WE’RE BACK!!!!
Come Celebrate the 5th Birthday of the Myositis Empower Walk on October 7, 2023, in Henderson, Nevada
In-person and Livestream!
New Logo!
New Location!
More Community Spirit than ever!
THESE SHOES ARE MADE FOR FUNDRAISING – CLICK HERE TO FIND OUT HOW TO GET INVOLVED IN THIS MYOSITIS COMMUNITY EVENT!
We are seeking volunteers with special skills and experiences. Whether you are interested in moderating support groups, volunteering on administrative tasks, project planning, or have an interest in patient-centered research, we have many opportunities available as we continue to grow.
Volunteering helps improve mental health. Submit your application today!
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assistance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. The program is available to U.S. residents. See full details available in our help guide.
At MSU, we are patients and caregivers, too. We started with support, and with our support programs, you will find a family. Join us for myositis patient and caregiver groups, Zoom support, and rooms on Clubhouse. You are NOT alone in this journey.
We believe in the patient-centered research approach – putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis. Learn more about the research we are involved in, the impact it can have, and how you can get involved.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19. Be sure to stay tuned to your local and state public health office for details in your area.
MSU's Pain Paper
The MSU pain article: “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies” has been published in the prestigious journal, Rheumatology and MSU is proud to make the paper available to everyone at no cost. Share with your doctors. Myositis Pain is Real!
Upcoming Myositis Events
#MyositisLIFE: Weekly Sunday Clubhouse Support
September 24 @ 7:00 pm - 9:00 pm EDT#MyositisLIFE: Young Adults with Myositis Zoom Group
September 26 @ 7:00 pm - 9:00 pm ESTMyositis Support Gets Moving on Clubhouse
September 28 @ 1:00 pm - 2:30 pm EDT#MyositisLIFE: IBM Patient Video Support
September 29 @ 5:00 pm - 7:00 pm EDT#MyositisLIFE: Necrotizing Myopathy Patient Video Support
September 30 @ 7:00 pm - 9:00 pm EDT#MyositisLIFE: Weekly Sunday Clubhouse Support
October 1 @ 7:00 pm - 9:00 pm EDT#MyositisLIFE: Men with Myositis Clubhouse Support Room
October 2 @ 7:00 pm - 9:00 pm EST#MyositisLIFE: Women with Myositis Zoom Support
October 2 @ 7:00 pm - 9:00 pm EST
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!