BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Myositis Support and Understanding - ECPv6.15.17//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://understandingmyositis.org X-WR-CALDESC:Events for Myositis Support and Understanding REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20241217T180000 DTEND;TZID=America/New_York:20241217T190000 DTSTAMP:20260415T035210 CREATED:20240904T161008Z LAST-MODIFIED:20241231T180233Z UID:10001888-1734458400-1734462000@understandingmyositis.org SUMMARY:Shifting Your Mindset DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-12-17/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241204T190000 DTEND;TZID=America/New_York:20241204T210000 DTSTAMP:20260415T035210 CREATED:20240103T200832Z LAST-MODIFIED:20250910T221541Z UID:10001733-1733338800-1733346000@understandingmyositis.org SUMMARY:Wednesday Evening Myositis Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at 7 PM ET\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nClick the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life”]Register once to attend all monthly Wednesday evening myositis support sessions. After registration\, you will receive an email with the details to join. When new sessions are added or changed for some reason\, you will receive an email update.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life\, with a focus on gratitude and living our best life with Myositis. \nThis session is tailored to anyone living with any of the types of myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation”]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositis-patient-video-support-2/2024-12-04/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/MSU-Wednesday-Evening-Support-Event-IG-1200-x-630-px-4.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241202T190000 DTEND;TZID=America/New_York:20241202T210000 DTSTAMP:20260415T035210 CREATED:20240925T184341Z LAST-MODIFIED:20250910T222248Z UID:10001483-1733166000-1733173200@understandingmyositis.org SUMMARY:Women with Myositis Zoom Support DESCRIPTION:[vc_row el_id=”details” disable_element=”yes” padding_top=”20″ padding_bottom=”20″][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=””] \nWomen’s Group\nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT \n[/vc_message] REGISTER for Future Zoom Sessions[/vc_column][/vc_row][vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=””] \nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow women with Myositis for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is open to all women with any type of Myositis. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Women with Myositis session is held on the 1st Monday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so that everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositislife-womens-support-group-2-2-2/2024-12-02/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/MSU-Women-Event-FB-1200-x-630-px-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241130T190000 DTEND;TZID=America/New_York:20241130T210000 DTSTAMP:20260415T035211 CREATED:20240103T204605Z LAST-MODIFIED:20250909T182144Z UID:10001542-1732993200-1733000400@understandingmyositis.org SUMMARY:Necrotizing Myopathy Patient Video Support DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nIMNM / NAM Patients\, click the button below to register once to attend this and all future sessions. \n[/vc_column_text] REGISTER[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Immune-Mediated Necrotizing Myopathy patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives. \nThis session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM)\, sometimes referred to as Necrotizing Autoimmune Myopathy (NAM). \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Necrotizing Myopathy session is held on the last Saturday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/imnm-video-support-2/2024-11-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Necrotizing-Myopathy-Support-Event-Graphic-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241129T170000 DTEND;TZID=America/New_York:20241129T190000 DTSTAMP:20260415T035211 CREATED:20240117T151337Z LAST-MODIFIED:20250909T181333Z UID:10001530-1732899600-1732906800@understandingmyositis.org SUMMARY:IBM Patient Virtual Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT) \nIBM Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life” css=””]Register once to attend all IBM virtual support sessions. After registration\, you will receive an email with the details to join. Be sure to check your junk or spam email folders. \nRegister again for an updated email from Zoom that contains the dates for 2025 and provides a link to add them to your calendar.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/ibm-patient-video-support-2/2024-11-29/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241126T180000 DTEND;TZID=America/New_York:20241126T190000 DTSTAMP:20260415T035211 CREATED:20240904T161008Z LAST-MODIFIED:20241231T180233Z UID:10001884-1732644000-1732647600@understandingmyositis.org SUMMARY:Shifting Your Mindset DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-11-26/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241119T140000 DTEND;TZID=America/New_York:20241119T150000 DTSTAMP:20260415T035211 CREATED:20241109T012928Z LAST-MODIFIED:20241109T012928Z UID:10002029-1732024800-1732028400@understandingmyositis.org SUMMARY:Your Voice Matters: Practical Strategies for Self-Advocacy in Healthcare DESCRIPTION:[vc_row][vc_column][vc_custom_heading text=”Living Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents…” css=””][/vc_column][/vc_row][vc_row][vc_column][vc_column_text css=””] \nSpecial Webinar: Your Voice Matters – Practical Strategies for Self-Advocacy in Healthcare!