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X-WR-CALNAME:Myositis Support and Understanding
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X-WR-CALDESC:Events for Myositis Support and Understanding
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DTSTART;TZID=America/New_York:20241017T180000
DTEND;TZID=America/New_York:20241017T200000
DTSTAMP:20260414T162308
CREATED:20240925T200146Z
LAST-MODIFIED:20240925T200146Z
UID:10001892-1729188000-1729195200@understandingmyositis.org
SUMMARY:Myositis Empower Walk Game Night
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nStarting at 6 PM Eastern time\n(5 PM CT\, 4 PM MT\, 3 PM PT) \nClick the button below to register to attend. \n[/vc_column_text][vc_column_text css=””] \n Ready for a Myositis Empower Walk Game Night!** \nJoin us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event be hosted by our very own Jessica Taylor\, Director of Operations for MSU\, alongside Taryn Smith from Priovant. \nGet ready for a night filled with trivia\, laughter\, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th\, starting at 4 PM\, streaming online. \nDon’t miss this opportunity to have some fun and connect with fellow myositis warriors before the walk! \nMark your calendars\, and get ready for an unforgettable evening! We can’t wait to see you there!  \n[/vc_column_text] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/myositis-empower-walk-game-night/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Untitled-1200-x-630-px-1.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241007T190000
DTEND;TZID=America/New_York:20241007T200000
DTSTAMP:20260414T162308
CREATED:20240925T184143Z
LAST-MODIFIED:20240925T184143Z
UID:10001890-1728327600-1728331200@understandingmyositis.org
SUMMARY:Ladies Bingo Night
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””] \nStarting at 7 PM Eastern time\n(6 PM CT\, 5 PM MT\, 4 PM PT) \nClick the button below to register to attend. \n[/vc_column_text][vc_column_text css=””] \n Join Us for a Special Event: Ladies Bingo Night! \nWe are thrilled to invite all women with myositis to a unique one-time event: Ladies Bingo Night\, sponsored by Priovant! Get ready for a fun-filled evening where you can enjoy Bingo\, connect with fellow myositis warriors\, and share in the camaraderie of our incredible community! \nThis event offers a chance to take a break from the challenges of daily life and simply have fun. Connect with other women who understand what you’re going through while participating in an enjoyable game of Bingo! \nEvent Details:\n When: Monday\, October 7th\n Time: \n\n7 PM Eastern Time\n6 PM Central Time\n5 PM Mountain Time\n4 PM Pacific Time\n\nRegistration is required! After signing up\, you will receive an email with all the information needed to join the fun. Find the registration link at the bottom of this page. \nYou won’t want to miss this special night of laughter\, connection\, and—of course—Bingo! ✨ \nWe can’t wait to see you there![/vc_column_text] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/ladies-bingo-night/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Untitled-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240930T140000
DTEND;TZID=America/New_York:20240930T150000
DTSTAMP:20260414T162308
CREATED:20240904T200058Z
LAST-MODIFIED:20240905T153827Z
UID:10001870-1727704800-1727708400@understandingmyositis.org
SUMMARY:Realizing the CAR T Potential in Myositis & Beyond
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]Cabaletta Bio is a clinical-stage biotechnology company focused on developing T cell therapies with potential to provide durable\, perhaps curative\, treatment for patients with autoimmune diseases. CABA-201\, a CD19-CAR T cell therapy\, is being evaluated in the RESET™ Phase 1/2 trials across several autoimmune diseases\, including adult and juvenile myositis. \nTania Gonzalez Rivera\, M.D.\, discusses the application of CAR-T cell therapy in treating myositis and delves into the mechanism of CAR-T therapy\, its successes\, challenges\, and future prospects in revolutionizing autoimmune disease treatment. \nDr. Gonzalez is a renowned physician and executive leader in the biotechnology industry. She currently serves as the Vice President of Medical Affairs at Cabaletta Bio\, a company dedicated to developing novel therapies for autoimmune diseases. Dr. Gonzalez completed her Doctor of Medicine and Residency at the University of Puerto Rico School of Medicine and her Rheumatology Fellowship at the University of Michigan Medical School. \nHer research and clinical expertise include autoimmune diseases\, particularly in the areas of rheumatology and dermatology. She has published numerous papers in peer-reviewed journals on topics such as psoriasis\, and lupus\, and presented research findings at major scientific conferences\, including the American Academy of Dermatology and the American College of Rheumatology.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][/vc_column][/vc_row][vc_row][vc_column] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/realizing-the-car-t-potential-in-myositis-and-beyond/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Cabaletta-Bio.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240918T140000
DTEND;TZID=America/New_York:20240918T150000
DTSTAMP:20260414T162308
CREATED:20240904T192513Z
LAST-MODIFIED:20240905T153729Z
