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COVID-19 & Myositis: Patient Survey

MSU has partnered with The Global Healthy Living Foundation to promote a deeper understanding of the impact of COVID-19 on the myositis community. We invite all living with myositis in the U.S. and Canada to take part in this important research survey.

Patient Financial Assistance

Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assitance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. Program is available to U.S. residents. See full details available in our help guide.

Donate Plasma

Plasma donations are down 25% and without an increase in plasma donors there could be a shortage of IG (IVIG, SCIG) used to treat myositis and many other diseases. Learn more, find a plasma donation center, and invite your family and friends to donate and join the #ItsMyTurn campaign.

Myositis Support
Myositis Programs
Explore Myositis
Myositis Video Library

Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!

COVID-19 and Myositis Resources

We have put together a list of trusted resources for COVID-19 including an update to our plans at MSU to pause business as usual and focus solely on supporting our fellow patients and caregivers in this frightening time.

Upcoming Myositis Video Events

Managing Myositis Patient Care During the COVID-19 Public Health Crisis

Dr. Rohit Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about immune-suppressing medications and IG, and much more.

Visit video page for more

Are you living with myositis?

Patient Opportunities

There are many empowering opportunities for myositis patients right now. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research!

What is myositis?Myositis Resources

Myositis News and Updates

Coronavirus (COVID-19) and Myositis

Trusted resources and updates about the coronavirus (COVID-19) pandemic and myositis, including newly updated information and resources to help you stay safe. We will continue to provide updates as they are available.

Exercise in Place: Part 2

Watch for information to help guide your local physical and occupational therapy teams such as what should be included in a PT/OT evaluation, goals to expect, and various exercises for myositis patients and how to modify them.

MSU supports our myositis community members who are Black and are other People of Color (POC)

Until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able to achieve our vision to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of myositis.”

Caregivers make it all possible!

Our myositis caregivers give and give, and they need support, encouragement, and resources to help.

We have put together some tips, articles, videos, and resources we believe will help you as a member of your loved one’s healthcare team.

2020 MSU Sponsors

We thank the generous sponsors of MSU and #MyositisLIFE. Learn more about our sponsors below.

Like and Follow Myositis Support and Understanding (MSU)
on our social networks to engage with the myositis community.

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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