\nWe are thrilled to announce an impactful webinar featuring Meaghan Arnold\, a valued member of the Myositis Support and Understanding Medical Advisory Board. This session is designed to empower myositis patients with essential self-advocacy skills! \n Date: Tuesday\, November 19th \nTime: 2 PM ET / 1 PM CT / 12 PM MT / 11 AM PT \nIn this informative session\, Meaghan will share practical strategies to help you navigate the healthcare system effectively and advocate for your needs. Your voice truly matters\, and this webinar aims to equip you with the tools and confidence to make it heard in medical settings. \nWhether you’re facing challenges in communicating with healthcare providers or seeking ways to enhance your treatment experience\, this webinar is for you! Don’t miss this opportunity to gain valuable insights! Mark your calendars and join us to become a more empowered advocate for your health. \nWe look forward to seeing you there! \n#YourVoiceMatters #SelfAdvocacy #MyositisSupport #EmpowermentWebinar #MSU #SupportStartsHere[/vc_column_text] To Register Visit[/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_custom_heading text=”Meet Meaghan Arnold” css=””][vc_single_image image=”41919″ img_size=”large” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]-️ Hosted by Speech Swallowing and Neurological Rehabilitation (SSNR)\, a private practice in Tyler\, Texas\, this webinar will be led by Meaghan Arnold\, a dedicated medical speech-language pathologist and owner of SSNR. With a Bachelor of Science degree from The University of Arizona and a Master of Arts degree from The University of Texas at Austin\, Meaghan brings over eight years of experience in skilled nursing facilities\, home health\, and outpatient settings. \n-‍⚕️ Meaghan specializes in treating voice\, swallowing\, speech\, language\, cognition\, and memory deficits. She’s passionate about person-centered care and community education\, hosting two support groups and speaking at local events to advocate for her patients. Visit SSNR website at https://ssnrtx.com/[/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/your-voice-matters-practical-strategies-for-self-advocacy-in-healthcare/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/11/Practical-Strategies-for-Self-Ad-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241116T140000 DTEND;TZID=America/New_York:20241116T160000 DTSTAMP:20260415T035211 CREATED:20240718T000208Z LAST-MODIFIED:20250910T182106Z UID:10001809-1731765600-1731772800@understandingmyositis.org SUMMARY:International Myositis Virtual Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at 2 PM Eastern time\n(1 PM CT\, 12 PM MT\, 11 AM PT) \nMyositis Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER TO ATTEND[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life” css=””]Register once to attend the International Saturday Patient Support After you register\, you will receive an email with the details to join. \nRegister again for an updated email from Zoom with the new sessions added and an option to add them to your calendar.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]International Myositis Virtual Support Group for all Myositis patients and their care partners\, held on Zoom. This is a fantastic opportunity to connect with others from around the world\, share experiences\, and offer mutual support in a safe and welcoming environment. \nWhen: Every third Saturday of the month \nTime: 2:00 PM ET (Eastern Time\, USA) 1:00 PM CT (Central Time\, USA) 12:00 PM MT (Mountain Time\, USA) 11:00 AM PT (Pacific Time\, USA) 7:00 PM BST (British Summer Time\, UK) 8:00 PM CEST (Central European Summer Time) \nWhether you are newly diagnosed or have been managing Myositis for years\, this group is here to provide community\, resources\, and understanding. We look forward to seeing you there! \nThis session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/international-myositis-video-support/2024-11-16/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/07/International-Myositis-Support-Group-Graphic-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241106T190000 DTEND;TZID=America/New_York:20241106T210000 DTSTAMP:20260415T035211 CREATED:20240103T200832Z LAST-MODIFIED:20250910T221541Z UID:10001732-1730919600-1730926800@understandingmyositis.org SUMMARY:Wednesday Evening Myositis Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at 7 PM ET\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nClick the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life”]Register once to attend all monthly Wednesday evening myositis support sessions. After registration\, you will receive an email with the details to join. When new sessions are added or changed for some reason\, you will receive an email update.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life\, with a focus on gratitude and living our best life with Myositis. \nThis session is tailored to anyone living with any of the types of myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation”]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositis-patient-video-support-2/2024-11-06/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/MSU-Wednesday-Evening-Support-Event-IG-1200-x-630-px-4.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241104T190000 DTEND;TZID=America/New_York:20241104T210000 DTSTAMP:20260415T035211 CREATED:20240925T184341Z LAST-MODIFIED:20250910T222248Z UID:10001482-1730746800-1730754000@understandingmyositis.org SUMMARY:Women with Myositis Zoom Support DESCRIPTION:[vc_row el_id=”details” disable_element=”yes” padding_top=”20″ padding_bottom=”20″][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=””] \nWomen’s Group\nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT \n[/vc_message] REGISTER for Future Zoom Sessions[/vc_column][/vc_row][vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=””] \nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow women with Myositis for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is open to all women with any type of Myositis. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Women with Myositis session is held on the 1st Monday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so that everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositislife-womens-support-group-2-2-2/2024-11-04/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/MSU-Women-Event-FB-1200-x-630-px-1.