Myositis Support and Understanding
At MSU we are dedicated to improving the lives of Myositis patients. Myositis is a rare, chronic, often-disabling, immune-mediated muscle disease without a cure and with limited treatment options. Learn more about Myositis and how MSU is helping give patients and caregivers a future.
Myositis Support and Understanding (MSU) is a completely volunteer-managed, patient-centered, 501(c)(3) nonprofit. Our focus is the Idiopathic Inflammatory Myopathies including dermatomyositis, inclusion body myositis, polymyositis, and necrotizing autoimmune myopathy.
This is an effort to create a better physician directory of doctors with myositis experience including rheumatologists, neurologists, neuromuscular specialists, dermatologists, rehabilitation specialists, pulmonologists, and others. This will be very helpful for our members and for new patients.
Your input will make a difference! It only take a minute or two.
Rare Disease Day is held the last day of February each year, this year the 28th, and is organized by Eurordis.
We celebrate Rare Disease Day at MSU since Myositis is a rare disease. The theme this year, a continuation of 2017, is Research.
Stay tuned for upcoming online Rare Disease Week and Day events!
As part of our lofty goals, and based on the needs of those living with myositis, we are happy to announce that planning is in place to develop a full-featured smartphone application for iOS and Android!
This ambitious, yet expensive, project will include many features helpful for patients, caregivers, physicians, and other healthcare providers. We plan to announce the full objectives for this app in mid-to-late 2018.