Get the Support you deserve

Patients, Caregivers, and Family Members

We offer the best support to myositis patients, caregivers, and family members. Whether it’s our on-site community, our Facebook support groups, or our live online video support sessions, we are always here for you because we are patients and caregivers too.

We offer support options that make sense for those living with a muscle disease which impedes mobility. Find the support options best for you!

Announcing the new, customized App for myositis!

Free app in partnership with Portable Genomics

We announced earlier this year our intentions to create an app for the myositis community. Phase one of our goal has been realized!

It is with great excitement to announce the release of the”NuMe” App for myositis, a pilot study App in partnership with Portable Genomics. Currently available for iPhone users, the App is free and enables myositis patients and caregivers to better collect, manage and share important health data with treatment teams, researchers and the pharmaceutical industry.

The data you track and collect, for your own use, is secured on your smartphone and personal cloud. If you consent to sharing data for research purposes your personal information is scrubbed to protect your privacy; you have the ability to opt in or out of sharing at any time.

Read more about and download the App, and see more about our exciting partnership with Portable Genomics.

NEW: Rash Monitoring module now available in the app!

MSU and Portable Genomics, teaming up to bring a tailored health data management platform to myositis patients

Education is key to Myositis Awareness

We have hosted several myositis experts to lead live, online video sessions throughout 2018. All sessions were held online with live participation. These sessions were recorded and we hope you will take advantage of the educational opportunities these provide for you and your family members.

We continue to host education, activity, and support sessions live and online via video.

See Upcoming Events Subscribe to our YouTube channel

Myositis Support and Understanding

Empowering the Myositis Community

MSU is instrumental in helping to improve the lives of patients fighting this rare, complicated immune-mediated muscle, skin, and often multi-organ disease by being the very first patient-centered organization to offer live, online, video patient support and education sessions that simply make sense for those living with a muscle disease that involves limited mobility and with patients spread across the world.

MSU also provides a “Simply Put” education series, offers clinical trial matching, advocacy, several online support options, awareness building programs, and need-based financial assistance for patients.

More about MSU

Register for free membership

Join us as an official member and you will receive email updates when new awareness materials are available and have your very own MSU Myositis Network account and profile, and much more. We are working to improve our onsite community, along with many other tech updates and offerings.

Register for your Membership Login

MSU and Myositis: Take Action

What is Myositis?

Our focus, Idiopathic Inflammatory Myopathies, or myositis, includes Dermatomyositis, Inclusion Body Myositis, Polymyositis, Necrotizing Autoimmune Myopathy, and Orbital Myositis. Start learning more about myositis.

Educate Yourself

Myositis Programs and Services

Check out the Myositis patient-centered programs and services we currently offer including education, financial assistance, and support. We are developing new programs to help myositis patients and caregivers.

See Programs we offer

Support that makes sense

We bring support directly to you! It can be tough to get out with this often-debilitating disease. Join our FB groups, video support sessions, and our onsite Myositis Community.

See support options

Myositis Life

We learn from the experiences of other myositis patients and caregivers. Read and watch member-submitted #MyositisLife content, and look closer at the realities of myositis.

Explore #MyositisLife

Clinical Trial Matching

Easier way to view and locate myositis clinical trials. We have partnered with Antidote! Easy-to-read clinical trial information and contacts. Patients are needed for important studies.

Clinical Trial Matching

Get Involved

We are in this together! So, why not get involved? We have many opportunities available for volunteers, support group administrators, and board members.

Get Involved Today!

Effortless Ways to Help

We have joined with many different resources to help you help us help you! See some of the ways you can help by simply doing the things you normally do!

Find ways you can help

Myositis Events

We offer free myositis and related events. Whether they are myositis-specific video support sessions or educational sessions and webinars, they are always free and easy to join.

Upcoming Myositis Events

Shop the MSU Store

Show your support and help promote myositis awareness with our branded gear. Products such as wristbands, educational materials, apparel, pens, tumblrs, and more.

Shop MSU Gear

Shop more MSU gear

We have expanded our shopping options. From shirts and tote bags, to mugs, drinkware, and other fun stuff, shop the MSU Cafepress store today. Awareness gear 2018 now available!

Shop MSU on Cafepress


Make a tax-deductible donation to help us move forward with our mission, vision, and goals. Empowering the Myositis Community.

Make a Donation

Get Support

We offer several online support options for patients, caregivers, family members and friends. Get the myositis support you deserve.

See Support Options

Explore Myositis

Learn more about the different types of Inflammatory Myopathies (myositis). Education is empowering. Read, watch videos, and put Myositis In Focus.

Explore Myositis

Myositis Support and Understanding // Patient-Centered Nonprofit

Empowering the Myositis Community

© Myositis Support and Understanding Association, Inc. 2010-2018. All Rights Reserved. MSU is a patient-centered 501(c)(3) nonprofit organization.

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