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241026T190000 DTEND;TZID=America/New_York:20241026T210000 DTSTAMP:20260415T035211 CREATED:20240103T204605Z LAST-MODIFIED:20250909T182144Z UID:10001541-1729969200-1729976400@understandingmyositis.org SUMMARY:Necrotizing Myopathy Patient Video Support DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nIMNM / NAM Patients\, click the button below to register once to attend this and all future sessions. \n[/vc_column_text] REGISTER[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Immune-Mediated Necrotizing Myopathy patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives. \nThis session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM)\, sometimes referred to as Necrotizing Autoimmune Myopathy (NAM). \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Necrotizing Myopathy session is held on the last Saturday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/imnm-video-support-2/2024-10-26/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Necrotizing-Myopathy-Support-Event-Graphic-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241025T170000 DTEND;TZID=America/New_York:20241025T190000 DTSTAMP:20260415T035211 CREATED:20240117T151337Z LAST-MODIFIED:20250909T181333Z UID:10001529-1729875600-1729882800@understandingmyositis.org SUMMARY:IBM Patient Virtual Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT) \nIBM Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life” css=””]Register once to attend all IBM virtual support sessions. After registration\, you will receive an email with the details to join. Be sure to check your junk or spam email folders. \nRegister again for an updated email from Zoom that contains the dates for 2025 and provides a link to add them to your calendar.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/ibm-patient-video-support-2/2024-10-25/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241022T180000 DTEND;TZID=America/New_York:20241022T190000 DTSTAMP:20260415T035211 CREATED:20240904T161008Z LAST-MODIFIED:20241231T180233Z UID:10001883-1729620000-1729623600@understandingmyositis.org SUMMARY:Shifting Your Mindset DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-10-22/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241019T140000 DTEND;TZID=America/New_York:20241019T160000 DTSTAMP:20260415T035211 CREATED:20240718T000208Z LAST-MODIFIED:20250910T182106Z UID:10001808-1729346400-1729353600@understandingmyositis.org SUMMARY:International Myositis Virtual Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at 2 PM Eastern time\n(1 PM CT\, 12 PM MT\, 11 AM PT) \nMyositis Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER TO ATTEND[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life” css=””]Register once to attend the International Saturday Patient Support After you register\, you will receive an email with the details to join. \nRegister again for an updated email from Zoom with the new sessions added and an option to add them to your calendar.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]International Myositis Virtual Support Group for all Myositis patients and their care partners\, held on Zoom. This is a fantastic opportunity to connect with others from around the world\, share experiences\, and offer mutual support in a safe and welcoming environment. \nWhen: Every third Saturday of the month \nTime: 2:00 PM ET (Eastern Time\, USA) 1:00 PM CT (Central Time\, USA) 12:00 PM MT (Mountain Time\, USA) 11:00 AM PT (Pacific Time\, USA) 7:00 PM BST (British Summer Time\, UK) 8:00 PM CEST (Central European Summer Time) \nWhether you are newly diagnosed or have been managing Myositis for years\, this group is here to provide community\, resources\, and understanding. We look forward to seeing you there! \nThis session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/international-myositis-video-support/2024-10-19/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/07/International-Myositis-Support-Group-Graphic-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241016T190000 DTEND;TZID=America/New_York:20241016T203000 DTSTAMP:20260415T035211 CREATED:20240904T204041Z LAST-MODIFIED:20250909T190925Z UID:10001875-1729105200-1729110600@understandingmyositis.org SUMMARY:Myositis Cancer Support DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nMyositis Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-asterisk” css=””]Register once to attend the Myositis Cancer Support After you register\, you will receive an email with the details to join. \nRegister again for an updated email from Zoom with the new sessions added and an option to add them to your calendar.[/vc_message]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]We are excited to announce a special support group dedicated to Myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences\, find comfort in community\, and share resources that empower their journey. \nThis support group will not only focus on the challenges faced by those navigating life with both Myositis and cancer\, but also foster connections that uplift and inspire. \nYour journey matters\, and we believe that together we can cultivate resilience\, strength\, and hope. Whether you’re seeking advice\, encouragement\, or simply a listening ear\, this group is here for you. \nPlease mark your calendars and join us in building a supportive community where every voice is valued. \nTogether\, we can embrace the path ahead with courage and compassion.[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide:\n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text css=””] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositis-cancer-support/2024-10-16/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Myositis-Cancer-Support-Group-Graphic-9.