Resources for Myositis patients about COVID-19
We are committed to providing you with trusted information and resources regarding the Coronavirus (COVID-19) pandemic. Below you will find such resources, as well as links to take action, videos, and upcoming events.
The best way to prevent catching or spreading coronavirus is often and thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately.
Wearing Fabric Face Coverings in Public
The CDC now recommends Americans wear fabric/cloth face coverings in public, in addition to the other Slow the Spread guidelines, such as social distancing, to help slow the spread of COVID-19. The link below is the CDC who provides information about fabric face coverings and how to make them. Share a photo of you in your mask for Myositis Awareness Month.
CDC Briefing with Chronic Disease Community
MSU co-sponsored, together with CreakyJoints, the Global Healthy Living Foundation, and many other organizations, a virtual briefing with the U.S. Centers for Disease Control and Prevention (CDC), John Hopkins Medicine, U.C. Davis Health, and organizations representing the chronic disease community on COVID-19. Watch the recording.
Help us understand how myositis patients feel about COVID-19/the novel coronavirus
Myositis Support and Understanding (MSU) is excited to partner on The Arthritis & Rheumatic Disease COVID-19 Project and we invite you to participate in a survey over time to help researchers and clinicians better understand how patients with myositis and other autoimmune conditions feel about COVID-19/the novel coronavirus.
Managing Myositis Patient Care During the COVID-19 Public Health Crisis with Dr. Rohit Aggarwal
Keeping you supported, updated, and educated, especially during a public health crisis like the COVID-19 pandemic, is our highest priority. On May 13th, Dr. Rohit Aggarwal joined us to talk about what we have learned about COVID-19 and myositis, and he answers patient-submitted questions with topics including proper precautions to take to stay safe, information about immune-suppressing medications and IG, and so much more.
CDC, FDA, WHO
From the World Health Organization (WHO)
From patient organizations
From American College of Rheumatology (ACR)
From The Arthritis Foundation
From The American Lung Association
From Mental Health America
Myositis 101 for patients, COVID-19
Dr. Rohit Aggarwal, Co-Director of Myositis Center of the University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of the book “Managing Myositis: A Practical Guide” explains to patients in simple words about COVID-19, as well as what should we do.
Additional COVID-19 Resources
From the News
“With the help of physicians and infectious disease experts, we built a tip sheet to make sure you don’t bring the virus back with you. Here are printable versions in English, Spanish and Chinese.” CNN
“One dangerous coronavirus ‘self-check test’ is circulating on social media. Here’s why you should avoid it.”
From CNN – In an interview with Dr. Robert Legare Atmar, an infectious disease specialist at Baylor College of Medicine, CNN shares a myth-busting article.
Myositis Support Community
Free, anonymous, 24/7 support, just for the myositis community
Myositis patients and caregivers can connect with others who understand what they are going through by joining our support community via the Inspire iOS app or by visiting our Myositis Support Community.