UID:10001868-1726668000-1726671600@understandingmyositis.org
SUMMARY:Innovative Approaches in Biopharmaceutical Research: Ensuring Patient-Centric Healthcare Solutions
DESCRIPTION:[vc_row][vc_column][vc_column_text css=””]In this webinar\, we’ll highlight the impactful collaboration between Galapagos and MSU\, focusing on our shared dedication to patient-centric healthcare. Our partnership has been vital in several initiatives\, including the collection of patient voices for our ongoing Phase 2 clinical trial. At Galapagos\, our research in inflammation and oncology is driven by a commitment to ensure that patient perspectives are central to our initiatives\, shaping solutions that truly meet patient needs and expectations. \nA significant aspect of our approach is the development of patient facing materials including informed consent documents. Zoltan Koleszar\, GLPG Patient Advocacy Leader\, will share his expertise on how patient recommendations are integrated into these critical documents. He will discuss how we ensure that the informed consent process is transparent\, comprehensible\, and respectful of patient needs\, and outline how these documents are approved for use in clinical trials. \nAdditionally\, we will feature a pre-recorded segment by Ann Fieuw\, GLPG Senior Medical Director. Ann will provide valuable insights into recent trends in dermatomyositis and information on our ongoing clinical trial. \nJoin us for this comprehensive session to understand how Galapagos is integrating patient feedback into every stage of research\, ensuring that our healthcare solutions are as effective and relevant as possible.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][/vc_column][/vc_row][vc_row][vc_column] REGISTER[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/innovative-approaches-in-biopharmaceutical-research-ensuring-patient-centric-healthcare-solutions/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/09/Galapagos-Webinar-Graphic.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240722T140000
DTEND;TZID=America/New_York:20240722T150000
DTSTAMP:20260414T162308
CREATED:20240520T171902Z
LAST-MODIFIED:20240716T231358Z
UID:10001721-1721656800-1721660400@understandingmyositis.org
SUMMARY:Fatigue Management - Mastering Fatigue Pacing for a Balanced Life
DESCRIPTION:[vc_row padding_top=”20″ padding_bottom=”20″][vc_column] [vc_column_text css=””] \nLiving Fully with Myositis: MSU’s #MyositisLife Initiative Series Presents – Fatigue Management – Mastering Fatigue Pacing for a Balanced Life\nSee the details below and register to join us on Zoom \n[/vc_column_text][vc_column_text css=””] \nMonday\, July 22nd\n2 PM ET / 1 PM CT / 12 PM MT / 11 AM PT \n7:00 PM BST /8:00 PM CEST \n[/vc_column_text][vc_row_inner][vc_column_inner] Register to attend[vc_empty_space height=”12px”][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row equal_height=”yes” el_id=”details”][vc_column][vc_column_text css=””] \n\n\nJoin us for an exclusive session tailored for myositis patients! \nDive into the crucial topic of fatigue management with our expert speaker\, Pamela Rose. Discover the keys to effective energy management and conquer fatigue with practical strategies. \nLearn the art of pacing for a balanced and fulfilling life\, gaining invaluable insights to boost your well-being. Don’t miss this opportunity to master the skills needed to navigate daily challenges and embrace an energized lifestyle. Your journey to optimized energy and balance starts here! \n“Based in the UK\, Pamela Rose is a Fatigue Coach supporting people around the world to better manage their fatigue-related challenges. She provides very real and practical guidance to her clients linked to behaviours that will start to make a noticeable difference straightaway.  A key part of Pamela’s approach is ‘pacing’ or ‘energy management’ – helping clients achieve the life they have to live and want to live – whilst managing their health journeys.” \n\n[/vc_column_text][vc_column_text] \nAbout joining this webinar\nREGISTRATION IS REQUIRED. Click the Register button above to get started. After registration\, you will receive an email containing all information needed to join the webinar at the scheduled time and date. \nBe sure to check your spam and junk folders if you do not see the email.[/vc_column_text][/vc_column][/vc_row][vc_row padding_bottom=”10″][vc_column][vc_custom_heading text=”Event starts in . . .” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]2024/05/21 19:00:00[/vc_column][/vc_row][vc_row padding_top=”30″ padding_bottom=”0″][vc_column]\n\n	\nGet Zoom We use Zoom for all webinars and our video support sessions. \nZoom is available for free and you can download and install the software on your computer or laptop\, or use the free app for your smartphone and tablet. \nTo download the app for your smartphone or tablet\, open your app store\, search for Zoom\, and install.   \n\n	\nMSU on YouTube Follow us on YouTube for Live Streaming Events and over 100 videos of past webinars\, and to meet our volunteers.   \n\n	\nMSU Facebook page Be sure to visit and “Like” our public Facebook page for special events\, articles\, videos\, and patient and caregiver opportunities.   [/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/myositis-and-fatigue-management/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2024/05/Fatigue-Management-Graphic-2.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231018T190000
