Your #Give4Myositis support!
We came together to give and we thank you for your support. We couldn’t do what we do without your help and generosity, and you believing in the work we do. Giving is open until the end of the year! Donate to help support the patient-centered work we do including helping us to expand our life-saving patient financial assistance program and funding patient-led research initiatives. And, find other ways to give!
Upcoming Video Events
Registration is required for all events except for support sessions.
Ask the Expert with Dr. Chris Mecoli
December 16 - December 20Myositis Patient Video Support Session, December 21st, 2019
December 21 @ 2:00 pm - 3:30 pm ESTsIBM Patient Video Support Session, December 2019
December 27 @ 5:00 pm - 6:30 pm EST
Get Support
Myositis patients and caregivers – Get the support you deserve by joining the Myositis Support Community, a partnership with our friends at Inspire.
It’s free, anonymous and available 24/7! Join fellow myositis patients and caregivers across the globe to get caring, educational support. You are not alone!
Inclusion body myositis
Although we serve all patients and caregiers with myositis, inclusion body myositis is different from the other inflammatory myopathies.
sIBM patients, here are just some opportunies:
Myositis News and Updates
In celebration of National Family Caregivers Month, TMA and MSU collaborated for a conversation about the challenges of caring for someone with myositis and resources available to help.
Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November 6, 2019, for a live webinar, “Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of Immune-Mediated Necrotizing Myopathy (IMNM)” Watch the recorded version.
Caregivers make it all possible!
Our myositis caregivers give and give, and they need support, encouragement, and resources to help.
We have put together some tips, articles, videos, and resources we believe will help you as a member of your loved one’s healthcare team.
Check out #MyositisLIFE
Learn more about our newest program with its own dedicated interactive community website, #MyositisLIFE. Designed just for myositis patients and caregivers to share their experiences with myositis, this program helps others to better understand our rare disease and will help to gain interest from the medical and research communities.
Popular Resources
Financial Assistance Program
We know firsthand myositis affects every aspect of a persons life.
We are here to help.
