Giving Tuesday is Dec. 1st
#GivingTuesday is a global giving movement that has been built by individuals, families, organizations, businesses and communities in all 50 states and in countries around the world.
We need your help. Make an impact on the lives of myositis patients by giving as little as $5. Make it a recurring monthly donation to give all year long.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assitance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. Program is available to U.S. residents. See full details available in our help guide.
Plasma donations are down 40% since the lockdown, and without an increase in plasma donors there could be a shortage of IG (IVIG, SCIG) used to treat myositis and many other diseases. Learn more, find a plasma donation center, and invite your family and friends to donate and join the #ItsMyTurn campaign.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19 including an update to our plans at MSU to pause business as usual and focus solely on supporting our fellow patients and caregivers in this frightening time.
Upcoming Myositis Video Events
Necrotizing Myopathy Patient Video Support session
November 28 @ 3:00 pm - 4:30 pm EST|Recurring Event (See all)An event every month that begins at 3:00 pm on day Last of the month, repeating until December 26, 2020
Monthly Wednesday Evening Myositis Patient Video Support
December 2 @ 7:00 pm - 8:30 pm EST|Recurring Event (See all)An event every month that begins at 7:00 pm on day First of the month, repeating until December 2, 2020
AllStripes IBM Research Program Updates
December 8 @ 4:00 pm - 5:00 pm ESTExercise in place: Part 4 – How to stay motivated
December 10 @ 6:00 pm - 7:30 pm ESTIBM Patient Video Support session
December 18 @ 5:00 pm - 6:30 pm EST|Recurring Event (See all)An event every month that begins at 5:00 pm on day Last of the month, repeating until December 25, 2020
One event on December 18, 2020 at 5:00 pm
Monthly Saturday Afternoon Myositis Patient Video Support
December 19 @ 3:00 pm - 4:30 pm EST|Recurring Event (See all)An event every month that begins at 3:00 pm on day Third of the month, repeating until December 19, 2020
One event on September 20, 2020 at 3:00 pm
Necrotizing Myopathy Patient Video Support session
December 26 @ 3:00 pm - 4:30 pm EST|Recurring Event (See all)An event every month that begins at 3:00 pm on day Last of the month, repeating until December 26, 2020
#GivingTuesday is December 1.
See how you can get involved here.
MSU is once again participating in this global generosity movement where charities, families, businesses, students, and communities around the world will come together for one common purpose: to celebrate and encourage giving. Create your own MSU fundraiser or make a donation. $5 goes a long way.
Have you ever grieved your losses due to chronic illness? Have you grieved over how your life has changed as a caregiver?
Award-winning artist, Aoede, Lisa Sniderman, has been living with dermatomyositis for over 12 years. She recognized that she forgot to grieve her own illness and realized that through music, she could reach many others who may have also forgotten to grieve.
“The Grieving Project is a road map to our hearts, an invitation for you to grieve your loss, your change, your unexpected and unwanted transformation, and the inspiration and encouragement you need to awaken, express, rejuvenate, activate, connect, shine and truly thrive!”
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!
Myositis patients, here are some opportunities:
Myositis News and Updates
Dr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the care you deserve. He shares ways you can guide research efforts to help understand and cure myositis, and he answers questions submitted by patients and caregivers.
Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about the negative people in our lives, and look at how to combat fixed mindsets and turn them into growth mindsets.
Meet Dr. Bhai who is working together with MSU, collaborating on myositis patient-centered research, patient education, grants, and improving care by listening to patients and caregivers.
Share your experience and skills as a volunteer
We are an all-volunteer nonprofit organization so volunteers make it all happen. If you have the time and a true passion for helping others, we hope you will consider volunteering with MSU. There are many virtual opportunities right now for anyone interested. Join our Family!
