Support for The Myositis Community
We provide support options for all involved in the myositis community, most notably for myositis patients and caregivers. We have support options that make sense for those living with Myositis, thus likely to have difficulty with mobility. We bring the support directly to you!
Empowering the Myositis Community
At Myositis Support and Understanding, we care about you. In an effort to ensure all patients and caregivers have access to support options that make sense with mobility and time restraints that are often a part of life with myositis, we have created several support programs.
MSU started with support. From a small Facebook group in 2010 to now a fully autonomous patient-centered nonprofit organization, we have grown to meet the needs of the myositis community. We bring the support to where you are most comfortable, whether on Facebook, on our website, or by video and phone, we provide you with the same great educational, informational, and emotional support you deserve.
Myositis Support Options
Closed Groups for your privacy
Providing three closed Facebook Support Groups
that stand apart from others in how we engage with
our members. We are patients too!
See what our members are saying about our Myositis support groups
Join our email updates and newsletter
Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register