Your #Give4Myositis support!

We came together to give and we thank you for your support. We couldn’t do what we do without your help and generosity, and you believing in the work we do. Giving is open until the end of the year! Donate to help support the patient-centered work we do including helping us to expand our life-saving patient financial assistance program and funding patient-led research initiatives. And, find other ways to give!

Upcoming Video Events

Registration is required for all events except for support sessions.

Myositis Support Community in partnership with Inspire

Get Support

Myositis patients and caregivers – Get the support you deserve by joining the Myositis Support Community, a partnership with our friends at Inspire.

It’s free, anonymous and available 24/7! Join fellow myositis patients and caregivers across the globe to get caring, educational support. You are not alone!

Inclusion body myositis

Patient Opportunies

Although we serve all patients and caregiers with myositis, inclusion body myositis is different from the other inflammatory myopathies.

What is IBM?

Myositis News and Updates

Caring for Caregivers webinar

In celebration of National Family Caregivers Month, TMA and MSU collaborated for a conversation about the challenges of caring for someone with myositis and resources available to help.

Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM Webinar

Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November 6, 2019, for a live webinar, “Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of Immune-Mediated Necrotizing Myopathy (IMNM)” Watch the recorded version.

Caregivers make it all possible!

Our myositis caregivers give and give, and they need support, encouragement, and resources to help.

We have put together some tips, articles, videos, and resources we believe will help you as a member of your loved one’s healthcare team.

#MyositisLIFE website, patient and caregiver experiences

Check out #MyositisLIFE

Learn more about our newest program with its own dedicated interactive community website, #MyositisLIFE. Designed just for myositis patients and caregivers to share their experiences with myositis, this program helps others to better understand our rare disease and will help to gain interest from the medical and research communities.

Share your experiencesRead latest articles

Financial Assistance Program

We know firsthand myositis affects every aspect of a persons life.
We are here to help.

2019 MSU Sponsors

We thank the generous sponsors of MSU and #MyositisLIFE. Learn more about our sponsors below.

Followon these networks

Like and Follow MSU on social networking to engage with the myositis community.

© 2019 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy

MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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