We announced earlier this year our intentions to create an app for the myositis community. Phase one of our goal has been realized!
It is with great excitement to announce the release of the”NuMe” App for myositis, a pilot study App in partnership with Portable Genomics. Currently available for iPhone users, the App is free and enables myositis patients and caregivers to better collect, manage and share important health data with treatment teams, researchers and the pharmaceutical industry.
The data you track and collect, for your own use, is secured on your smartphone and personal cloud. If you consent to sharing data for research purposes your personal information is scrubbed to protect your privacy; you have the ability to opt in or out of sharing at any time.
Read more about and download the App, and see more about our exciting partnership with Portable Genomics.
Promoting Awareness through Education
We have scheduled several of the myositis experts to lead live, online video sessions throughout May 2018. These sessions are open to the public, are free, and require registration.
Explore all events and register for those that interest you.
Register to attend “New insights on sIBM pathogenesis” by Dr. C. Weihl, on May 23rd at 12 PM EDT.
Subscribe to our YouTube Channel
Subscribe to our YouTube channel to be notified when we “go live” and to watch educational and informative videos related to the inflammatory myopathies.
All of our live online education sessions are recorded and are added to our YouTube channel. So, subscribe today!
Myositis Support and Understanding
Empowering the Myositis Community
MSU is instrumental in helping to improve the lives of patients fighting this rare, complicated immune-mediated muscle, skin, and often multi-organ disease by being the very first patient-centered organization to offer live, online, video patient support and education sessions that simply make sense for those living with a muscle disease that involves limited mobility and with patients spread across the world.
MSU also provides a “Simply Put” education series, offers clinical trial matching, advocacy, several online support options, awareness building programs, and need-based financial assistance for patients.
Myositis in Focus
“Myositis In Focus” handmade aluminum bracelets by Jammin Hammer Jewelry. A generous 25% of sales of this bracelet will come to MSU. See full bracelet details on the order page! International shipping is now available.
Register for free membership
Join us as an official member and you will receive email updates when new awareness materials are available and have your very own MSU Myositis Network account and profile, and much more. We are working to improve our onsite community, along with many other tech updates and offerings.
MSU and Myositis: Take Action
Make a tax-deductible donation to help us move forward with our mission, vision, and goals. Empowering the Myositis Community.
We offer several online support options for patients, caregivers, family members and friends. Get the myositis support you deserve.