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241002T190000 DTEND;TZID=America/New_York:20241002T210000 DTSTAMP:20260415T035211 CREATED:20240103T200832Z LAST-MODIFIED:20250910T221541Z UID:10001731-1727895600-1727902800@understandingmyositis.org SUMMARY:Wednesday Evening Myositis Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at 7 PM ET\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nClick the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life”]Register once to attend all monthly Wednesday evening myositis support sessions. After registration\, you will receive an email with the details to join. When new sessions are added or changed for some reason\, you will receive an email update.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life\, with a focus on gratitude and living our best life with Myositis. \nThis session is tailored to anyone living with any of the types of myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation”]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositis-patient-video-support-2/2024-10-02/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/MSU-Wednesday-Evening-Support-Event-IG-1200-x-630-px-4.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240928T190000 DTEND;TZID=America/New_York:20240928T210000 DTSTAMP:20260415T035211 CREATED:20240103T204605Z LAST-MODIFIED:20250909T182144Z UID:10001540-1727550000-1727557200@understandingmyositis.org SUMMARY:Necrotizing Myopathy Patient Video Support DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nIMNM / NAM Patients\, click the button below to register once to attend this and all future sessions. \n[/vc_column_text] REGISTER[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Immune-Mediated Necrotizing Myopathy patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives. \nThis session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM)\, sometimes referred to as Necrotizing Autoimmune Myopathy (NAM). \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Necrotizing Myopathy session is held on the last Saturday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/imnm-video-support-2/2024-09-28/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Necrotizing-Myopathy-Support-Event-Graphic-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240927T170000 DTEND;TZID=America/New_York:20240927T190000 DTSTAMP:20260415T035211 CREATED:20240117T151337Z LAST-MODIFIED:20250909T181333Z UID:10001528-1727456400-1727463600@understandingmyositis.org SUMMARY:IBM Patient Virtual Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT) \nIBM Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life” css=””]Register once to attend all IBM virtual support sessions. After registration\, you will receive an email with the details to join. Be sure to check your junk or spam email folders. \nRegister again for an updated email from Zoom that contains the dates for 2025 and provides a link to add them to your calendar.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/ibm-patient-video-support-2/2024-09-27/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240924T180000 DTEND;TZID=America/New_York:20240924T190000 DTSTAMP:20260415T035211 CREATED:20240904T161008Z LAST-MODIFIED:20241231T180233Z UID:10001882-1727200800-1727204400@understandingmyositis.org SUMMARY:Shifting Your Mindset DESCRIPTION:[vc_row][vc_column] [vc_column_text css=””] \n4th Tuesday Of The Month\nStarting Tuesday\, September 24 & Ending March 25th\, 2025\n(December will be on the 17th instead of the 24th) \n6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT\n[/vc_column_text][vc_empty_space][vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents: Our New 7-Part Series: Shifting Your Mindset!\nWe are excited to announce our empowering Shifting Your Mindset series\, designed specifically for those living with Myositis. Over the next seven months\, we will embark on a transformative journey together! \n✨ Discover Your Inherent Value: Society often places expectations that can make those with chronic illnesses feel “less than.” This series encourages you to embrace your unique experience with Myositis\, shifting from feelings of inadequacy to owning your worth. \nCultivate Compassion: Learn to build a more compassionate relationship with your illness\, yourself\, and your body. We’ll explore how to listen to what your body needs and nurture yourself through moments of uncertainty. \n️ Gain Practical Tools: Move beyond fear\, despair\, and self-judgment. You’ll leave each session equipped with practices that guide you toward acceptance and presence\, empowering you to embrace how your body shows up each day. \nFormat: The first half of each session will feature a recorded presentation (recorded on speaker view with profile pictures hidden to protect anonymity). The latter half will open up to discussion\, providing a safe space for sharing and connection. \nJoin us on this journey of self-discovery and empowerment from September to March. Together\, we will shift our mindsets and foster a supportive community where we can thrive![/vc_column_text][vc_empty_space] Register to Join on Zoom See Support Options[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/shifting-your-mindset/2024-09-24/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Shifting-Your-Mindset-11.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240921T140000 DTEND;TZID=America/New_York:20240921T160000 DTSTAMP:20260415T035211 CREATED:20240718T000208Z LAST-MODIFIED:20250910T182106Z UID:10001807-1726927200-1726934400@understandingmyositis.org SUMMARY:International Myositis Virtual Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at 2 PM Eastern time\n(1 PM CT\, 12 PM MT\, 11 AM PT) \nMyositis Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER TO ATTEND[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life” css=””]Register once to attend the International Saturday Patient Support After you register\, you will receive an email with the details to join. \nRegister again for an updated email from Zoom with the new sessions added and an option to add them to your calendar.