COVID-19 & Myositis: Patient Survey
MSU has partnered with The Global Healthy Living Foundation to promote a deeper understanding of the impact of COVID-19 on the myositis community. We invite all living with myositis in the U.S. and Canada to take part in this important research survey.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assitance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. Program is available to U.S. residents. See full details available in our help guide.
Plasma donations are down 25% and without an increase in plasma donors there could be a shortage of IG (IVIG, SCIG) used to treat myositis and many other diseases. Learn more, find a plasma donation center, and invite your family and friends to donate and join the #ItsMyTurn campaign.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19 including an update to our plans at MSU to pause business as usual and focus solely on supporting our fellow patients and caregivers in this frightening time.
Upcoming Myositis Video Events
- July 18 @ 3:00 pm - 4:30 pm EDT |Recurring Event (See all)
An event every month that begins at 3:00 pm on day Third of the month, repeating until December 19, 2020
- July 25 @ 3:00 pm - 4:30 pm EDT |Recurring Event (See all)
An event every month that begins at 3:00 pm on day Last of the month, repeating until December 26, 2020
- July 31 @ 5:00 pm - 6:30 pm EDT |Recurring Event (See all)
An event every month that begins at 5:00 pm on day Last of the month, repeating until December 25, 2020
One event on December 18, 2020 at 5:00 pm
- August 5 @ 7:00 pm - 8:30 pm EDT |Recurring Event (See all)
An event every month that begins at 7:00 pm on day First of the month, repeating until December 2, 2020
Managing Myositis Patient Care During the COVID-19 Public Health Crisis
Dr. Rohit Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about immune-suppressing medications and IG, and much more.
Caregivers make it all possible!
Our myositis caregivers give and give, and they need support, encouragement, and resources to help.
We have put together some tips, articles, videos, and resources we believe will help you as a member of your loved one’s healthcare team.