Myositis is a rare, autoimmune muscle disease without a cure

Learn more about Myositis and how MSU is helping patients and caregivers

Types of Myositis

What is Myositis?

Myositis is a term meaning inflammation in the muscles. Our focus is the Idiopathic Inflammatory Myopathies of which there are several types, and all are classified as rare diseases. Idiopathic means the cause is unknown.

Polymyositis causes muscle weakness around the middle of the body and affects both sides of the body. Dermatomyositis causes muscle weakness as well as skin rashes. Juvenile dermatomyositis differs from the adult form because of the coexistence of vasculitis (inflammation of blood vessels). Inclusion body myositis mainly affects older individuals. As muscle weakness becomes severe, it is accompanied by muscle wasting and diminished deep-tendon reflexes. Unlike polymyositis and dermatomyositis, the muscle weakness is often not symmetric, and may be prominent in the smaller muscles of the forearms and calves.

Learn more about Myositis

Looking for Support for Myositis?

If you have been diagnosed with a form of Myositis, or are a caregiver, family member or friend of someone who has, we have support options for you! We offer several methods of support that make sense for those with a muscle disease.

Get the support you deserve

Invisible Illness

Myositis, for so many, can be classified as an invisible illness where our outward appearance may cause others to think we are healthy. Learn more about this and how to respond.

Frustrations of having an invisible illness

Sun Protection

Learn how to protect yourself

Our goal isn’t to scare you from going out into the sun, rather we want to share some practical tips you should be aware of and ways that you can take charge to protect yourself from the harmful UVA and UVB rays from the sun.

MSU is committed to improving the lives of Myositis patients and care partners

Founded by Myositis patients, for Myositis patients

YOU ARE NOT ALONE IN THIS JOURNEY

Myositis and related Information

Our site is large and contains a lot of information about, and related to, Myositis. Below are some important resources we suggest you check out to educate yourself, become involved and to locate resources. We care about our members and site visitors and hope to offer you the most complete, easy-to-read information we can.

Video Chat Sessions

Video Chats are fun, informative, and free! You can meet others living with Myositis. Be a part of the conversation. Register for all sessions that interest you.

Register for Video Chats

Our Programs and Services

Check out the programs and services we offer our Members such as financial assistance, letter writing review, advocacy, and online support programs.

View Programs and Services

Educate yourself

Learn about the different types and subtypes of Myositis, as well as how to diagnose and treat them. Learn about complications and overlap syndromes. This is for “Simply Put” series.

Learn about Myositis

Ways to help

Aside from donating and volunteering, there are many other ways you can help support MSU’s mission and further our goals helping us to continually move forward.

Find ways you can help

Clinical Trials

In association with CenterWatch.com, find clinical trials for Myositis by location, disease type, and keywords.  See current clinical trials available for Polymyositis, Dermatomyositis, and Inclusion Body Myositis

Find Clinical Trials

Find a Physical Therapist

Locate a physical therapist in or around your area. When finding a PT, you may want to ask if they have experience working with muscle diseases and disorders. This link will take you to another website.

Find a Physical Therapist

OFFERING MYOSITIS AND RELATED RESOURCES FOR YOU

Myositis Facebook Groups

We have Myositis support groups for patients, caregivers, family members, and friends. All Facebook groups are closed for your privacy.

Find Facebook Support Groups

Myositis Resources

Myositis resources to help you find support, help, and assistance. We have compiled a ton of helpful information just for you.

Myositis Resources

Caregiver Resources

Caregivers, you deserve all of the support you can find. We have compiled a listing of resources to help you.

Caregiver resources

TAKE ACTION NOW

Subscribe to our newsletter updates

Join MSU today by subscribing to our email newsletter! We do not spam, nor do we share any of your information. Don’t miss out on important organization updates, information, education, special offers, clinical trials, and so much more. Keep informed and take action!

Sign up to Volunteer

We are a completely volunteer-managed organization so that each and every donation makes the maximum impact. Our volunteers work from their homes to support MSU. Sign up to volunteer and be a part of a growing, patient-centered organization that is passionate and caring.

© Myositis Support and Understanding Association, Inc. 2010-2016. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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