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]International Myositis Virtual Support Group for all Myositis patients and their care partners\, held on Zoom. This is a fantastic opportunity to connect with others from around the world\, share experiences\, and offer mutual support in a safe and welcoming environment. \nWhen: Every third Saturday of the month \nTime: 2:00 PM ET (Eastern Time\, USA) 1:00 PM CT (Central Time\, USA) 12:00 PM MT (Mountain Time\, USA) 11:00 AM PT (Pacific Time\, USA) 7:00 PM BST (British Summer Time\, UK) 8:00 PM CEST (Central European Summer Time) \nWhether you are newly diagnosed or have been managing Myositis for years\, this group is here to provide community\, resources\, and understanding. We look forward to seeing you there! \nThis session is tailored to anyone living with any of the types of Myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/international-myositis-video-support/2024-09-21/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/07/International-Myositis-Support-Group-Graphic-3.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240904T190000 DTEND;TZID=America/New_York:20240904T210000 DTSTAMP:20260415T035211 CREATED:20240103T200832Z LAST-MODIFIED:20250910T221541Z UID:10001730-1725476400-1725483600@understandingmyositis.org SUMMARY:Wednesday Evening Myositis Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at 7 PM ET\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nClick the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life”]Register once to attend all monthly Wednesday evening myositis support sessions. After registration\, you will receive an email with the details to join. When new sessions are added or changed for some reason\, you will receive an email update.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life\, with a focus on gratitude and living our best life with Myositis. \nThis session is tailored to anyone living with any of the types of myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation”]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositis-patient-video-support-2/2024-09-04/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/MSU-Wednesday-Evening-Support-Event-IG-1200-x-630-px-4.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240902T190000 DTEND;TZID=America/New_York:20240902T210000 DTSTAMP:20260415T035211 CREATED:20240103T203043Z LAST-MODIFIED:20240103T203935Z UID:10001480-1725303600-1725310800@understandingmyositis.org SUMMARY:Women with Myositis Zoom Support DESCRIPTION:[vc_row el_id=”details” disable_element=”yes” padding_top=”20″ padding_bottom=”20″][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=””] \nWomen’s Group\nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT \n[/vc_message] REGISTER for Future Zoom Sessions[/vc_column][/vc_row][vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=””] \nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text]Join fellow women with myositis for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is open to all women with any type of myositis. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Women with Myositis session is held on the 1st Monday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so that everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWhen discussing COVID-19 . . .\nWhen discussing COVID-19\, to keep all of our members safe and comfortable\, and to protect the integrity of the conversation\, we will continue to enforce the rules we put in place below. We will have a no-tolerance policy for these rules and thankfully have not had to use them. We will give one warning and then will ask you to leave the session if you will not comply. We are not equipped to answer the questions about science or conspiracies\, and therefore we must ask that they are left at the door. \nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation”]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositislife-womens-support-group-2-2/2024-09-02/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2017/01/MSU-Women-Event-FB-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240831T190000 DTEND;TZID=America/New_York:20240831T210000 DTSTAMP:20260415T035211 CREATED:20240103T204605Z LAST-MODIFIED:20250909T182144Z UID:10001539-1725130800-1725138000@understandingmyositis.org SUMMARY:Necrotizing Myopathy Patient Video Support DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nIMNM / NAM Patients\, click the button below to register once to attend this and all future sessions. \n[/vc_column_text] REGISTER[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Immune-Mediated Necrotizing Myopathy patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives. \nThis session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM)\, sometimes referred to as Necrotizing Autoimmune Myopathy (NAM). \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Necrotizing Myopathy session is held on the last Saturday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/imnm-video-support-2/2024-08-31/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Necrotizing-Myopathy-Support-Event-Graphic-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240830T170000 DTEND;TZID=America/New_York:20240830T190000 DTSTAMP:20260415T035211 CREATED:20240117T151337Z LAST-MODIFIED:20250909T181333Z UID:10001527-1725037200-1725044400@understandingmyositis.org SUMMARY:IBM Patient Virtual Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 5 PM Eastern time\n(4 PM CT\, 3 PM MT\, 2 PM PT) \nIBM Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life” css=””]Register once to attend all IBM virtual support sessions. After registration\, you will receive an email with the details to join. Be sure to check your junk or spam email folders. \nRegister again for an updated email from Zoom that contains the dates for 2025 and provides a link to add them to your calendar.