Get Involved, #Giving4Myositis 2017

Through December 31, 2017
Join MSU for #Giving4Myositis Year-End Campaign

Join us and make a huge impact

Join our 2017 year-end Fun, Awareness, and Fundraising Campaign, #Giving4Myositis!

Mark your calendar, subscribe for email updates, and Like our Facebook page to stay updated about #Giving4Myositis.

Donation Options

Many ways to donate to make a difference

Join us for #Giving4Myositis

There are many reasons why donating to MSU is beneficial to you and to our members. First, MSU is an all volunteer-managed organization meaning that over 90% of your donation goes directly to helping myositis patients and their care partners. Also, your donation is tax-deductible.

MSU operates on the donations you provide to create new programs and services, as well as continuing to operate those already in existence. We have many plans for the future, but without funding, they will never come to light.

So, we are looking to you, myositis patients, family members, friends, and the public to help us help our members through education, financial assistance, support, and advocacy. You can make a difference with a donation as little as $5. Setting up a recurring monthly donation will have an even larger impact.

We are a nonprofit operated by volunteers, founded by Myositis patients for Myositis patients.

The #GivingTuesday fundraiser, #Giving4Myositis, will go through to the end of 2017!

Donate via PayPal Giving Fund

When you donate using the special linked button below using the PayPal Giving Fund, PayPal will not charge any fees, and, all of December 2017, they will add an additional 1% to your donation.  So 101% comes back to us.

Donate on our Website

Want to donate and make your donation in honor of or in memory of someone special? Donate on our website using the button below.

Donate by Mail

Make your check or money order payable to MSU and mail to:

MSU, 9125 N. Old State Road
Lincoln, DE 19960

Volunteer Opportunities

Ways to donate your time and make a difference

Donate your time

As an all volunteer-managed nonprofit organization, we look to other patients, caregivers, family members, friends, and anyone who is interested in volunteering their time to MSU.

Whether you can give one hour a week or 30 hours a week, you will be helping us in our day-to-day operations so that we continue the hard work we have started.

Sign up to volunteer, apply to join us as a board member, and let us know if you are interested in being a support group administrator.

There are many opportunities and we look forward to hearing from you.

Get started today by seeing what your interests are.

Have fun with Contests

Join Support Group Cover Photo Design Contest

Support Group Cover Photo Design Contest

It’s time we have some fun!

Join MSU and our Facebook Support Groups for our Cover Photo Design Contest starting now!

Our groups use the cover photo (the photo at the very top of each group’s page) to relay some important information but we also want it to be fun, inspirational, and graphically pleasing to the eye.

As a part of our #Giving4Myositis Year-End campaign, we want our members to be the ones to design the January 2017 group cover. You have until 11:59PM EST, December 22nd to complete and upload your design using the button below.

Facebook has recently changed the dimensions of group cover photos and we have not been able to find the new dimensions, even from Facebook themselves.To help, we have created a template you can use.

The template from one of our group’s cover photos we marked-up to show guides and to use for dimensions can be downloaded here:  Download the  marked-up example to use

(For those who are a member of more than one group, you are only eligible to enter the content for one of the groups.)

Group Cover Photo Guidelines

Some things on the cover photo must be present including the following wording:

  • The name of the group with MSU at the start. (i.e. MSU Home Group)
  • Wording “This is a closed support group.”
  • Wording “See description and answer all qualifying questions to join”
  • Our website, “UnderstandingMyositis.org”

If the above are not present on your design, we will attempt to notify you and give you an additional 24 hours to reupload.

Winning designers may be asked to change certain aspect prior to releasing for group vote.

Just some basic legal stuff

To avoid any issues, and considering we are a nonprofit organization, here are some legal things to consider.

  • Avoid using copyright materials.
  • Avoid using any images, elements, or phrasing of religious or political nature.
  • Keep it clean, obviously. No nudity, foul language or elements/images suggestive of these.
  • By uploading and submitting your cover photo design, you transfer any copyright to MSU and allow us to use it anywhere we choose.

Create your own Myositis Facebook Fundraiser

We believe in the power of our passionate volunteers, members, and supporters and this is why we are asking you to help us by creating your own MSU fundraiser for #Giving4Myositis.

In order to help myositis patients, we need to shine a light on Myositis by raising awareness and educating patients, caregivers, physicians, physical therapists, and other healthcare providers on how to recognize the symptoms and react swiftly to diagnose and start treatment, both medicinal and physical therapy. It still takes over 3 years for many to get a proper diagnosis.

As more and more research and clinical trials are focused on Idiopathic Inflammatory Myopathies, we are working to help match patients with ongoing studies. This impacts all patients as drugs designed specifically for myositis are brought to market.

You can help us continue the important patient-centered work we are doing by creating your own fundraiser, making a financial contribution, signing up to Volunteer, and in many other ways. We thank you for your support!

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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