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MSU Zoom Video Session

Video session using Zoom
http://Zoom.us/download

Online Video Sessions

As part of our commitment to myositis patients and caregivers, we offer several live online video sessions including patient support sessions, activity sessions, and education sessions. These sessions are always free.

Zoom is the video platform we use for all sessions. Below is information to help you download and setup your free Zoom account that you will use anytime you join one of our free sessions.

Zoom For Computers/Laptops

Download and install the Zoom software on your computer or laptop.

Visit Zoom.us/download

Choose the first option, “Zoom Client for Meetings”

After download, run/install it like you would any program.

Then, create your free account.

Zoom offers several options for account creation:

Email: You can use your email and set up a password.

Google: Link/Connect using your Google Account

Facebook: Link/Connect using your Facebook account.

Zoom for Smartphones/Tablets

Download the Zoom Mobile App

Visit Zoom.us/download

Under the section heading, Zoom Mobile Apps:

  1. Enter your mobile phone number to have Zoom text you the link to the app.
  2. Or, Click the App Store image for iPhone, iPads or the Google Play image for Android-based devices.
  3. You can also search for the Zoom app in the App Store or on Google Play.
  4. Next, create your free Zoom account.

Zoom offers several options for account creation:

Email: You can use your email and set up a password.

Google: Link/Connect using your Google Account

Facebook: Link/Connect using your Facebook account.

Joining a session

Once you have the software/app installed,  join the session on the date/time it begins

Now that you have the software or app installed, you can click on the join session link found on each individual events page. We suggest logging in a few minutes early.

Each session usually has a different join link along with a meeting ID. For some, the meeting ID may be needed. It is provided on the event page for that session.

If registration is required

There are times when we require registration for an event. It will be noted on the event itself if this is required. If so, be sure to register as soon as possible so we can get an accurate count of those attending.

After you register, you will receive an email that includes all information, including a unique join link (URL) to click a few minutes prior to the start of the session.

If you do not install Zoom ahead of time . . .

We suggest you install Zoom 

If you click on a join session button and do not have the Zoom software/app installed, you will be asked to install it prior to joining the session.

If this is the case, be sure to start the process 15 minutes prior to the session start time.

 

If you have questions or need technical help

If you have basic questions, feel free to contact us here via email.

For more technical questions, please contact Zoom.us for more detail.

Now, just visit our Events page here to get started!

June 2020

IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

June 27, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

July 2020

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

July 1, 2020 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

July 18, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

July 25, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

July 31, 2020 @ 5:00 pm - 6:30 pm EDT
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »

August 2020

Exercise in place: Part 3

Exercise in place: Part 3 – Fall Prevention and Response

August 4, 2020 @ 6:00 pm - 7:30 pm EDT
MSU Zoom Video Session, Video session using Zoom

Learn all about falls with myositis, from fall prevention to the response. This webinar will cover various aspects of falls for myositis patients and caregivers, including preventing falls, how we respond to falls, and much more.

Find out more »
Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

August 5, 2020 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

August 15, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

August 28, 2020 @ 5:00 pm - 6:30 pm EDT
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

August 29, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

September 2020

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

September 2, 2020 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Pain Is Not a Four-Letter Word

Pain Is Not a Four-Letter Word

September 5, 2020 @ 7:00 pm - 8:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Ever wish you understood your pain more? And what your doctors were talking about when they suggest trying "pain management?" Join MSU and Babette Reeves, MA, MSW, LCSW, for Pain is Not a Four-Lettered Word webinar, and let's learn and talk about chronic pain.

Find out more »
The Power of Forgiveness:  How it can help care partners

The Power of Forgiveness:  How it can help care partners

September 9, 2020 @ 5:00 pm - 6:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

In this webinar, we’ll learn how not forgiving others negatively impacts us, not the person we don’t want to forgive. We’ll look at some of the research about forgiveness to learn how to do it effectively and how to start to practice it, and much more.