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Inclusion Body Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude and living our best lives with IBM. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is tailored to those diagnosed with or suspected of having Inclusion Body Myositis (IBM). Patients are welcome to include their spouse or care partner in these sessions. \nWe host this separate video support session because IBM is very different from the other forms of Myositis. IBM is a slowly progressive and degenerative muscle disease with no available treatment options\, outside of an exercise program. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/ibm-patient-video-support-2/2024-08-30/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Inclusion-Body-Myositis-Event-Graphic-1200-x-630-px-2.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240819T140000 DTEND;TZID=America/New_York:20240819T150000 DTSTAMP:20260415T035211 CREATED:20240808T032033Z LAST-MODIFIED:20240808T221527Z UID:10001867-1724076000-1724079600@understandingmyositis.org SUMMARY:Battling Brain Fog DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] Living Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents… \nBattling Brain Fog\nThis informative session will focus on effective ways to manage cognitive fatigue and provide you with essential strategies and tools to regain control over daily responsibilities. \nDiscover functional supports that can help enhance your overall quality of life and empower you to navigate challenges with confidence! \nDon’t miss this opportunity to learn and connect with others facing similar struggles. Your journey to clarity and productivity starts here! [/vc_column_text][/vc_column][/vc_row][vc_row][vc_column] To register visit[vc_custom_heading text=”Meaghan Arnold” font_container=”tag:h5|text_align:left” css=””][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_single_image image=”41919″ img_size=”medium” css=””][/vc_column][vc_column width=”1/2″][vc_column_text css=””]-️ Hosted by Speech Swallowing and Neurological Rehabilitation (SSNR)\, a private practice in Tyler\, Texas\, this webinar will be led by Meaghan Arnold\, a dedicated medical speech-language pathologist and owner of SSNR. With a Bachelor of Science degree from The University of Arizona and a Master of Arts degree from The University of Texas at Austin\, Meaghan brings over eight years of experience in skilled nursing facilities\, home health\, and outpatient settings. \n-‍⚕️ Meaghan specializes in treating voice\, swallowing\, speech\, language\, cognition\, and memory deficits. She’s passionate about person-centered care and community education\, hosting two support groups and speaking at local events to advocate for her patients. Visit SSNR website at https://ssnrtx.com/[/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/battling-brain-fog/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/jpeg:https://understandingmyositis.org/wp-content/uploads/2024/08/Battling-Brain-Fog-1-1.jpg ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240817T140000 DTEND;TZID=America/New_York:20240817T160000 DTSTAMP:20260415T035211 CREATED:20240801T231559Z LAST-MODIFIED:20240801T231642Z UID:10001806-1723903200-1723910400@understandingmyositis.org SUMMARY:International Myositis Patient Support DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at NEW TIME of 2 PM Eastern time\n(1 PM CT\, 12 PM MT\, 11 AM PT) \nMyositis Patients\, click the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life” css=””]Register once to attend the International Saturday Patient Support After you register\, you will receive an email with the details to join. \nRegister again for an updated email from Zoom with the new sessions added and an option to add them to your calendar.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]We are excited to launch a new international support group for all myositis patients and their care partners\, held on Zoom. This is a fantastic opportunity to connect with others from around the world\, share experiences\, and offer mutual support in a safe and welcoming environment. \nWhen: Every third Saturday of the month \nTime: 2:00 PM ET (Eastern Time\, USA) 1:00 PM CT (Central Time\, USA) 12:00 PM MT (Mountain Time\, USA) 11:00 AM PT (Pacific Time\, USA) 7:00 PM BST (British Summer Time\, UK) 8:00 PM CEST (Central European Summer Time) \nWhether you are newly diagnosed or have been managing myositis for years\, this group is here to provide community\, resources\, and understanding. We look forward to seeing you there! \nThis session is tailored to anyone living with any of the types of myositis including polymyositis (PM)\, dermatomyositis (DM)\, clinically amyopathic dermatomyositis (CADM)\, antisynthetase syndrome (AS)\, immune-mediated necrotizing myopathy (IMNM)\, sporadic inclusion body myositis (sIBM)\, adults with and parents of children with juvenile dermatomyositis (JDM)\, nonspecific myositis\, and overlapping myositis with other conditions such as with mixed connective tissue disease. \nInclusion body myositis patients are welcome to join this session but please keep in mind that when discussing medications this will not apply to you. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWhen discussing COVID-19 . . .\nWhen discussing COVID-19\, to keep all of our members safe and comfortable\, and to protect the integrity of the conversation\, we will continue to enforce the rules we put in place below. We will have a no-tolerance policy for these rules and thankfully have not had to use them. We will give one warning and then will ask you to leave the session if you will not comply. We are not equipped to answer the questions about science or conspiracies\, and therefore we must ask that they are left at the door. \nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation”]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/international-myositis-patient-support/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/International-Myositis-Support-Group-Graphic.