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Myositis Patient and Caregiver Support

Support Community In partnership with Inspire

Introducing the Myositis Support Community!

Myositis patients and caregivers can connect with others who understand what they are going through by joining our support community via the Inspire iOS app or by visiting our Myositis Support Community.

Join the Myositis Support Community

Free, anonymous, 24/7 support, just for the myositis community

Myositis patients and caregivers can connect with others who understand what they are going through by joining our support community via the Inspire iOS app or by visiting our Myositis Support Community.

Download App Visit the Community

Now there is another way to connect with others who live with and care for those with the various forms of myositis.

Introducing the Myositis Support Community, an online support community in partnership with Inspire.

The Myositis Support Community is similar to Facebook, however, it provides a more safe and secure environment for the sensitive topics we discuss as people living with, and caring for those with, myositis (idiopathic inflammatory myopathies).

During registration, you can even choose an anonymous username to help protect your identity further! You have control over your personal information and how it is shared. Patients, caregivers, and professionals will be able to collaborate, share stories and discuss questions and concerns. And the best part – it’s totally FREE to you.

Ready to Join?

  • Download the App or Go to Myositis.Inspire.com
  • Click on the button “Join This Community”
  • Follow the basic instructions and register yourself using email or social networking.
  • Once completed, you will receive a confirmation email.

That’s it! Now you are ready to start CONNECTING!

Join us for virtual support!

Monthly Myositis Patient Video Support Sessions

We currently host four myositis patient video support sessions each month. All sessions are private and never recorded. For security purposes, registration is required once for each of the sessions below. See individual event dates on the events calendar page.  Event times are shown in Eastern Time. Convert to your timezone at https://www.thetimezoneconverter.com.

Disclaimer: Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization. MSU does not provide medical and mental health advice or treatment. Information provided by Myositis Support and Understanding is not intended as medical advice and is not a replacement for care from a doctor, therapist, or other healthcare provider. If you have a medical or mental health emergency, call your country’s emergency number immediately; 9-1-1 in the United States.

Wednesday Evening sessions

Our Wednesday Evening session starts at 7 PM Eastern Time on the first Wednesday of the month. Patients with all forms of inflammatory myopathies (myositis) are welcome, and encouraged, to join. Register to attend all 2020 Wednesday Evening sessions.

Saturday Afternoon sessions

Our Saturday Afternoon session starts at 3 PM Eastern Time on the third Saturday of the month. Patients with all forms of inflammatory myopathies (myositis) are welcome, and encouraged, to join. Register to attend all 2020 Saturday afternoon sessions. 

Necrotizing myopathy patient sessions

This session is for those living with necrotizing myopathy and is held on the last Saturday of the month at 3 PM Eastern Time. Register to attend all 2020 Necrotizing Myopathy sessions.

Inclusion body myositis patient sessions

This session is for those living with inclusion body myositis and is held on the last Friday of the month at 5 PM Eastern Time. Caregivers are also welcome when invited by the person living with inclusion body myositis. Register to attend all 2020 Inclusion Body Myositis sessions.

Upcoming Events

© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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