Myositis Support and Understanding Association (MSU), founded by Jerry Williams, a patient with polymyositis,  was created after identifying a need for more patient-focused programs and services. MSU is an all-volunteer, patient-centered 501(c)(3) nonprofit organization supporting patients and caregivers affected by the Inflammatory Myopathies, which include dermatomyositis, polymyositis, necrotizing autoimmune myopathy, and inclusion body myositis, along with the juvenile forms of dermato- and polymyositis.

MSU is instrumental in helping to improve the lives of patients fighting this rare, complicated immune-mediated muscle, skin, and often multi-organ disease by being the very first patient-centered organization to offer live, online, video patient support and education sessions that simply make sense for those living with a muscle disease that involves limited mobility and with patients spread across the world.

MSU also provides a “Simply Put” education series, offers clinical trial matching, advocacy, several online support options, awareness building programs, and need-based financial assistance for patients.

Learn more about MSU. 

Promoting Awareness through Education! We have scheduled several of the myositis experts to lead live, online video sessions throughout May 2018. These sessions are open to the public, are free, and require registration.

Dr. Lisa Christopher-Stine will help us kick off Myositis Awareness Month with a session about polymyositis. See all events. More are being scheduled.