Myositis Resources

Myositis and Related Resources

We have created a helpful listing of resources for Myositis, disability, and related autoimmune diseases.  We continually add new information and resources as they become available. Feel free to contact us with any resources you feel would be helpful.

Myositis Resources

Overlaps and Autoimmune Disease

Additional Resources


Stand Aid power toilet aid
The POWER TOILET AID is a perfect toilet lift for those dealing with progressive muscle weakness. It will lift you STRAIGHT UP with no push forward. It's powerful 12 volt actuator will lift up to 400 pounds and comes in a standard or mobile option. Please call Stand Aid of Iowa (800) 831-8580 or check out our website for additional information.

Looking for Support?

Check out a listing we have compiled of Myositis, and related, Facebook support groups.

MSU provides groups for patients, family members, friends, caregivers and care partners.

Join an online support group today and get the best support, education, and tools you deserve.

Get Support & Education you deserveJoin Myositis Support Groups

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: Myositis Resources! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.