DTEND;TZID=America/New_York:20231018T200000
DTSTAMP:20260414T162308
CREATED:20231010T171113Z
LAST-MODIFIED:20231010T171113Z
UID:10001564-1697655600-1697659200@understandingmyositis.org
SUMMARY:5 Top Tips for Open Enrollment
DESCRIPTION:[vc_row padding_top=”25″ padding_bottom=”20″][vc_column] [vc_column_text] \nRegister to join MSU with Michelle Vogel on Zoom\n5 Top Tips for Open Enrollment\n[/vc_column_text][vc_column_text] \nWednesday\, October 18\, 2023\, at 7 PM Eastern Time\n(7 PM ET / 6 CT / 5 MT / 4 PT) \n[/vc_column_text][vc_row_inner][vc_column_inner] Register for free[vc_empty_space height=”12px”][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row el_id=”details” padding_bottom=”20″][vc_column]Webinar Details[vc_column_text] \nAre you ready for the upcoming health insurance open enrollment season?\nMSU is excited to announce our upcoming webinar that aims to demystify the world of health insurance and help you make informed decisions about your coverage. With open enrollment just around the corner\, it’s the perfect time to get all your questions answered and ensure you can choose the right plan for your needs. \nIn this informative webinar\, Michelle Vogel of IV Solutions will guide you through the ins and outs of health insurance open enrollment. We’ll discuss key topics such as plan options\, coverage changes\, and important deadlines. Whether you’re new to the world of health insurance or a seasoned pro\, this webinar will provide valuable insights to help you navigate the process with confidence. \nDon’t miss out on this opportunity to gain clarity on your health insurance options and secure the coverage that suits you best. Join us on October 18th for a webinar that can significantly impact your healthcare decisions. \n[/vc_column_text][vc_column_text] \nAbout joining this webinar\nREGISTRATION IS REQUIRED for this free webinar. Click the Register button above to get started. After registration\, you will receive an email containing all of the information you need to join the webinar on the scheduled time and date. Be sure to check your spam and junk folders if you do not see the email.[/vc_column_text][/vc_column][/vc_row][vc_row padding_top=”30″ padding_bottom=”0″][vc_column]\n\n	\nGet help using Zoom We use Zoom for all webinars and video support\, activity\, and education sessions. \nZoom is available for free and you can download and install the software on your computer or laptop\, or visit your app store to get the app for your smartphone and tablet.See Zoom Help »   [/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Check out other upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row padding_bottom=”10″][vc_column][vc_custom_heading text=”Event starts in . . .” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]2023/10/18 19:00:00[/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/5-top-tips-for-open-enrollment/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/png:https://understandingmyositis.org/wp-content/uploads/2023/09/Open-Enrollment-1200-x-630-px.png
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230509T190000
DTEND;TZID=America/New_York:20230509T203000
DTSTAMP:20260414T162308
CREATED:20230430T163824Z
LAST-MODIFIED:20230503T121810Z
UID:10001345-1683658800-1683664200@understandingmyositis.org
SUMMARY:What Brings You Joy?
DESCRIPTION:[vc_row][vc_column] [vc_column_text] \nWhat Brings You Joy?\nwith Lisa Sniderman the author of “The Grieving Project” and Jessica Taylor\, Director of Operations for MSU \n[/vc_column_text][vc_empty_space][vc_column_text] \nJoin us on Zoom!\nJoin us as we embark on an exploration of what joy means to you. As we navigate through our myositis journeys\, it can be easy to get stuck in a mindset that can hold us back from experiencing joy in our lives. We want to open a safe space to encourage a discussion of what lights YOU up! It’s time to connect\, or re-connect\, with what brings you joy.\n \nNurturing our mental wellness is crucial to our healing process and we hope that you join us to share\, learn and laugh together as we build heartfelt connections and open our hearts to more joy. \n \nWe look forward to seeing you there!\n[/vc_column_text][vc_empty_space][vc_column_text] \nHow to join\nUse the button below to attend. Registration is not required; simply click the button below to join\, or add this link to your calendar to join: https://us02web.zoom.us/j/87256075938\n[/vc_column_text][vc_empty_space height=”15px”] Click to join us on Zoom[vc_row_inner][vc_column_inner][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row text_align=”center” text_color=”#fcfcfc” type=”color” bg_color=”#032643″ padding_top=”20″ padding_bottom=”20″][vc_column][vc_row_inner][vc_column_inner][vc_custom_heading text=”Upcoming support and education sessions” font_container=”tag:h3|text_align:center” use_theme_fonts=”yes”]See Upcoming Events[/vc_column_inner][/vc_row_inner][/vc_column][/vc_row]
URL:https://understandingmyositis.org/event/what-brings-joy/
LOCATION:ZOOM Webinar\, 9125 N Old State Rd\, Lincoln\, DE\, 19960\, United States
CATEGORIES:Video Session
ATTACH;FMTTYPE=image/jpeg:https://understandingmyositis.org/wp-content/uploads/2023/04/joy-2.jpg
ORGANIZER;CN="Myositis Support and Understanding (MSU)":MAILTO:info@UnderstandingMyositis.org
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