MSU values Caregivers and Care Partners
Myositis Support and Understanding understands and appreciates the important role that caregivers and care partners play in helping to manage their loved one’s disease. They are the rock and foundation for any patient living with Myositis. Without them, their loved one may feel alone, isolated, and may not be able to do the things they enjoy.
Caregivers are instrumental in helping to manage their loved one’s health by going to doctor visits and asking questions, taking notes, and explaining things that the patient may forget. Caregivers are a part of the “invisible healthcare team” and we work to acknowledge them so they are recognized and even rewarded for their hard work.
In an effort to help caregivers succeed, we have compiled some helpful resources.
Share your story to empower other caregivers
Myositis caregivers and care partners each have a unique story to tell that can help educate others going through the same experiences.
Each form of myositis is different and brings unique challenges. Whether they are specific adaptations you have made in your home or daily life to help make thing easier or how you have created a journal or schedule that helps keep your better organized and prepared for unexpected circumstances.
Share your unique story with us so we can share it publicly.
Caregiver Support Groups
Organizing Online Care
National Family Caregiver's Month
National Family Caregiver’s Month is held during the entire month of November. Check out some of the tips we hope will help you, as a caregiver/care partner, and that we shared during the month of November.
Join our email updates and newsletter
Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register