Myositis Patient Financial Assistance
The MSU Myositis Patient Financial Assistance Program is expanding! The expansion includes an increase in the maximum patient award amount, from $1000 to $1500, and the program now officially includes mobility and assistive device assistance on the application. Through this crucial and much-needed program, MSU awards funds to patients (based on qualification and approval) for medical travel expenses to see myositis specialists for diagnosis and treatment, medical bills and certain types of mobility devices, and emergency household expenses.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos are coming mid-March 2020.
We have put together a list of trusted resources for COVID-19 including an update to our plans at MSU to pause business as usual and focus solely on supporting our fellow patients and caregivers in this frightening time.
Upcoming Myositis Video Events
Sewing Fabric Masks with MSU
April 10 @ 2:00 pm - 3:30 pm EDTMyositis Patient Video Support April 18, 2020 – 3 PM ET
April 18 @ 3:00 pm - 4:30 pm EDTsIBM Patient Video Support session, April 2020, 5 PM ET
April 24 @ 5:00 pm - 6:30 pm EDTIMNM Patient Video Support session, Apr. 25, 2020
April 25 @ 3:00 pm - 4:30 pm EDT
Phase 2 Clinical Trial for Polymyositis and Dermatomyositis patients
Learn more about PRESIDIO, a phase 2 clinical trial of KZR-616 for the treatment of polymyositis and dermatomyositis.
Watch the recorded version of our recent video session with Dr. Mary Katherine Farmer, MD, “An Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis,” to learn more about the science of KZR-616 and the phase 2 clinical trial details, including enrollment and eligibility criteria.
If you are interested in enrolling in this study, we provide contact information for Kezar Life Sciences along with the video and presentation slides.
Inclusion body myositis
Although we serve all patients and caregivers with myositis, inclusion body myositis is different from the other inflammatory myopathies.
sIBM patients, here are just some opportunies:
Myositis News and Updates
Watch to learn about different types of orthotics and braces that may be helpful for people with myositis. We discuss what’s out there, when orthotics are appropriate and when they are not, and the process for obtaining the proper device.
Learn more about using Zoom for MSU video support, activity and education sessions. Keeping software updated is important, as are other safety measure.
Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli with Johns Hopkins Myositis Center joined MSU for a live Q&A webinar focusing on COVID-19 and Myositis, addressing patient and caregiver submitted questions.
Caregivers make it all possible!
Our myositis caregivers give and give, and they need support, encouragement, and resources to help.
We have put together some tips, articles, videos, and resources we believe will help you as a member of your loved one’s healthcare team.
Check out #MyositisLIFE
Learn more about our newest program with its own dedicated interactive community website, #MyositisLIFE. Designed just for myositis patients and caregivers to share their experiences with myositis, this program helps others to better understand our rare disease and will help to gain interest from the medical and research communities.
Popular Resources
Financial Assistance Program
We know firsthand myositis affects every aspect of a persons life.
We are here to help.
