Myositis Financial Assistance Program

Our Myositis Patient Financial Assistance Program was released on our one-year anniversary of becoming a  501(c)(3) non-profit organization founded by patients, for patients dealing with Myositis, a rare and debilitating neuromuscular disease, affecting an estimated 50,000-75,000 people in the United States. This program adds to the ever-growing list of services we offer to patients to provide day-to-day support to help patients cope with Myositis.

Due to the rarity of the disease, and the fact that many doctors may only see one patient, if any, with Myositis in their careers, patients with Myositis and suspected of having Myositis often face difficulties in procuring an expedient diagnosis and adequate treatment. Furthermore, patients with chronic illnesses often face financial difficulties due to ongoing medical bills, lost wages, and extraneous expenses indirectly related to health care such as home modifications. Therefore, we have worked tirelessly to raise funds to establish this Financial Assistance Program. Through it, we will provide funds to patients for travel to see known myositis experts for diagnosis and treatment, help with medical expenses, and household expenses due to the overwhelming costs of living with a chronic illness.

MSU hopes through these funds, to provide much needed financial relief to patients, whose lives are already stressed due to illness, allowing them to more fully concentrate on their health. Patients who qualify will be eligible for a maximum of $1000 per year, based on a number of factors defined below and on the application itself.

Financial Assistance Eligibility and Qualifications

To qualify for a financial assistance award, applicants are asked to fill out an application (see below.)

Requests for assistance are evaluated on a case-by-case basis and are subject to funding availability, eligibility, and financial need. The maximum award a qualifying patient may receive is $1000 per year.

To apply for financial assistance a patient must be diagnosed with Dermatomyositis, Polymyositis, (including Juvenile forms), ASS, Necrotizing Autoimmune Myopathy, or Inclusion Body Myositis; or be going through a diagnostic process in which doctors are testing the patient for one of the above subtypes of Myositis through Muscle or Skin Biopsy, EMG, and/or blood work.

The patient’s household must have less than $5000 (avg daily balance) in saving accounts to be eligible for assistance.

All bills will be paid directly to the creditor

Paperwork required includes the application including the last page which needs to be completed by a doctor, copies of bills or expenses you wish us to pay, and powers of attorney (if applicable) if applying on someone else’s behalf.

Travel Expenses are defined as airfare; gas; hotel (generally a one night stay); ground transportation such as taxi, Uber, bus fare; and/or train fare; for travel more than 100 miles away from home to consult with a Myositis Specialist for diagnosis, treatment, and testing. Travel is based on pre-approval. Please provide us with the date of your appointment, doctor’s name and address, and any other helpful information for us to review and pre-approve your travel for the amount you qualify for. The appointment must be within the next 60 days. If the appointment is further out, please contact us before applying. Awards for travel expenses are for reimbursement only. Receipts will be required for reimbursement.

Medical Bills are defined as bills payable for medical diagnosis, treatment, and care to pharmacies (or formularies) for prescriptions, accredited hospitals, labs, Licensed Medical Doctors, Doctors of Osteopathy, urgent care centers, and other like institutions.

Household/Living Expenses are defined on a case-by-case situation but often include utility bills, mortgage or rent payments, etc.

Financial Assistance Application and Help Guide

Below are the steps to start the process of asking for financial assistance:

  1. Review the qualification and eligibility information above. This is also listed on the application itself.
  2. If you fit the criteria, download and fill out the Financial Assistance Application.
  3. Provide your doctor with the last page for them to fill out and sign.
  4. Gather all supporting documentation requested including the latest copies of bills and statements you are asking us to pay ensuring your insurance company has already paid their part, along with the completed application and email everything to this email address to your contacts to avoid our replies from going to your spam/junk folders. If you have not heard back from us within a week, be sure to check those folders)
    1. If you do not have a scanner, you can mail the application to us using the address below:

9125 N. Old State Road
Lincoln, DE 19960

NOTE: If you do not provide all documents with your completed application, there will be a delay processing. We will attempt to contact you via email or by phone.

Please be sure to include all documents including the doctor’s form, savings account statement (the first page only, showing the avg daily balance), and copies of most recent bills you are asking us to pay, if you are approved. There is a checklist on the application.

Anti-Discrimination Policy: MSU does not discriminate based on race, age, religion, color, national origin, gender, sexual orientation, disability, or political affiliation. All financial applications will be reviewed on a case-by-case basis and the final determination will be based on eligibility, financial need, and availability of funds.

Are you able to help us keep this program up and running?

MSU was founded by Myositis patients, for Myositis patients, and operates all of its programs through the work of an all-volunteer Board of Directors and member volunteers, and the generous donations of members, friends, and supporters. All donations made within the United States are tax-deductible under IRS Tax Code Section 501(c)(3).

If you are interested in making a tax-deductible donation to help fund our programs and services, as well as operating expenses, please use the button below.

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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PIONEER, Idera clinical trial for dermatomyositis

PIONEER, Idera clinical trial for dermatomyositis


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Hi, this may be interesting to you: Myositis Financial Assistance Program! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.