Find out more »
IMNM, Clinical Trials, & COVID-19 event

IMNM, Clinical Trials, & COVID-19

September 15, 2020 @ 3:00 pm - 4:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Join us for an interesting and engaging discussion around IMNM, clinical trials, and COVID-19. Special guests: Dr. Andrew Mammen from the National Institutes of Health (NIH) and Dr. Petra Duda from UCB.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

September 19, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
The Power of Advocacy webinar

The Power of Advocacy

September 22, 2020 @ 7:00 pm - 8:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers will talk about their journey from diagnosis to advocacy and how the lessons they are learning can help each of us.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

September 25, 2020 @ 5:00 pm - 6:30 pm EDT
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

September 26, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

October 2020

The Power of Connecting with Young Adults

The Power of Connecting with Young Adults

October 6, 2020 @ 6:00 pm - 7:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Join MSU with Seth Rotberg and Morgan Gleason as they share the power of connecting young adults.

Find out more »
Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

October 7, 2020 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

October 17, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
The Tiger at the Door: The Relationship between Trauma and Chronic Pain

The Tiger at the Door: The Relationship between Trauma and Chronic Pain

October 24, 2020 @ 7:00 pm - 8:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Come learn what trauma is and isn't, one theory of how it develops, and how it impacts the nervous system, increasing the risk of developing not just psychological struggles later but also physical ones including chronic pain.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

October 30, 2020 @ 5:00 pm - 6:30 pm EDT
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

October 31, 2020 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

November 2020

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

November 4, 2020 @ 7:00 pm - 8:30 pm EST
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Flip Negativity with Janet M. Edmunson, M.Ed.

Flip Negativity

November 12, 2020 @ 5:00 pm - 6:00 pm EST
MSU Zoom Video Session, Video session using Zoom

Janet Edmonson will share practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about the negative people in our lives, and look at how to combat fixed mindsets and turn them into growth mindsets.

Find out more »
After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship with Dr. Salman Bhai

After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship

November 16, 2020 @ 7:00 pm - 8:00 pm EST
MSU Zoom Video Session, Video session using Zoom

The goal of this webinar is to inform you about best practices as related to myositis care and empower you to seek the care you deserve. We will also discuss ways you can guide research efforts to help understand and cure myositis.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

November 21, 2020 @ 3:00 pm - 4:30 pm EST
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Turkey Day 2020 Video support and games session

It’s a Myositis Thanksgiving, Video Support and Games

November 26, 2020 @ 7:00 pm - 9:30 pm EST
MSU Zoom Video Session, Video session using Zoom

Spend your Turkey Day with us and enjoy some fun and games, and lots of laughter! Register to get the information to connect with us via Zoom on Thanksgiving, Thursday, November 26th, starting at 7 PM ET (4 PM PT). Trivia starts at 8 PM ET.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

November 27, 2020 @ 5:00 pm - 6:30 pm EST
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

November 28, 2020 @ 3:00 pm - 4:30 pm EST
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

December 2020

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

December 2, 2020 @ 7:00 pm - 8:30 pm EST
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
AllStripes IBM Research Program Updates

AllStripes IBM Research Program Updates

December 8, 2020 @ 4:00 pm - 5:00 pm EST
MSU Zoom Video Session, Video session using Zoom

Join MSU in our continued and exciting partnership with AllStripes, formerly RDMD, with a live video IBM research update and see how you can join the IBM program. If you are living with, or are a caregiver or family member of someone with inclusion body myositis, you can accelerate drug development in IBM.

Find out more »
Exercise in place Part 4, How to Stay Motivated

Exercise in place: Part 4 – How to stay motivated

December 10, 2020 @ 6:00 pm - 7:30 pm EST
MSU Zoom Video Session, Video session using Zoom

Join our Exercise in Place webinar series to safely exercise at home during the pandemic. Part 4 will discuss how to stay motivated to exercise.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

December 19, 2020 @ 3:00 pm - 4:30 pm EST
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

December 25, 2020 @ 5:00 pm - 6:30 pm EST
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
Special Holiday Get together for myositis patients, Christmas Day, 7 PM ET

Myositis Patient Special Holiday Get Together

December 25, 2020 @ 7:00 pm - 9:30 pm EST
MSU Zoom Video Session, Video session using Zoom

Join us for a Holiday Get Together, a non-religious Christmas Day video support session starting at 7 PM ET (4 PM PT) on Friday, December 25th. Register to join us on Zoom. You are not alone!

