Myositis is a rare, autoimmune muscle disease without a cure
Learn more about Myositis and how MSU is helping patients and caregivers
Since you will likely gather with family and friends this holiday season, this is the perfect opportunity to ask them to get involved and to educate them about Myositis and MSU. Here are some ways you, your family members, and your friends can help:
1. Make a donation to MSU of any amount. Even $5 goes a long way. Join our FB Fundraiser here: https://www.facebook.com/donate/10154698595627210/ or make the donation on our website.
2. Ask family and friends to volunteer or even join our volunteer board of directors. Applications are on our website. (See Get Involved section of our site)
We hope you, as a patient or care partner, will get involved in helping promote education and awareness of myositis while helping MSU gather the funds needed to continue helping you in 2017!
Myositis is a term meaning inflammation in the muscles. Our focus is the Idiopathic Inflammatory Myopathies of which there are several types, and all are classified as rare diseases. Idiopathic means the cause is unknown.
Polymyositis causes muscle weakness around the middle of the body and affects both sides of the body. Dermatomyositis causes muscle weakness as well as skin rashes. Juvenile dermatomyositis differs from the adult form because of the coexistence of vasculitis (inflammation of blood vessels). Inclusion body myositis mainly affects older individuals. As muscle weakness becomes severe, it is accompanied by muscle wasting and diminished deep-tendon reflexes. Unlike polymyositis and dermatomyositis, the muscle weakness is often not symmetric, and may be prominent in the smaller muscles of the forearms and calves.
Looking for Support for Myositis?
If you have been diagnosed with a form of Myositis, or are a caregiver, family member or friend of someone who has, we have support options for you! We offer several methods of support that make sense for those with a muscle disease.
Myositis, for so many, can be classified as an invisible illness where our outward appearance may cause others to think we are healthy. Learn more about this and how to respond.
ARE YOU READY TO GET INVOLVED IN HELPING THOSE WITH MYOSITIS?
As a relatively new nonprofit organization that got its unofficial start in 2010 with Facebook support groups, MSU, now a nonprofit organization founded by Myositis patients, for Myositis patients, has accomplished a lot that benefits myositis patients and care partners. We need your help to go into the New Year with enough funds to continue the work we have started.
MSU is committed to improving the lives of Myositis patients and care partners
Founded by Myositis patients, for Myositis patients
YOU ARE NOT ALONE IN THIS JOURNEY
Myositis and related Information
Our site is large and contains a lot of information about, and related to, Myositis. Below are some important resources we suggest you check out to educate yourself, become involved and to locate resources. We care about our members and site visitors and hope to offer you the most complete, easy-to-read information we can.
OFFERING MYOSITIS AND RELATED RESOURCES FOR YOU
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