Myositis Events
Video Support Sessions
IBM Patient & Family Video Support Session, May 2019
May 31 @ 4:00 pm - 6:00 pm EDTIBM Patient Video Support Session, June 2019
June 28 @ 4:00 pm - 6:00 pm EDTIBM Patient Video Support Session, July 2019
July 26 @ 4:00 pm - 6:00 pm EDT
May is Myositis Awareness Month
Skin findings seen with myositis autoantibodies and treatment of skin in dermatomyositis
May 28 @ 4:00 pm - 5:00 pm EDT
Featured Myositis News
In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver experience website, www.MyositisLife.org
May is Myositis Awareness Month and we want to introduce our brand new website where your experiences get the attention they deserve and can truly make a difference.
Education and Support are key
We have hosted several myositis experts to lead live, online video sessions throughout 2018. All sessions were held online with live participation. These sessions were recorded and we hope you will take advantage of the educational opportunities these provide for you and your family members.
Find the videos on our YouTube page and share with your loved ones.
Announcing a new Myositis Support Community
If you are living with one of the idiopathic inflammatory myopathies (myositis) or you are a care partner, family member, or friend of someone who is, we invite you to join the Myositis Support Community to connect, collaborate, share stories and discuss questions and concerns, as well as to feel empowered.
Living with a rare muscle disease is hard enough. Why not get support?
Read the full announcement and learn more about MSU programs.
Register for free membership
Join us as an official member and you will receive email updates when new awareness materials are available and have your very own MSU Myositis Network account and profile, and much more. We are working to improve our onsite community, along with many other tech updates and offerings.
MSU and Myositis: Take Action
Myositis Support and Understanding
2019 Sponsors
