• Main page form

Search by diagnosis

Search by State

Search by Country

Clear

Are you willing to share your phone number and/or email address to connect with other patients and caregivers? If so, we will contact you prior to providing this information to anyone. This information will not be public.

Search

Members directory

  • Profile picture of Jackie Tolentino
    Active 7 years, 5 months ago
  • Profile picture of Eugene Reeves
    Active 7 years, 5 months ago
  • Profile picture of Chad Howard
    Active 7 years, 5 months ago
  • Profile picture of Bennie Malley
    Active 7 years, 5 months ago
  • Profile picture of Lauriehaagenson
    Active 7 years, 5 months ago
    - "@minerva Hi Minerva.How long ago were you diagnosed with the disease? Are you responding to treatments?Are the people in this group from a lot of different cities or only Redding where I’m from?"
  • Profile picture of susan Stauffer
    Active 7 years, 5 months ago
  • Profile picture of Lisa Jacobsen
    Active 7 years, 5 months ago
  • Profile picture of Heather Exley
    Active 7 years, 5 months ago
    - "I joined this group yesterday. I am in New Zealand where there isn’t any support groups. I have felt so alone the last 16 years suffering with this and no one understanding what I am dealing with.listening to […]" View
  • Profile picture of Ellen Walsh
    Active 7 years, 5 months ago
  • Profile picture of Marilynn Blackmore
    Active 7 years, 5 months ago
    - "I have been told I have dermatomyositis, intersistial lung disease and lupus. That was after a reaction to an antibiotic given to me in Jan. 2016 because I had pneumonia. I ended up with a scab type rash on my […]" View
  • Profile picture of Mark Sliwicki
    Active 7 years, 5 months ago
  • Profile picture of Gerry Morozowsky
    Active 7 years, 5 months ago
  • Profile picture of Karl Krauter
    Active 7 years, 5 months ago
  • Profile picture of Rob1040
    Active 7 years, 5 months ago
  • Profile picture of Kathleen Bober-Sorcinelli
    Active 7 years, 5 months ago
  • Profile picture of Minerva Caquimbo
    Active 7 years, 5 months ago
  • Profile picture of Dennis Bonner
    Active 7 years, 5 months ago
  • Profile picture of René Walker
    Active 7 years, 5 months ago
  • Profile picture of Nicole Rice
    Active 7 years, 5 months ago
  • Profile picture of Lauren Bonini
    Active 7 years, 5 months ago
  • Profile picture of Mick Varga
    Active 7 years, 5 months ago
  • Profile picture of Aline Donabedian
    Active 7 years, 5 months ago
  • Profile picture of Gretchen
    Active 7 years, 5 months ago
  • Profile picture of Roxanne Evans
    Active 7 years, 5 months ago

© 2026 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

Log in with your credentials

or    

Forgot your details?

Register for Free Membership

Send this to a friend