3rd Annual Myositis Empower Walk
Create and Share your 3rd Annual Myositis Empower Walk Team Fundraiser!
Get your friends and family members together and create your fundraising team. Team fundraising is FUN, and all donations support the work we do at MSU. This event, just as last year, is in person in Henderson, NV, just outside of Vegas, and via an upgraded interactive live stream. Join us in Vegas or join us from wherever you are on Oct. 2nd.
Stay tuned for Spirit Week events and join us! Upload a photo by Sept. 25th that may be featured during the live stream. And, join us for LIVE with the Landman’s: Honoring the life of Stella Clapp.
The 3rd Annual Myositis Empower Walk is sponsored by IndeeLift and Corbus Pharmaceuticals.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assitance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. Program is available to U.S. residents. See full details available in our help guide.
Plasma donations are down 40% since the lockdown, and without an increase in plasma donors there could be a shortage of IG (IVIG, SCIG) used to treat myositis and many other diseases. Learn more, find a plasma donation center, and invite your family and friends to donate and join the #ItsMyTurn campaign.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19 including an update to our plans at MSU to pause business as usual and focus mostly on supporting our fellow patients and caregivers in this difficult time.
Myositis News and Updates
See how the IndeeLift can change your life. Don’t let the cost deter you. If insurance will not cover, and you can’t afford the IndeeLift, there are options to get the lift into your home to help you live your life and regain your independence! If you require financial assistance, CHOOSE OPTION 3 ON THE FORM.
‘Oh The Places You’ll Go’: Traveling and Exploring with Confidence with Myositis, together with Megan and Lauren, Occupational Therapist’s at Johns Hopkins Myositis Center, and MSU. Save the slides to get the clickable links to the various resources provided.
Cheilonda Johnson, MD, MHS, joined the MSU family for a discussion about taking charge of your interstitial lung disease (ILD) myositis. Dr. Johnson is a specialist in ILD and is also doing research on ILD. Watch the recording and share it with your communities.
Upcoming Myositis Events
The Grieving Project: Creatively Grieving Our Chronic Illnesses Workshop
September 23 @ 5:00 pm - 7:00 pm EDT#MyositisLIFE: IBM Patient Video Support
September 24 @ 5:00 pm - 7:00 pm EDT#MyositisLIFE: Necrotizing Myopathy Patient Video Support
September 25 @ 3:00 pm - 5:00 pm EDTLive with the Landman’s: Honoring the life of Stella Clapp
September 26 @ 4:00 pm - 5:00 pm EDT#MyositisLIFE: Weekly Sunday Clubhouse Support
September 26 @ 7:30 pm - 9:30 pm EDT3rd Annual Myositis Empower Walk
October 2 @ 11:00 am - 2:00 pm EDT
The Grieving Project: Creatively Grieving Our Chronic Illnesses Workshop
Thursday, September 23rd starting at 5 PM ET / 4 CT / 3 MT / 2 PT on Zoom
Join award-winning artist Lisa Sniderman (Aoede), who has struggled with dermatomyositis for more than 13 years while creating to heal, and Creative Arts Therapist and singer-songwriter Frances Ancheta-Becker, as they co-lead a free pilot workshop just for MSU, using music from Sniderman’s The Grieving Project audiobook and other expressive arts (movement, journaling, drawing, poetry) to help us move through grief.
This free workshop will be focused on grieving our losses, changes, and transformations around our chronic illness (myositis). Patients and caregivers are welcome. No prior experience required! See full details and register to attend.
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!
Myositis patients, here are some opportunities:
Like and Follow Myositis Support and Understanding (MSU)
on our social networks to engage with the myositis community.
<
