#Give4Myositis on #GivingTuesday
December 3rd is #GivingTuesday and we hope you will join us for #Give4Myositis. There are many ways to give to help support the patient-centered work we do including helping us to expand our life-saving patient financial assistance program and funding patient-led research initiatives.
Upcoming Video Events
Registration is required for all events except for support sessions.
sIBM Patient Video Support Session, November 2019
November 29 @ 5:00 pm - 6:30 pm ESTMyositis Patient Video Support Session, December 4, 2019
December 4 @ 7:00 pm - 8:30 pm ESTMyositis Patient Video Support Session, December 21st, 2019
December 21 @ 2:00 pm - 3:30 pm ESTsIBM Patient Video Support Session, December 2019
December 27 @ 5:00 pm - 6:30 pm EST
Get Support
Myositis patients and caregivers – Get the support you deserve by joining the Myositis Support Community, a partnership with our friends at Inspire.
It’s free, anonymous and available 24/7! Join fellow myositis patients and caregivers across the globe to get caring, educational support. You are not alone!
Inclusion body myositis
Although we serve all patients and caregiers with myositis, inclusion body myositis is different from the other inflammatory myopathies.
sIBM patients, here are just some opportunies:
Myositis News and Updates
In celebration of National Family Caregivers Month, TMA and MSU collaborated for a conversation about the challenges of caring for someone with myositis and resources available to help.
Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November 6, 2019, for a live webinar, “Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of Immune-Mediated Necrotizing Myopathy (IMNM)” Watch the recorded version.
November is National Family Caregivers Month!
It’s the month we focus even more on our myositis caregivers with support, encouragemnt, and resources to help.
We have put together tips and resources we believe will help you as a member of your loved one’s healthcare team.
Check out #MyositisLIFE
Learn more about our newest program with its own dedicated interactive community website, #MyositisLIFE. Designed just for myositis patient and caregivers to share their experiences with myositis, this program helps others to better understand our rare disease and will help to gain interest from the medical and research communities.
Popular Resources
Financial Assistance Program
We know firsthand myositis affects every aspect of a persons life.
We are here to help.