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240807T190000 DTEND;TZID=America/New_York:20240807T210000 DTSTAMP:20260415T035211 CREATED:20240103T200832Z LAST-MODIFIED:20250910T221541Z UID:10001729-1723057200-1723064400@understandingmyositis.org SUMMARY:Wednesday Evening Myositis Support Group DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text css=””] \nStarting at 7 PM ET\n(6 PM CT\, 5 PM MT\, 4 PM PT)\nClick the button below to register to attend. \n[/vc_column_text] REGISTER[vc_message style=”square” message_box_color=”warning” icon_type=”fontawesome” icon_fontawesome=”fas fa-star-of-life”]Register once to attend all monthly Wednesday evening myositis support sessions. After registration\, you will receive an email with the details to join. When new sessions are added or changed for some reason\, you will receive an email update.[/vc_message][/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Myositis patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life\, with a focus on gratitude and living our best life with Myositis. \nThis session is tailored to anyone living with any of the types of myositis including Polymyositis (PM)\, Dermatomyositis (DM)\, Clinically Amyopathic Dermatomyositis (CADM)\, Antisynthetase Syndrome (ASyS)\, Immune-Mediated Necrotizing Myopathy (IMNM)\, Inclusion Body Myositis (IBM)\, adults with and parents of children with Juvenile Dermatomyositis (JDM)\, Nonspecific Myositis\, and Overlapping Myositis with other conditions such as with Mixed Connective Tissue Disease. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nJoin with your camera on or off. Join to be a part of the discussion or listen in. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation”]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositis-patient-video-support-2/2024-08-07/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/MSU-Wednesday-Evening-Support-Event-IG-1200-x-630-px-4.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240805T190000 DTEND;TZID=America/New_York:20240805T210000 DTSTAMP:20260415T035211 CREATED:20240103T203043Z LAST-MODIFIED:20240103T203935Z UID:10001479-1722884400-1722891600@understandingmyositis.org SUMMARY:Women with Myositis Zoom Support DESCRIPTION:[vc_row el_id=”details” disable_element=”yes” padding_top=”20″ padding_bottom=”20″][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=””] \nWomen’s Group\nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT \n[/vc_message] REGISTER for Future Zoom Sessions[/vc_column][/vc_row][vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_message message_box_style=”outline” message_box_color=”orange” icon_fontello=””] \nStarting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT\n[/vc_message] REGISTER TO ATTEND[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text]Join fellow women with myositis for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, and talk to others going through the same or similar situations\, including the emotional aspects of myositis life with a focus on gratitude. \nSupport sessions are never recorded. These are private\, real-time video support sessions and not the educational sessions we provide. \nThis session is open to all women with any type of myositis. \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Women with Myositis session is held on the 1st Monday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the video support session.\nWhen sharing\, we ask you to be mindful of time so that everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments or jokes\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWhen discussing COVID-19 . . .\nWhen discussing COVID-19\, to keep all of our members safe and comfortable\, and to protect the integrity of the conversation\, we will continue to enforce the rules we put in place below. We will have a no-tolerance policy for these rules and thankfully have not had to use them. We will give one warning and then will ask you to leave the session if you will not comply. We are not equipped to answer the questions about science or conspiracies\, and therefore we must ask that they are left at the door. \nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation”]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime within the first hour.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/myositislife-womens-support-group-2-2/2024-08-05/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2017/01/MSU-Women-Event-FB-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240805T140000 DTEND;TZID=America/New_York:20240805T153000 DTSTAMP:20260415T035211 CREATED:20240722T122028Z LAST-MODIFIED:20240723T215604Z UID:10001343-1722866400-1722871800@understandingmyositis.org SUMMARY:Fatigue Management Part 2-Practical Ways To Remove Challenges When Managing Fatigue DESCRIPTION:[vc_row padding_top=”20″ padding_bottom=”30″][vc_column][vc_column_text css=””] \nWebinar: Fatigue Management Part 2-Practical Ways To Remove Challenges When Managing Fatigue\nMonday\, August 5th\, on Zoom at 11 AM PT / 12 PM MT / 1 PM CT / 2 PM ET / 7 PM BST / 8 PM CEST  \nA Living Fully with Myositis: MSU’s #MyositisLife Initiative Series \nJoin us for Part 2 of our Fatigue Management Series! \nDive into practical solutions to tackle fatigue challenges with our expert speaker\, Pamela Rose. Learn effective energy management techniques and discover actionable strategies to conquer fatigue. \nIn this engaging session\, Pamela will cover: \n✨ Navigating tricky conversations \n✨ Responding thoughtfully rather than reacting \n✨ Maintaining a vibrant social life \n✨ Mindset adjustments that help you be resourceful every day \nDon’t miss this chance to master the skills needed to face daily challenges and live a more energized lifestyle. Your journey to optimized energy and balance starts here![/vc_column_text] Click to Register on Zoom[/vc_column][/vc_row][vc_row][vc_column][vc_column_text css=””] \nAbout Pamela Rose\n \n“Based in the UK\, Pamela Rose is a Fatigue Coach supporting people around the world to better manage their fatigue-related challenges. She provides very real and practical guidance to her clients linked to behaviors that will start to make a noticeable difference straightaway. A key part of Pamela’s approach is ‘pacing’ or ‘energy management’ – helping clients achieve the life they have to live and want to live – whilst managing their health journeys.” \nPamela Rose Contact information info@pamelarose.co.uk or visit her website at https://www.pamelarose.co.uk/[/vc_column_text][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/practical-ways-to-remove-challenges-when-managing-fatigue/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Session ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/07/Fatigue-Management-Graphic-4.