Events
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International Myositis Support
MSU Zoom Video Session Video session using ZoomInternational Myositis Virtual Support Group for all Myositis patients and their care partners, held on Zoom. This is a fantastic opportunity to connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment.
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February 22 Sunday Clubhouse Support
FeaturedClubhouse#MyositisLIFE: Myositis Community Support On Clubhouse This Sunday, Feb. 22, 2026 7 PM ET/ 6 PM CT/5 PM MT/4 PM PT Join us every Sunday on Clubhouse. All Myositis patients and care partners are welcome. This is a members-only room to provide the safest space possible to share. Join us for support, love, and understanding. You can join to listen […]
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CAR T In Myositis : An Update on the RESET-Myositis Clinical Trial
FeaturedMSU Zoom Video Session Video session using ZoomPlease join MSU and Jake Chung, PharmD and a Senior Director on the Medical Affairs team at Cabaletta Bio. During this session, Jake will provide a brief overview of the clinical trial process, review key components of the immune system, and describe how CAR T cell therapy works.
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Mitochondria First in Inclusion Body Myositis: A Chicken or Egg dilemma – The interplay between mitochondrial dysfunction and inflammation in IBM
FeaturedMSU Zoom Video Session Video session using ZoomWednesday, February 25, 2026 11:00 AM ET (4 PM GMT) 10 AM CT/ 9 AM MT/ 8 AM PT This webinar brings recent scientific discoveries directly to the IBM community. Dr. Rita Horvath and Dr Felix Kleefeld will explain how mitochondrial dysfunction may initiate the disease process in IBM, how the immune system becomes involved, and why these findings are […]
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Couch Critics on Clubhouse – 4th Wednesday of the Month
ClubhouseJoin us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you’re a patient or a care partner, this movie club is for you!
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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Inclusion Body Myositis (IBM) Support Group
FeaturedMSU Zoom Video Session Video session using ZoomCome join our IBM support group that meets the last Friday of each month. IBM is a slowly progressive and degenerative muscle disease with no available treatment options. Hosted by patients with IBM, this is a safe place to talk about how we can live our best lives and support each other. You are not alone. Runing late? That's okay. […]
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Immune-Mediated Necrotizing Myopathy Support Group
MSU Zoom Video Session Video session using ZoomJoin us for Immune-Mediated Necrotizing Myopathy patient virtual video support on the last Saturday of each month at 7 PM ET.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
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Men with Myositis Clubhouse Support Room
ClubhouseA safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
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Women with Myositis Virtual Support Group
MSU Zoom Video Session Video session using ZoomWomen living with any type of Myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
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Wednesday Evening Myositis Support Group
Featured Wednesday Evening Support GroupMSU Zoom Video Session Video session using ZoomAll Myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
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Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
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Young Adults with Myositis – MSU YA Collective Power Hour
MSU Zoom Video Session Video session using ZoomJoin fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood with a chronic illness.
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Breathe Easy: Myositis Lung Support Monthly Virtual Support Group
MSU Zoom Video Session Video session using ZoomThis group aims to provide a compassionate and welcoming space where individuals can connect, share their experiences, and gain insights from others who understand the unique challenges of living with myositis and lung complications.
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Couch Critics – A Movie Club for the Myositis Community on Clubhouse
Featured Couch CriticsClubhouseJoin us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient or a care partner, this movie club is for you!
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Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Free -
Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
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Myositis Reads – A Book Club for Those with Myositis
ClubhouseJoin us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
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