Giving Tuesday is Dec. 1st

#GivingTuesday is a global giving movement that has been built by individuals, families, organizations, businesses and communities in all 50 states and in countries around the world.

We need your help. Make an impact on the lives of myositis patients by giving as little as $5. Make it a recurring monthly donation to give all year long.

Patient Financial Assistance

Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assitance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. Program is available to U.S. residents. See full details available in our help guide.

Donate Plasma

Plasma donations are down 40% since the lockdown, and without an increase in plasma donors there could be a shortage of IG (IVIG, SCIG) used to treat myositis and many other diseases. Learn more, find a plasma donation center, and invite your family and friends to donate and join the #ItsMyTurn campaign.

Myositis Support
Myositis Programs
Explore Myositis
Myositis Video Library

Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!

COVID-19 and Myositis Resources

We have put together a list of trusted resources for COVID-19 including an update to our plans at MSU to pause business as usual and focus solely on supporting our fellow patients and caregivers in this frightening time.

Free2Go Rollator, myositis offer use code MYO2020
Free2Go Rollator, Myositis special offer use code MYO2020 at checkout.

Upcoming Myositis Video Events

Join MSU for #Give4Myositis Year-End Campaign

#GivingTuesday is December 1.

See how you can get involved here.

MSU is once again participating in this global generosity movement where charities, families, businesses, students, and communities around the world will come together for one common purpose: to celebrate and encourage giving. Create your own MSU fundraiser or make a donation. $5 goes a long way.

The Grieving Project by LIsa Sniderman, Aoede

Have you ever grieved your losses due to chronic illness? Have you grieved over how your life has changed as a caregiver?

Award-winning artist, Aoede, Lisa Sniderman, has been living with dermatomyositis for over 12 years. She recognized that she forgot to grieve her own illness and realized that through music, she could reach many others who may have also forgotten to grieve.

“The Grieving Project is a road map to our hearts, an invitation for you to grieve your loss, your change, your unexpected and unwanted transformation, and the inspiration and encouragement you need to awaken, express, rejuvenate, activate, connect, shine and truly thrive!”

More about The Grieving Project

Are you living with myositis?

Patient Opportunities

There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!

What is myositis?Take Action

Myositis News and Updates

After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship

Dr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the care you deserve. He shares ways you can guide research efforts to help understand and cure myositis, and he answers questions submitted by patients and caregivers.

Flip Negativity

Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about the negative people in our lives, and look at how to combat fixed mindsets and turn them into growth mindsets.

Myositis Patients and Families Come First: Introducing Dr. Salman Bhai

Meet Dr. Bhai who is working together with MSU, collaborating on myositis patient-centered research, patient education, grants, and improving care by listening to patients and caregivers.

Share your experience and skills as a volunteer

We are an all-volunteer nonprofit organization so volunteers make it all happen. If you have the time and a true passion for helping others, we hope you will consider volunteering with MSU. There are many virtual opportunities right now for anyone interested. Join our Family!

2020 MSU Sponsors

We thank the generous sponsors of MSU and #MyositisLIFE. Learn more about our sponsors below.

Like and Follow Myositis Support and Understanding (MSU)
on our social networks to engage with the myositis community.

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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