Get the support you deserve
At MSU, we started with support and we continue to provide added platforms and groups
When you join a group by MSU – an all-volunteer, patient-led nonprofit – you join a family. Our groups are led with love and understanding.
Come as you are and join our judgment-free, safe space infused with positivity.
We have various online support groups and Zoom and Clubhouse sessions.
Be sure to register for your free membership to receive our emails so you don’t miss anything!
Our Events Calendar includes support sessions, activity sessions, and webinars.
Search our site filled with myositis news and updates, education, events, research, and more.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assistance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. The program is available to U.S. residents. See full details available in our help guide.
At MSU, we are patients and caregivers, too. We started with support, and with our support programs, you will find a family. Join us for myositis patient and caregiver groups, Zoom support, and rooms on Clubhouse. You are NOT alone in this journey.
We believe in the patient-centered research approach – putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis. Learn more about the research we are involved in, the impact it can have, and how you can get involved.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19. Be sure to stay tuned to your local and state public health office for details in your area.
MSU's Pain Paper
The MSU pain article: “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies” has been published in the prestigious journal, Rheumatology and MSU is proud to make the paper available to everyone at no cost. Share with your doctors. Myositis Pain is Real!
Myositis News and Updates
Watch the recording and get additional resources. Michael Martin, Vice-President Marketing of IndeeLift joins MSU to discuss a solution for those who are prone to falling like people with myositis, and especially those with inclusion body myositis.
The All-Purpose chair is designed to do the lifting anywhere in the home. The All-Purpose Chair can serve at the dinner table, at your desk, or in the living areas. Rejoin more of the activities of daily living with the versatile All Purpose Chair.
Alex Chesney with Pride Mobility Products/Quantum Rehab joins us to review mobility algorithm considerations for proper mobility assistive equipment selection that allows optimal functional independence, a detailed overview of devices, and answers to your questions.
Upcoming Myositis Events
#MyositisLIFE: Young Adults with Myositis Zoom Group
January 31 @ 7:00 pm - 9:00 pm EST#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
February 1 @ 7:00 pm - 9:00 pm EDTMyositis Support Gets Moving on Clubhouse
February 2 @ 1:00 pm - 2:30 pm EDT#MyositisLIFE: Weekly Sunday Clubhouse Support
February 5 @ 7:00 pm - 9:00 pm EDT#MyositisLIFE: Men with Myositis Clubhouse Support Room
February 6 @ 7:00 pm - 9:00 pm EST#MyositisLIFE: Women with Myositis Zoom Support
February 6 @ 7:00 pm - 9:00 pm ESTMindfulness Discussions with MSU
February 8 @ 1:00 pm - 2:00 pm EST
Myositis Support & Understanding is seeking a volunteer Bookkeeper!
Do you believe in our mission, have time, and want to give by using your skills and experience in finance? We are looking for a self-starter who works well individually and in a team environment. All volunteer positions are virtual.
Some of the duties of the MSU Bookkeeper include:
- Maintaining the general ledger
- Reconciling bank and other cash accounts
- Preparing monthly financial statements and analyses
See the full position description here and click below to apply online.
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!
