic opportunity to connect with others from around the world\, share experiences\, and offer mutual support in a safe and welcoming environment. \nWhen: Every third Saturday of the month \nTime: 2:00 PM ET (Eastern Time\, USA) 1:00 PM CT (Central Time\, USA) 12:00 PM MT (Mountain Time\, USA) 11:00 AM PT (Pacific Time\, USA) 7:00 PM BST (British Summer Time\, UK) 8:00 PM CEST (Central European Summer Time) \nWhether you are newly diagnosed or have been managing Myositis for years\, this group is here to provide community\, resources\, and understanding. We look forward to seeing you there! \nThis session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row][vc_column][vc_message style=”square” icon_fontello=”attention-alt” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/international-myositis-support-2/2026-02-21/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2025/09/International-Myositis-Support-Group-Graphic-7.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260211T100000 DTEND;TZID=America/New_York:20260211T110000 DTSTAMP:20260529T185706 CREATED:20260203T015345Z LAST-MODIFIED:20260204T123700Z UID:10006894-1770804000-1770807600@understandingmyositis.org SUMMARY:Understanding Clinical Trials In Myositis: NK Cell Research in Current Myositis Studies DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nWednesday\, February 11\, 2026 \n10 AM ET/ 9 AM CT/ 8 AM MT/ 7 AM PT \nJoin us for an educational webinar focused on clinical trials and the  potential of NK cell therapy’s role in current myositis research.  Learn more about new emerging cell therapies for dermatomyositis\, polymyositis\, immune-mediated necrotizing myopathy and Antisynthetase Syndrome from one of our community’s most trusted specialists – Dr. Lisa Christopher-Stine\, MD\, MPH\, along with Dr. Shawn Rose\, MD\, PhD\, Chief Medical Officer and Head of Research & Development\, Nkarta Inc.  [/vc_column_text][/vc_column][/vc_row][vc_row][vc_column]REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44067″ img_size=”medium” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Lisa Christopher-Stine\, MD\, MPH\, Professor of Medicine and Neurology; Director of the Johns Hopkins Myositis Center  \nIn the intricate world of autoimmune disease\, Dr. Lisa Christopher-Stine stands as a pillar of innovation\, compassion\, and scientific discovery. As a Professor of Medicine and Neurology at The Johns Hopkins University School of Medicine and the esteemed Director of the Johns Hopkins Myositis Center\, she is a world-renowned leader whose work has fundamentally reshaped the understanding and treatment of inflammatory muscle diseases. \nDr. Christopher-Stine’s journey began with a distinguished academic foundation\, graduating with honors from Franklin & Marshall College with induction into the Phi Beta Kappa Honor Society and earning her medical degree from Hahnemann University\, where she was inducted into the prestigious Alpha Omega Alpha Honor Society. She further fortified her expertise with a Master of Public Health from the Johns Hopkins Bloomberg School of Public Health and a subsequent rheumatology fellowship at Johns Hopkins\, setting the stage for a career defined by excellence. \nA true clinician-scientist\, Dr. Christopher-Stine’s research has been nothing short of transformative. Her most significant contribution was the co-discovery of the anti-HMGCR autoantibody\, which defined a new subtype of statin-associated immune-mediated necrotizing myopathy. This groundbreaking work created a new diagnostic paradigm\, enabling clinicians worldwide to identify and treat patients who were previously misdiagnosed. Her prolific research\, evidenced by an H-index of 61 and over 130 original publications\, is anchored by her role as the principal investigator for the Johns Hopkins Myositis Research Registry—a global cohort of over 3\,000 patients that serves as a vital resource for myositis studies. \nHer leadership and influence are recognized through numerous accolades. She is consistently named one of America’s Top Doctors by Castle Connolly and was honored with The Arthritis Foundation’s Medical Champion Award. Alongside her team\, she received The Myositis Association’s Medical Hero Award\, a testament to their collective impact. Her international standing is further cemented by prestigious invitations such as\, the Canadian Rheumatology Association Dunlop-Dottridge Lectureship\, the Health Manpower Development Plan Visiting Expert from the Singapore Ministry of Health\, and the Bilka Visiting Professorship at the Mayo Clinic. \nBeyond her research\, Dr. Christopher-Stine is a dedicated educator and a passionate advocate for patient-centered care. She co-chairs an international OMERACT initiative to develop patient-reported outcome measures\, ensuring the patient perspective is integral to clinical trials. Patients describe her as a knowledgeable and deeply compassionate physician who\, as one patient stated “cares about the whole me\, not just my myositis.” \nThrough her visionary leadership of the Myositis Center\, her pioneering research\, and her unwavering dedication to her patients\, Dr. Lisa Christopher-Stine is not just treating a disease; she is transforming lives and building a legacy of hope for the entire myositis community. \n [/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”44070″ img_size=”medium” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]Shawn Rose\, MD\, PhD\, Chief Medical Officer and Head of Research & Development\, Nkarta Inc.  \nShawn Rose\, MD\, PhD\, is Chief Medical Officer (CMO) and Head of Research & Development at Nkarta Inc. During his career\, Dr. Rose has brought forward more than a dozen programs from discovery into clinical development\, and he has developed multiple pioneering approved medicines such as Sotyktu™\, Stelara™ and Tremfya™. \nAs Chief Development Officer\, Immunology at Vividion Therapeutics\, Dr. Rose led the Vividion and Bayer strategy to advance a portfolio of novel immunology assets targeting previously undruggable proteins. As Senior Vice President and Head of the Clinical Development Organization at Magenta Therapeutics\, he developed cell-based therapeutics for patients with cancer\, genetic disorders\, and autoimmune diseases. At Annexon Biosciences\, he led autoimmunity clinical development. \nDr. Rose served as Senior Director of Immunology Translational Science and Medicine (TSM) at Johnson & Johnson (J&J)\, where he headed the clinical team responsible for the design and execution of early clinical studies. At J&J\, he also served as the disease area strategic leader for rheumatology and autoimmunity within TSM\, led a registrational program in systemic lupus erythematosus\, and was Stelara compound development team leader for rheumatologic indications. Prior to joining J&J\, Dr. Rose was at Bristol Myers Squibb (BMS)\, where he led clinical development programs as a director within BMS Immunoscience and co-chaired the Translational Research and Development Committee. \nDr. Rose was an attending physician at the NIH Clinical Center and volunteered at multiple community clinics in the Washington D.C. area. He completed his internal medicine residency and clinical and research fellowship in the Rheumatology Division at Northwestern University. Dr. Rose has been an R&D and corporate advisor to biotech companies and venture capital firms\, helped to launch new biotech companies\, and has served on multiple scientific advisory boards. He enjoys mentoring youth as well as the next generation of physicians\, scientists\, and biotech and pharmaceutical leaders in their career journey.[/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/understanding-clinical-trials-in-myositis-nk-cell-research-in-current-myositis-studies/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Education Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/02/2026-Webinar-Templates-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260210T190000 DTEND;TZID=America/New_York:20260210T210000 DTSTAMP:20260529T185706 CREATED:20260131T032418Z LAST-MODIFIED:20260201T015047Z UID:10006670-1770750000-1770757200@understandingmyositis.org SUMMARY:Breathe Easy: Myositis Lung Support Monthly Virtual Support Group DESCRIPTION:[vc_row][vc_column][vc_message message_box_color=”orange” icon_fontello=”” css=””] \nSecond Tuesday of the Month\n7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Group Details \n \n \n \n Virtual Support Group Policy \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””] \nBreathe Easy: Myositis Lung Support (Monthly Virtual Support Group)\n“Breathe Easy\,” our ongoing support group dedicated to individuals with Myositis experiencing lung issues. Join us every month for a virtual gathering providing connection and support. \nMeeting Details: \n\nWhen:  Second Tuesday of the Month\, 7 PM ET\nWhere: Zoom (register above)\n\nWhat You’ll Experience: This group offers a compassionate space to connect with others who understand the unique challenges of Myositis and lung complications. Share experiences\, gain insights\, and find strategies to manage your lung health while fostering a community of support and understanding. \nDiscussion Topics Include: \n\nLung health\nCoping strategies\nEmotional support\n\nWhether you’re facing daily challenges or seeking guidance\, you’re not alone. Everyone with Myositis and lung issues is encouraged to join. Your voice matters\, and together\, we can support one another in this safe and nurturing environment. \nJoin us to breathe easier and foster a sense of belonging—one meeting at a time.[/vc_column_text]\n\n\n [vc_column_text css=””] \nVirtual Support Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row] URL:https://understandingmyositis.org/event/breathe-easy-myositis-lung-support-monthly-virtual-support-group-2/2026-02-10/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2026/01/Breathe-Easy.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT END:VCALENDAR