Myositis Empower Walk Fundraising!

If you haven’t yet, now is the time to create your fundraiser for the 4th Annual Myositis Empower Walk! Get a group together and create a Team or host an individual fundraiser. Get started below, and we appreciate your support! Let’s Walk n’ Roll to our biggest fundraising success!

MSU is an all-volunteer, patient-led nonprofit organization made up of Myositis patients, care partners, and supporters who are passionate about helping others. MSU is also an all-virtual organization so more of our donor’s money goes directly to helping those who Myositis impacts.

We do this by providing “from the Heart” support on various platforms, providing “Simply Put” education people can understand, increasing outreach and community-building, patient-centered research initiatives, partnerships with other organizations, industry, and academia, and our signature program, the Myositis patient financial assistance program. You are not alone in this Myositis journey. 

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Empower Walk website
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4th Annual Myositis Empower Walk

4th Annual Myositis Empower Walk!

Saturday, October 8, 2022

Create your individual or team fundraiser! Personalize your own campaign to support the Myositis Empower Walk and MSU. We can’t do it without your help.

Learn more and join us for the 4th Annual Myositis Empower Walk on Saturday, October 8th in person in Las Vegas and via a professional interactive live stream on Facebook and YouTube! No matter where you are in the world, you can join us for a day of positivity and fun, community-building and fundraising.

Stay tuned for exciting announcements and fun community-building events leading up to the walk. We hope you will join us.

Create your fundraiserVisit the Myositis Empower Walk website
Patient Financial Assistance

Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assistance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. The program is available to U.S. residents. See full details available in our help guide.

Get Support

At MSU, we are patients and caregivers, too. We started with support, and with our support programs, you will find a family. Join us for myositis patient and caregiver groups, Zoom support, and rooms on Clubhouse. You are NOT alone in this journey.

Patient-Centered Research

We believe in the patient-centered research approach – putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis. Learn more about the research we are involved in, the impact it can have, and how you can get involved.

Myositis Video Library

Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!

COVID-19 and Myositis Resources

We have put together a list of trusted resources for COVID-19. Be sure to stay tuned to your local and state public health office for details in your area.

Myositis News and Updates

Stephen Moore joins MSU’s Patient-Centered Research Team

Stephen Moore, a Neuroscientist living with Dermatomyositis joined MSU’s Patient-Centered Research Team. His passion lies in advancing research efforts in neuromuscular diseases and autoimmunity, as well as working with non-profit organizations to provide advocacy, education, and fundraising that supports patients and care partners living with the uncertainties of these diseases.

The VALOR Study – New Clinical Research Opportunity for Dermatomyositis

We hosted Priovant Therapeutics to discuss The Valor Study, a phase 3 clinical trial for adult dermatomyositis. Learn all about the study and meet your point of contact. The slides are also available to download.

Statement on Medication Access for the Myositis Community

The Myositis Association (TMA) and Myositis Support and Understanding (MSU) have been made aware of circumstances where patients across the United States have experienced difficulty in accessing commonly prescribed medications used in the treatment of autoimmune diseases since the overturn of Roe v. Wade on June 24, 2022. If you are experiencing this, please reach out to us.

Upcoming Myositis Events

Allstripes Dermatomyositis Program, MSU partnership

Myositis Support & Understanding and AllStripes are partnering to create a database that will enable new Dermatomyositis research projects!

We’re looking for patients/families willing to contribute their de-identified medical records to make this effort as strong as possible. See more details and enroll if you are interested in being a part of this medical research, from home.

AllStripes DM Program

Are you living with myositis?

Patient Opportunities

There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!

2022 MSU Sponsors

Like and Follow Myositis Support and Understanding (MSU)
on our social networks to engage with the myositis community.

© 2022 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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