Myositis In Focus

May is Myositis Awareness Month

We have several live, online video education sessions scheduled with myositis experts during May, Myositis Awareness Month. Explore the upcoming online events and register today! More events to be added soon.

Each session requires registration. All events are free.

Myositis Support and Understanding

Empowering the Myositis Community

Myositis Support and Understanding Association (MSU), founded by Jerry Williams, a patient with polymyositis,  was created after identifying a need for more patient-focused programs and services. MSU is an all-volunteer, patient-centered 501(c)(3) nonprofit organization supporting patients and caregivers affected by the Inflammatory Myopathies, which include dermatomyositis, polymyositis, necrotizing autoimmune myopathy, and inclusion body myositis, along with the juvenile forms of dermato- and polymyositis.

MSU is instrumental in helping to improve the lives of patients fighting this rare, complicated immune-mediated muscle, skin, and often multi-organ disease by being the very first patient-centered organization to offer live, online, video patient support and education sessions that simply make sense for those living with a muscle disease that involves limited mobility and with patients spread across the world.

MSU also provides a “Simply Put” education series, offers clinical trial matching, advocacy, several online support options, awareness building programs, and need-based financial assistance for patients.

Learn more about MSU. 

Explore Myositis

Myositis Awareness Events

Live, Online Video Sessions

Polymyositis: the evolution of this diagnosis in light of recent research

Promoting Awareness through Education! We have scheduled several of the myositis experts to lead live, online video sessions throughout May 2018. These sessions are open to the public, are free, and require registration.

Dr. Lisa Christopher-Stine will help us kick off Myositis Awareness Month with a session about polymyositis. See all events. More are being scheduled.

See Myositis Events
Myositis in Focus, Awareness Theme 2018

Myositis Awareness Month, this year led by a patient committee, will focus on the realities of Myositis, both as a patients and caregivers. We hope to bring both the difficult journey to diagnosis and difficulty in living with such a rare, often invisible and complex disease, into focus. See full details on our Awareness page.

Myositis Awareness Month

May 2018

Check out the live, online video education sessions scheduled for Awareness Month, May 2018. Sessions are free, but require registration.

Register today to attend the sessions that interest you!

More May events to be added soon.

Explore and Register for Events

On Sunday, May 20, 2018, MSU will host “Myositis In Focus: A Day of Remembrance.” This will be a live YouTube streaming video event. Mark your calendar to join us beginning at 2PM EDT.

Submit the name of your loved one lost to myositis so we can feature them during the video event. You can email us the information, along with a photo, at Info@UnderstandingMyositis.org, or click the button below to submit using our form.

Full event details coming soon.

Submit your loved ones name, In Memory

Awareness Theme, Myositis In Focus

Myositis looks, presents, and responds differently for each patient, even with the same type.

Share what your myositis life looks like in photos, short videos, or as a story.

We will share these materials publicly during May 2018 to help others better understand our complex and rare disease.

Upload your materials

Purchase “Myositis In Focus” Awareness gear through our affiliate shop on Cafepress.

Order wristbands, brochures, information cards and pens to hand out to your friends, family members, physicians, and other healthcare providers to promote awareness.

Shop MSU MaterialsShop Myositis In Focus

We are still looking for residents of some states to request Myositis Awareness Month proclamations!

See our full Awareness page for details.

Myositis In Focus Awareness page

MSU and Myositis: Take Action

What is Myositis?

Our focus, Idiopathic Inflammatory Myopathies, or myositis, includes Dermatomyositis, Inclusion Body Myositis, Polymyositis, and Necrotizing Autoimmune Myopathy. Start learning more about myositis.

Educate Yourself

Myositis Programs and Services

Check out the Myositis patient-centered programs and services we currently offer including education, financial assistance, and support. We are developing new programs to help myositis patients and caregivers.

See Programs we offer

Support that makes sense

We bring support directly to you! It can be tough to get out with this often-debilitating disease. Join our FB groups, video support sessions, and onsite Myositis Network.

See support options

Myositis Life

We learn from the experiences of other myositis patients and caregivers. Read and watch member-submitted #MyositisLife content, and look closer at the realities of myositis.

Explore #MyositisLife

Clinical Trial Matching

Easier way to view and locate myositis clinical trials. We have partnered with Antidote! Easy-to-read clinical trial information and contacts. Patients are needed for important studies.

Clinical Trial Matching

Get Involved

We are in this together! So, why not get involved? We have many opportunities available for volunteers, support group administrators, and board members.

Get Involved Today!

Effortless Ways to Help

We have joined with many different resources to help you help us help you! See some of the ways you can help by simply doing the things you normally do!

Find ways you can help

Myositis Events

We offer free myositis and related events. Whether they are myositis-specific video support sessions or educational sessions and webinars, they are always free and easy to join.

Upcoming Myositis Events

Shop the MSU Store

Show your support and help promote myositis awareness with our branded gear. Products such as wristbands, educational materials, apparel, pens, tumblrs, and more.

Shop MSU Gear

Shop more MSU gear

We have expanded our shopping options. From shirts and tote bags, to mugs, drinkware, and other fun stuff, shop the MSU Cafepress store today. Awareness gear 2018 now available!

Shop MSU on Cafepress

Donate

Make a tax-deductible donation to help us move forward with our mission, vision, and goals. Empowering the Myositis Community.

Make a Donation

Get Support

We offer several online support options for patients, caregivers, family members and friends. Get the myositis support you deserve.

See Support Options

Explore Myositis

Learn more about the different types of Inflammatory Myopathies (myositis). Education is empowering. Read, watch videos, and put Myositis In Focus.

Explore Myositis

Myositis Support and Understanding // Patient-Centered Nonprofit

Empowering the Myositis Community

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© Myositis Support and Understanding Association, Inc. 2010-2018. All Rights Reserved. MSU is a patient-centered 501(c)(3) nonprofit organization.

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