Myositis Patient Financial Assistance

Living with a rare chronic illness causes many financial difficulties

Learn more about and download the application and help guide for the MSU Myositis Patient Financial Assistance program.

Download now or learn more about the program by checking out the information below.

MSU Myositis Patient Financial Assistance Program

Myositis Patient Financial Assistance Program Overview

To apply for financial assistance the patient must be a U.S. resident diagnosed with a type of inflammatory myopathy (myositis) or be going through a diagnostic process in which doctors strongly suspect and are testing the patient for one of the forms of myositis through muscle or skin biopsy, EMG, and/or blood work.

Requests for assistance are evaluated on a case-by-case basis and are subject to funding availability as well as eligibility and financial need. Patients may be eligible to receive up to a maximum of $1,500 once per rolling year from MSU.

All supporting documents must be included to be considered for an award. If you qualify for a financial award, the amount awarded will be paid directly to your creditor(s), with the exception of case-by-case situations. Do not send us any health or medical records as we do not need these.

Myositis Patient Financial Assistance Help Guide

Please use the help guide when completing the financial assistance application. The help guide contains additional forms and requirements for documents based on the type of assistance you request.

The program covers

Medical Bills are defined as bills payable for medical diagnosis, treatment, and care to pharmacies (or formularies) for prescriptions, accredited hospitals, labs, Licensed Medical Doctors, Doctors of Osteopathy, urgent care centers, and other like institutions.

These are not reimbursable expenses. We will pay directly to your creditors according to a recent bill you provide to us.

Emergency Household Expenses are defined on a case-by-case situation but may include utility bills, mortgage or rent payments, etc. If approved, these are paid directly to your creditor. You must include copies of the original bills that include payment mailing address, telephone number, and account number.

For rent payments, full details are in the help guide and include the several addtional requirements.

Mobility Devices are defined as devices that help people with myositis enjoy greater mobility, freedom, and independence and include things such as wheelchairs, power wheelchairs, stairlifts, Hoyer lifts, ramps, transfer devices, certain home and bathroom modifications, and others.

Since mobility device types vary based on need and complexity, applications will be determined on a case-by-case scenario, using multiple factors including medical need as determined by your doctor, device purpose, health insurance coverage, and if the device meets our definition of devices likely to be covered under this program.

Medical Travel is defined as airfare; mileage; hotel; ground transportation such as taxi, Uber, Lyft, public transportation services, bus fare; and/or train fare; for travel more than 100 miles away from home to consult with a Myositis Specialist for diagnosis, treatment, and testing.

Medical travel assistance requires pre-approval using the Financial Assistance Application and other required documentation as outlined in the help guide. If approved, each medical travel decision, and what is included in the approval amount, is made on a case-by-case basis, not to exceed $1,500. (You may be asked to pay upfront for flights, bus and train travel and, if approved, these will be reimbursed.)

See the help guide for full details on Medical Travel procedures and additional forms.

Please submit your application within 60 days of your appointment.

Applying for financial assistance

Below is a brief summary of the steps to request financial assistance. Full details are included in the application and associated help guide.

  • Register for your free MSU membership at UnderstandingMyositis.org/register.
  • Review the eligibility information for financial assistance on the overview tab.
  • If you have received assistance from us in the past, has it been a full 12 months since you were last approved? If not, please wait to apply. For example, if you were approved in May 2019, you would be eligible to apply again in May 2020. Members are eligible to apply once per rolling year.
  • Download the Financial Assistance Application.
  • Download the Financial Assistance Program Help Guide, which includes the required information and documents that must accompany the application.

Where and how to send your application and documents

We only accept completed and signed applications which include all required supporting documentation.
Do not send any health or medical records as we do not need these.

Submitting your application

You can submit your application and supporting documents via email, fax, or mail. Before sending, please note the following:

  • Be sure your application is signed and that the doctor’s form is completed and signed.
  • Include a brief personal statement to provide further details, where required.
  • Do not include health or medical records.
Email (preferred method)

Email your completed application and supporting documents to office@UnderstandingMyositis.org.
Be sure to check your spam/junk folders for replies and add us to your contacts.

