Check out Myositis Support Options
We offer support options that make sense for those living with Myositis, a rare muscle disease that causes weakness, among other issues that make it hard to leave the house. We bring the support directly to you!
Support, Education, and new friendships
How we got started
At Myositis Support and Understanding, we care about you. In an effort to ensure all patients have access to support options that make sense when living with the rare muscle disease, Myositis, we have created several support programs.
MSU got its start through support. We started in 2010 with a small Facebook support group, “Polymyowhat: Understanding Myositis.” From that small group, we have since obtained our non-profit status and have developed several support options for patients, caregivers, family members, and friends. Our newest support options include our Video Support sessions and our newly refreshed website social network.
Join MSU and learn more about Myositis, living with and caring for someone with Myositis, and have a little fun while you are doing so.
MSU's Myositis Support Options
See what our members are saying about our Myositis support groups
Join our email updates and newsletter
Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register