Myositis is a rare, autoimmune muscle disease without a cure
Learn more about Myositis and how MSU is helping patients and caregivers
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Myositis is a term meaning inflammation in the muscles. Our focus is on the Idiopathic Inflammatory Myopathies of which there are several types, and are all classified as rare diseases. Idiopathic means the cause is unknown.
Polymyositis causes muscle weakness around the middle of the body and affects both sides of the body. Dermatomyositis causes muscle weakness as well as skin rashes. Juvenile Dermatomyositis differs from the adult form because of the coexistence of vasculitis (inflammation of blood vessels). Inclusion body myositis mainly affects older individuals. As muscle weakness becomes severe, it is accompanied by muscle wasting and diminished deep-tendon reflexes. Unlike Polymyositis and Dermatomyositis, the muscle weakness is often not symmetric and may be prominent in the smaller muscles of the forearms and calves.
2017 Rare Disease Day Theme: Research brings hope to people living with a rare disease.
For the fourth year in a row, Myositis Support and Understanding Association, Inc. (MSU) is proud to join NORD as a participant in Rare Disease Day (RDD), a day to help make the voices of patients of rare diseases heard because we can feel our needs silenced by the rarity of our diseases. MSU works every day to give patients with myositis a voice.
We will be adding more resources to help you get involved soon!
Learn more about what we offer
Below are some important Myositis resources we have put together to help you educate yourself, become involved, and to locate needed resources.
We care about our members and site visitors and hope to offer you the most complete, easy-to-read information we can.