Founded by myositis patients for myositis patients and care partners, MSU is a leading support provider and network for myositis patients, their caregivers, family members, and friends.

We are empowering the myositis community through education, patient advocacy, awareness, clinical trial matching, access to research, and need-based financial assistance for patients.

We are helping lead the effort to find effective, affordable, and safe therapies for all forms of the idiopathic inflammatory myopathies, myositis. And, while research is extremely important, at MSU we know managing day-to-day life with myositis is difficult and is the reason we provide patient-centered programs.

Collaborating with like-minded organizations, and continuing to build relationships with researchers, other nonprofit and patient advocacy organizations, and the pharmaceutical industry, in a transparent and straightforward approach will continue to be a top priority. Together we can do great things for the myositis community.

We wanted to share a little bit of news. We aren’t able to give many specifics yet, because it’s still in the conceptual stage, but thanks to our pilot survey with close to 500 responses, MSU is teaming up with several known myositis researchers to conduct a more formal study about myositis pain and the effects of the 2016 CDC regulations on opioids. We will let you know more as it becomes available, but for now, we want to thank YOU!

If you are living with one of the idiopathic inflammatory myopathies (myositis) or you are a care partner, family member, or friend of someone who is, we invite you to join the Myositis Support Community to connect, collaborate, share stories and discuss questions and concerns, as well as to feel empowered.

Living with a rare muscle disease is hard enough. Why not get support?

Read the full announcement and learn more about MSU programs.