Fax

Fax your completed application and supporting documents to 888-MYO-RARE ( 888-696-7273)

Send by Mail

Mail your completed application and supporting documents to the address below:

MSU
9125 N. Old State Road
Lincoln, DE 19960

When am I able to apply for financial assistance? 

If this is your first time applying for financial assistance with MSU, you can submit your application and supporting documents today. Patients are eligible to apply once every rolling year. If you have received financial assistance from MSU in the past, you are eligible to apply one full year following your previous  application. In other words, you must wait 12 months from the date you were last approved before you are eligible to re-apply for financial assistance. 

For example, if you were approved on March 3, 2019, you would be eligible to apply again on March 3, 2020. 

Can I apply and receive the difference in available award amounts since MSU increased the maximum? 

Unfortunately there will be no exceptions made to the limit of one award per rolling year. If you require assistance again at that time, you may be eligible to receive the newly updated maximum award amount of $1500. 

Does MSU offer a prescription copay assistance program? 

No, we do not offer a prescription copay assistance program. However, we do provide assistance for medical bills, and prescription costs are covered under this type of assistance. We require an invoice or statement from the company, and if you are approved, we pay directly to the creditor. 

Does MSU book the myositis specialist visit for medical travel assistance? 

While we are not able to book your appointments, if you need assistance in locating a myositis specialist, check out our Tips to Find Doctors page on our website.  

Can you mail me a copy of the financial assistance decision letter? 

We send all approval information and the decision award letter by email, and you should have a copy for your records, if the application has been finalized. 

If you would like us to mail you a copy, please either notate this request on the application or in your personal statement. 

If you need a copy of an award letter from a previous application, please contact us with the request.

About the MSU Myositis Patient Financial Assistance Program

Update: Beginning mid-quarter 1 of 2020, the MSU Myositis Patient Financial Assistance Program is expanding! The expansion includes an increase in the maximum patient yearly award amount, from $1000 to $1500, and the program now officially includes mobility and assistive device assistance on the application.

The MSU Myositis Patient Financial Assistance Program was fully realized and released in May 2016, MSU’s one-year nonprofit anniversary. MSU is a 501(c)(3) nonprofit organization founded by myositis patients for myositis patients and caregivers.

Myositis, a rare and debilitating autoimmune disease, affects an estimated 50,000-75,000 people in the United States. This program adds to MSU’s ever-growing list of programs that help improve the lives of myositis patients.

Due to the rarity of myositis and its various types and subtypes, including the fact that some doctors may never see a patient with myositis in their careers, patients with or suspected of having myositis often face difficulties and significant delays in getting a diagnosis. Furthermore, patients with chronic illnesses often face financial difficulties in part due to the high cost of insurance premiums and deductibles, continuous medical bills, lost wages, and extraneous expenses indirectly related to health care such as home modifications, some household bills, and medical travel. MSU has worked tirelessly to raise funds to establish and expand the financial assistance program and they give thanks to their sponsors, donors, members, and supporters for continuing to help fund this program.

Through this crucial and much-needed program, MSU awards funds to patients (based on qualification and approval) for medical travel expenses to see myositis specialists for diagnosis and treatment, medical bills and certain types of mobility devices, and some household expenses.

MSU hopes, through these funds, to provide much needed financial relief to patients, whose lives are already stressed due to illness, allowing them to more fully concentrate on their health. Patients who qualify will be eligible for a maximum of $1500 per rolling year, based on a number of factors defined on the application and in the help guide.

NOTE: Applicants and potential recipients of financial assistance should discuss any ramifications, including taxes, with their caseworker, accountant, or lawyer. MSU cannot and will not provide legal or tax advice.

Anti-Discrimination Policy: MSU does not discriminate based on race, color, age, religion, national origin, gender, gender expression, sexual orientation, national origin (ancestry), marital status, disability, or political affiliation. All financial applications will be reviewed on a case-by-case basis and the final determination will be based on eligibility, financial need, and availability of funds.

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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