Myositis Support and Understanding
We at MSU are dedicated to improving the lives of Myositis patients. Myositis is a rare, chronic, often disabling, autoimmune muscle disease without a cure. Learn more about Myositis and how MSU is helping patients and caregivers, and see how you can become more involved.
Once again this year, MSU will be partnering with #GivingTuesday, a global day of giving.
Save the date, November 28, 2017 to help make a huge impact.
Donations received are used to fund our important, patient-centered support and assistance programs to help Myositis patients live a better life. Donations in the U.S. are tax-deductible.
Ways you can get involved will be forthcoming. However, through our public education and support of our members, plus our financial assistance program, MSU helps patients deal with the rare “spots of the zebra” called Myositis. Throughout 2017 we hope that you will take action by making a donation, creating your own MSU fundraiser through crowdfunding campaigns, share our graphics, website pages, and other resources we provide, and talking to your health care team about who MSU is and how they can help.
Myositis resources and ways to get involved
See what our myositis members, donors, and supporters are saying about MSU
I want to say a huge THANK YOU for the help through the MSU Myositis Financial Assistance program. This disease is horrible and it is a daily struggle to get through because of the pain. We know that stress triggers flares and I have been in a terrible flare due to the stress of my house possible going into foreclosure, and the medical bills piling up. Due to the illness, my hours were cut at work and I was struggling. I am doing my best to work while I still can. No bank would help, so every day I worried what am I going to do? Then through the Facebook myositis support group I came across the financial assistance program info, applied, and was approved! What a huge relief! I am already coming out of this nasty flare because now I will not lose my home! You have no idea how much this means to me to have a program like this to help us while struggling with the disease. Thank you from the bottom of my heart! — by a Financial Assistance Recipient
I am so filled with joy and gratefulness! Not just for the help but how the help has been given with so much support, timeliness, and understanding! I can’t express how much this will help me to become stable in my home! God Bless you all!
As a myositis researcher, I support MSU’s mission and their excellent work !!!
I have only recently been diagnosed with Myositis. This organization has helped me more than I could have imagined. The information on the website is fantastic, the stories from people, etc, Before I found this group I was looking at my life as pretty much over, now I see hope and have learned many ways to help myself. GREAT ORGANIZATION
I just wanted to tell you how important your work has been for me. I have been struggling with DM. Your live chat with Dr Chung from Johns Hopkins has been a major factor in my muscle recovery and everyday well-being. Thank you!