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240727T190000 DTEND;TZID=America/New_York:20240727T210000 DTSTAMP:20260415T035211 CREATED:20240103T204605Z LAST-MODIFIED:20250909T182144Z UID:10001538-1722106800-1722114000@understandingmyositis.org SUMMARY:Necrotizing Myopathy Patient Video Support DESCRIPTION:[vc_row el_id=”details” padding_top=”20″ padding_bottom=”20″][vc_column][vc_column_text] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nIMNM / NAM Patients\, click the button below to register once to attend this and all future sessions. \n[/vc_column_text] REGISTER[/vc_column][/vc_row][vc_row][vc_column]\n\n \n \n \n Session Details \n \n \n \n Session Policies \n \n \n \n FAQ \n \n \n \n \n\n [vc_column_text css=””]Join fellow Immune-Mediated Necrotizing Myopathy patients for a private\, real-time group video support session and share your challenges\, hopes\, fears\, circumstances\, ask questions and talk to others going through the same or similar situations\, including the emotional aspects of Myositis life with a focus on gratitude and living our best lives. \nThis session is tailored to those diagnosed with Immune-Mediated Necrotizing Myopathy (IMNM)\, sometimes referred to as Necrotizing Autoimmune Myopathy (NAM). \nRegistration is required. After registration\, you will receive an email with details to join. See the link to register at the top of this page. \nYou do not have to turn your camera on and you will never be required to speak. \nCheck out all of our video support sessions\, and other support options. [/vc_column_text][vc_column_text]Monthly Necrotizing Myopathy session is held on the last Saturday of each month starting at:  \n7 PM Eastern Time \n6 PM Central Time \n5 PM Mountain Time \n4 PM Pacific Time[/vc_column_text]\n\n\n [vc_column_text css=””] \nSupport Session Guidelines\nWe don’t like to impose rules\, however\, to keep everyone safe please read over the policies below. \nSession Privacy\, Trust\, and Behavior\nTo keep everyone feeling safe\, here is a list of our general\, but important\, policies. \n\nAnything shared in the video support group session stays there! Just as in our closed online support groups\, we trust that you will follow this strict rule. No sharing of private discussions outside of the support session.\nWhen sharing\, we ask you to be mindful of time so everyone has a chance to share.\nIf you have something to add to the discussion\, we ask that you do not interrupt while someone is speaking. The hosts will announce at the start of the session how each session will run.\nAnything shared should be audience-appropriate. We will not tolerate hate speech\, bullying\, inappropriate comments\, or the promotion of any outside services\, products\, websites\, or other online links that are not related to our discussions.\n\nWe will NOT have or provide: \n\nA debate about science;\nA political discussion;\nA conversation about conspiracy theories;\nMedical advice (beyond what is listed as criteria to call your doctor).\n\nWhat we hope this video support session will be: \n\nA safe space to voice your experiences and ask questions among similarly situated people who understand;\nA place to get ideas for staying sane while practicing social distancing\, isolation\, or quarantine;\nA chance to get ideas for staying safe if you must continue participating in the outside world;\nAn opportunity to see that you are not alone.\n\nThe views and opinions of session Hosts\, Co-hosts\, and Volunteers are not that of Myositis Support and Understanding (MSU). [/vc_column_text]\n\n\n [vc_column_text] \nHow do I join video support sessions?\nZoom is available for almost all devices including computers\, laptops\, smartphones\, and tablets. \nTo install Zoom on a computer/laptop: Visit the Downloads page on Zoom’s website and download/install the Zoom Client for Meetings. \nTo install Zoom on a device: Visit your App store and search for Zoom and install. \nThen\, visit our Events Calendar and register for the monthly support sessions that interest you. \nIf you need additional help\, we have Zoom help documents with more detail. \nWhy do I have to register?\nBecause of security concerns and to ensure we are able to better provide a safe space and control who joins the sessions we require registration. Register once to attend this monthly session. After registration\, you will receive an email with the details to join on Zoom\, which also includes a link to add it to your calendar.[/vc_column_text]\n\n \n\n[/vc_column][/vc_row][vc_row padding_top=”0″ padding_bottom=”0″][vc_column][vc_message style=”square” icon_type=”fontawesome” icon_fontawesome=”fas fa-exclamation” css=””]Running late? That’s okay. Join us anyway! Video support sessions vary in length and number of attendees but are generally 90 minutes long\, so join us anytime.[/vc_message][/vc_column][/vc_row] URL:https://understandingmyositis.org/event/imnm-video-support-2/2024-07-27/ LOCATION:MSU Zoom Video Session\, Video session using Zoom CATEGORIES:Video Support Sessions ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/01/Necrotizing-Myopathy-Support-Event-Graphic-1200-x-630-px.png ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org END:VEVENT END:VCALENDAR