Privacy Policy and Cookies Usage Policy

Below are our Privacy Policy and our Cookies Policy.

The following terminology applies to the Privacy Policy, Cookies policy and any or all Agreements: “You” and “Your” refers to you, the person accessing this website and accepting the Organization’s terms and conditions. “MS&U”, “Understanding Myositis”, “Myositis Support and Understanding”, “Ourselves”, “We” and “Us”, refers to our Organization. “The Site”, “website”, “site”, refers to our website located at www.UnderstandingMyositis.org and any other domains that point to this website that we own. Any use of the above terminology or other words in the singular, plural, capitalization and/or he/she or they, are taken as interchangeable and therefore as referring to the same.

PRIVACY POLICY

TYPES OF INFORMATION WE COLLECT

Personally Identifiable Information

We only collect Personally Identifiable Information (“PII”) via our site when you register for an account. Then, your personal information is secure within your account section of the site.

Myositis Support and Understanding collects personally identifiable information (PII) in the registration section, such as name, address, type of Myositis and e-mail address. If for any reason you wish to update/correct your PII, please login to your account on the website and visit the “My Account” page.

Non-Personally Identifiable Information

We collect Non-Personally Identifiable Information (“Non-PII”) via our site, including but not limited to your IP host address, pages viewed, browser type, the referring URL, Internet Service Provider and your computer’s operating system. The information we collect cannot be typed to a particular user of our site and is only collected to help us offer the best possible site content.

Myositis Support and Understanding may collect and use the following kinds of personal information:

  • Information about your use of the site, collected anonymously, for performance monitoring
  • Information that you provide for the purpose of registering with the site
  • Information about transactions carried out over the site
  • Information that you provide for the purpose of subscribing to the site’s services including e-mail and newsletter updates
  • Any other information that you send to us for the purpose of updating website content and other related activity

Myositis Support and Understanding uses your information to:

  • Administer this website
  • Personalize the website for you
  • Enable you access to and use of the website services we offer
  • With your consent, to publish information about you on the website such as “Your Myositis story” or an article you write to be published
  • Send to you products that you purchase, invoices, e-mails as well as to collect payments or donations if provided
  • Send you email and newsletter updates

Where Myositis Support and Understanding discloses your personal information to its agents or sub-contractors for these purposes, the agent or sub-contractor in question will be obligated to use that personal information in accordance with the terms of this privacy policy.

In addition to the disclosures reasonably necessary for the purposes identified elsewhere above, Myositis Support and Understanding may disclose your personal information to the extent that it is required to do so by law, in connection with any legal proceedings or prospective legal proceedings, and in order to establish, exercise or defend its legal rights.

What do we use your information for?

The information we collect from you may be used in one of the following ways:

  • To personalize your experience (your information helps us to better respond to your individual needs)
  • To improve our website (we continually strive to improve our website offerings based on the information and feedback we receive from you)
  • To improve customer service (your information helps us to more effectively respond to your customer service requests and support needs)
  • To process transactions, donations and updates
  • To administer a contest, promotion, survey or other site features
  • To send periodic emails and newsletters

The email address you provide may be used to send you information and updates pertaining to an order or donation, if available, in addition to receiving occasional organization news updates, related products or service information.

Note: If at any time you would like to unsubscribe from receiving future emails, we include detailed unsubscribe instructions at the bottom of each email.

Your information, whether public or private, will not be sold, exchanged, transferred, or given to any other company for any reason whatsoever, without your consent, other than for the express purpose of delivering a purchased product or service requested, if available.

HOW IS INFORMATION SECURED AND PROTECTED?

All of the user data collected by Myositis Support and Understanding is stored only in anonymous form, meaning that information about a specific user cannot be retrieved. The exception is account registration where only administrators will have access to such information. Even so, we maintain physical, electronic, and administrative safeguards to protect all our data from accidental, unauthorized or unlawful access, use, modification, disclosure, loss, or destruction. The data is kept on a secure server and we restrict access to the data solely to authorized users. No security measures, however thorough, are perfect and there can be no absolute assurance of security and therefore, we cannot and do not offer an absolute guarantee or warrant the security of the information we possess.

Information Security

The security of your information is important to us. We have implemented reasonable security measures to protect the information in our care, both during transmission and once we receive it. This includes, but is not limited to the use of encryption. No method of transmission over the Internet, or method of electronic storage, is 100% secure, however. Therefore, while we strive to use commercially acceptable means to protect your information, we cannot guarantee its absolute security.

INFORMATION SHARING

As described above, Myositis Support and Understanding stores only aggregated data on its servers. We may share such aggregate, non-personal information with Publishers and Networks in connection with reporting and accounting needs as well as with other unaffiliated third parties for various purposes such as statistical or educational analysis.

We may disclose your information to third parties when we reasonably believe we are obligated to do so by law, and in order to investigate, prevent or take action regarding suspected or actual prohibited activities, including but not limited to, fraud and situations involving potential threats to the physical safety of any person.

Also, in the event Myositis Support and Understanding is merged into another organization, or another organization acquires all or substantially all of Myositis Support and Understanding’s assets, including, without limitation, in the event of bankruptcy, all data compiled or owned by Myositis Support and Understanding may be among the items transferred in that transaction. In such event, all the data will continue to be governed by this Policy.

THIRD PARTY WEBSITES

The Myositis Support and Understanding website may contain links to advertisements for websites operated by third parties whose privacy practices may differ from ours. While we endeavor to associate only with reputable entities, Myositis Support and Understanding cannot be responsible for the privacy practices of these other websites. We encourage you to check the privacy policies of all websites that you visit.