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

December 26, 2020 @ 3:00 pm - 4:30 pm EST
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

January 2021

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

January 6 @ 7:00 pm - 8:30 pm EST
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

January 16 @ 3:00 pm - 4:30 pm EST
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

January 29 @ 5:00 pm - 6:30 pm EST
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

January 30 @ 3:00 pm - 4:30 pm EST
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

February 2021

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

February 3 @ 7:00 pm - 8:30 pm EST
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

February 20 @ 3:00 pm - 4:30 pm EST
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Exercise in Place Part 5: Supporting the Caregivers

Exercise in Place Part 5: Supporting the Caregiver

February 25 @ 6:00 pm - 7:30 pm EST
MSU Zoom Video Session, Video session using Zoom

Join MSU along with occupational therapists Megan McGowan and Lauren Burgess, and physical therapist Fin Mears, with the Johns Hopkins Myositis Center for Part 5 of our Exercise in Place webinar series.
In Part 5, we focus on the caregiver and family members of the person diagnosed with myositis. But, all are welcome to attend this unique myositis caregiver session!

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

February 26 @ 5:00 pm - 6:30 pm EST
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
A Closer Look: Clinical Trials and the PRESIDIO Study

A Closer Look: Clinical Trials and the PRESIDIO Study

February 27 @ 2:00 pm - 3:00 pm EST
MSU Zoom Video Session, Video session using Zoom

Clinical trials are a key research tool for advancing medical knowledge and patient care. Join Kezar Life Sciences as Dr. Richard Leff provides an overview of the clinical trial process, their importance in research and bringing new therapies to the market. Dr. Leff will also share information around the PRESIDIO Study, a phase 2 clinical study currently evaluating the use of KZR-616, a selective immunoproteasome inhibitor for the treatment of polymyositis and dermatomyositis.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

February 27 @ 3:00 pm - 4:30 pm EST
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

March 2021

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

March 3 @ 7:00 pm - 8:30 pm EST
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

March 20 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

March 26 @ 5:00 pm - 6:30 pm EDT
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

March 27 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

April 2021

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

April 7 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

April 17 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

April 24 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

DM, PM and Antisynthetase Syndrome Patient Video Support

April 28 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the last Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join us on the third (3rd) Wednesday at 7PM ET for video support.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

April 30 @ 5:00 pm - 6:30 pm EDT
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »

May 2021

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

May 5 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Understanding Dysphagia with Suzanne Belmonte, a patient and speech language pathologist

Understanding Dysphagia with Suzanne Belmonte, patient and SLP

May 6 @ 7:00 pm - 8:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Register to join us on Zoom for Understanding Dysphagia with Suzanne Belmonte, a myositis patient, and speech-language pathologist, on Thursday, May 6, 2021, starting at 7 PM Eastern Time.

Find out more »
Communicating with your doctor as a Myositis patient

Communicating with your doctor as a Myositis patient

May 12 @ 7:00 pm - 8:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

In our first webinar, we will talk more about how the patient /doctor relationship is changing in myositis. What should you expect? How do you make your voice heard? Dr. Bhai welcomes your questions.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

May 15 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Myositis and COVID with Mamatha Pasnoor, M.D

Myositis and COVID

May 18 @ 7:00 pm - 8:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Mamatha Pasnoor, MD, is joining us to discuss Myositis and COVID including inflammation of muscles with COVID infection, vaccination with immunosuppressive therapies, and COVID infection in myositis patients.

Find out more »

DM, PM and Antisynthetase Syndrome Patient Video Support

May 19 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the last Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join us on the third (3rd) Wednesday at 7PM ET for video support.

Find out more »
David Overby – Hands-on PT for Myositis Patients

Hands-on PT for Myositis Patients

May 20 @ 2:00 pm - 3:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

David Overby, a Physical Therapist with his own practice, is joining us to talk about Hands-On Physical Therapy for myositis patients, such as myofascial release. This is an exciting and unique session and we hope you will join us.

