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There is still time to donate! Fundraising closes September 30, 2020. A donation as little as $5 truly does make a difference. Make a Donation

Myositis Empower Walk

The 2nd Annual Myositis Empower Walk was a huge success! It was held Saturday, September 19, 2020, in-person at Discovery Park in Henderson, NV, and virtually, LIVE on Facebook! If you missed it, no worries, you can watch the recording.

The Landman Family created the Myositis Empower Walk in loving memory of Robert “Bob” Landman. This year, the Empower Walk introduced the virtual experience, with live participation. We went LIVE on Facebook to Discovery Park with the Landman’s and Shelby, who enthusiastically hosted the LIVE video.

We look forward to the Third Annual Myositis Empower Walk in 2021. The date will be announced as soon as possible to allow you to plan!

Follow the Myositis Empower Walk! 

Myositis Empower Walk on Facebook and on Instagram

Donate!

There is still time to donate! Fundraising closes September 30, 2020. A donation as little as $5 truly does make a difference. 

Make.a Donation

Myositis Empower Walk 2020

2nd Annual Myositis Empower Walk

Myositis Empower Walk at Discovery Park

Thank you for joining us Saturday, September 19, 2020, at the 2nd Annual Myositis Empower Walk, whether in-person at Discovery Park or LIVE on Facebook!

You made a difference. You brought the community together and we could feel the love and support. And it spread across the world with people joining us from the U.K., Italy, Mexico, Canada, and Australia.

The Landman family did a fantastic job. Our gratitude to Lauren and Jenna Landman for all of the work they do planning and promoting. And for Gladys and Chad Landman for their more behind-the-scenes work and support. Special thanks to Shelby for hosting the Facebook LIVE!

Thank you to all who donated, fundraised, and traveled to be at the walk. Thank you for your photos and videos so we can share them publicly.

Stay tuned for details about next year’s Empower Walk!

Myositis Empower Walk, In Memory of Robert "Bob" Landman

About The Landman Family

When Robert “Bob” Landman became ill he was misdiagnosed several times. When he finally got the diagnosis of dermatomyositis, it was too late for any of the medications to be effective and Bob passed away due to complications.

Since, Gladys, Jenna, Lauren, and Chad have been involved to help MSU promote awareness and raise money to continue to further our mission.

What a great legacy Bob leaves for other patients continuing to fight this rare disease.

Read “Our Dad was More Than His Dermatomyositis” to learn more about Bob Landman.

If you have lost a loved one with myositis, share their information with us to be included in MSU’s Annual “A Day of Remembrance” video event. We want to publicly remember those we have lost.

Why did you create the Myositis Empower Walk?

The Landman’s shared, “We started the Myositis Empower Walk to inspire people to support MSU’s mission and to create a safe space for patients and caregivers alike. Our goal is to raise funds to continue to provide financial support for patients and to support research to better understand myositis, find treatments, and one day a cure.”

Lauren Landman answers, “Why do I find it so important to better our awareness and education of rare illnesses such as Myositis?”

The answer to that is quite simple, it’s because my family and I lost our dad to dermatomyositis. The severe physical pain and emotional stress he had to live with while struggling to find answers was unimaginable. Watching your parent go from being completely able-bodied, to sick and unable to care for himself in just six months is something I can not put into words. Perhaps, the most frightening part of this whole experience was that he was misdiagnosed multiple times thus delaying potential treatments that could have saved his life.

The lack of knowledge and understanding of Myositis in the medical community is detrimental and quite frankly, unacceptable. I wish simply to shed light on what needs to be changed in order to prevent others from experiencing the pain my dad endured.

I do not say this with anger nor resentment but rather, passion and love in honor of my dad, Robert Landman. Although it saddens my family and I deeply to know he had so much more of his life to live, it gives us happiness to know his story can help others.

Photos from the 2019 Myositis Empower Walk

Hosted by The Landman Family, in memory of Bob Landman

The Myositis Empower Walk and Myositis EmpoweRun 5K were created in loving memory of Robert “Bob” Landman by his family to help Myositis Support and Understanding continue with its important patient-centered work.

The first Myositis Empower Walk hosted by the Landman family was held on May 19, 2019, in Henderson, Nevada, just outside of Las Vegas. MSU VP Lynn Wilson was able to attend and share the work we are doing with the supporters in attendance. 

Host your own Empower Walk

Contact us today to start planning a Myositis Empower Walk or Myositis EmpoweRun 5K in your city or state. 

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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