Cross-border data transfers

Information that Myositis Support and Understanding collects may be stored and processed in and transferred between any of the countries in which Myositis Support and Understanding operates to enable the use of the information in accordance with this privacy policy.

In addition, personal information that you submit for publication on the website such as blog articles or personal stories will be published on the Internet and will be available publicly around the world.

You agree to such cross-border transfers of personal information.

Updating this statement

Myositis Support and Understanding may update this privacy policy by posting a new version on this website. You should check this page occasionally to ensure you are familiar with any changes.

Other websites

This website contains links to other websites. Myositis Support and Understanding is not responsible for the content, privacy policies or practices of any third party website.

CHANGES TO OUR POLICY

We may revise this Policy at any time. Any changes and/or updates to the Policy will be updated directly on this page. We encourage you to visit this page periodically to review our current Policy so that you will always know what information we gather and how we may use that information. In the event we make any material changes to this Policy we will advise our Publishers and Networks of such changes in advance.

CONTACTING US

Should you have any questions in regards to this Privacy Policy please contact our representatives. They will be more than happy to clarify and assist you in any way possible.

Email: info@UnderstandingMyositis.org

Mailing Address:
Myositis Support and Understanding
9125 N. Old State Road
Lincoln, DE 19960

Privacy Policy updated September 17, 2014

COOKIES POLICY

What are cookies?

Cookies are small text files that web servers typically send to users’ computers when they visit a website. Cookies are stored as text files on a user’s hard drive and can be accessed by web servers when the user returns to a website or goes to another website. Cookies are used by companies to collect and send information about a user’s website visit – for example, number of visits, average time spent, pages viewed, navigation history through the website, and other statistics. This information helps companies improve a user’s online experience in many ways: for example, by allowing companies to monitor website performance, make the website easier to use, measure the effectiveness of their promotional placements and tailor their website to better match a user’s interests and preferences. Cookies cannot be used to access any other data on a user’s hard drive, or to personally identify them. Users who prefer not to accept cookies can set their Internet browser to notify them when they receive a cookie or to prevent cookies from being placed on their hard drive.

About cookies

This website uses cookies. By using this website and agreeing to this policy, you consent to Myositis Support and Understanding’s use of cookies in accordance with the terms of this policy.

Cookies are files sent by web servers to web browsers, and stored by the web browsers.

The information is then sent back to the server each time the browser requests a page from the server. This enables a web server to identify and track web browsers.

There are two main kinds of cookies: session cookies and persistent cookies. Session cookies are deleted from your computer when you close your browser, whereas persistent cookies remain stored on your computer until deleted, or until they reach their expiry date.

Our site uses cookies

We use persistent “cookies” on the site in order to help us manage the opt-out process for our technology. Cookies are small text files that contain a string of alphanumeric characters. A persistent cookie remains on your hard drive for an extended period of time. You can remove persistent cookies by following directions provided in your Internet browser’s “help” file. For more information about cookies please visit http://www.allaboutcookies.org/cookies/. No PII is collected by or associated with cookies from the site.

Cookies on our website

Myositis Support and Understanding uses the following cookies on this website, for the following purposes:

  • Analytics reporting
  • Temporary storage of your login information so you do not have to login each time you visit the site
  • We do not collect any personal information to be stored in cookies

Google cookies

Myositis Support and Understanding uses Google Analytics to analyze the use of this website. Google Analytics generates statistical and other information about website use by means of cookies, which are stored on users’ computers. The information generated relating to our website is used to create reports about the use of the website. Google will store and use this information. Google’s privacy policy is available at: http://www.google.com/privacypolicy.html.

Myositis Support and Understanding may publish Google Adsense interest-based advertisements on the site. These are tailored by Google to reflect your interests. To determine your interests, Google will track your behavior across the web using cookies. You can view, delete or add interest categories associated with your browser using Google’s Ads Preference Manager, available at: http://www.google.com/ads/preferences/. You can opt-out of the Adsense partner network cookie at: http://www.google.com/privacy_ads.html. However, this opt-out mechanism uses a cookie, and if you clear the cookies from your browser your opt-out will not be maintained. To ensure that an opt-out is maintained in respect of a particular browser, you should use the Google browser plug-in available at: http://www.google.com/ads/preferences/plugin.

Refusing cookies

Most browsers allow you to refuse to accept cookies.

In Internet Explorer, you can refuse all cookies by clicking “Tools”, “Internet Options”, “Privacy”, and selecting “Block all cookies” using the sliding selector.

In Firefox, you can adjust your cookies settings by clicking “Tools”, “Options” and “Privacy”.

Blocking cookies will have a negative impact upon the usability of some websites.

CHANGES TO OUR POLICY

We may revise this Policy at any time. Any changes and/or updates to the Policy will be updated directly on this page. We encourage you to visit this page periodically to review our current Policy so that you will always know what information we gather and how we may use that information. In the event we make any material changes to this Policy we will advise our Publishers and Networks of such changes in advance.

Cookie Policy updated September 17, 2014

CONTACTING US

Should you have any questions in regards to this Cookie Policy please contact our representatives. They will be more than happy to clarify and assist you in any way possible.

Email: info@UnderstandingMyositis.org

Mailing Address:
Myositis Support and Understanding
9125 N. Old State Road
Lincoln, DE 19960

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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Hi, this may be interesting to you: Privacy Policy! The link is included below: https://understandingmyositis.org/privacy/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.