Coronavirus (COVID-19) and Myositis Update

We posted our first article about COVID-19 on March 3, 2020, “Coronavirus Concerns and Myositis.” Since that article, COVID-19 has been declared a pandemic. The CDC’s guidance asks us to use an abundance of caution and to self-isolate if possible.

The best way to prevent catching or spreading coronavirus is often and thorough hand washingsocial distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. 

Download our list of resources in a PDF format

MSU COVID-19 and Myositis Resources (PDF)

COVID-19 resources helpful for the myositis community

Wearing Fabric Face Coverings in Public

The CDC now recommends Americans wear fabric face coverings in public, in addition to the other guidelines to help slow the spread of COVID-19. The link below provides information about fabric face coverings and how to make them.

Use of Cloth Face Coverings to Help Slow the Spread of COVID-19

Join MSU to make fabric masks together via video, April 10th at 2 PM ET.

See the event details and register to attend

We have some answers to myositis patient and caregiver questions

Additional Q&A in written form will be added soon as well.

Watch “COVID-19 and Myositis, a live Q&A with Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli

White House extends coronavirus guidelines

“30 Days to Slow the Spread” guidelines (PDF)

CDC: Coronavirus (COVID-19)

Hand Washing

If You Are at Higher Risk

How to Protect Yourself 

Managing Stress & Anxiety

Emotional Health

Workplace, School, and Home Guidance from the CDC (PDF)

Coronavirus disease (COVID-19) Outbreak – WHO

From the World Health Organization (WHO)

Myositis 101 for patients, videos about COVID-19

Dr. Rohit Aggarwal, Co-Director of Myositis Center of the University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of the book “Managing Myositis: A Practical Guide” explains to patients in simple words about COVID-19, as well as what should we do.

COVID-19 & Immunosuppressive Drugs
Chloroquine & Hydroxychloroquine in COVID-19

Additional COVID-19 Resources

Print this so you don’t bring coronavirus home

“With the help of physicians and infectious disease experts, we built a tip sheet to make sure you don’t bring the virus back with you. Here are printable versions in English, Spanish and Chinese.” CNN

“One dangerous coronavirus ‘self-check test’ is circulating on social media. Here’s why you should avoid it.”

From CNN – In an interview with Dr. Robert Legare Atmar, an infectious disease specialist at Baylor College of Medicine, CNN shares a myth-busting article.

A Message from the ACR about Coronavirus Disease 2019 (COVID-19)

From American College of Rheumatology (ACR)

Coronavirus and Arthritis: What You Need to Know

From The Arthritis Foundation

Protecting Yourself During the Spread of COVID-19

From The American Lung Association 


Emergency Preparedness

Food Safety and the Coronavirus Disease 2019 (COVID-19)

Mental Health and COVID-19

From Mental Health America

Johns Hopkins Resource Center

Coronavirus Resource Center

How long can COVID-19 live on surfaces? 

Medicare Telehealth Expansion

Telehealth Fact Sheet

Telehealth Frequently Asked Questions

Upcoming myositis video sessions

This is not an exhaustive list as we will be adding additional sessions as needed. Support sessions are are private and never recorded.

See MSU’s evolving plans for supporting the myositis community during the COVID-19 pandemic



Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

  1. Jerry Williams 1 week ago

    Hi Lizzy. That is a great question. We would suggest discussing that with your physician and an attorney (if needed). It is a topic we could address during our live webinar Tuesday at 2 PM ET if you are able to join.

  2. Lizzy 1 week ago

    Hi! Great resources. I have a question about Advance Care Directives. Mine currently states that I don’t want to go on a ventilator. Given CV treatment often ends in a ventilator, where can I get some thoughts and advice and guidance on updating my ACD – what are the chances of coming off the vent? This is my main worry at the moment…

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© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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