Get the support you deserve
At MSU, we started with support and we continue to provide added platforms and groups
When you join a group by MSU – an all-volunteer, patient-led nonprofit – you join a family. Our groups are led with love and understanding.
Come as you are and join our judgment-free, safe space infused with positivity.
We have various online support groups and Zoom and Clubhouse sessions.
Be sure to register for your free membership to receive our emails so you don’t miss anything!
Our Events Calendar includes support sessions, activity sessions, and webinars.
Search our site filled with myositis news and updates, education, events, research, and more.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assistance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. The program is available to U.S. residents. See full details available in our help guide.
At MSU, we are patients and caregivers, too. We started with support, and with our support programs, you will find a family. Join us for myositis patient and caregiver groups, Zoom support, and rooms on Clubhouse. You are NOT alone in this journey.
We believe in the patient-centered research approach – putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis. Learn more about the research we are involved in, the impact it can have, and how you can get involved.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19. Be sure to stay tuned to your local and state public health office for details in your area.
MSU's Pain Paper
The MSU pain article: “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies” has been published in the prestigious journal, Rheumatology and MSU is proud to make the paper available to everyone at no cost. Share with your doctors. Myositis Pain is Real!
Myositis News and Updates
Alex Chesney with Pride Mobility Products/Quantum Rehab joins us to review mobility algorithm considerations for proper mobility assistive equipment selection that allows optimal functional independence, a detailed overview of devices, and answers to your questions.
2022 CDC guidelines look to rectify the mistakes made in the 2016 Guidelines that led MSU to a survey on myositis pain and opioid use now published in Rheumatology journal, proving Myositis Pain is real. Download the paper and share it with your doctor.
Learn about the Free2Go Rollator, a product that combines the benefits of a raised toilet seat, toilet safety frame, and rolling walker (rollator). Find out how and why the Free2Go was invented and how the Free2Go Rollator can help those with Myositis safely leave home without worrying about how they will toilet.
Upcoming Myositis Events
#MyositisLIFE: Weekly Sunday Clubhouse Support
December 4 @ 7:00 pm - 9:00 pm EDT#MyositisLIFE: Men with Myositis Clubhouse Support Room
December 5 @ 7:00 pm - 9:00 pm EST#MyositisLIFE: Women with Myositis Zoom Support
December 5 @ 7:00 pm - 9:00 pm ESTSpeech/Language Pathology Role in Myositis – Voice, Swallowing, and Upper Airway Concerns and Perspectives from a Patient
December 6 @ 6:00 pm - 7:00 pm EST#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
December 7 @ 7:00 pm - 9:00 pm EDTMyositis Support Gets Moving on Clubhouse
December 8 @ 1:00 pm - 2:30 pm EDT#MyositisLIFE: Weekly Sunday Clubhouse Support
December 11 @ 7:00 pm - 9:00 pm EST
Myositis Support & Understanding is seeking a volunteer Bookkeeper!
Do you believe in our mission, have time, and want to give by using your skills and experience in finance? We are looking for a self-starter who works well individually and in a team environment. All volunteer positions are virtual.
Some of the duties of the MSU Bookkeeper include:
- Maintaining the general ledger
- Reconciling bank and other cash accounts
- Preparing monthly financial statements and analyses
See the full position description here and click below to apply online.
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!
Myositis patients, here are some opportunities:
Like and Follow Myositis Support and Understanding (MSU)
on our social networks to engage with the myositis community.
