We posted our first article about COVID-19 on March 3, 2020, “Coronavirus Concerns and Myositis.” Since that article, COVID-19 has been declared a pandemic. The CDC’s guidance asks us to use an abundance of caution and to self-isolate if possible.
The best way to prevent catching or spreading coronavirus is often and thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately.
Download our list of resources in a PDF format
COVID-19 resources helpful for the myositis community
Wearing Fabric Face Coverings in Public
The CDC now recommends Americans wear fabric face coverings in public, in addition to the other guidelines to help slow the spread of COVID-19. The link below provides information about fabric face coverings and how to make them.
Join MSU to make fabric masks together via video, April 10th at 2 PM ET.
We have some answers to myositis patient and caregiver questions
Additional Q&A in written form will be added soon as well.
White House extends coronavirus guidelines
From the World Health Organization (WHO)
Myositis 101 for patients, videos about COVID-19
Dr. Rohit Aggarwal, Co-Director of Myositis Center of the University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of the book “Managing Myositis: A Practical Guide” explains to patients in simple words about COVID-19, as well as what should we do.
COVID-19 & Immunosuppressive Drugs
Chloroquine & Hydroxychloroquine in COVID-19
Additional COVID-19 Resources
“With the help of physicians and infectious disease experts, we built a tip sheet to make sure you don’t bring the virus back with you. Here are printable versions in English, Spanish and Chinese.” CNN
“One dangerous coronavirus ‘self-check test’ is circulating on social media. Here’s why you should avoid it.”
From CNN – In an interview with Dr. Robert Legare Atmar, an infectious disease specialist at Baylor College of Medicine, CNN shares a myth-busting article.
From American College of Rheumatology (ACR)
From The Arthritis Foundation
From The American Lung Association
From Mental Health America
Johns Hopkins Resource Center
Medicare Telehealth Expansion
Upcoming myositis video sessions
This is not an exhaustive list as we will be adding additional sessions as needed. Support sessions are are private and never recorded.
Sew and no-sew fabric masks - Join MSU, led by Emily Filmore, for a video session to make masks toge...April 10 @ 2:00 pm - 3:30 pm EDT
Myositis patients, join us for real-time video support, the first Wednesday of each month at 7 PM Ea...April 18 @ 3:00 pm - 4:30 pm EDT
Inclusion body myositis patients, join us for real-time video support, the last Friday of the month ...April 24 @ 5:00 pm - 6:30 pm EDT