Honoring Myositis Care Partners in December
MSU stands as a beacon of hope for patients and care partners who deal daily with this disease’s financial and emotional burdens. Don’t underestimate the power of small gifts. Imagine the profound impact we could make together if we all donated just $5 or $10!
Give from the Heart!
Seeking Passionate Volunteers!
We are seeking volunteers with special skills and experiences. Whether you are interested in moderating support groups, volunteering on administrative tasks, project planning, or have an interest in patient-centered research, we have many opportunities available as we continue to grow.
Volunteering helps improve mental health. Submit your application today!
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assistance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. The program is available to U.S. residents. See full details available in our help guide.
At MSU, we are patients and caregivers, too. We started with support, and with our support programs, you will find a family. Join us for myositis patient and caregiver groups, Zoom support, and rooms on Clubhouse. You are NOT alone in this journey.
We believe in the patient-centered research approach – putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis. Learn more about the research we are involved in, the impact it can have, and how you can get involved.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19. Be sure to stay tuned to your local and state public health office for details in your area.
MSU's Pain Paper
The MSU pain article: “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies” has been published in the prestigious journal, Rheumatology and MSU is proud to make the paper available to everyone at no cost. Share with your doctors. Myositis Pain is Real!
Myositis News and Updates
Watch the MINT Clinical Trial for Myositis Patients with Interstitial Lung Disease webinar with Dr. Rohit Aggarwal. This clinical trial is unique because you won’t need to visit a study center. You can participate in the study from the comfort of your own home. No need to worry about traveling long distances or spending time away from your surroundings. The goal of this study is to gain a better understanding of how anti-fibrotic drugs can help treat myositis associated with ILD. The study will focus on the drug Nintedanib (brand name Ofev®), an oral anti-fibrotic medication approved by the Food and Drug Administration (FDA) for the treatment of various types of ILD.
A webinar with Dr. Salman Bhai, Neurologist at UTSW and MSU’s medical advisor, discussing the aches and pains we deal with living with Myositis and ways we can help manage the pain. And, he answers your questions.
Priovant Therapeutics joins MSU to discuss The Valor Study for Dermatomyositis, a phase 3 clinical trial for Adult Dermatomyositis. Learn more about this trial and consider if this is a clinical trial you might consider.
Upcoming Myositis Events
#MyositisLIFE: Weekly Sunday Clubhouse Support
December 10 @ 7:00 pm - 9:00 pm EDTMindfulness Discussions with MSU
December 13 @ 1:00 pm - 2:00 pm EDTMyositis Support Gets Moving on Clubhouse
December 14 @ 1:00 pm - 2:30 pm EDT#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
December 16 @ 3:00 pm - 5:00 pm EDT#MyositisLIFE: Weekly Sunday Clubhouse Support
December 17 @ 7:00 pm - 9:00 pm EDTMyositis Reads – A book club for those with myositis
December 18 @ 3:00 pm - 4:30 pm ESTMyositis Support Gets Moving on Clubhouse
December 21 @ 1:00 pm - 2:30 pm EDT#MyositisLIFE: Weekly Sunday Clubhouse Support
December 24 @ 7:00 pm - 9:00 pm EDT
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!
