At Myositis Support and Understanding (MSU), for the last 10 years, we have been dedicated to making a profound impact on the lives of patients and care partners affected by the rare and complex group of immune-mediated muscle diseases known as myositis. This condition can have far-reaching effects, impacting not only the muscles but also the skin, heart, lungs, and digestive tract, often accompanied by significant pain.
Our supportive programs offer not just educational resources, but also groundbreaking, patient-centered research that aims to transform lives. We are proud to provide a unique financial assistance program, ensuring that no Myositis patient is ever turned away due to lack of funds.
We are proud of what we have achieved together, but with your involvement, we can amplify our efforts even further. We invite you to consider donating to support our mission. Sharing our resources with your friends and family can also make a significant difference in our fight for awareness, understanding, and research.
Together, we can empower our community and drive meaningful change for those affected by myositis. Thank you for being part of this vital journey with us and here is to the next 10 years and all we can accomplish!
#SupportStartsHere #RightNowResearch #MyositisCommunity
In Their Hands
As the year comes to a close, we reflect on the incredible generosity shown during Giving Tuesday. Every donation, message of support, and act of kindness has strengthened the hands that carry the myositis community forward.
Continuing the Journey
The journey with myositis is one of courage, resilience, and hope. Each person living with this rare disease faces unique challenges, but no one should face them alone. With continued support, MSU can expand vital programs that provide education, advocacy, and emotional support to patients, caregivers, and families.
Why Year-End Giving Matters
Your year-end gift ensures that MSU can:
* Offer one-on-one peer support and patient education resources
* Fund the only Patient Financial Assistance Program in the myositis community
* Invest in MSU’s innovative ‘Right Now’ Research, where patients ask the questions and guide priorities for better research and treatment options
* Create stronger connections within the myositis community
Together, We Make a Difference
The power to uplift, empower, and inspire is truly in your hands. As the year ends, consider making a tax-deductible donation to help MSU continue its mission into the new year.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assistance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. The program is available to U.S. residents. See full details available in our help guide.
At MSU, we are patients and caregivers, too. We started with support, and with our support programs, you will find a family. Join us for myositis patient and caregiver groups, Zoom support, and rooms on Clubhouse. You are NOT alone in this journey.
We believe in the patient-centered research approach – putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis. Learn more about the research we are involved in, the impact it can have, and how you can get involved.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
MSU's Pain Paper
The MSU pain article: “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies” has been published in the prestigious journal, Rheumatology and MSU is proud to make the paper available to everyone at no cost. Share with your doctors. Myositis Pain is Real!
Myositis News and Updates
Upcoming Myositis Support & Events
International Myositis Support
January 17 @ 2:00 pm - 4:00 pm ESTWeekly Sunday Clubhouse Support
January 18 @ 7:00 pm - 9:00 pm ESTMyositis Reads – A Book Club for Those with Myositis
January 19 @ 3:00 pm - 4:30 pm ESTA Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results from a Leading Physician
January 20 @ 12:00 pm - 1:00 pm ESTMyositis Cancer Support Group
January 21 @ 7:00 pm - 8:30 pm ESTMyositis Support Gets Moving on Clubhouse
January 22 @ 1:00 pm - 2:30 pm ESTTendon Transfer for Inclusion Body Myositis (IBM)
January 23 @ 2:00 pm - 3:00 pm ESTWeekly Sunday Clubhouse Support
January 25 @ 7:00 pm - 9:00 pm ESTCouch Critics – A Movie Club for the Myositis Community
January 28 @ 3:00 pm - 4:00 pm EST
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!