Find out more »
Larry M. presents DIY adaptations

Myositis Do-It-Yourself Accessibility Adaptations with Larry M.

May 21 @ 5:00 pm - 6:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Myositis group member, Larry shows us how he “Inspector Gadgets” his way through myositis. If you are interested in how he “MacGyver's” adaptations for things such as easier-to-use pens for hand weakness with fishing bobbers you are in for a treat! Join us!

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

May 28 @ 5:00 pm - 6:30 pm EDT
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

May 29 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

June 2021

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

June 2 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
Myositis, Immunosuppressants and COVID Vaccine Response

Myositis, Immunosuppressants and COVID Vaccine Response

June 16 @ 3:00 pm - 4:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Register & Submit Questions: Myositis, Immunosuppressants, and COVID Vaccine Response. A panel of John Hopkins physician researchers will be presenting a seminar on their brand-new results on COVID vaccine responses in myositis patients and immunosuppressant drugs, and are taking your questions.

Find out more »

DM, PM and Antisynthetase Syndrome Patient Video Support

June 16 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the last Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join us on the third (3rd) Wednesday at 7PM ET for video support.

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

June 19 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Inclusion body myositis patient video support, last Friday of the month at 5 PM Eastern

IBM Patient Video Support session

June 25 @ 5:00 pm - 6:30 pm EDT
|Recurring Event (See all)
Held on the last Friday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.

Find out more »
IMNM Patient Video Support, last Saturday of the month at 3 PM ET

Monthly Necrotizing Myopathy Patient Video Support session

June 26 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the last Saturday of each month
MSU Zoom Video Session, Video session using Zoom

Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 3 PM Eastern.

Find out more »

July 2021

Myositis Patient Video Support, first Wednesdays session at 7 PM ET

Monthly Wednesday Evening Myositis Patient Video Support

July 7 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the first Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.

Find out more »
#MyositisLIFE: Women with Myositis Video support

MyositisLIFE: Women’s Support Group

July 14 @ 7:00 pm - 9:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

We have heard you! If you are a woman living with myositis, no matter the type, join our new Women with Myositis Video Support group!

Find out more »
Myositis Patient Video Support, third Saturdays session at 3 PM ET

Monthly Saturday Afternoon Myositis Patient Video Support

July 17 @ 3:00 pm - 4:30 pm EDT
|Recurring Event (See all)
Held on the third Saturday of each month
MSU Zoom Video Session, Video session using Zoom

All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.

Find out more »
Taking Charge of your ILD and Myositis with Cheilonda Johnson, MD, MHS

Taking Charge of your ILD and Myositis

July 20 @ 1:00 pm - 2:00 pm EDT
MSU Zoom Video Session, Video session using Zoom

Dr. Cheilonda Johnson is a pulmonologist who sees a lot of patients with interstitial lung disease (ILD) at the University of Pennsylvania in Philadelphia. She will be joining us to talk about ways to take charge of your ILD in a patient-centered webinar.

Find out more »

DM, PM and Antisynthetase Syndrome Patient Video Support

July 21 @ 7:00 pm - 8:30 pm EDT
|Recurring Event (See all)
Held on the last Wednesday of each month
MSU Zoom Video Session, Video session using Zoom

If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join us on the third (3rd) Wednesday at 7PM ET for video support.

Find out more »
‘Oh The Places You’ll Go’ webinar image

‘Oh The Places You’ll Go’: Traveling and Exploring with Confidence

July 26 @ 6:00 pm - 7:15 pm EDT
MSU Zoom Video Session, Video session using Zoom

We’ll review any updated COVID-19 recommendations from the CDC, but spend the majority of the session focused on overcoming some of the challenges people with myositis face when traveling. Share your questions, tips and strategies during registration. Our events are always free. Register and join us on Monday, July 26th, 6 PM ET / 3 PM PT with Megan and Lauren, Occupational Therapists at Johns Hopkins Myositis Center.

Find out more »
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