Myositis is a term meaning inflammation in the muscles. Our focus is the Idiopathic Inflammatory Myopathies of which there are several types, and all are classified as rare diseases. Idiopathic means the cause is unknown. Polymyositis causes muscle weakness around the middle of the body and affects both sides of the body. Dermatomyositis causes muscle weakness as well as skin rashes. Juvenile dermatomyositis differs from the adult form because of the coexistence of vasculitis (inflammation of blood vessels). Inclusion body myositis mainly affects older individuals. As muscle weakness becomes severe, it is accompanied by muscle wasting and diminished deep-tendon reflexes. Unlike polymyositis and dermatomyositis, the muscle weakness is often not symmetric, and may be prominent in the smaller muscles of the forearms and calves. These long sleeve and short sleeve T-shirts are popular in our community! At the annual patient conference we sold out in the first 2 hours! Now is a chance to get yours. Orders must be placed by September 26th! If you have been diagnosed with a form of Myositis, or are a caregiver, family member or friend of someone who has, we have support options for you! We offer several methods of support that make sense for those with a muscle disease. Our goal isn’t to scare you from going out into the sun, rather we want to share some practical tips you should be aware of and ways that you can take charge to protect yourself from the harmful UVA and UVB rays from the sun. Our site is large and contains a lot of information about, and related to, Myositis. Below are some important resources we suggest you check out to educate yourself, become involved and to locate resources. We care about our members and site visitors and hope to offer you the most complete, easy-to-read information we can. Join MSU today by subscribing to our email newsletter! We do not spam, nor do we share any of your information. Don’t miss out on important organization updates, information, education, special offers, clinical trials, and so much more. Keep informed and take action! We are a completely volunteer-managed organization so that each and every donation makes the maximum impact. Our volunteers work from their homes to support MSU. Sign up to volunteer and be a part of a growing, patient-centered organization that is passionate and caring.Myositis is a rare, autoimmune muscle disease without a cure
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Myositis Fall 2016 T-shirt Campaigns
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