Do you need assistance?
The MSU Myositis Patient Financial Assistance Program is focusing on the pandemic with a patient award amount increase from $1000 to $1500. Through this crucial and much-needed program, MSU awards funds to patients (based on qualification and approval) for emergency household expenses, medical bills, and mobility and assistive devices. See full program details for information and to apply.
High Fives from the Heart: #MyositisLIFE in a Pandemic World. Share your Myositis Mask Meme and register to join us for various myositis webinars and discussions.
MSU celebrates 5-years as the heart of the myositis community.
MSU has partnered with The Global Healthy Living Foundation to promote a deeper understanding of the impact of COVID-19 on the myositis community. We invite all living with myositis in the U.S. and Canada to take part in this important research survey.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19 including an update to our plans at MSU to pause business as usual and focus solely on supporting our fellow patients and caregivers in this frightening time.
Upcoming Myositis Video Events
#ItsMyTurn: Becoming a Plasma Donor Hero
May 26 @ 7:00 pm - 8:00 pm EDTsIBM Patient Video Support session, May 2020, 5 PM ET
May 29 @ 5:00 pm - 6:30 pm EDTIMNM Patient Video Support session, May 30, 2020
May 30 @ 3:00 pm - 4:30 pm EDTMyositis Patient Video Support June 3, 2020 – 7 PM ET
June 3 @ 7:00 pm - 8:30 pm EDTExercise in place: Part 2
June 4 @ 6:00 pm - 7:15 pm EDT
Managing Myositis Patient Care During the COVID-19 Public Health Crisis
Dr. Rohit Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about immune-suppressing medications and IG, and much more.
Are you living with myositis?
There are many empowering opportunities for myositis patients right now. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research!
Myositis News and Updates
Paul shares five important elements at the Heart of Caregiving from his own personal experience and story as a Parkinson’s caregiver of 13 years.
Dr. Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about immune-suppressing medications and IG, and much more.
Occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan Jr., discuss and demonstrate safe strategies and exercises for myositis patients.
Caregivers make it all possible!
Our myositis caregivers give and give, and they need support, encouragement, and resources to help.
We have put together some tips, articles, videos, and resources we believe will help you as a member of your loved one’s healthcare team.
