When a family member, friend, or even if you are diagnosed with a rare disease, wouldn’t you like to have access to information and support programs to help you understand this disease?
We are Myositis Support and Understanding Association (MSU), a patient-led, all-volunteer 501(c)(3) nonprofit organization supporting and advocating together with and for myositis patients and caregivers by providing education, research, clinical trial matching, various support programs, advocacy and awareness efforts, empowering volunteer opportunities, and our financial assistance program.
Your donation will fund the important patient-centered work we are doing, allow us to expand our financial assistance program, and fund patient-led research initiatives that matter most to patients, like The Pain Project.
But, all of this requires money. Like any other nonprofit, we operate on donations made by those like YOU. As an all-volunteer nonprofit even more of your donation goes directly to help patients.
#Give4Myositis, our 2019 Year-End fundraising campaign, and support the patient-centered work we do for the myositis community.
It’s starts with #GivingTuesday, Dec. 3, 2019, a global day of giving. Our 2019 campaign, #Give4Myositis, is our year-end fundraiser and we are asking our fellow patients and care partners, along with family members, friends, and supporters to find the joy in giving for myositis, a rare, incurable disease.
Your donation, gift of time, or fundraiser are all important ways you can give.
Giving feels good. Get involved and stand with MSU as we empower the myositis community.
We are a nonprofit built with a lot of $5 and $10 donations. A five-dollar donation truly does help, so proudly make a $5 donation if that is what you are able to do.
Give of your time as a volunteer, give financially to support the work we do at MSU for myositis patients and caregivers, donate plasma, or give your time to provide support to someone newly diagnosed with myositis.
HOW CAN I GIVE?
SO MANY WAYS TO #GIVE4MYOSITIS
Text GIVE4MYOSITIS to 44-321
to start a mobile donation.
Say, “Alexa, make a donation to Myositis Support and Understanding Association.”
WE HAVE AWARDED OVER 80K IN FINANCIAL ASSISTANCE SINCE 2016
GIVE TO SUPPORT MYOSITIS PATIENTS
I want to say that this program is a gift sent from heaven. With rare diseases, life is a struggle with our health and financial stress, causing us more harm. If not for the help of the Myositis Support and Understanding Financial Assistance Program, I would have lost my home. This program has helped to lift a huge burden of financial distress, and I pray the program will be able to continue. From the bottom of my heart, Thank you! Patty T
I want to say a huge THANK YOU for the help of the MSU Myositis Financial Assistance program. This disease is horrible and it is a daily struggle because of the pain. We know that stress triggers flares and I have been in a terrible flare due to the stress of my house possible going into foreclosure, and the medical bills piling up. Due to the illness, my hours were cut at work and I was struggling. I am doing my best to work while I still can. No bank would help, so every day I worried what am I going to do? Then through MSU, I came across the financial assistance program info, applied, and was approved! What a huge relief! I am already coming out of this nasty flare because now I will not lose my home! You have no idea how much this means to me to have a program like this to help us while struggling with the disease. Thank you from the bottom of my heart! — Financial Assistance Recipient
I am so filled with joy and gratefulness! Not just for the help but how the help has been given with so much support, timeliness, and understanding! I can’t express how much this will help me to become stable in my home! God Bless you all!
As a myositis researcher, I support MSU’s mission and their excellent work!!!
I have only recently been diagnosed with Myositis. This organization has helped me more than I could have imagined. The information on the website is fantastic, the stories from people, etc, Before I found this group I was looking at my life as pretty much over, now I see hope and have learned many ways to help myself. GREAT ORGANIZATION
I just wanted to tell you how important your work has been for me. I have been struggling with DM. Your live chat with Dr Chung from Johns Hopkins has been a major factor in my muscle recovery and everyday well-being. Thank you!
This organization has become an important part of my life since I was diagnosed with a disease I never heard of, Dermatomyositis. My Johns Hopkins Rheumatologist told me about it.
This group has been a lifeline to me in the midst of so much uncertainty. I spent months muddling through with numerous doctors, stumbling toward a diagnosis. It’s only been in connecting with this group that I’ve felt a sense of hope. These are my mentors, the people who have walked the path before me and walk with me. I can receive and give encouragement and learn so much more than my doctors can tell me. With this group I have a place where I can complain, ask questions and be understood, and know that I am not alone.
It is so comforting to hear stories of others who were stuck… And overcame! The stories of others who are in the same boat now, of fighting to reduce [prednisone], are strength to me. This group and the people in it… Hero’s to me and my lifeline to deal with something no one gets … But us. Thank you all for making me feel “normal”!
Facebook fundraisers are awesome! Easily create and share your #Give4Myositis Facebook fundraiser. Include why you support MSU, your story, along with updates and photos.
Create your #Give4Myositis fundraising page, invite friends to join your team, set a goal, and share! Easily raise money by sharing the fundraiser, with updates, often.
Make your secure online donation using a bank account, credit card, PayPal, or Apple Pay; or text GIVE4MYOSITIS to 44-321 to start your donation via text message.
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Donations in the U.S. are tax-deductible in accordance with IRS code 501(c)(3).